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Demographics were collected and ethical approval was obtained.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Among 132 parents (77 mothers) of 91 children (median age 8\u00a0years), high HL scores appeared in the domains \u201cunderstanding health information\u201d and \u201cactive engagement\u201d, with lower scores in \u201cprovider support\u201d, \u201chealth information appraisal\u201d, and \u201csocial support\u201d. Higher HL correlated with parents aged over 40 and higher education. Lower scores were seen with non-exclusive Norwegian use at home and not living with the child\u2019s other parent. High electronic HL scores were common (mean 3.6, maximum score 5). 69% had high self-efficacy scores (score\u2009&gt;\u20092, maximum score 4). Self-efficacy correlated strongly with higher HL scores.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Parents of children with HD feel healthcare providers lack understanding of their child\u2019s challenges, experience limited social support and struggle with interpreting health information. We suggest targeted HL interventions for young, lower-educated, non-cohabitating parents and those not primarily speaking the official language at home.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Graphical abstract<\/jats:title>\n                  <\/jats:sec>","DOI":"10.1007\/s00383-024-05917-4","type":"journal-article","created":{"date-parts":[[2024,12,4]],"date-time":"2024-12-04T22:38:00Z","timestamp":1733351880000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Health literacy in parents of children with Hirschsprung disease: a novel study"],"prefix":"10.1007","volume":"41","author":[{"given":"Signe","family":"Olsb\u00f8","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sara George","family":"Kiserud","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00c5smund","family":"Hermansen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Hamilton Larsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Bj\u00f8rnland","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,12,5]]},"reference":[{"issue":"1","key":"5917_CR1","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1016\/0022-3468(92)90111-J","volume":"27","author":"ET Ryan","year":"1992","unstructured":"Ryan ET, Ecker JL, Christakis NA, Folkman J (1992) Hirschsprung\u2019s disease: associated abnormalities and demography. 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