{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T01:11:05Z","timestamp":1785460265377,"version":"3.56.0"},"reference-count":60,"publisher":"Springer Science and Business Media LLC","issue":"2","license":[{"start":{"date-parts":[[2024,7,13]],"date-time":"2024-07-13T00:00:00Z","timestamp":1720828800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2024,7,13]],"date-time":"2024-07-13T00:00:00Z","timestamp":1720828800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Nephrol"],"published-print":{"date-parts":[[2025,2]]},"DOI":"10.1007\/s00467-024-06449-8","type":"journal-article","created":{"date-parts":[[2024,7,13]],"date-time":"2024-07-13T03:24:05Z","timestamp":1720841045000},"page":"329-338","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Bilateral renal agenesis: fetal intervention and outcomes"],"prefix":"10.1007","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5136-5745","authenticated-orcid":false,"given":"Katherine","family":"Jones","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amaris M.","family":"Keiser","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jena L.","family":"Miller","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meredith A.","family":"Atkinson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,7,13]]},"reference":[{"key":"6449_CR1","doi-asserted-by":"publisher","first-page":"403","DOI":"10.1016\/j.bpobgyn.2014.01.009","volume":"28","author":"T Dias","year":"2014","unstructured":"Dias T, Sairam S, Kumarasiri S (2014) Ultrasound diagnosis of fetal renal abnormalities. Best Pract Res Clin Obstet Gynaecol 28:403\u2013415. https:\/\/doi.org\/10.1016\/j.bpobgyn.2014.01.009","journal-title":"Best Pract Res Clin Obstet Gynaecol"},{"key":"6449_CR2","doi-asserted-by":"publisher","first-page":"885","DOI":"10.1016\/S0002-9378(16)39968-9","volume":"51","author":"E Potter","year":"1946","unstructured":"Potter E (1946) Facial characteristics of infants with bilateral renal agenesis. Am J Obstet Gynecol 51:885\u2013888. https:\/\/doi.org\/10.1016\/S0002-9378(16)39968-9","journal-title":"Am J Obstet Gynecol"},{"key":"6449_CR3","doi-asserted-by":"publisher","first-page":"1034","DOI":"10.1016\/S0022-5347(17)35169-8","volume":"151","author":"BG Cilento","year":"1994","unstructured":"Cilento BG, Benacerraf BR, Mandell J (1994) Prenatal and postnatal findings in monochorionic, monoamniotic twins discordant for bilateral renal agenesis-dysgenesis (perinatal lethal renal disease). J Urol 151:1034\u20131035. https:\/\/doi.org\/10.1016\/S0022-5347(17)35169-8","journal-title":"J Urol"},{"key":"6449_CR4","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1002\/(SICI)1096-8628(19971128)73:1<76::AID-AJMG15>3.0.CO;2-O","volume":"73","author":"G Klinger","year":"1997","unstructured":"Klinger G, Merlob P, Aloni D et al (1997) Normal pulmonary function in a monoamniotic twin discordant for bilateral renal agenesis: report and review. Am J Med Genet 73:76\u201379. https:\/\/doi.org\/10.1002\/(SICI)1096-8628(19971128)73:1%3c76::AID-AJMG15%3e3.0.CO;2-O","journal-title":"Am J Med Genet"},{"key":"6449_CR5","doi-asserted-by":"publisher","first-page":"867","DOI":"10.1016\/0029-7844(94)00249-D","volume":"85","author":"MF McNamara","year":"1995","unstructured":"McNamara MF, McCurdy CM, Reed KL et al (1995) The relation between pulmonary hypoplasia and amniotic fluid volume: lessons learned