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R. C. van der Bilt reports no disclosures. J. IJspeert reports no disclosures. J. Y. Hogrel reports no disclosures. M. Jeanpierre reports no disclosures. A. Behin reports no disclosures. P. Laforet reports no disclosures. T. Stojkovic received honorarium for travel expenses from CSL Behring, Biogen and LFB biopharmaceuticals. B. G. van Engelen reports grants from Global FSH, grants from Stichting Spieren voor Spieren, grants from Prinses Beatrix Spierfonds, grants from Dutch FSHD Foundation, personal fees and non-financial support from Fulcrum, personal fees from FacioTherapies, during the conduct of the study; grants from European Union\u2019s Horizon 2020 research and innovation programme (Murab), grants from European FP7 programme (OPTIMISTIC), grants from Netherlands Organisation for Scientific Research (NWO), grants from The Netherlands Organisation for Health Research and Development (ZonMw), grants from Association Francaise contre les Myopathies outside the submitted work. G. W. Padberg received honorarium for his work as a scientific director of the European Neuromuscular Centre (ENMC). He also received personal fees and non-financial support from aTyr Pharma and FacioTherapies. S. Sacconi serves as consultant for Alnylam Pharmaceuticals, Biogen, Biotechspert, Sanofi-Genzyme and Spark Therapeutic and served as honorarium speaker for Biogen at SISMA Symposium 2018, Biomarin at European Academy of Neurology 2018, and Sanofi-Genzyme at Pompe Academy 2017. R. J. L. F. Lemmers reports no disclosures. S. Van der Maarel receives honoraria from serving on the clinical advisory board of Fulcrum Pharmaceuticals, receives license fee payments from IBL International GmbH, serves as an editorial board member of Neuromuscular Disorders, and is co-inventor on several patent applications. B. Eymard reports no disclosures. G. Bassez reports no disclosures.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of interest"}}]}}