{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T13:23:12Z","timestamp":1785417792333,"version":"3.56.0"},"reference-count":24,"publisher":"Springer Science and Business Media LLC","issue":"6","license":[{"start":{"date-parts":[[2024,4,12]],"date-time":"2024-04-12T00:00:00Z","timestamp":1712880000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,4,12]],"date-time":"2024-04-12T00:00:00Z","timestamp":1712880000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100000589","name":"Chief Scientist Office","doi-asserted-by":"publisher","award":["CAF\/PSP\/16\/01"],"award-info":[{"award-number":["CAF\/PSP\/16\/01"]}],"id":[{"id":"10.13039\/501100000589","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100011707","name":"PSP Association","doi-asserted-by":"publisher","award":["CAF\/PSP\/16\/01"],"award-info":[{"award-number":["CAF\/PSP\/16\/01"]}],"id":[{"id":"10.13039\/100011707","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Neurol"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>We conducted a systematic review to identify existing ICD-10 coding validation studies in progressive supranuclear palsy and corticobasal syndrome [PSP\/CBS]) and, in a new study, evaluated the accuracy of ICD-10 diagnostic codes for PSP\/CBS in Scottish hospital inpatient and death certificate data.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>Original studies that assessed the accuracy of specific ICD-10 diagnostic codes in PSP\/CBS were sought. Separately, we estimated the positive predictive value (PPV) of specific codes for PSP\/CBS in inpatient hospital data (SMR01, SMR04) compared to clinical diagnosis in four regions. Sensitivity was assessed in one region due to a concurrent prevalence study. For PSP, the consistency of the G23.1 code in inpatient and death certificate coding was evaluated across Scotland.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>No previous ICD-10 validation studies were identified. 14,767 records (SMR01) and 1497 records (SMR04) were assigned the candidate ICD-10 diagnostic codes between February 2011 and July 2019. The best PPV was achieved with G23.1 (1.00, 95% CI 0.93\u20131.00) in PSP and G23.9 in CBS (0.20, 95% CI 0.04\u20130.62). The sensitivity of G23.1 for PSP was 0.52 (95% CI 0.33\u20130.70) and G31.8 for CBS was 0.17 (95% CI 0.05\u20130.45). Only 38.1% of deceased G23.1 hospital-coded cases also had this coding on their death certificate: the majority (49.0%) erroneously assigned the G12.2 code.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Discussion<\/jats:title>\n                <jats:p>The high G23.1 PPV in inpatient data shows it is a useful tool for PSP case ascertainment, but death certificate coding is inaccurate. The PPV and sensitivity of existing ICD-10 codes for CBS are poor due to a lack of a specific code.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s00415-024-12280-w","type":"journal-article","created":{"date-parts":[[2024,4,12]],"date-time":"2024-04-12T17:01:41Z","timestamp":1712941301000},"page":"2929-2937","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Accuracy of routinely collected hospital administrative discharge data and death certificate ICD-10 diagnostic coding in progressive supranuclear palsy and corticobasal syndrome: a systematic review and validation study"],"prefix":"10.1007","volume":"271","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0994-3561","authenticated-orcid":false,"given":"Diane M. A.","family":"Swallow","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carl E.","family":"Counsell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,4,12]]},"reference":[{"key":"12280_CR1","unstructured":"National Records of Scotland. Death Certificates and Coding the Causes of Death. https:\/\/www.nrscotland.gov.uk\/statistics-and-data\/statistics\/statistics-by-theme\/vital-events\/deaths\/deaths-background-information\/death-certificates-and-coding-the-causes-of-death. Accessed Nov 19, 2021"},{"key":"12280_CR2","unstructured":"World Health Organization: History of the Development of the ICD. http:\/\/www.who.int\/classifications\/icd\/en\/HistoryOfICD.pdf. Accessed Nov 19, 2021."},{"key":"12280_CR3","unstructured":"NHS National Services Scotland. SMR Datasets Record Management. https:\/\/www.ndc.scot.nhs.uk\/Data-Dictionary\/SMR-Datasets\/Episode-Management\/SMR-Record-Type\/. Accessed Nov 19, 2021."},{"key":"12280_CR4","unstructured":"National Records of Scotland. NHS Central Register. https:\/\/www.nrscotland.gov.uk\/statistics-and-data\/nhs-central-register. Accessed Nov 19, 2021."},{"issue":"2","key":"12280_CR5","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0172639","volume":"12","author":"S Horrocks","year":"2017","unstructured":"Horrocks S, Wilkinson T, Schnier C et al (2017) Accuracy of routinely-collected healthcare data for identifying motor neurone disease cases: a systematic review. 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Written consent was not sought from prevalent cases, as approved by the HSC-PBPP.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical standards"}}]}}