{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T04:20:59Z","timestamp":1777436459120,"version":"3.51.4"},"reference-count":13,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2020,9,22]],"date-time":"2020-09-22T00:00:00Z","timestamp":1600732800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2020,9,22]],"date-time":"2020-09-22T00:00:00Z","timestamp":1600732800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Hochschule f\u00fcr Technik und Wirtschaft des Saarlandes"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Schmerz"],"published-print":{"date-parts":[[2021,10]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title><jats:sec>\n                <jats:title>Hintergrund<\/jats:title>\n                <jats:p>Die Komplexit\u00e4t des Beschwerdebilds des Fibromyalgiesyndroms (FMS) stellt Betroffene wie auch Behandelnde vor besondere Herausforderungen. Die vorliegende Studie befasst sich mit den Fragen zum Umgang mit dem FMS aus Sicht Betroffener und Behandelnder und deren Einsch\u00e4tzung von Bed\u00fcrfnissen bzw. Bedarfen in Bezug auf die Versorgung.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methodik<\/jats:title>\n                <jats:p>In einem qualitativen Studiendesign wurden die individuellen Sichtweisen von zehn FMS-Betroffenen und zehn Behandelnden untersucht. Die Personen wurden in einem \u201epurposive sampling\u201c ausgew\u00e4hlt und in leitfadengest\u00fctzten, problemzentrierten Interviews befragt. Die Auswertung erfolgte zusammenfassend inhaltsanalytisch.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Ergebnisse<\/jats:title>\n                <jats:p>Betroffene und Behandelnde stellten eine problematische Verf\u00fcgbarkeit und Zug\u00e4nglichkeit von Versorgungsangeboten fest. Zudem f\u00fchlten Betroffene sich teilweise nicht ernst genommen von Behandelnden. Diese wiederum erlebten Vorbehalte gegen\u00fcber der psychosomatischen Komponente seitens der Betroffenen. Bedeutsam f\u00fcr einen positiven Umgang mit FMS scheint Eigeninitiative der Betroffenen zu sein.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Schlussfolgerung<\/jats:title>\n                <jats:p>Selbsthilfegruppen und regional verf\u00fcgbare Netzwerke stellen wichtige Unterst\u00fctzungsm\u00f6glichkeiten dar, auch im Hinblick auf die psychosomatische Komponente. Durch F\u00f6rderung interdisziplin\u00e4rer Vernetzung kann eine verbesserte Koordination der Versorgungsleistungen bewirkt werden. St\u00e4rkung der Eigeninitiative Betroffener und F\u00f6rderung der Arbeit der Selbsthilfegruppen helfen Betroffenen bei der Entwicklung individueller Bew\u00e4ltigungsstrategien.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s00482-020-00504-7","type":"journal-article","created":{"date-parts":[[2020,9,22]],"date-time":"2020-09-22T21:58:20Z","timestamp":1600811900000},"page":"315-321","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["\u201eMan muss aber auch selbst was tun\u201c","\u201cBut you\u2019ve got to do something yourself as well\u201d"],"prefix":"10.1007","volume":"35","author":[{"given":"Marion","family":"Al-Qadi","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dagmar","family":"Renaud","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martha","family":"Meyer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2020,9,22]]},"reference":[{"key":"504_CR1","doi-asserted-by":"publisher","first-page":"102","DOI":"10.1186\/1472-6963-10-102","volume":"10","author":"E Choy","year":"2010","unstructured":"Choy\u00a0E, Perrot\u00a0S, Leon\u00a0T, Kaplan\u00a0J, Petersel\u00a0D, Ginovker\u00a0A, Kramer\u00a0E (2010) A patient survey of the impact of fibromyalgie and the journey to diagnosis. BMC Health Serv Res 10:102","journal-title":"BMC Health Serv Res"},{"key":"504_CR2","unstructured":"Deutsche Schmerzgesellschaft (2017) Definition, Pathophysiologie, Diagnostik und Therapie des Fibromyalgiesyndroms. http:\/\/www.awmf.org\/leitlinien\/detail\/ll\/145-004.html. Zugegriffen: 29. Okt. 2019"},{"issue":"4","key":"504_CR3","doi-asserted-by":"publisher","first-page":"489","DOI":"10.1016\/j.berh.2019.01.019","volume":"32","author":"O Gendelman","year":"2018","unstructured":"Gendelman\u00a0O, Arnital\u00a0H, Bar-On\u00a0Y, Ben-Arni Shor\u00a0D, Arnital\u00a0D, Tiosano\u00a0S, Shalev\u00a0V, Chodick\u00a0G, Weitzman\u00a0D (2018) Time