{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T16:08:48Z","timestamp":1790266128626,"version":"4.1.0"},"reference-count":30,"publisher":"Springer Science and Business Media LLC","issue":"11","license":[{"start":{"date-parts":[[2026,6,10]],"date-time":"2026-06-10T00:00:00Z","timestamp":1781049600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2026,6,10]],"date-time":"2026-06-10T00:00:00Z","timestamp":1781049600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"funder":[{"DOI":"10.13039\/100010400","name":"Children's Mercy Hospital","doi-asserted-by":"publisher","award":["42379000 (internal grant)"],"award-info":[{"award-number":["42379000 (internal grant)"]}],"id":[{"id":"10.13039\/100010400","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Nephrol"],"published-print":{"date-parts":[[2026,11]]},"DOI":"10.1007\/s00467-026-07386-4","type":"journal-article","created":{"date-parts":[[2026,6,10]],"date-time":"2026-06-10T10:00:25Z","timestamp":1781085625000},"page":"4037-4044","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Family support and caregiver involvement are important for access to pediatric pre-emptive kidney transplantation"],"prefix":"10.1007","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1937-1613","authenticated-orcid":false,"given":"Judith Sebestyen","family":"VanSickle","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jolynn","family":"Grimes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David D.","family":"Williams","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bradley A.","family":"Warady","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Darcy K.","family":"Weidemann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,6,10]]},"reference":[{"issue":"4 Suppl 1","key":"7386_CR1","doi-asserted-by":"publisher","first-page":"A7","DOI":"10.1053\/j.ajkd.2021.01.002","volume":"77","author":"KL Johansen","year":"2021","unstructured":"Johansen KL, Chertow GM, Foley RN, Gilbertson DT, Herzog CA, Ishani A, Israni AK, Ku E, Kurella Tamura M, Li S, Li S, Liu J, Obrador GT, O\u2019Hare AM, Peng Y, Powe NR, Roetker NS, St Peter WL, Abbott KC, Chan KE, Schulman IH, Snyder J, Solid C, Weinhandl ED, Winkelmayer WC, Wetmore JB (2021) US Renal Data System 2020 Annual Data Report: epidemiology of kidney disease in the United States. Am J Kidney Dis 77(4 Suppl 1):A7\u2013A8. https:\/\/doi.org\/10.1053\/j.ajkd.2021.01.002","journal-title":"Am J Kidney Dis"},{"key":"7386_CR2","doi-asserted-by":"publisher","first-page":"2319","DOI":"10.1007\/s00467-017-3759-4","volume":"32","author":"DJ Weaver Jr","year":"2017","unstructured":"Weaver DJ Jr, Somers MJG, Martz K, Mitsnefes MM (2017) Clinical outcomes and survival in pediatric patients initiating chronic dialysis: a report of the NAPRTCS registry. Pediatr Nephrol 32:2319\u20132330. https:\/\/doi.org\/10.1007\/s00467-017-3759-4","journal-title":"Pediatr Nephrol"},{"key":"7386_CR3","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1016\/j.kint.2022.09.026","volume":"103","author":"C Guha","year":"2023","unstructured":"Guha C, van Zwieten A, Khalid R, Kim S, Walker A, Francis A, Didsbury M, Teixeira-Pinto A, Barton B, Prestidge C, Lancsar E, Mackie F, Kwon J, Howard K, Mallitt KA, Howell M, Jaure A, Hayes A, Raghunandan R, Petrou S, Lah S, McTaggart S, Craig JC, Wong G (2023) Longitudinal assessment of the health-related quality of life of children and adolescents with chronic kidney