{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T19:49:26Z","timestamp":1792180166161,"version":"4.4.0"},"reference-count":35,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2014,12,7]],"date-time":"2014-12-07T00:00:00Z","timestamp":1417910400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Clin Res Cardiol"],"published-print":{"date-parts":[[2015,5]]},"DOI":"10.1007\/s00392-014-0792-1","type":"journal-article","created":{"date-parts":[[2014,12,8]],"date-time":"2014-12-08T14:26:32Z","timestamp":1418048792000},"page":"388-400","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":33,"title":["Psychosocial functioning of adults with congenital heart disease: outcomes of a 30\u201343 year longitudinal follow-up"],"prefix":"10.1007","volume":"104","author":[{"given":"Petra","family":"Opi\u0107","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jolien W.","family":"Roos-Hesselink","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judith A. A.","family":"Cuypers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maarten","family":"Witsenburg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annemien","family":"van den Bosch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ron T.","family":"van Domburg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ad J. J. C.","family":"Bogers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabeth M. W. J.","family":"Utens","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2014,12,7]]},"reference":[{"key":"792_CR1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.jacc.2005.02.083","volume":"46","author":"CA Warnes","year":"2005","unstructured":"Warnes CA (2005) The adult with congenital heart disease: born to be bad? J Am Coll Cardiol 46:1\u20138","journal-title":"J Am Coll Cardiol"},{"key":"792_CR2","doi-asserted-by":"crossref","first-page":"256","DOI":"10.1056\/NEJM200001273420407","volume":"342","author":"ME Brickner","year":"2000","unstructured":"Brickner ME, Hillis LD, Lange RA (2000) Congenital heart disease in adults. First of two parts. N Engl J Med 342:256\u2013263","journal-title":"N Engl J Med"},{"key":"792_CR3","doi-asserted-by":"crossref","first-page":"2214","DOI":"10.1161\/01.CIR.91.8.2214","volume":"91","author":"J Roos-Hesselink","year":"1995","unstructured":"Roos-Hesselink J, Perlroth MG, McGhie J, Spitaels S (1995) Atrial arrhythmias in adults after repair of tetralogy of Fallot. Correlations with clinical, exercise, and echocardiographic findings. Circulation 91:2214\u20132219","journal-title":"Circulation"},{"key":"792_CR4","doi-asserted-by":"crossref","first-page":"1264","DOI":"10.1016\/j.ehj.2004.03.009","volume":"25","author":"JW Roos-Hesselink","year":"2004","unstructured":"Roos-Hesselink JW, Meijboom FJ, Spitaels SE, van Domburg R, van Rijen EH, Utens EM, McGhie J, Bos E, Bogers AJ, Simoons ML (2004) Decline in ventricular function and clinical condition after Mustard repair for transposition of the great arteries (a prospective study of 22\u201329\u00a0years). Eur Heart J 25:1264\u20131270","journal-title":"Eur Heart J"},{"issue":"4 Pt 1","key":"792_CR5","doi-asserted-by":"crossref","first-page":"883","DOI":"10.1016\/S0022-5223(05)80154-0","volume":"110","author":"F Meijboom","year":"1995","unstructured":"Meijboom F, Szatmari A, Deckers JW, Utens EM, Roelandt JR, Bos E, Hess J (1995) Cardiac status and health-related quality of life in the long term after surgical repair of tetralogy of Fallot in infancy and childhood. J Thorac Cardiovasc Surg 110(4 Pt 1):883\u2013891","journal-title":"J Thorac Cardiovasc Surg"},{"key":"792_CR6","doi-asserted-by":"crossref","first-page":"745","DOI":"10.1016\/0022-3999(94)90027-2","volume":"38","author":"EM Utens","year":"1994","unstructured":"Utens EM, Verhulst FC, Erdman RA, Meijboom FJ, Duivenvoorden HJ, Bos E, Roelandt JR, Hess J (1994) Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. J Psychosom Res 38:745\u2013758","journal-title":"J Psychosom Res"},{"key":"792_CR7","doi-asserted-by":"crossref","first-page":"415","DOI":"10.1017\/S0033291700028518","volume":"23","author":"EM Utens","year":"1993","unstructured":"Utens EM, Verhulst FC, Meijboom FJ, Duivenvoorden HJ, Erdman RA, Bos