from discordant urinary tract anomalies in monoamniotic twins. Obstet Gynecol 85:867\u2013869. https:\/\/doi.org\/10.1016\/0029-7844(94)00249-D","journal-title":"Obstet Gynecol"},{"key":"6449_CR6","doi-asserted-by":"publisher","first-page":"589","DOI":"10.1016\/j.urology.2003.10.053","volume":"64","author":"MR Perez-Brayfield","year":"2004","unstructured":"Perez-Brayfield MR, Kirsch AJ, Smith EA (2004) Monoamniotic twin discordant for bilateral renal agenesis with normal pulmonary function. Urology 64:589. https:\/\/doi.org\/10.1016\/j.urology.2003.10.053","journal-title":"Urology"},{"key":"6449_CR7","first-page":"872","volume":"83","author":"D Cameron","year":"1994","unstructured":"Cameron D, Lupton BA, Farquharson D, Hiruki T (1994) Amnioinfusions in renal agenesis. Obstet Gynecol 83:872\u2013876","journal-title":"Obstet Gynecol"},{"key":"6449_CR8","doi-asserted-by":"publisher","first-page":"413","DOI":"10.1097\/AOG.0000000000000339","volume":"124","author":"JL Bienstock","year":"2014","unstructured":"Bienstock JL, Birsner ML, Coleman F, Hueppchen NA (2014) Successful in utero intervention for bilateral renal agenesis. Obstet Gynecol 124:413\u2013415. https:\/\/doi.org\/10.1097\/AOG.0000000000000339","journal-title":"Obstet Gynecol"},{"key":"6449_CR9","doi-asserted-by":"publisher","first-page":"1069","DOI":"10.1097\/AOG.0000000000002637","volume":"131","author":"M Moxey-Mims","year":"2018","unstructured":"Moxey-Mims M, Raju TNK (2018) Anhydramnios in the setting of renal malformations: the National Institutes of Health Workshop summary. Obstet Gynecol 131:1069\u20131079. https:\/\/doi.org\/10.1097\/AOG.0000000000002637","journal-title":"Obstet Gynecol"},{"key":"6449_CR10","doi-asserted-by":"publisher","first-page":"365","DOI":"10.1159\/000497472","volume":"45","author":"EM O\u2019Hare","year":"2019","unstructured":"O\u2019Hare EM, Jelin AC, Miller JL et al (2019) Amnioinfusions to treat early onset anhydramnios caused by renal anomalies: background and rationale for the renal anhydramnios fetal therapy trial. Fetal Diagn Ther 45:365\u2013372. https:\/\/doi.org\/10.1159\/000497472","journal-title":"Fetal Diagn Ther"},{"key":"6449_CR11","doi-asserted-by":"publisher","unstructured":"Atkinson MA, Jelin EB, Baschat A et al (2022) Design and protocol of the Renal Anhydramnios Fetal Therapy (RAFT) trial Clin Ther 44:1161\u20131171. https:\/\/doi.org\/10.1016\/j.clinthera.2022.07.001","DOI":"10.1016\/j.clinthera.2022.07.001"},{"key":"6449_CR12","doi-asserted-by":"publisher","first-page":"327","DOI":"10.1097\/00007611-198803000-00010","volume":"81","author":"MS Cardwell","year":"1988","unstructured":"Cardwell MS (1988) Bilateral renal agenesis: clinical implications. South Med J 81:327\u2013328. https:\/\/doi.org\/10.1097\/00007611-198803000-00010","journal-title":"South Med J"},{"key":"6449_CR13","doi-asserted-by":"publisher","first-page":"585","DOI":"10.1515\/jpm-2016-0367","volume":"45","author":"AN Thomas","year":"2017","unstructured":"Thomas AN, McCullough LB, Chervenak FA, Placencia FX (2017) Evidence-based, ethically justified counseling for fetal bilateral renal agenesis. J Perinat Med 45:585\u2013594. https:\/\/doi.org\/10.1515\/jpm-2016-0367","journal-title":"J Perinat Med"},{"key":"6449_CR14","doi-asserted-by":"publisher","first-page":"1259","DOI":"10.1093\/aje\/kwn248","volume":"168","author":"JE