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J Palliat Med. \n                    https:\/\/doi.org\/10.1089\/jpm.2018.0451","journal-title":"J Palliat Med"}],"container-title":["Journal of Neurology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00415-019-09417-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s00415-019-09417-7\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s00415-019-09417-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,6,10]],"date-time":"2020-06-10T23:12:57Z","timestamp":1591830777000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s00415-019-09417-7"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,6,12]]},"references-count":55,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2019,10]]}},"alternative-id":["9417"],"URL":"https:\/\/doi.org\/10.1007\/s00415-019-09417-7","relation":{},"ISSN":["0340-5354","1432-1459"],"issn-type":[{"value":"0340-5354","type":"print"},{"value":"1432-1459","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,6,12]]},"assertion":[{"value":"18 March 2019","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"30 May 2019","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"1 June 2019","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"12 June 2019","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"Carlozzi, N.E. is supported by grant funding from the NIH, the Neilsen Foundation, and CHDI, as well as a government contract from the Center for Medicaid and Medicare Services. She has previously provided patient-reported outcome measurement selection and application consultation for Teva Pharmaceuticals. She declares no conflicts of interest. Boileau, N.R. is supported by grant funding from the NIH, the Neilsen Foundation and CHDI. He declares no conflicts of interest. Paulsen, J.S. currently has research grants from the NIH; she is also supported by grant funding from NIH, NINDS, and CHDI; she declares no conflicts of interest. Perlmutter, J.S. currently has funding from the NIH, HDSA, CHDI, and APDA. He has received honoraria from the\u00a0University of Rochester, American Academy of Neurology, Movement Disorders Society, Toronto Western Hospital, St. Lukes Hospital in St Louis, Emory U, Penn State, Alberta innovates, Indiana Neurological Society, Parkinson Disease Foundation, Columbia University, St. Louis University, Harvard University and the University of Michigan; he declares no conflicts of interest. Lai J.-S. currently has research grants from the NIH; she declares no conflicts of interest. Hahn, E.A. currently has research grants from the NIH; she is also supported by grant funding from the NIH and PCORI, and by research contracts from Merck and EMMES; she declares no conflicts of interest. McCormack, M.K. currently has grants from the NJ Department of Health; he declares no conflicts of interest. Nance, M.A. declares no conflicts of interest. Cella, D. receives grant funding from the National Institutes of Health and reports that he has no conflicts of interest. Barton, S.K. is supported by grant funding from the Huntington\u2019s Disease Society of America, CHDI Foundation and the NIH. She declares no conflicts of interest. Downing, N.R. is supported by grant funding from the Health Resources and Services Administration and declares no conflicts of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of interest"}},{"value":"All data has been collected in accordance with local institutional review boards.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical standards"}},{"value":"Study participants provided informed consent prior to the participation in study activities.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}