E, Roelandt JT, Hess J (1993) Behavioural and emotional problems in children and adolescents with congenital heart disease. Psychol Med 23:415\u2013424","journal-title":"Psychol Med"},{"key":"792_CR8","doi-asserted-by":"crossref","first-page":"673","DOI":"10.1016\/S0195-668X(02)00749-2","volume":"24","author":"EH Rijen van","year":"2003","unstructured":"van Rijen EH, Utens EM, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR, Bogers AJ, Verhulst FC (2003) Psychosocial functioning of the adult with congenital heart disease: a 20\u201333\u00a0years follow-up. Eur Heart J 24:673\u2013683","journal-title":"Eur Heart J"},{"key":"792_CR9","doi-asserted-by":"crossref","first-page":"1605","DOI":"10.1016\/j.ehj.2004.06.025","volume":"25","author":"EH Rijen van","year":"2004","unstructured":"van Rijen EH, Utens EM, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR, Bogers AJ, Verhulst FC (2004) Medical predictors for psychopathology in adults with operated congenital heart disease. Eur Heart J 25:1605\u20131613","journal-title":"Eur Heart J"},{"key":"792_CR10","unstructured":"Netherlands Central Bureau of Statistics (2011)"},{"key":"792_CR11","volume-title":"Nederlandse persoonlijkheidsvragenlijst-2 (NPV-2)","author":"DPH Barelds","year":"2013","unstructured":"Barelds DPH, Luteijn F, van Dijk H, Starren H (2013) Nederlandse persoonlijkheidsvragenlijst-2 (NPV-2). Harcourt Test Publishers, Amsterdam"},{"key":"792_CR12","doi-asserted-by":"crossref","first-page":"407","DOI":"10.1097\/00149831-200606000-00017","volume":"13","author":"P Moons","year":"2006","unstructured":"Moons P, Van Deyk K, De Bleser L, Marquet K, Raes E, De Geest S, Budts W (2006) Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil 13:407\u2013413","journal-title":"Eur J Cardiovasc Prev Rehabil"},{"key":"792_CR13","doi-asserted-by":"crossref","first-page":"714","DOI":"10.1097\/01.psy.0000132874.52202.21","volume":"66","author":"SS Pedersen","year":"2004","unstructured":"Pedersen SS, van Domburg RT, Theuns DA, Jordaens L, Erdman RA (2004) Type D personality is associated with increased anxiety and depressive symptoms in patients with an implantable cardioverter defibrillator and their partners. Psychosom Med 66:714\u2013719","journal-title":"Psychosom Med"},{"key":"792_CR14","doi-asserted-by":"crossref","first-page":"e143","DOI":"10.1016\/j.jacc.2008.10.001","volume":"52","author":"CA Warnes","year":"2008","unstructured":"Warnes CA, Williams RG, Bashore TM, Child JS, Connolly HM, Dearani JA, del Nido P, Fasules JW, Graham TP Jr, Hijazi ZM, Hunt SA, King ME, Landzberg MJ, Miner PD, Radford MJ, Walsh EP, Webb GD, Smith SC Jr, Jacobs AK, Adams CD, Anderson JL, Antman EM, Buller CE, Creager MA, Ettinger SM, Halperin JL, Hunt SA, Krumholz HM, Kushner FG, Lytle BW, Nishimura RA, Page RL, Riegel B, Tarkington LG, Yancy CW, American College of Cardiology, American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease), Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, Society of Thoracic Surgeons (2008) ACC\/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology\/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons. J Am Coll Cardiol 52:e143\u2013e263","journal-title":"J Am Coll Cardiol"},{"key":"792_CR15","doi-asserted-by":"crossref","first-page":"651","DOI":"10.1192\/bjp.116.535.651","volume":"116","author":"AE Maxwell","year":"1970","unstructured":"Maxwell AE (1970) Comparing the classification of subjects by two independent judges. Br J Psychiatry 116:651\u2013655","journal-title":"Br J Psychiatry"},{"key":"792_CR16","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1136\/hrt.2003.029280","volume":"91","author":"L Daliento","year":"2005","unstructured":"Daliento L, Mapelli D, Russo G, Scarso P, Limongi F, Iannizzi P, Melendugno A, Mazzotti E, Volpe B (2005) Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart 91:213\u2013218","journal-title":"Heart"},{"key":"792_CR17","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1097\/00005082-200603000-00003","volume":"21","author":"LC Simko","year":"2006","unstructured":"Simko LC, McGinnis KA, Schembri J (2006) Educational needs of adults with congenital heart disease. J Cardiovasc Nurs 21:85\u201394","journal-title":"J Cardiovasc Nurs"},{"key":"792_CR18","doi-asserted-by":"crossref","first-page":"168","DOI":"10.1053\/j.pcsu.2005.01.011","volume":"2005","author":"HI Sairanen","year":"2005","unstructured":"Sairanen HI, Nieminen HP, Jokinen EV (2005) Late results and quality of life after pediatric cardiac surgery in Finland: a population-based study of 6,461 patients with follow-up extending up to 45 years. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2005:168\u2013172","journal-title":"Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu"},{"key":"792_CR19","doi-asserted-by":"crossref","first-page":"1345","DOI":"10.1542\/peds.112.6.1345","volume":"112","author":"H Nieminen","year":"2003","unstructured":"Nieminen H, Sairanen H, Tikanoja T, Leskinen M, Ekblad H, Galambosi P, Jokinen E (2003) Long-term results of pediatric cardiac surgery in Finland: education, employment, marital status, and parenthood. Pediatrics 112:1345\u20131350","journal-title":"Pediatrics"},{"key":"792_CR20","doi-asserted-by":"crossref","first-page":"417","DOI":"10.1017\/S1047951111001934","volume":"22","author":"E Bygstad","year":"2012","unstructured":"Bygstad E, Pedersen LC, Pedersen TA, Hjortdal VE (2012) Tetralogy of Fallot in men: quality of life, family, education, and employment. Cardiol Young 22:417\u2013423","journal-title":"Cardiol Young"},{"key":"792_CR21","doi-asserted-by":"crossref","first-page":"1034","DOI":"10.1177\/1741826711420000","volume":"19","author":"T Takken","year":"2012","unstructured":"Takken T, Giardini A, Reybrouck T, Gewillig M, H\u00f6vels-G\u00fcrich HH, Longmuir PE, McCrindle BW, Paridon SM, Hager A (2012) Recommendations for physical activity, recreation sport, and exercise training in paediatric patients with congenital heart disease: a report from the Exercise, Basic & Translational Research Section of the European Association of Cardiovascular Prevention and Rehabilitation, the European Congenital Heart and Lung Exercise Group, and the Association for European Paediatric Cardiology. Eur J Prev Cardiol 19:1034\u20131065","journal-title":"Eur J Prev Cardiol"},{"issue":"1","key":"792_CR22","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1007\/s00392-011-0364-6","volume":"101","author":"J M\u00fcller","year":"2012","unstructured":"M\u00fcller J, Hess J, Hager A (2012) Daily physical activity in adults with congenital heart disease is positively correlated with exercise capacity but not with quality of life. Clin Res Cardiol 101(1):55\u201361","journal-title":"Clin Res Cardiol"},{"key":"792_CR23","unstructured":"Moons P (2004) Quality of life in adults with congenital heart disease: beyond the quantity of life. Dissertation, Katholieke Universiteit Leuven"},{"key":"792_CR24","doi-asserted-by":"crossref","first-page":"1359","DOI":"10.1016\/j.athoracsur.2003.09.073","volume":"77","author":"P Moons","year":"2004","unstructured":"Moons P, De Bleser L, Budts W, Sluysmans T, De Wolf D, Massin M, Gewillig M, Pasquet A, Suys B, Vliers A (2004) Health status, functional abilities, and quality of life after the Mustard or Senning operation. Ann Thorac Surg 77:1359\u20131365 (discussion 1365)","journal-title":"Ann Thorac Surg"},{"key":"792_CR25","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1007\/s11065-006-9005-7","volume":"16","author":"M Miatton","year":"2006","unstructured":"Miatton M, De Wolf D, Fran\u00e7ois K, Thiery E, Vingerhoets G (2006) Neurocognitive consequences of surgically corrected congenital heart defects: a review. Neuropsychol Rev 16:65\u201385","journal-title":"Neuropsychol Rev"},{"key":"792_CR26","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1016\/j.ejcts.2009.03.023","volume":"36","author":"O Loup","year":"2009","unstructured":"Loup O, von Weissenfluh C, Gahl B, Schwerzmann M, Carrel T, Kadner A (2009) Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery. Eur J Cardiothorac Surg 36:105\u2013111 (discussion 111)","journal-title":"Eur J Cardiothorac Surg"},{"key":"792_CR27","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1017\/S1047951112002351","volume":"23","author":"T Fteropoulli","year":"2013","unstructured":"Fteropoulli T, Stygall J, Cullen S, Deanfield