Slickers","year":"2008","unstructured":"Slickers JE, Olshan AF, Siega-Riz AM et al (2008) Maternal body mass index and lifestyle exposures and the risk of bilateral renal agenesis or hypoplasia: the National Birth Defects Prevention Study. Am J Epidemiol 168:1259\u20131267. https:\/\/doi.org\/10.1093\/aje\/kwn248","journal-title":"Am J Epidemiol"},{"key":"6449_CR15","doi-asserted-by":"publisher","first-page":"360","DOI":"10.1136\/jmg.19.5.360","volume":"19","author":"J Burn","year":"1982","unstructured":"Burn J, Marwood RP (1982) Fraser syndrome presenting as bilateral renal agenesis in three sibs. J Med Genet 19:360\u2013361. https:\/\/doi.org\/10.1136\/jmg.19.5.360","journal-title":"J Med Genet"},{"key":"6449_CR16","doi-asserted-by":"publisher","first-page":"311","DOI":"10.1002\/ajmg.1320500402","volume":"50","author":"RW Novak","year":"1994","unstructured":"Novak RW, Robinson HB (1994) Coincident DiGeorge anomaly and renal agenesis and its relation to maternal diabetes. Am J Med Genet 50:311\u2013312. https:\/\/doi.org\/10.1002\/ajmg.1320500402","journal-title":"Am J Med Genet"},{"key":"6449_CR17","doi-asserted-by":"publisher","first-page":"116","DOI":"10.1002\/bdra.22881","volume":"94","author":"CKC Loo","year":"2012","unstructured":"Loo CKC, Pereira TN, Ramm GA (2012) Abnormal WT1 expression in human fetuses with bilateral renal agenesis and cardiac malformations. Birth Defects Res A Clin Mol Teratol 94:116\u2013122. https:\/\/doi.org\/10.1002\/bdra.22881","journal-title":"Birth Defects Res A Clin Mol Teratol"},{"key":"6449_CR18","doi-asserted-by":"publisher","first-page":"288","DOI":"10.1016\/j.ajhg.2013.12.017","volume":"94","author":"C Humbert","year":"2014","unstructured":"Humbert C, Silbermann F, Morar B et al (2014) Integrin alpha 8 recessive mutations are responsible for bilateral renal agenesis in humans. Am J Hum Genet 94:288\u2013294. https:\/\/doi.org\/10.1016\/j.ajhg.2013.12.017","journal-title":"Am J Hum Genet"},{"key":"6449_CR19","doi-asserted-by":"publisher","first-page":"1871","DOI":"10.1681\/ASN.2020121762","volume":"32","author":"L Dai","year":"2021","unstructured":"Dai L, Li J, Xie L et al (2021) A biallelic frameshift mutation in nephronectin causes bilateral renal agenesis in humans. J Am Soc Nephrol 32:1871\u20131879. https:\/\/doi.org\/10.1681\/ASN.2020121762","journal-title":"J Am Soc Nephrol"},{"key":"6449_CR20","doi-asserted-by":"publisher","first-page":"215","DOI":"10.1534\/genetics.117.1125","volume":"207","author":"PD Brophy","year":"2017","unstructured":"Brophy PD, Rasmussen M, Parida M et al (2017) A gene implicated in activation of retinoic acid receptor targets is a novel renal agenesis gene in humans. Genetics 207:215\u2013228. https:\/\/doi.org\/10.1534\/genetics.117.1125","journal-title":"Genetics"},{"key":"6449_CR21","doi-asserted-by":"publisher","first-page":"1191","DOI":"10.1016\/j.devcel.2012.04.018","volume":"22","author":"H Barak","year":"2012","unstructured":"Barak H, Huh SH, Chen S et al (2012) FGF9 and FGF20 maintain the stemness of nephron progenitors in mice and man. Dev Cell 22:1191\u20131207. https:\/\/doi.org\/10.1016\/j.devcel.2012.04.018","journal-title":"Dev Cell"},{"key":"6449_CR22","doi-asserted-by":"publisher","first-page":"58","DOI":"10.1016\/j.siny.2017.01.001","volume":"22","author":"S Rosenblum","year":"2017","unstructured":"Rosenblum S, Pal A, Reidy