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Der englische Fragebogen \u201ePsoriasis Arthritis Quality of Life Questionnaire (PsAQoL)\u201c ist ein krankheitsspezifisches Instrument zur Messung der Lebensqualit\u00e4t von Patienten mit Psoriasisarthritis (PsA). Ziel der vorliegenden Arbeit ist die \u00dcbersetzung des PsAQoL ins Deutsche und die Validierung der deutschen Version in einer aus der Routineversorgung rekrutierten Kohorte von PsA-Patienten.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methode<\/jats:title>\n                    <jats:p>Die \u00dcbersetzung und Validierung des Fragebogens PsAQoL wurde in einem mehrstufigen Verfahren unter Beteiligung von betroffenen Patienten mit PsA durchgef\u00fchrt. Nach \u00dcbersetzung des englischsprachigen Fragebogens wurde die deutsche Version in einem Feldtest \u00fcberpr\u00fcft. Die psychometrischen Merkmale des Fragebogens wurden anschlie\u00dfend in einer PsA-Kohorte aus der Routineversorgung untersucht. Neben der Konstrukt- und Gruppenvalidit\u00e4t wurden die Zuverl\u00e4ssigkeit des Fragebogens mittels Test\/Retest-Reliabilit\u00e4t sowie die interne Konsistenz getestet. Die k\u00f6rperliche Funktionsf\u00e4higkeit wurde mit dem Health Assessment Questionnaire (HAQ) und Dom\u00e4nen der Lebensqualit\u00e4t mit dem Nottingham Health Profile (NHP) gemessen.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ergebnis<\/jats:title>\n                    <jats:p>In einem Feldtest mit 10\u00a0Patienten erwies sich die deutsche Version des PsAQoL-Fragebogens als relevant, gut verst\u00e4ndlich und durchf\u00fchrbar (Bearbeitungszeit: 4,7\u202f\u00b1\u20092,1\u202fmin). Insgesamt 126 Patienten (37,3\u202f% m\u00e4nnlich, Alter 55,6\u202f\u00b1\u200911,3\u00a0Jahre) wurden in die Validierungskohorte eingeschlossen. Der PsAQoL korrelierte moderat mit dem HAQ (r\u202f=\u20090,65) sowie moderat bis gut mit dem NHP (Subdom\u00e4nen r\u202f=\u20090,58\u20130,75). Die interne Konsistenz war hoch (Cronbach\u2019s\u00a0\u03b1 0,92), und die Zuverl\u00e4ssigkeit bei Patienten mit stabilem Krankheitsverlauf war sehr gut (Spearman-Korrelationskoeffizient 0,94). Der PsAQoL kann zwischen unterschiedlichen Patientengruppen differenzieren.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Zusammenfassung<\/jats:title>\n                    <jats:p>Mit der deutschen \u00dcbersetzung des PsAQoLs steht ein valides und krankheitsspezifisches Messinstrument zur standardisierten Erfassung der gesundheitsbezogenen Lebensqualit\u00e4t bei Patienten mit PsA zur Verf\u00fcgung. Die psychometrischen Eigenschaften der englischsprachigen Originalversion sind vergleichbar. Der deutsche PsAQoL kann damit f\u00fcr die klinische und wissenschaftliche Verwendung empfohlen werden.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00393-020-00843-x","type":"journal-article","created":{"date-parts":[[2020,8,3]],"date-time":"2020-08-03T08:06:33Z","timestamp":1596441993000},"page":"122-131","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Standardisierte Erfassung der gesundheitsbezogenen Lebensqualit\u00e4t bei Patienten mit\u00a0Psoriasisarthritis","Standardized documentation of health-related quality of life in patients with psoriatic arthritis"],"prefix":"10.1007","volume":"80","author":[{"given":"U.","family":"Kiltz","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"I.","family":"Andreica","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Igelmann","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Kalthoff","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D.","family":"Krause","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Schmitz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S. 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Ein positives Ethikvotum lag f\u00fcr den Feldtest (Nummer 2010-231-f-S) vor. Von allen beteiligten Patienten liegt eine Einverst\u00e4ndniserkl\u00e4rung vor.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Interessenkonflikt"}}]}}