J, Newman SP (2013) Quality of life of adult congenital heart disease patients: a systematic review of the literature. Cardiol Young 23:473\u2013485","journal-title":"Cardiol Young"},{"key":"792_CR28","doi-asserted-by":"crossref","first-page":"235","DOI":"10.1111\/j.1747-0803.2007.00103.x","volume":"2","author":"ES Ebenroth","year":"2007","unstructured":"Ebenroth ES, Hurwitz RA (2007) Long-term functional outcome of patients following the mustard procedure: the next decade of follow-up. Congenit Heart Dis 2:235\u2013241","journal-title":"Congenit Heart Dis"},{"key":"792_CR29","doi-asserted-by":"crossref","first-page":"356","DOI":"10.1136\/heart.87.4.356","volume":"87","author":"M Kamphuis","year":"2002","unstructured":"Kamphuis M, Ottenkamp J, Vliegen HW, Vogels T, Zwinderman KH, Kamphuis RP, Verloove-Vanhorick SP (2002) Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 87:356\u2013362","journal-title":"Heart"},{"key":"792_CR30","doi-asserted-by":"crossref","first-page":"1143","DOI":"10.1161\/CIR.0b013e318265ee8a","volume":"126","author":"BS Marino","year":"2012","unstructured":"Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW, Mussatto KA, Uzark K, Goldberg CS, Johnson WH Jr, Li J, Smith SE, Bellinger DC, Mahle WT, American Heart Association Congenital Heart Defects Committee, Council on Cardiovascular Nursing, and Stroke Council, Council on Cardiovascular Disease in the Young (2012) Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation 126:1143\u20131172","journal-title":"Circulation"},{"key":"792_CR31","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/0167-5273(92)90104-B","volume":"36","author":"J Kokkonen","year":"1992","unstructured":"Kokkonen J, Paavilainen T (1992) Social adaptation of young adults with congenital heart disease. Int J Cardiol 36:23\u201329","journal-title":"Int J Cardiol"},{"key":"792_CR32","doi-asserted-by":"crossref","first-page":"260","DOI":"10.1007\/s12529-010-9112-y","volume":"18","author":"L Ong","year":"2011","unstructured":"Ong L, Nolan RP, Irvine J, Kovacs AH (2011) Parental overprotection and heart-focused anxiety in adults with congenital heart disease. Int J Behav Med 18:260\u2013267","journal-title":"Int J Behav Med"},{"key":"792_CR33","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1016\/j.ejcnurse.2004.12.003","volume":"4","author":"P Claessens","year":"2005","unstructured":"Claessens P, Moons P, de Casterl\u00e9 BD, Cannaerts N, Budts W, Gewillig M (2005) What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 4:3\u201310","journal-title":"Eur J Cardiovasc Nurs"},{"key":"792_CR34","doi-asserted-by":"crossref","first-page":"92","DOI":"10.1017\/S1047951105002398","volume":"Suppl 1","author":"G Wernovsky","year":"2006","unstructured":"Wernovsky G (2006) Current insights regarding neurological and developmental abnormalities in children and young adults with complex congenital cardiac disease. Cardiol Young Suppl 1:92\u2013104","journal-title":"Cardiol Young"},{"key":"792_CR35","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1007\/s002460010178","volume":"22","author":"BM Ternestedt","year":"2001","unstructured":"Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J (2001) Quality of life 20 and 30\u00a0years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 22:128\u2013132","journal-title":"Pediatr Cardiol"}],"container-title":["Clinical Research in Cardiology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00392-014-0792-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s00392-014-0792-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00392-014-0792-1","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,5,28]],"date-time":"2019-05-28T16:31:10Z","timestamp":1559061070000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s00392-014-0792-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,12,7]]},"references-count":35,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2015,5]]}},"alternative-id":["792"],"URL":"https:\/\/doi.org\/10.1007\/s00392-014-0792-1","relation":{},"ISSN":["1861-0684","1861-0692"],"issn-type":[{"value":"1861-0684","type":"print"},{"value":"1861-0692","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,12,7]]}}}