K (2017) Renal development in the fetus and premature infant. Semin Fetal Neonatal Med 22:58\u201366. https:\/\/doi.org\/10.1016\/j.siny.2017.01.001","journal-title":"Semin Fetal Neonatal Med"},{"key":"6449_CR23","doi-asserted-by":"publisher","first-page":"341","DOI":"10.1038\/sj.jp.7211290","volume":"25","author":"MA Underwood","year":"2005","unstructured":"Underwood MA, Gilbert WM, Sherman MP (2005) Amniotic fluid: not just fetal urine anymore. J Perinatol 25:341\u2013348. https:\/\/doi.org\/10.1038\/sj.jp.7211290","journal-title":"J Perinatol"},{"key":"6449_CR24","doi-asserted-by":"publisher","first-page":"250","DOI":"10.1016\/j.siny.2017.06.004","volume":"22","author":"CM Cotten","year":"2017","unstructured":"Cotten CM (2017) Pulmonary hypoplasia. Semin Fetal Neonatal Med 22:250\u2013255. https:\/\/doi.org\/10.1016\/j.siny.2017.06.004","journal-title":"Semin Fetal Neonatal Med"},{"key":"6449_CR25","doi-asserted-by":"publisher","first-page":"1103","DOI":"10.1152\/jappl.1983.55.4.1103","volume":"55","author":"JE Fewell","year":"1983","unstructured":"Fewell JE, Hislop AA, Kitterman JA, Johnson P (1983) Effect of tracheostomy on lung development in fetal lambs. J Appl Physiol Respir Environ Exerc Physiol 55:1103\u20131108. https:\/\/doi.org\/10.1152\/jappl.1983.55.4.1103","journal-title":"J Appl Physiol Respir Environ Exerc Physiol"},{"key":"6449_CR26","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1016\/j.devcel.2018.01.008","volume":"44","author":"J Li","year":"2018","unstructured":"Li J, Wang Z, Chu Q et al (2018) The strength of mechanical forces determines the differentiation of alveolar epithelial cells. Dev Cell 44:297\u2013312. https:\/\/doi.org\/10.1016\/j.devcel.2018.01.008","journal-title":"Dev Cell"},{"key":"6449_CR27","doi-asserted-by":"publisher","first-page":"849","DOI":"10.1016\/j.clp.2022.08.001","volume":"49","author":"JL Miller","year":"2022","unstructured":"Miller JL, Baschat AA, Atkinson MA (2022) Fetal therapy for renal anhydramnios. Clin Perinatol 49:849\u2013862. https:\/\/doi.org\/10.1016\/j.clp.2022.08.001","journal-title":"Clin Perinatol"},{"key":"6449_CR28","doi-asserted-by":"publisher","first-page":"S776","DOI":"10.1016\/j.ajog.2022.11.1307","volume":"228","author":"JL Miller","year":"2023","unstructured":"Miller JL, Baschat AA, Rosner M et al (2023) Neonatal survival after serial amnioinfusions for fetal bilateral renal agenesis: report from the raft trial. Am J Obstet Gynecol 228:S776\u2013S767. https:\/\/doi.org\/10.1016\/j.ajog.2022.11.1307","journal-title":"Am J Obstet Gynecol"},{"key":"6449_CR29","doi-asserted-by":"publisher","first-page":"51","DOI":"10.1159\/000445946","volume":"41","author":"WJ Polzin","year":"2017","unstructured":"Polzin WJ, Lim FY, Habli M et al (2017) Use of an amnioport to maintain amniotic fluid volume in fetuses with oligohydramnios secondary to lower urinary tract obstruction or fetal renal anomalies. Fetal Diagn Ther 41:51\u201357. https:\/\/doi.org\/10.1159\/000445946","journal-title":"Fetal Diagn Ther"},{"key":"6449_CR30","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1016\/J.EARLHUMDEV.2003.07.002","volume":"79","author":"K Suzuki","year":"2004","unstructured":"Suzuki K (2004) Respiratory characteristics of infants with pulmonary hypoplasia syndrome following preterm rupture of membranes: a preliminary study for establishing clinical