{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T17:12:26Z","timestamp":1788369146252,"version":"build-2803163510"},"reference-count":29,"publisher":"Springer Science and Business Media LLC","license":[{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Nephrol"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Effective healthcare transitions and transfers of care are crucial for improving long-term health outcomes among adolescents and young adults (AYA) with chronic kidney disease (CKD). Patient-reported outcomes are an important tool to understand patient experience and are underused in CKD transfer evaluation. This study sought to preliminarily identify differences in the transfer experience among AYAs with CKD and identify contributing factors.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Participants enrolled in the Chronic Kidney Disease in Children (CKiD) study who had transferred to adult care between 2017 and 2024 were included in this analysis (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u2009110). Participants rated their transfer experience on a 1 to 5 Likert scale. Ratings of 4\u20135 were categorized as \u201csatisfactory\u201d and ratings of 1\u20133 were categorized as \u201cunsatisfactory.\u201d Factors assessed because of their potential influence on transfer included maternal education, eGFR, dialysis\/transplant status, intelligence quotient (IQ), and executive functioning (EF). Logistic regression using a curated set of a priori predictors was used to estimate odds of unsatisfactory transfer.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The median age of participants at the time of transfer rating was 22.2\u00a0years [IQR 20.2\u201324.4]. The transfer experience was rated as satisfactory by 79 participants (72%) and as unsatisfactory by 31 (28%). Unsatisfactory transfer ratings were more likely among female participants as well as participants with lower health-related quality of life (HRQoL). Maternal education, eGFR, dialysis\/transplant, IQ, and EF were not associated with an unsatisfactory transfer experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study provides initial insight into how AYA with CKD perceive their transfer to adult care. It raises the potential importance of sex and QoL in the transfer process. Although these are not modifiable factors, these preliminary findings lay the foundation for identifying at-risk individuals and developing strategies to improve transfer outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00467-026-07486-1","type":"journal-article","created":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T16:12:21Z","timestamp":1788365541000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient-reported ratings of transfer to adult care among young adults with chronic kidney disease"],"prefix":"10.1007","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3967-1309","authenticated-orcid":false,"given":"Kelsey L.","family":"Richardson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brett","family":"Boyer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2732-4016","authenticated-orcid":false,"given":"Kim","family":"Grzesek","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cozumel","family":"Pruette","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca J.","family":"Johnson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2081-5242","authenticated-orcid":false,"given":"Susan L.","family":"Furth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bradley A.","family":"Warady","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew B.","family":"Matheson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6761-4504","authenticated-orcid":false,"given":"Stephen R.","family":"Hooper","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"for the CKiD study investigators","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,9,2]]},"reference":[{"key":"7486_CR1","doi-asserted-by":"publisher","first-page":"1206","DOI":"10.1097\/TP.0000000000004431","volume":"107","author":"IA Kindem","year":"2023","unstructured":"Kindem IA, Bjerre A, Hammarstr\u00f8m C, Naper C, Midtvedt