{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T13:47:22Z","timestamp":1791208042438,"version":"4.1.0"},"reference-count":9,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2024,11,13]],"date-time":"2024-11-13T00:00:00Z","timestamp":1731456000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,11,13]],"date-time":"2024-11-13T00:00:00Z","timestamp":1731456000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100018935","name":"Universit\u00e4tsklinikum Erlangen","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100018935","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Z Rheumatol"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n          <jats:sec>\n            <jats:title>Hintergrund\/Ziel<\/jats:title>\n            <jats:p>Patientenedukation ist integraler Bestandteil der Behandlung von Patient*innen mit axialer Spondyloarthritis (axSpA). Allerdings sind die verf\u00fcgbaren validen Messinstrumente zur Erhebung des krankheitsbezogenen Wissens veraltet und im Falle der axSpA nur in englischer Sprache verf\u00fcgbar. Die Ziele dieser Studie waren daher (1)\u00a0die Entwicklung eines geeigneten deutschsprachigen Instruments zur Messung krankheitsspezifischen Wissens bei axSpA-Patient*innen und (2)\u00a0die Pilotierung dieses Instruments.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Methoden<\/jats:title>\n            <jats:p>Verf\u00fcgbare Messinstrumente speziell f\u00fcr die axSpA wurden von einem Expertengremium gepr\u00fcft, und ein Entwurf des aktuellen G\u2011ASKQ7 wurde abgestimmt. Nach Evaluation der Augenscheinvalidit\u00e4t und entsprechenden Anpassungen wurden erwachsene konsekutive axSpA-Patient*innen der rheumatologischen Hochschulambulanz des Universit\u00e4tsklinikums Erlangen gebeten, den Fragebogen auszuf\u00fcllen. Es wurden Korrelationen zwischen dem erreichten Summenscore und weiteren erhobenen Parametern (Alter, Geschlecht und Krankheitsdauer) untersucht.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Ergebnisse<\/jats:title>\n            <jats:p>Der entwickelte G\u2011ASKQ7-Fragebogen umfasst 7\u00a0Fragen, wurde als leicht verst\u00e4ndlich bewertet und innerhalb von durchschnittlich 6,3\u202f\u00b12,0\u202fmin ausgef\u00fcllt; 65\u00a0axSpA-Patient*innen (36\u00a0Frauen; mittleres Alter: 45,3\u202f\u00b1\u200912,4 Jahre; mittlere Erkrankungsdauer: 8,6\u202f\u00b17,3\u00a0Jahre) beantworteten den finalen Fragebogen. Der G\u2011AKSQ7-Mittelwert lag bei 17,8\/25 und war bei Frauen (19,0\/25) signifikant h\u00f6her als bei M\u00e4nnern (16,3\/25) (<jats:italic>p<\/jats:italic>\u202f=\u202f&lt;\u20090,05). Am h\u00e4ufigsten wurde Frage\u00a07 (79,3\u202f%) mit Hinblick auf das Selbstmanagement der Erkrankung korrekt beantwortet. Frage\u00a04 mit Blick auf die Messung der Krankheitsaktivit\u00e4t wurde am schlechtesten beantwortet (55,8\u202f%). Es konnte keine signifikante Korrelation zwischen der Krankheitsdauer (<jats:italic>p<\/jats:italic>\u202f=\u20090,57; r\u202f=\u20090,07; Pearson-Korrelationstest) oder dem Alter (<jats:italic>p<\/jats:italic>\u202f=\u20090,67; r\u202f=\u2009\u22120,05; Pearson-Korrelationstest) und dem krankheitsbezogenen Wissen festgestellt werden.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Diskussion<\/jats:title>\n            <jats:p>Der G\u2011ASKQ7 bietet erstmals ein deutschsprachiges Instrument zur Ermittlung des krankheitsspezifischen Wissens von axSpA-Patient*innen. Durch eine routinem\u00e4\u00dfige Erhebung mittels G\u2011ASKQ7 kann der individuelle Wissensbedarf von Patient*innen niedrigschwellig ermittelt werden, und Edukationsinhalte k\u00f6nnen gezielt auf Patient*innen abgestimmt werden. Eine kontinuierliche Aktualisierung und weitere Evaluationsstudien sind erforderlich.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1007\/s00393-024-01584-x","type":"journal-article","created":{"date-parts":[[2024,11,13]],"date-time":"2024-11-13T04:53:19Z","timestamp":1731473599000},"page":"404-409","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Messung des krankheitsbezogenen Wissens von Patient*innen mit axialer Spondyloarthritis\u00a0\u2013 Entwicklung und Anwendung des G-ASKQ7-Fragebogens","Measurement of disease-related knowledge of patients with axial spondyloarthritis\u2014Development and application of the G-ASKQ7 questionnaire"],"prefix":"10.1007","volume":"84","author":[{"given":"Louis","family":"Schuster","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J\u00f6rg","family":"Henes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthias","family":"Diener","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Felix","family":"M\u00fchlensiepen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ioana","family":"Andreica","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Axel","family":"Hueber","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georg","family":"Schett","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johannes","family":"Knitza","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,11,13]]},"reference":[{"key":"1584_CR1","doi-asserted-by":"publisher","first-page":"727","DOI":"10.1007\/s00393-022-01305-2","volume":"82","author":"K Albrecht","year":"2023","unstructured":"Albrecht\u00a0K, Binder\u00a0S, Minden\u00a0K et\u00a0al (2023) Systematic review to estimate the prevalence of inflammatory rheumatic diseases in Germany. 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L.\u00a0Schuster, J.\u00a0Henes, M.\u00a0Diener, F.\u00a0M\u00fchlensiepen, I.\u00a0Andreica, A.\u00a0Hueber und G.\u00a0Schett geben an, dass kein Interessenkonflikt besteht.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Interessenkonflikt"}},{"value":"Die Studie wurde von der Ethikkommission der Universit\u00e4t T\u00fcbingen genehmigt (Votum Nr. 869\/2021BO2).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Interessenkonflikt"}}]}}