diagnostic criteria. Early Hum Dev 79:31\u201340. https:\/\/doi.org\/10.1016\/J.EARLHUMDEV.2003.07.002","journal-title":"Early Hum Dev"},{"key":"6449_CR31","doi-asserted-by":"publisher","first-page":"46","DOI":"10.1016\/0002-9378(90)90818-R","volume":"162","author":"A Rotschild","year":"1990","unstructured":"Rotschild A, Ling EW, Puterman ML, Farquharson D (1990) Neonatal outcome after prolonged preterm rupture of the membranes. Am J Obstet Gynecol 162:46\u201352. https:\/\/doi.org\/10.1016\/0002-9378(90)90818-R","journal-title":"Am J Obstet Gynecol"},{"key":"6449_CR32","doi-asserted-by":"publisher","first-page":"675","DOI":"10.1053\/OB.1996.V175.A74409","volume":"175","author":"HW Kilbride","year":"1996","unstructured":"Kilbride HW, Yeast J, Thibeault DW (1996) Defining limits of survival: lethal pulmonary hypoplasia after midtrimester premature rupture of membranes. Am J Obstet Gynecol 175:675\u2013681. https:\/\/doi.org\/10.1053\/OB.1996.V175.A74409","journal-title":"Am J Obstet Gynecol"},{"key":"6449_CR33","doi-asserted-by":"publisher","first-page":"151","DOI":"10.1053\/j.semperi.2019.07.004","volume":"44","author":"T Jancelewicz","year":"2020","unstructured":"Jancelewicz T, Brindle ME (2020) Prediction tools in congenital diaphragmatic hernia. Semin Perinatol 44:151\u2013165. https:\/\/doi.org\/10.1053\/j.semperi.2019.07.004","journal-title":"Semin Perinatol"},{"key":"6449_CR34","doi-asserted-by":"publisher","first-page":"664","DOI":"10.1001\/JAMAPEDIATRICS.2018.0623","volume":"172","author":"MC Murphy","year":"2018","unstructured":"Murphy MC, Heiring C, Doglioni N et al (2018) Effect of needle aspiration of pneumothorax on subsequent chest drain insertion in newborns: a randomized clinical trial. JAMA Pediatr 172:664\u2013669. https:\/\/doi.org\/10.1001\/JAMAPEDIATRICS.2018.0623","journal-title":"JAMA Pediatr"},{"key":"6449_CR35","doi-asserted-by":"publisher","first-page":"143","DOI":"10.1177\/09732179221084669","volume":"36","author":"U Kumaran","year":"2022","unstructured":"Kumaran U, Shenoi A (2022) Management of pulmonary hypertension in preterm infants\u2014a review. J Neonatology 36:143\u2013152. https:\/\/doi.org\/10.1177\/09732179221084669","journal-title":"J Neonatology"},{"key":"6449_CR36","doi-asserted-by":"publisher","first-page":"334","DOI":"10.1159\/000444895","volume":"109","author":"RH Steinhorn","year":"2016","unstructured":"Steinhorn RH (2016) Advances in neonatal pulmonary hypertension. Neonatology 109:334\u2013344. https:\/\/doi.org\/10.1159\/000444895","journal-title":"Neonatology"},{"key":"6449_CR37","doi-asserted-by":"publisher","first-page":"188","DOI":"10.1055\/s-0037-1598036","volume":"6","author":"D Bagdure","year":"2017","unstructured":"Bagdure D, Torres N, Walker L et al (2017) Extracorporeal membrane oxygenation for neonates with congenital renal and urological anomalies and pulmonary hypoplasia: a case report and review of the Extracorporeal Life Support Organization registry. J Pediatr Intensive Care 6:188\u2013193. https:\/\/doi.org\/10.1055\/s-0037-1598036","journal-title":"J Pediatr Intensive Care"},{"key":"6449_CR38","doi-asserted-by":"publisher","first-page":"423","DOI":"10.1016\/j.siny.2017.05.002","volume":"22","author":"RM Antiel","year":"2017","unstructured":"Antiel RM, Flake AW (2017) Responsible surgical innovation and research in maternal\u2013fetal surgery. Semin