disease. Kidney Int 103:357\u2013364. https:\/\/doi.org\/10.1016\/j.kint.2022.09.026","journal-title":"Kidney Int"},{"key":"7386_CR4","doi-asserted-by":"publisher","first-page":"6","DOI":"10.56303\/jhnr.v1i1.3","volume":"1","author":"H Hasnidar","year":"2022","unstructured":"Hasnidar H, Aswadi MW, Putra WUCJ (2022) Family support and quality of life for chronic kidney disease (CKD) patients hemodialysis therapy at Undata Hospital. J Health Nutr Res 1:6\u201310. https:\/\/doi.org\/10.56303\/jhnr.v1i1.3","journal-title":"J Health Nutr Res"},{"key":"7386_CR5","doi-asserted-by":"publisher","first-page":"3945","DOI":"10.1007\/s00467-021-05149-x","volume":"36","author":"A Bauer","year":"2021","unstructured":"Bauer A, Blanchette E, Taylor Zimmerman C, Wightman A (2021) Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale. Pediatr Nephrol 36:3945\u20133951. https:\/\/doi.org\/10.1007\/s00467-021-05149-x","journal-title":"Pediatr Nephrol"},{"key":"7386_CR6","doi-asserted-by":"publisher","first-page":"82","DOI":"10.1016\/j.pedn.2025.04.016","volume":"83","author":"Z Aydin","year":"2025","unstructured":"Aydin Z, Albayrak S (2025) Investigation of the relationship between burden of care, social support, and quality of life in parents caring for pediatric dialysis patients. J Pediatr Nurs 83:82\u201390. https:\/\/doi.org\/10.1016\/j.pedn.2025.04.016","journal-title":"J Pediatr Nurs"},{"key":"7386_CR7","doi-asserted-by":"publisher","first-page":"1187","DOI":"10.1007\/s11606-008-0628-7","volume":"23","author":"CR Clark","year":"2008","unstructured":"Clark CR, Hicks LS, Keogh JH, Epstein AM, Ayanian JZ (2008) Promoting access to renal transplantation: the role of social support networks in completing pre-transplant evaluations. J Gen Intern Med 23:1187\u20131193. https:\/\/doi.org\/10.1007\/s11606-008-0628-7","journal-title":"J Gen Intern Med"},{"key":"7386_CR8","doi-asserted-by":"publisher","first-page":"16","DOI":"10.1016\/j.trre.2017.04.001","volume":"32","author":"K Ladin","year":"2018","unstructured":"Ladin K, Daniels A, Osani M, Bannuru RR (2018) Is social support associated with post-transplant medication adherence and outcomes? A systematic review and meta-analysis. Transplant Rev (Orlando) 32:16\u201328. https:\/\/doi.org\/10.1016\/j.trre.2017.04.001","journal-title":"Transplant Rev (Orlando)"},{"key":"7386_CR9","doi-asserted-by":"publisher","first-page":"741","DOI":"10.1016\/j.ekir.2021.12.015","volume":"7","author":"B Driollet","year":"2021","unstructured":"Driollet B, Bayer F, Kwon T, Krid S, Ranchin B, Tsimaratos M, Parmentier C, Novo R, Roussey G, Tellier S, Fila M, Zaloszyc A, Godron-Dubrasquet A, Cloarec S, Vrillon I, Broux F, B\u00e9rard E, Taque S, Pietrement C, Nobili F, Guigonis V, Launay L, Couchoud C, Harambat J, Leffondr\u00e9 K (2021) Social deprivation is associated with lower access to pre-emptive kidney transplantation and more urgent-start dialysis in the pediatric population. Kidney Int Rep 7:741\u2013751. https:\/\/doi.org\/10.1016\/j.ekir.2021.12.015","journal-title":"Kidney Int Rep"},{"key":"7386_CR10","doi-asserted-by":"publisher","first-page":"1007","DOI":"10.34067\/KID.0000000724","volume":"6","author":"BM Fairless","year":"2025","unstructured":"Fairless BM, Fawole OA, Nguyen DT, Banerjee A, Nobleza KJ, Oluyomi AO, Rosales O, Dave JM, Onugha EA (2025) Neighborhood disadvantage and inequities in access to preemptive and living kidney transplantation. Kidney360 