K, \u00c5sberg A (2023) Kidney-transplanted adolescents-nonadherence and graft outcomes during the transition phase: a nationwide analysis, 2000\u20132020. Transplantation 107:1206\u20131212","journal-title":"Transplantation"},{"key":"7486_CR2","doi-asserted-by":"publisher","first-page":"201","DOI":"10.1016\/j.pedn.2020.08.021","volume":"55","author":"M Varty","year":"2020","unstructured":"Varty M, Speller-Brown B, Phillips L, Kelly KP (2020) Youths\u2019 experiences of transition from pediatric to adult care: an updated qualitative metasynthesis. J Pediatr Nurs 55:201\u2013210","journal-title":"J Pediatr Nurs"},{"key":"7486_CR3","doi-asserted-by":"publisher","first-page":"2089","DOI":"10.1016\/j.pec.2021.01.027","volume":"104","author":"KE Rea","year":"2021","unstructured":"Rea KE, Cushman GK, Quast LF, Stolz MG, Mee LL, George RP et al (2021) Specific healthcare responsibilities and perceived transition readiness among adolescent solid organ transplant recipients: adolescent and caregiver perspectives. Patient Educ Couns 104:2089\u20132097","journal-title":"Patient Educ Couns"},{"key":"7486_CR4","doi-asserted-by":"publisher","first-page":"531","DOI":"10.1177\/13674935211028410","volume":"26","author":"K Crawford","year":"2022","unstructured":"Crawford K, Low JK, Le Page AK, Mulley W, Masterson R, Kausman J et al (2022) Transition from a renal paediatric clinic to an adult clinic: perspectives of adolescents and young adults, parents and health professionals. J Child Health Care 26:531\u2013547","journal-title":"J Child Health Care"},{"key":"7486_CR5","doi-asserted-by":"publisher","first-page":"446","DOI":"10.1016\/j.semnephrol.2021.09.007","volume":"41","author":"RJ Johnson","year":"2021","unstructured":"Johnson RJ, Harshman LA (2021) Neurocognition in pediatric chronic kidney disease: a review of data from the Chronic Kidney Disease in Children (CKiD) study. Semin Nephrol 41:446\u2013454","journal-title":"Semin Nephrol"},{"key":"7486_CR6","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.30281","volume":"70","author":"N Bhatt","year":"2023","unstructured":"Bhatt N, Calhoun C, Longoria J, Nwosu C, Howell KE, Varughese T et al (2023) Health literacy correlates with abbreviated full-scale IQ in adolescent and young adults with sickle cell disease. Pediatr Blood Cancer 70:e30281","journal-title":"Pediatr Blood Cancer"},{"key":"7486_CR7","doi-asserted-by":"publisher","first-page":"1855","DOI":"10.1007\/s00467-013-2497-5","volume":"28","author":"AJ Kogon","year":"2013","unstructured":"Kogon AJ, Vander Stoep A, Weiss NS, Smith J, Flynn JT, McCauley E (2013) Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol 28:1855\u20131861","journal-title":"Pediatr Nephrol"},{"key":"7486_CR8","doi-asserted-by":"publisher","first-page":"663","DOI":"10.34067\/KID.0000000762","volume":"6","author":"V Shi","year":"2025","unstructured":"Shi V, Jang A, Copp H, Ku E (2025) Pediatric to adult nephrology transition in CKD. Kidney360 6:663\u2013670","journal-title":"Kidney360"},{"key":"7486_CR9","doi-asserted-by":"publisher","first-page":"177","DOI":"10.1016\/j.pedn.2021.06.004","volume":"62","author":"B Middour-Oxler","year":"2022","unstructured":"Middour-Oxler B, Bergman S, Blair S, Pendley S, Stecenko A, Hunt WR (2022) Formal vs. informal transition in adolescents with cystic fibrosis: a retrospective comparison of outcomes. J Pediatr Nurs 62:177\u2013183","journal-title":"J Pediatr Nurs"},{"key":"7486_CR10","doi-asserted-by":"publisher","first-page":"e20173168","DOI":"10.1542\/peds.2017-3168","volume":"141","author":"M Lemke","year":"2018","unstructured":"Lemke M, Kappel R, McCarter R, D\u2019Angelo L, Tuchman LK (2018) Perceptions of health care transition care coordination in patients with chronic illness. Pediatrics 141:e20173168","journal-title":"Pediatrics"},{"key":"7486_CR11","doi-asserted-by":"publisher","first-page":"1753","DOI":"10.1007\/s00467-011-1981-z","volume":"26","author":"AR Watson","year":"2011","unstructured":"Watson AR, Harden P, Ferris M, Kerr PG, Mahan J, Ramzy MF (2011) Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr Nephrol 26:1753\u20131757","journal-title":"Pediatr