Fetal Neonatal Med 22:423\u2013427. https:\/\/doi.org\/10.1016\/j.siny.2017.05.002","journal-title":"Semin Fetal Neonatal Med"},{"key":"6449_CR39","doi-asserted-by":"publisher","first-page":"1432","DOI":"10.2215\/cjn.03240319","volume":"14","author":"S Menon","year":"2019","unstructured":"Menon S, Broderick J, Munshi R et al (2019) Kidney support in children using an ultrafiltration device. Clin J Am Soc Nephrol 14:1432\u20131440. https:\/\/doi.org\/10.2215\/cjn.03240319","journal-title":"Clin J Am Soc Nephrol"},{"key":"6449_CR40","doi-asserted-by":"publisher","first-page":"2043","DOI":"10.1007\/s00467-022-05768-y","volume":"38","author":"TH Mohamed","year":"2023","unstructured":"Mohamed TH, Morgan J, Mottes TA et al (2023) Kidney support for babies: building a comprehensive and integrated neonatal kidney support therapy program. Pediatr Nephrol 38:2043\u20132055. https:\/\/doi.org\/10.1007\/s00467-022-05768-y","journal-title":"Pediatr Nephrol"},{"key":"6449_CR41","doi-asserted-by":"publisher","first-page":"675","DOI":"10.1159\/000507700","volume":"47","author":"S Riddle","year":"2020","unstructured":"Riddle S, Habli M, Tabbah S et al (2020) Contemporary outcomes of patients with isolated bilateral renal agenesis with and without fetal intervention. Fetal Diagn Ther 47:675\u2013681. https:\/\/doi.org\/10.1159\/000507700","journal-title":"Fetal Diagn Ther"},{"key":"6449_CR42","doi-asserted-by":"publisher","DOI":"10.1111\/petr.13532","volume":"23","author":"CR Sheldon","year":"2019","unstructured":"Sheldon CR, Kim ED, Chandra P et al (2019) Two infants with bilateral renal agenesis who were bridged by chronic peritoneal dialysis to kidney transplantation. Pediatr Transplant 23:e13532. https:\/\/doi.org\/10.1111\/petr.13532","journal-title":"Pediatr Transplant"},{"key":"6449_CR43","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1007\/s00467-018-4056-6","volume":"34","author":"KR Sanderson","year":"2019","unstructured":"Sanderson KR, Yu Y, Dai H et al (2019) Outcomes of infants receiving chronic peritoneal dialysis: an analysis of the USRDS registry. Pediatr Nephrol 34:155\u2013162. https:\/\/doi.org\/10.1007\/s00467-018-4056-6","journal-title":"Pediatr Nephrol"},{"key":"6449_CR44","doi-asserted-by":"publisher","first-page":"1117","DOI":"10.1007\/s00467-021-05287-2","volume":"37","author":"ED Yu","year":"2022","unstructured":"Yu ED, Galbiati S, Munshi R et al (2022) Practice patterns and outcomes of maintenance dialysis in children < 2 years of age: a report of the North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS). Pediatr Nephrol 37:1117\u20131124. https:\/\/doi.org\/10.1007\/s00467-021-05287-2","journal-title":"Pediatr Nephrol"},{"key":"6449_CR45","doi-asserted-by":"publisher","first-page":"583","DOI":"10.1007\/s00467-022-05626-x","volume":"38","author":"DJ Claes","year":"2023","unstructured":"Claes DJ, Richardson T, Harer MW et al (2023) Survival of neonates born with kidney failure during the initial hospitalization. Pediatr Nephrol 38:583\u2013591. https:\/\/doi.org\/10.1007\/s00467-022-05626-x","journal-title":"Pediatr Nephrol"},{"key":"6449_CR46","doi-asserted-by":"publisher","first-page":"180","DOI":"10.1002\/pd.6474","volume":"44","author":"S Hendriks","year":"2023","unstructured":"Hendriks S, Althous J, Atkinson MA et al (2023) Precarious hope: ethical considerations for offering