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OR20-04"]}],"id":[{"id":"10.13039\/501100004243","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Neurol"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>\n                    Guillain\u2013Barr\u00e9 syndrome (GBS) is an acute immune-mediated polyneuropathy with a high disease impact, even after good clinical recovery. The Inflammatory Rasch-built Overall Disability Scale (I-RODS) is a Patient-Reported Outcome Measure (PROM) developed for patients with immune-mediated neuropathies that measures limitations in daily activities and social participation. It consists of 24 items, scored from 0\u201348. The present study aimed to validate the measurement properties of the I-RODS in patients with GBS included in the prospective International GBS Outcome Study (IGOS). The current study focussed on structural validity, cross-cultural validity, internal consistency, and construct validity of I-RODS using Rasch-based methods. The study was conducted in 1226 patients diagnosed with GBS with a median I-RODS score of 28 (IQR 10\u201341) 4 weeks after inclusion into IGOS. Rasch analyses revealed adequate internal consistency (PSI\u2009=\u20090.95;\n                    <jats:italic>\u03b1<\/jats:italic>\n                    \u2009=\u20090.98) and sufficient construct validity, indicated by strong correlations (\n                    <jats:italic>R<\/jats:italic>\n                    \u2009=\u2009\u2212\u00a00.91 to \u2212\u00a00.77). Targeting was acceptable, although there was a skew towards the floor (10.1%) and ceiling (9.4%). However, the I-RODS showed poor unidimensionality (12.1% CI 10.7\u201313.5%) and poor overall fit to the Rasch model. Category thresholds were correctly ordered. Misfit was found in two items. Additionally, 15 of 276 item pairs showed local dependency. While no differential item functioning (DIF) was evident for age or sex, significant DIF by geographic region was observed, with the strongest DIF in one item. These results suggest that the current version of I-RODS could be improved or alternative PROMs for patients with GBS could be developed.\n                  <\/jats:p>","DOI":"10.1007\/s00415-026-13684-6","type":"journal-article","created":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T07:11:25Z","timestamp":1772003485000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Measurement properties of the Inflammatory Rasch-built Overall Disability Scale (I-RODS) in patients with Guillain\u2013Barr\u00e9 syndrome"],"prefix":"10.1007","volume":"273","author":[{"given":"Farah","family":"Pelouto","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nowshin","family":"Papri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juanita A.","family":"Haagsma","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David R.","family":"Cornblath","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eduardo","family":"Nobile-Orazio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eveline J. 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Pelouto, N. Papri, J.A. Haagsma, D. R. Cornblath, E. J. A. Wiegers, K. C. Gorson, and M. C. Horton have no competing interests to declare that are relevant to the content of this article. C.B. Terwee is one of the founders of COSMIN. P.A. van Doorn received research grants from Prinses Beatrix Spierfonds, The Netherlands Organisation for Health Research and Development (ZonMW), Sanquin Blood Supply, Takeda, and Grifols; he is a member of Scientific Advisory Committee\/Steering Committee Trials for Annexon, Argenx, Hansa, Octapharma, Sanofi, and Roche. All grants and fees were paid to his institution. B.C. Jacobs received research grants for work outside the current study from Baxalta, Grifols, CSL-Behring, Annexon, Hansa Biopharma, Roche, Prinses Beatrix Spierfonds, GBS-CIDP Foundation International, and Horizon 2020 and consultancy fees from Roche for activities outside the current study. All grants and fees were paid to his institution. He is the chair of the Steering Committee of the International GBS Outcome Study (IGOS). Y. A. Rajabally has received consultancy honoraria from Sanofi, Argenx, Janssen, LFB, Polyneuron, Grifols, Takeda, Dianthus, Vitaccess, has received educational sponsorships from LFB and CSL Behring and has obtained research grants from LFB. T. Harbo is a member of Scientific Advisory Committee\/Steering Committee for Annexon and member of Scientific Advisory Board of the GBS-CIDP Foundation International. He received honoraria for a\u00a0teaching course\u00a0from Takeda. E. N. Orazio reports personal fees for Advisory or Scientific Board from ArgenX (Belgium), Dianthus (USA); Janssen (USA), LFB (France), Longboard Pharma (USA), Sanofi (USA), Janssen (USA) and Takeda (Italy). He received personal fees for lecturing from CSL-Behring (Italy). He received a research grant from Baxalta\/Takeda, USA, on Multifocal Motor Neuropathy, and from Agenzia Italiana del Farmaco (AIFA) and GBS\/CIDP Foundation International for a randomised trial with rituximab in CIDP. He received travel grants to attend scientific meetings from Kedrion (Italy).","order":1,"name":"Ethics","label":"Conflicts of interest","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The questionnaire and procedure performed in this study were in accordance with the principles of the Declaration of Helsinki (59th WMA General Assembly, Seoul, October 2008) and the Medical Research Involving Human Subjects (WMO). The IGOS was approved by the Medical Ethics Review Committee of the Erasmus MC Medical University Rotterdam in 2012. All participating centres obtained approval from their local Institutional Review Boards (IRBs). Written informed consent was obtained from all participants or their legal representatives prior to inclusion. IGOS is registered at ClinicalTrials.gov (identifier: NCT01582763).","order":2,"name":"Ethics","label":"Ethical approval","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"164"}}