Nephrol"},{"key":"7486_CR12","doi-asserted-by":"publisher","first-page":"541","DOI":"10.4300\/JGME-5-4-18","volume":"5","author":"GM Sullivan","year":"2013","unstructured":"Sullivan GM, Artino AR (2013) Analyzing and interpreting data from likert-type scales. J Grad Med Educ 5:541\u2013542","journal-title":"J Grad Med Educ"},{"key":"7486_CR13","doi-asserted-by":"publisher","first-page":"197","DOI":"10.1097\/DBP.0000000000001024","volume":"43","author":"VWL Tsang","year":"2022","unstructured":"Tsang VWL, Fletcher S, Jassemi S, Smith S (2022) Youth, caregiver, and provider perception of the transition from pediatric to adult care for youth with chronic diseases. J Dev Behav Pediatr 43:197\u2013205","journal-title":"J Dev Behav Pediatr"},{"key":"7486_CR14","doi-asserted-by":"publisher","first-page":"1612","DOI":"10.1111\/apa.17231","volume":"113","author":"J Forsberg","year":"2024","unstructured":"Forsberg J, L\u00f6\u00f6f G, Burstr\u00f6m \u00c5 (2024) Young adults\u2019 perception of transition from paediatric to adult care. Acta Paediatr 113:1612\u20131620","journal-title":"Acta Paediatr"},{"key":"7486_CR15","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2015.0951","volume":"169","author":"LE Wisk","year":"2015","unstructured":"Wisk LE, Finkelstein JA, Sawicki GS, Lakoma M, Toomey SL, Schuster MA et al (2015) Predictors of timing of transfer from pediatric- to adult-focused primary care. JAMA Pediatr 169:e150951","journal-title":"JAMA Pediatr"},{"key":"7486_CR16","doi-asserted-by":"publisher","first-page":"851","DOI":"10.2215\/CJN.0000000000000467","volume":"19","author":"M Matsuda-Abedini","year":"2024","unstructured":"Matsuda-Abedini M, Zappitelli M, Widger K, Rapoport A, Dionne JM, Chanchlani R et al (2024) Validation of patient-reported outcome measure in pediatric CKD (PRO-Kid). Clin J Am Soc Nephrol 19:851\u2013859","journal-title":"Clin J Am Soc Nephrol"},{"key":"7486_CR17","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph182413022","volume":"18","author":"C Lerma","year":"2021","unstructured":"Lerma C, Lima-Zapata LI, Amaya-Aguilar JA, Leonardo-Cruz I, Lazo-S\u00e1nchez M, Berm\u00fadez LA et al (2021) Gender-specific differences in self-care, treatment-related symptoms, and quality of life in hemodialysis patients. Int J Environ Res Public Health 18:13022","journal-title":"Int J Environ Res Public Health"},{"key":"7486_CR18","doi-asserted-by":"publisher","first-page":"2511","DOI":"10.1186\/s12889-025-23707-y","volume":"25","author":"M Alwhaibi","year":"2025","unstructured":"Alwhaibi M, Balkhi B (2025) Sex differences in health-related quality of life among adults in the US: results from the medical expenditures panel survey data. BMC Public Health 25:2511","journal-title":"BMC Public Health"},{"key":"7486_CR19","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-025-04033-x","author":"K Niinomi","year":"2025","unstructured":"Niinomi K, Yoshikawa S, Sato T, Omori H, Miyashita K (2025) Health-related quality of life in adolescents and young adults with congenital heart disease and its predictors, including subjective transition readiness to adulthood. Pediatr Cardiol. https:\/\/doi.org\/10.1007\/s00246-025-04033-x","journal-title":"Pediatr Cardiol"},{"key":"7486_CR20","doi-asserted-by":"publisher","first-page":"455","DOI":"10.1111\/cch.12946","volume":"48","author":"AA Alhamed","year":"2022","unstructured":"Alhamed AA, Toly VB, Hooper SR, Dell KM (2022) The link between executive function, socio-emotional functioning and health-related quality of life in children and adolescents with mild to moderate chronic kidney disease. Child Care Health Dev 48:455\u2013464","journal-title":"Child Care Health Dev"},{"key":"7486_CR21","doi-asserted-by":"publisher","first-page":"e349","DOI":"10.1542\/peds.2009-0085","volume":"125","author":"AC Gerson","year":"2010","unstructured":"Gerson AC, Wentz A, Abraham AG, Mendley SR, Hooper SR, Butler RW et al (2010) Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics 125:e349-357","journal-title":"Pediatrics"},{"key":"7486_CR22","doi-asserted-by":"publisher","first-page":"4127","DOI":"10.1007\/s00467-023-06069-8","volume":"38","author":"J