experimental fetal therapies outside of research after initial studies in humans. Prenat Diagn 44:180\u2013186. https:\/\/doi.org\/10.1002\/pd.6474","journal-title":"Prenat Diagn"},{"key":"6449_CR47","doi-asserted-by":"publisher","first-page":"130","DOI":"10.1097\/AOG.0000000000002416","volume":"131","author":"J Sugarman","year":"2018","unstructured":"Sugarman J, Anderson J, Baschat AA et al (2018) Ethical considerations concerning amnioinfusions for treating fetal bilateral renal agenesis. Obstetr Gynecol 131:130\u2013134. https:\/\/doi.org\/10.1097\/AOG.0000000000002416","journal-title":"Obstetr Gynecol"},{"key":"6449_CR48","doi-asserted-by":"publisher","first-page":"324","DOI":"10.1002\/ijgo.14392","volume":"159","author":"MF Davis","year":"2022","unstructured":"Davis MF (2022) The state of abortion rights in the US. Int J Gynecol Obstet 159:324\u2013329. https:\/\/doi.org\/10.1002\/ijgo.14392","journal-title":"Int J Gynecol Obstet"},{"key":"6449_CR49","doi-asserted-by":"publisher","first-page":"45","DOI":"10.1080\/15265161.2020.1867932","volume":"22","author":"S Hendriks","year":"2022","unstructured":"Hendriks S, Grady C, Wasserman D et al (2022) A new ethical framework for assessing the unique challenges of fetal therapy trials: response to commentaries. Am J Bioeth 22:45\u201361. https:\/\/doi.org\/10.1080\/15265161.2020.1867932","journal-title":"Am J Bioeth"},{"key":"6449_CR50","doi-asserted-by":"publisher","first-page":"1899","DOI":"10.1093\/ndt\/gfl091","volume":"21","author":"AM McKenna","year":"2006","unstructured":"McKenna AM, Keating LE, Vigneux A et al (2006) Quality of life in children with chronic kidney disease - patient and caregiver assessments. Nephrol Dial Transplant 21:1899\u20131905. https:\/\/doi.org\/10.1093\/ndt\/gfl091","journal-title":"Nephrol Dial Transplant"},{"key":"6449_CR51","doi-asserted-by":"publisher","first-page":"3945","DOI":"10.1007\/s00467-021-05149-x","volume":"36","author":"A Bauer","year":"2020","unstructured":"Bauer A, Blanchette E, Taylor Zimmerman C, Wightman A (2020) Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale. Pediatr Nephrol 36:3945\u20133951. https:\/\/doi.org\/10.1007\/s00467-021-05149-x","journal-title":"Pediatr Nephrol"},{"key":"6449_CR52","doi-asserted-by":"publisher","first-page":"2457","DOI":"10.1007\/s00467-022-05472-x","volume":"37","author":"TR House","year":"2022","unstructured":"House TR, Rosenberg AR, Zimmerman CT et al (2022) Caregiver perspectives of dialysis initiation for children with kidney disease: a qualitative study. Pediatr Nephrol 37:2457\u20132469. https:\/\/doi.org\/10.1007\/s00467-022-05472-x","journal-title":"Pediatr Nephrol"},{"key":"6449_CR53","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018-2102","volume":"143","author":"A Wightman","year":"2019","unstructured":"Wightman A, Zimmerman CT, Neul S et al (2019) Caregiver experience in pediatric dialysis. Pediatrics 143:e20182102. https:\/\/doi.org\/10.1542\/peds.2018-2102","journal-title":"Pediatrics"},{"key":"6449_CR54","doi-asserted-by":"publisher","first-page":"1575","DOI":"10.1007\/s00467-019-04332-5","volume":"35","author":"A Wightman","year":"2020","unstructured":"Wightman A (2020) Caregiver burden in pediatric dialysis. Pediatr Nephrol 35:1575\u20131583. https:\/\/doi.org\/10.1007\/s00467-019-04332-5","journal-title":"Pediatr