to diagnosis of fibromyalgia and factors associated with delayed diagnosis in primary care. Best Pract Res Clin Rheumatol 32(4):489\u2013499","journal-title":"Best Pract Res Clin Rheumatol"},{"key":"504_CR4","doi-asserted-by":"publisher","first-page":"163","DOI":"10.1007\/978-3-662-56812-5_9","volume-title":"Rheuma ist behandelbar","author":"E Gromnica-Ihle","year":"2018","unstructured":"Gromnica-Ihle\u00a0E (2018) Wenn der ganze K\u00f6rper schmerzt \u2013 das Fibromyalgie-Syndrom. In: Gromnica-Ihle\u00a0E (Hrsg) Rheuma ist behandelbar. Springer, Berlin, Heidelberg, New York, S 163\u2013172"},{"key":"504_CR5","doi-asserted-by":"publisher","first-page":"150","DOI":"10.1007\/s00482-012-1161-5","volume":"26","author":"W H\u00e4user","year":"2012","unstructured":"H\u00e4user\u00a0W, Jung\u00a0E, M\u00f6ller-Erbsl\u00f6h\u00a0B, Gesmann\u00a0M, K\u00fchn-Becker\u00a0H, Petermann\u00a0F, Langhorst\u00a0J, Weiss\u00a0T, Thoma\u00a0R, Winkelmann\u00a0A (2012) Der deutsche Fibromyalgieverbraucherbericht. Nutzen und Schaden von Behandlungen des Fibromyalgiesyndroms. Schmerz 26:150\u2013159","journal-title":"Schmerz"},{"key":"504_CR6","doi-asserted-by":"publisher","first-page":"197","DOI":"10.1007\/s00482-017-0219-9","volume":"31","author":"W H\u00e4user","year":"2017","unstructured":"H\u00e4user\u00a0W, K\u00fchn\u00a0E, Wolf\u00a0B, Nothacker\u00a0M, Petzke\u00a0F (2017) 12\u00a0Jahre S3-Leitlinie Fibromyalgiesyndrom \u2013 ein nie endender Krieg? Schmerz 31:197\u2013199","journal-title":"Schmerz"},{"key":"504_CR7","first-page":"167","volume-title":"Qualitative Inhaltsanalyse. Methoden, Praxis, Computerunterst\u00fctzung","author":"U Kuckartz","year":"2018","unstructured":"Kuckartz\u00a0U (2018) Qualitative Inhaltsanalyse. Methoden, Praxis, Computerunterst\u00fctzung, 4.\u00a0Aufl. 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Arthritis Care Res 65:777\u2013785","journal-title":"Arthritis Care Res"}],"container-title":["Der Schmerz"],"original-title":[],"language":"de","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00482-020-00504-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00482-020-00504-7\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00482-020-00504-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,9,22]],"date-time":"2021-09-22T00:49:46Z","timestamp":1632271786000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00482-020-00504-7"}},"subtitle":["Umgang mit dem Fibromyalgiesyndrom (FMS) \u2013 Perspektiven Betroffener und Behandelnder im Saarland","Coping with fibromyalgia syndrome\u00a0(FMS): perspectives of those affected and those treating them in Saarland"],"short-title":[],"issued":{"date-parts":[[2020,9,22]]},"references-count":13,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2021,10]]}},"alternative-id":["504"],"URL":"https:\/\/doi.org\/10.1007\/s00482-020-00504-7","relation":{},"ISSN":["0932-433X","1432-2129"],"issn-type":[{"value":"0932-433X","type":"print"},{"value":"1432-2129","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,9,22]]},"assertion":[{"value":"26 March 2020","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"20 August 2020","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"24 August 2020","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"22 September 2020","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Einhaltung ethischer Richtlinien"}},{"value":"M.\u00a0Al-Qadi, D.\u00a0Renaud und M.\u00a0Meyer sind\/waren am igft der htw saar besch\u00e4ftigt und geben an, dass kein Interessenkonflikt besteht.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Interessenkonflikt"}},{"value":"F\u00fcr diesen Beitrag wurden keine Studien an Menschen oder Tieren durchgef\u00fchrt. Von den befragten Betroffenen liegen jeweils schriftliche Einverst\u00e4ndniserkl\u00e4rungen vor, von den per Telefoninterview befragten Behandelnden liegt jeweils das aufgezeichnete m\u00fcndliche Einverst\u00e4ndnis vor. Die Studie stellt keine Interventionsstudie dar und wurde nicht in einem therapeutischen Kontext durchgef\u00fchrt. Es bestand keine Patientenbeziehung zu den Betroffenen. Die Befragten sind zudem nicht als vulnerable Gruppe anzusehen, Risiken und Sch\u00e4den waren nicht zu erwarten. Daher wurde kein Ethikvotum eingeholt.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Interessenkonflikt"}}]}}