6:1007\u20131019. https:\/\/doi.org\/10.34067\/KID.0000000724","journal-title":"Kidney360"},{"key":"7386_CR11","doi-asserted-by":"publisher","DOI":"10.1007\/s00467-025-06829-8","author":"AL Cortez","year":"2025","unstructured":"Cortez AL, Matheson MB, Cowden JD, Warady BA, Weidemann DK, CKiD Study Investigators (2025) The association of adverse childhood experiences with the progression of chronic kidney disease in children: a CKiD pilot study. Pediatr Nephrol. https:\/\/doi.org\/10.1007\/s00467-025-06829-8","journal-title":"Pediatr Nephrol"},{"key":"7386_CR12","doi-asserted-by":"publisher","DOI":"10.1186\/s40359-025-02558-7","volume":"13","author":"ML Pistorio","year":"2025","unstructured":"Pistorio ML, De Pasquale C, Veroux M, Bottesi G, Granziol U, Panzeri A, Giambra MM, Giaquinta A, Veroux P (2025) The role of attachment and parental bonding in the psychosocial assessment of transplant candidates: a cross-sectional study. BMC Psychol 13:227. https:\/\/doi.org\/10.1186\/s40359-025-02558-7","journal-title":"BMC Psychol"},{"key":"7386_CR13","doi-asserted-by":"publisher","first-page":"123","DOI":"10.1016\/j.psym.2011.12.012","volume":"53","author":"JR Maldonado","year":"2012","unstructured":"Maldonado JR, Dubois HC, David EE, Sher Y, Lolak S, Dyal J, Witten D (2012) The Stanford Integrated Psychosocial Assessment for Transplantation (SIPAT): a new tool for the psychosocial evaluation of pre-transplant candidates. Psychosomatics 53:123\u2013132. https:\/\/doi.org\/10.1016\/j.psym.2011.12.012","journal-title":"Psychosomatics"},{"key":"7386_CR14","doi-asserted-by":"publisher","first-page":"2593","DOI":"10.1007\/s00467-024-06309-5","volume":"39","author":"M Harford","year":"2024","unstructured":"Harford M, Laster M (2024) Progress made toward equitable transplantation in children and young adults with kidney disease. Pediatr Nephrol 39:2593\u20132600. https:\/\/doi.org\/10.1007\/s00467-024-06309-5","journal-title":"Pediatr Nephrol"},{"key":"7386_CR15","doi-asserted-by":"publisher","first-page":"517","DOI":"10.1053\/j.ackd.2021.10.009","volume":"28","author":"D Mohottige","year":"2021","unstructured":"Mohottige D, McElroy LM, Boulware LE (2021) A cascade of structural barriers contributing to racial kidney transplant inequities. Adv Chronic Kidney Dis 28:517\u2013527. https:\/\/doi.org\/10.1053\/j.ackd.2021.10.009","journal-title":"Adv Chronic Kidney Dis"},{"issue":"3","key":"7386_CR16","doi-asserted-by":"publisher","first-page":"336","DOI":"10.1097\/MNH.0b013e32835fe55b","volume":"22","author":"S Amaral","year":"2013","unstructured":"Amaral S, Patzer R (2013) Disparities, race\/ethnicity and access to pediatric kidney transplantation. Curr Opin Nephrol Hypertens 22:336\u2013343. https:\/\/doi.org\/10.1097\/MNH.0b013e32835fe55b","journal-title":"Curr Opin Nephrol Hypertens"},{"key":"7386_CR17","doi-asserted-by":"publisher","first-page":"262","DOI":"10.2215\/CJN.04860420","volume":"16","author":"H Wesselman","year":"2021","unstructured":"Wesselman H, Ford CG, Leyva Y et al (2021) Social determinants of health and race disparities in kidney transplant. Clin J Am Soc Nephrol 16:262\u2013274. https:\/\/doi.org\/10.2215\/CJN.04860420","journal-title":"Clin J Am Soc Nephrol"},{"key":"7386_CR18","doi-asserted-by":"publisher","first-page":"451","DOI":"10.1001\/jama.2022.11231","volume":"328","author":"S Amaral","year":"2022","unstructured":"Amaral S, McCulloch CE, Lin F, Grimes