Nephrol"},{"key":"6449_CR55","doi-asserted-by":"publisher","first-page":"223","DOI":"10.1016\/j.jpeds.2020.10.014","volume":"229","author":"RD Boss","year":"2021","unstructured":"Boss RD, Henderson CM, Raisanen JC et al (2021) Family experiences deciding for and against pediatric home ventilation. J Pediatrics 229:223\u2013231. https:\/\/doi.org\/10.1016\/j.jpeds.2020.10.014","journal-title":"J Pediatrics"},{"key":"6449_CR56","doi-asserted-by":"publisher","first-page":"1057","DOI":"10.1681\/ASN.0000000000000118","volume":"34","author":"ML Wyld","year":"2023","unstructured":"Wyld ML, De La Mata NL, Hedley J et al (2023) Life years lost in children with kidney failure: a binational cohort study with multistate probabilities of death and life expectancy. J Am Soc Nephrol 34:1057\u20131068. https:\/\/doi.org\/10.1681\/ASN.0000000000000118","journal-title":"J Am Soc Nephrol"},{"key":"6449_CR57","doi-asserted-by":"publisher","first-page":"296","DOI":"10.2215\/CJN.16891020","volume":"17","author":"HE Fernandez","year":"2022","unstructured":"Fernandez HE, Foster BJ (2022) Long-term care of the pediatric kidney transplant recipient. Clin J Am Soc Nephrol 17:296\u2013304. https:\/\/doi.org\/10.2215\/CJN.16891020","journal-title":"Clin J Am Soc Nephrol"},{"key":"6449_CR58","doi-asserted-by":"publisher","first-page":"384","DOI":"10.1053\/j.ajkd.2014.07.019","volume":"65","author":"M Medway","year":"2015","unstructured":"Medway M, Tong A, Craig JC et al (2015) Parental perspectives on the financial impact of caring for a child with CKD. Am J Kidney Dis 65:384\u2013393. https:\/\/doi.org\/10.1053\/j.ajkd.2014.07.019","journal-title":"Am J Kidney Dis"},{"key":"6449_CR59","doi-asserted-by":"publisher","unstructured":"Shah B, Jagtap P, Sarmah D et al (2021) Cerebro-renal interaction and stroke. Eur J Neurosci 53:1279\u20131299. https:\/\/doi.org\/10.1111\/ejn.14983","DOI":"10.1111\/ejn.14983"},{"key":"6449_CR60","volume-title":"A good time to be born: how science and public health gave children a future","author":"P Klass","year":"2020","unstructured":"Klass P (2020) A good time to be born: how science and public health gave children a future. W. W. Norton & Company Inc, New York"}],"container-title":["Pediatric Nephrology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-024-06449-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00467-024-06449-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-024-06449-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,12,23]],"date-time":"2024-12-23T18:02:59Z","timestamp":1734976979000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00467-024-06449-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7,13]]},"references-count":60,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2025,2]]}},"alternative-id":["6449"],"URL":"https:\/\/doi.org\/10.1007\/s00467-024-06449-8","relation":{},"ISSN":["0931-041X","1432-198X"],"issn-type":[{"value":"0931-041X","type":"print"},{"value":"1432-198X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,7,13]]},"assertion":[{"value":"27 March 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"11 June 2024","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"11 June 2024","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 July 2024","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no competing interests.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}]}}