Carlson","year":"2023","unstructured":"Carlson J, Gerson AC, Matheson MB, Manne S, Lande M, Harshman L et al (2023) Longitudinal changes of health-related quality of life in childhood chronic kidney disease. Pediatr Nephrol 38:4127\u20134136","journal-title":"Pediatr Nephrol"},{"key":"7486_CR23","doi-asserted-by":"publisher","first-page":"3105","DOI":"10.1007\/s00431-024-05561-z","volume":"183","author":"J Abbott","year":"2024","unstructured":"Abbott J, Fraser LK, Jarvis S (2024) Inequalities in emergency care use across transition from paediatric to adult care: a retrospective cohort study of young people with chronic kidney disease in England. Eur J Pediatr 183:3105\u20133115","journal-title":"Eur J Pediatr"},{"key":"7486_CR24","doi-asserted-by":"publisher","first-page":"424","DOI":"10.1016\/j.ekir.2021.10.022","volume":"7","author":"A Tong","year":"2022","unstructured":"Tong A, Evangelidis N, Kurnikowski A, Lewandowski M, Bretschneider P, Oberbauer R et al (2022) Nephrologists\u2019 perspectives on gender disparities in CKD and dialysis. Kidney Int Rep 7:424\u2013435","journal-title":"Kidney Int Rep"},{"key":"7486_CR25","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1038\/ki.2008.414","volume":"75","author":"DE Leaf","year":"2009","unstructured":"Leaf DE, Goldfarb DS (2009) Interpretation and review of health-related quality of life data in CKD patients receiving treatment for anemia. Kidney Int 75:15\u201324","journal-title":"Kidney Int"},{"key":"7486_CR26","doi-asserted-by":"publisher","first-page":"1659","DOI":"10.1007\/s00467-020-04569-5","volume":"35","author":"J Carlson","year":"2020","unstructured":"Carlson J, Gerson AC, Matheson MB, Manne S, Warady BA, Hooper SR et al (2020) A longitudinal analysis of the effect of anemia on health-related quality of life in children with mild-to-moderate chronic kidney disease. Pediatr Nephrol 35:1659\u20131667","journal-title":"Pediatr Nephrol"},{"key":"7486_CR27","doi-asserted-by":"publisher","first-page":"1129","DOI":"10.1007\/s00467-015-3262-8","volume":"31","author":"C Wong","year":"2016","unstructured":"Wong C, Gerson A, Hooper SR, Matheson M, Lande M, Kupferman J et al (2016) Effect of elevated blood pressure on quality of life in children with chronic kidney disease. Pediatr Nephrol 31:1129\u20131136","journal-title":"Pediatr Nephrol"},{"key":"7486_CR28","doi-asserted-by":"publisher","DOI":"10.1111\/cch.13156","volume":"50","author":"P Chapados","year":"2024","unstructured":"Chapados P, Provencher S, Aramideh J, Dumont \u00c9, Lugasi T, Laverdi\u00e8re C et al (2024) Transition readiness assessment questionnaire: skill gaps and psychosocial predictors of transition readiness among adolescents and young adults with chronic medical conditions. Child Care Health Dev 50:e13156","journal-title":"Child Care Health Dev"},{"key":"7486_CR29","doi-asserted-by":"crossref","unstructured":"White PH, Cooley WC, Transitions Clinical Report Authoring Group, American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians (2018) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 142:e20182587","DOI":"10.1542\/peds.2018-2587"}],"container-title":["Pediatric Nephrology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-026-07486-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00467-026-07486-1","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00467-026-07486-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T16:12:23Z","timestamp":1788365543000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00467-026-07486-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,2]]},"references-count":29,"alternative-id":["7486"],"URL":"https:\/\/doi.org\/10.1007\/s00467-026-07486-1","relation":{},"ISSN":["0931-041X","1432-198X"],"issn-type":[{"value":"0931-041X","type":"print"},{"value":"1432-198X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,2]]},"assertion":[{"value":"3 April 2026","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"16 June 2026","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 July 2026","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"2 September 2026","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}]}}