BA, Furth S, Warady B, Brunson C, Siyahian S, Ku E (2022) Association between dialysis facility ownership and access to the waiting list and transplant in pediatric patients with end-stage kidney disease in the US. JAMA 328:451\u2013459. https:\/\/doi.org\/10.1001\/jama.2022.11231","journal-title":"JAMA"},{"key":"7386_CR19","doi-asserted-by":"publisher","first-page":"207","DOI":"10.1053\/j.ajkd.2021.12.008","volume":"80","author":"SA Boynton","year":"2022","unstructured":"Boynton SA, Matheson MB, Ng DK, Hidalgo G, Warady BA, Furth SL, Atkinson MA (2022) The relationship between neighborhood disadvantage and kidney disease progression in the chronic kidney disease in children (CKiD) cohort. Am J Kidney Dis 80:207\u2013214. https:\/\/doi.org\/10.1053\/j.ajkd.2021.12.008","journal-title":"Am J Kidney Dis"},{"key":"7386_CR20","doi-asserted-by":"publisher","first-page":"629","DOI":"10.1681\/ASN.2008030287","volume":"20","author":"GJ Schwartz","year":"2009","unstructured":"Schwartz GJ, Munoz A, Schneider MF, Mak RH, Kaskel F, Warady BA, Furth SL (2009) New equations to estimate GFR in children with CKD. J Am Soc Nephrol 20:629\u2013637. https:\/\/doi.org\/10.1681\/ASN.2008030287","journal-title":"J Am Soc Nephrol"},{"key":"7386_CR21","doi-asserted-by":"publisher","first-page":"1948","DOI":"10.1377\/hlthaff.2014.0679","volume":"33","author":"D Acevedo-Garcia","year":"2014","unstructured":"Acevedo-Garcia D, McArdle N, Hardy EF, Crisan UI, Romano B, Norris D, Baek M, Reece J (2014) The Child Opportunity Index: improving collaboration between community development and public health. Health Aff (Millwood) 33:1948\u20131957. https:\/\/doi.org\/10.1377\/hlthaff.2014.0679","journal-title":"Health Aff (Millwood)"},{"key":"7386_CR22","unstructured":"Walsh F (1993) Conceptualization of normal family processes. In: Walsh F (ed.) normal family processes: growing diversity and complexity, 2nd ed. The Guilford Press, pp 3\u201369\u00a0"},{"key":"7386_CR23","doi-asserted-by":"publisher","first-page":"261","DOI":"10.1111\/j.1545-5300.1996.00261.x","volume":"35","author":"F Walsh","year":"1996","unstructured":"Walsh F (1996) The concept of family resilience: crisis and challenge. Fam Process 35:261\u2013281. https:\/\/doi.org\/10.1111\/j.1545-5300.1996.00261.x","journal-title":"Fam Process"},{"key":"7386_CR24","doi-asserted-by":"publisher","first-page":"112","DOI":"10.1002\/jad.12260","volume":"96","author":"K Mei","year":"2024","unstructured":"Mei K, Zhang F, Zhang J, Ming H, Jiang Y, Huang S (2024) Perceived social support mitigates the associations among household chaos and health and well-being in rural early adolescents. J Adolesc 96:112\u2013123. https:\/\/doi.org\/10.1002\/jad.12260","journal-title":"J Adolesc"},{"key":"7386_CR25","doi-asserted-by":"publisher","DOI":"10.1016\/j.xkme.2022.100478","volume":"4","author":"KL Kurzinski","year":"2022","unstructured":"Kurzinski KL, Weidemann DK (2022) The burden of mental health conditions in children with CKD. Kidney Med 4:100478. https:\/\/doi.org\/10.1016\/j.xkme.2022.100478","journal-title":"Kidney Med"},{"key":"7386_CR26","doi-asserted-by":"publisher","first-page":"941","DOI":"10.1016\/j.pcl.2022.05.007","volume":"69","author":"VM Sankar Raj","year":"2022","unstructured":"Sankar Raj VM, Patel P (2022) The role of a clinical psychologist in pediatric nephrology. Pediatr Clin North Am 69:941\u2013949. https:\/\/doi.org\/10.1016\/j.pcl.2022.05.007","journal-title":"Pediatr