{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,13]],"date-time":"2026-09-13T11:22:27Z","timestamp":1789298547956,"version":"build-2803163510"},"reference-count":21,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2019,7,3]],"date-time":"2019-07-03T00:00:00Z","timestamp":1562112000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2019,7,3]],"date-time":"2019-07-03T00:00:00Z","timestamp":1562112000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Surg Int"],"published-print":{"date-parts":[[2019,9]]},"DOI":"10.1007\/s00383-019-04508-y","type":"journal-article","created":{"date-parts":[[2019,7,3]],"date-time":"2019-07-03T13:02:53Z","timestamp":1562158973000},"page":"953-961","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":24,"title":["A survey of adults with anorectal malformations: perspectives on educational, vocational, and psychosocial experiences"],"prefix":"10.1007","volume":"35","author":[{"given":"Laura","family":"Judd-Glossy","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Merlin","family":"Ariefdjohan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefanie","family":"Curry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jill","family":"Ketzer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alberto","family":"Pena","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"Bischoff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2019,7,3]]},"reference":[{"key":"4508_CR1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2019.03.004","author":"M Cassina","year":"2019","unstructured":"Cassina M, Fascetti Leon F, Ruol M, Chiarenza SF, Scire G, Midrio P, Clementi M, Gamba P (2019) Prevalence and survival of patients with anorectal malformations: a population-based study. J Pediatr Surg. \n                    https:\/\/doi.org\/10.1016\/j.jpedsurg.2019.03.004","journal-title":"J Pediatr Surg."},{"issue":"2","key":"4508_CR2","doi-asserted-by":"publisher","first-page":"233","DOI":"10.1007\/s00383-018-4401-7","volume":"35","author":"S Acker","year":"2019","unstructured":"Acker S, Pena A, Wilcox D, Alaniz V, Bischoff A (2019) Transition of care: a growing concern in adult patients born with colorectal anomalies. Pediatr Surg Int 35(2):233\u2013237. \n                    https:\/\/doi.org\/10.1007\/s00383-018-4401-7","journal-title":"Pediatr Surg Int"},{"issue":"4","key":"4508_CR3","doi-asserted-by":"publisher","first-page":"323","DOI":"10.1016\/S2352-4642(17)30026-3","volume":"1","author":"A Bischoff","year":"2017","unstructured":"Bischoff A, Bealer J, Pe\u00f1a A (2017) Controversies in anorectal malformations. The Lancet Child Adolescent Health 1(4):323\u2013330. \n                    https:\/\/doi.org\/10.1016\/s2352-4642(17)30026-3","journal-title":"The Lancet Child Adolescent Health"},{"issue":"12","key":"4508_CR4","doi-asserted-by":"publisher","first-page":"1027","DOI":"10.1007\/s00383-009-2502-z","volume":"25","author":"A Bischoff","year":"2009","unstructured":"Bischoff A, Levitt MA, Pena A (2009) Bowel management for the treatment of pediatric fecal incontinence. Pediatr Surg Int 25(12):1027\u20131042. \n                    https:\/\/doi.org\/10.1007\/s00383-009-2502-z","journal-title":"Pediatr Surg Int"},{"issue":"4","key":"4508_CR5","doi-asserted-by":"publisher","first-page":"398","DOI":"10.1136\/adc.2007.118133","volume":"96","author":"EE Hartman","year":"2011","unstructured":"Hartman EE, Oort FJ, Aronson DC, Sprangers MA (2011) Quality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung's disease: a review. Arch Dis Child 96(4):398\u2013406. \n                    https:\/\/doi.org\/10.1136\/adc.2007.118133","journal-title":"Arch Dis Child"},{"issue":"6","key":"4508_CR6","doi-asserted-by":"publisher","first-page":"e330","DOI":"10.1111\/codi.12186","volume":"15","author":"S Mantoo","year":"2013","unstructured":"Mantoo S, Meurette G, Wyart V, Hardouin J, Cretolle C, Capito C, Sarnacki S, Podevin G, Lehur PA (2013) The impact of anorectal malformations on anorectal function and social integration in adulthood: report from a national database. Colorectal Dis 15(6):e330\u2013335. \n                    https:\/\/doi.org\/10.1111\/codi.12186","journal-title":"Colorectal Dis"},{"issue":"3","key":"4508_CR7","doi-asserted-by":"publisher","first-page":"463","DOI":"10.1016\/j.jpedsurg.2016.10.051","volume":"52","author":"J Danielson","year":"2017","unstructured":"Danielson J, Karlbom U, Graf W, Wester T (2017) Outcome in adults with anorectal malformations in relation to modern classification\u2014which patients do we need to follow beyond childhood? J Pediatr Surg 52(3):463\u2013468. \n                    https:\/\/doi.org\/10.1016\/j.jpedsurg.2016.10.051","journal-title":"J Pediatr Surg"},{"issue":"2","key":"4508_CR8","doi-asserted-by":"publisher","first-page":"151","DOI":"10.1007\/s00383-009-2541-5","volume":"26","author":"C Grano","year":"2010","unstructured":"Grano C, Aminoff D, Lucidi F, Violani C (2010) Disease-specific quality of life in children and adults with anorectal malformations. Pediatr Surg Int 26(2):151\u2013155. \n                    https:\/\/doi.org\/10.1007\/s00383-009-2541-5","journal-title":"Pediatr Surg Int"},{"issue":"8","key":"4508_CR9","doi-asserted-by":"publisher","first-page":"823","DOI":"10.1007\/s00383-014-3532-8","volume":"30","author":"C Grano","year":"2014","unstructured":"Grano C, Bucci S, Aminoff D, Lucidi F, Violani C (2014) Feelings of depression in people with ARM: the role of critical incidents and