Clin North Am"},{"key":"7386_CR27","doi-asserted-by":"publisher","first-page":"1696","DOI":"10.2215\/CJN.01000115","volume":"10","author":"L Tushla","year":"2015","unstructured":"Tushla L, Rudow DL, Milton J, Rodrigue JR, Schold JD, Hays R (2015) American Society of Transplantation. Living-donor kidney transplantation: reducing financial barriers to live kidney donation--recommendations from a consensus conference. Clin J Am Soc Nephrol 10:1696\u20131702. https:\/\/doi.org\/10.2215\/CJN.01000115","journal-title":"Clin J Am Soc Nephrol"},{"key":"7386_CR28","doi-asserted-by":"publisher","first-page":"201","DOI":"10.1681\/ASN.2014010113","volume":"26","author":"J Gill","year":"2015","unstructured":"Gill J, Dong J, Gill J (2015) Population income and longitudinal trends in living kidney donation in the United States. J Am Soc Nephrol 26:201\u2013207. https:\/\/doi.org\/10.1681\/ASN.2014010113","journal-title":"J Am Soc Nephrol"},{"key":"7386_CR29","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare12121216","volume":"12","author":"V Colonnello","year":"2024","unstructured":"Colonnello V, La Manna G, Cangini G, Russo PM (2024) Post-donation evaluation: emotional needs for social connection and social support among living kidney donors-a systematic review. Healthcare (Basel) 12:1216. https:\/\/doi.org\/10.3390\/healthcare12121216","journal-title":"Healthcare (Basel)"},{"key":"7386_CR30","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pgph.0004086","volume":"4","author":"RL Erickson","year":"2024","unstructured":"Erickson RL, Kamath N, Iyengar A, Ademola A, Esezobor C, Lalji R, Hedin E, Arruebo S, Caskey FJ, Damster S, Donner JA, Jha V, Levin A, Nangaku M, Saad S, Tonelli M, Ye F, Okpechi IG, Bello AK, Johnson DW (2024) Disparities in kidney care in vulnerable populations: a multinational study from the ISN-GKHA. PLoS Glob Public Health 4:e0004086. https:\/\/doi.org\/10.1371\/journal.pgph.0004086","journal-title":"PLoS Glob Public Health"}],"container-title":["Pediatric Nephrology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-026-07386-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00467-026-07386-4","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-026-07386-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T15:36:41Z","timestamp":1790264201000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00467-026-07386-4"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,10]]},"references-count":30,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2026,11]]}},"alternative-id":["7386"],"URL":"https:\/\/doi.org\/10.1007\/s00467-026-07386-4","relation":{},"ISSN":["0931-041X","1432-198X"],"issn-type":[{"value":"0931-041X","type":"print"},{"value":"1432-198X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,10]]},"assertion":[{"value":"23 January 2026","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"6 May 2026","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 May 2026","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"10 June 2026","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Judith Sebestyen VanSickle:\n                      \n                      JoLynn Grimes: nothing to discloseDavid Williams: nothing to discloseDarcy Weidemann:\n                      \n                      Bradley Warady:","order":2,"name":"Ethics","label":"Disclosures","group":{"name":"EthicsHeading","label":"Declarations"}}]}}