perceived difficulties in close and sexual relationships. Pediatr Surg Int 30(8):823\u2013828. \n                    https:\/\/doi.org\/10.1007\/s00383-014-3532-8","journal-title":"Pediatr Surg Int"},{"issue":"8","key":"4508_CR10","doi-asserted-by":"publisher","first-page":"763","DOI":"10.1007\/s00383-014-3527-5","volume":"30","author":"A Bischoff","year":"2014","unstructured":"Bischoff A, Frischer J, Dickie BH, Pena A (2014) Anorectal malformation without fistula: a defect with unique characteristics. Pediatr Surg Int 30(8):763\u2013766. \n                    https:\/\/doi.org\/10.1007\/s00383-014-3527-5","journal-title":"Pediatr Surg Int"},{"issue":"7","key":"4508_CR11","doi-asserted-by":"publisher","first-page":"961","DOI":"10.1053\/jpsu.2002.33816","volume":"37","author":"NG Rosen","year":"2002","unstructured":"Rosen NG, Hong AR, Soffer SZ, Rodriguez G, Pe\u00f1a A (2002) Rectovaginal fistula: a common diagnostic error with significant consequences in girls with anorectal malformations. J Pediatr Surg 37(7):961\u2013965. \n                    https:\/\/doi.org\/10.1053\/jpsu.2002.33816","journal-title":"J Pediatr Surg"},{"key":"4508_CR12","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1016\/j.ridd.2017.10.010","volume":"72","author":"M Heifetz","year":"2018","unstructured":"Heifetz M, Lunsky Y (2018) Implementation and evaluation of health passport communication tools in emergency departments. Res Dev Disabil 72:23\u201332. \n                    https:\/\/doi.org\/10.1016\/j.ridd.2017.10.010","journal-title":"Res Dev Disabil"},{"issue":"2","key":"4508_CR13","doi-asserted-by":"publisher","first-page":"125","DOI":"10.1177\/1474515116643622","volume":"16","author":"CW Chen","year":"2017","unstructured":"Chen CW, Su WJ, Chiang YT, Shu YM, Moons P (2017) Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare providers. Eur J Cardiovasc Nurs 16(2):125\u2013135. \n                    https:\/\/doi.org\/10.1177\/1474515116643622","journal-title":"Eur J Cardiovasc Nurs"},{"key":"4508_CR14","unstructured":"Office of Civil Rights (OCR) (1990) American with Disabilities Act (ADA). US Department of Education. \n                    https:\/\/www2.ed.gov\/about\/offices\/list\/ocr\/docs\/hq9805.html\n                    \n                  . Accessed May 1, 2019."},{"key":"4508_CR15","unstructured":"US Department of Education (1990) Individuals with Disabilities Education Act (IDEA). \n                    https:\/\/sites.ed.gov\/idea\/about-idea\/\n                    \n                  . Accessed May 1, 2019."},{"key":"4508_CR16","unstructured":"Ruddock PM (2006) Disability standards for education 2005 (plus guidance notes). Making education and training accessible to students with disability. Attorney General's Department. Department of Education, Science and Training. Commonwealth of Australia. Issue 17 March 2015, pp 1\u201354."},{"key":"4508_CR17","unstructured":"Equality and Human Rights Commission (2015) Reasonable adjustments for disabled pupils: guidance for schools in England. ISBN 978-1-84206-537-2."},{"key":"4508_CR18","unstructured":"Department of Economic and Social Affairs (2019) Convention on the Rights of Persons with Disabilities (CRPD). United Nations. \n                    https:\/\/www.un.org\/development\/desa\/disabilities\/convention-on-the-rights-of-persons-with-disabilities\/convention-on-the-rights-of-persons-with-disabilities-2.html\n                    \n                  . Last updated April 15, 2019."},{"key":"4508_CR19","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2018.1451926","author":"S Lindsay","year":"2018","unstructured":"Lindsay S, Cagliostro E, Leck J, Shen W, Stinson J (2018) Disability disclosure and workplace accommodations among youth with disabilities. Disabil Rehabil. \n                    https:\/\/doi.org\/10.1080\/09638288.2018.1451926","journal-title":"Disabil Rehabil"},{"key":"4508_CR20","unstructured":"World Health Organization (2017) Depression and other common mental disorders: global health estimates. License: CC BY-NGSA 3.0 IGO, Geneva"},{"key":"4508_CR21","doi-asserted-by":"publisher","DOI":"10.1055\/s-0038-1660449","author":"A Ben Ari","year":"2018","unstructured":"Ben Ari A, Margalit D, Udassin R, Benarroch F (2018) Traumatic stress among school-aged pediatric surgery patients and their parents. Eur J Pediatr Surg. \n                    https:\/\/doi.org\/10.1055\/s-0038-1660449","journal-title":"Eur J Pediatr Surg"}],"container-title":["Pediatric Surgery International"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00383-019-04508-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s00383-019-04508-y\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00383-019-04508-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,7,1]],"date-time":"2020-07-01T23:43:48Z","timestamp":1593647028000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s00383-019-04508-y"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,7,3]]},"references-count":21,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2019,9]]}},"alternative-id":["4508"],"URL":"https:\/\/doi.org\/10.1007\/s00383-019-04508-y","relation":{},"ISSN":["0179-0358","1437-9813"],"issn-type":[{"value":"0179-0358","type":"print"},{"value":"1437-9813","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,7,3]]},"assertion":[{"value":"20 June 2019","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"3 July 2019","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}}]}}