{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,15]],"date-time":"2025-11-15T01:15:28Z","timestamp":1763169328414,"version":"3.45.0"},"reference-count":22,"publisher":"Springer Science and Business Media LLC","issue":"11","license":[{"start":{"date-parts":[[2025,10,16]],"date-time":"2025-10-16T00:00:00Z","timestamp":1760572800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2025,10,16]],"date-time":"2025-10-16T00:00:00Z","timestamp":1760572800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Support Care Cancer"],"published-print":{"date-parts":[[2025,11]]},"DOI":"10.1007\/s00520-025-09945-1","type":"journal-article","created":{"date-parts":[[2025,10,16]],"date-time":"2025-10-16T03:47:08Z","timestamp":1760586428000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Exploring online discussions for those living with cutaneous T cell lymphoma: a qualitative study"],"prefix":"10.1007","volume":"33","author":[{"given":"Jenny Jung Sun","family":"Park","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michi","family":"Shinohara","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,10,16]]},"reference":[{"key":"9945_CR1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2018-11-881268","author":"R Willemze","year":"2019","unstructured":"Willemze R, Cerroni L, Kempf W, Berti E, Facchetti F, Swerdlow S et al (2019) The 2018 update of the WHO-EORTC classification for primary cutaneous lymphomas. Blood. https:\/\/doi.org\/10.1182\/blood-2018-11-881268","journal-title":"Blood"},{"key":"9945_CR2","doi-asserted-by":"publisher","DOI":"10.1002\/ski2.45","author":"MM Shinohara","year":"2021","unstructured":"Shinohara MM, Mahurin HM, Tarabadkar E, Hippe DS, Lachance K, Kim EJ et al (2021) Health-related quality of life in cutaneous T-cell lymphoma: a cross-sectional survey study. Skin Health Dis. https:\/\/doi.org\/10.1002\/ski2.45","journal-title":"Skin Health Dis"},{"key":"9945_CR3","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.22252","author":"MF Demierre","year":"2006","unstructured":"Demierre MF, Gan S, Jones J, Miller DR (2006) Significant impact of cutaneous T-cell lymphoma on patients\u2019 quality of life: results of a 2005 National Cutaneous Lymphoma Foundation survey. Cancer. https:\/\/doi.org\/10.1002\/cncr.22252","journal-title":"Cancer"},{"key":"9945_CR4","doi-asserted-by":"publisher","DOI":"10.2340\/00015555-3171","author":"C Jonak","year":"2019","unstructured":"Jonak C, Porkert S, Oerlemans S, Papadavid E, Molloy K, Lehner-Baumgartner E et al (2019) Health-related quality of life in cutaneous lymphomas: past, present and future. Acta Dermato-Venereol. https:\/\/doi.org\/10.2340\/00015555-3171","journal-title":"Acta Dermato-Venereol"},{"key":"9945_CR5","doi-asserted-by":"publisher","DOI":"10.1002\/cam4.70577","author":"JN Howell","year":"2025","unstructured":"Howell JN, Mark B, Wada DA, Bowling M, Wei M et al (2025) Mental health diagnoses in patients with mycosis fungoides and potential impact on oncologic outcomes. Cancer Med. https:\/\/doi.org\/10.1002\/cam4.70577","journal-title":"Cancer Med"},{"key":"9945_CR6","unstructured":"Cutaneous Lymphoma Foundation (2025) Patient networking groups. Cutaneous Lymphoma Foundation. Available from: https:\/\/www.clfoundation.org\/patient-networking-groups. Accessed 2 Sept 2025"},{"key":"9945_CR7","doi-asserted-by":"publisher","DOI":"10.1080\/09546634.2018.1530444","author":"LC DeBord","year":"2019","unstructured":"DeBord LC, Patel V, Braun TL, Dao H (2019) Social media in dermatology: clinical relevance, academic value, and trends across platforms. J Dermatolog Treat. https:\/\/doi.org\/10.1080\/09546634.2018.1530444","journal-title":"J Dermatolog Treat"},{"key":"9945_CR8","doi-asserted-by":"publisher","DOI":"10.7759\/cureus.14890","author":"A Reddy","year":"2021","unstructured":"Reddy A (2021) Skincare in social media: analyzing prominent themes in online dermatologic discussions. Cureus. https:\/\/doi.org\/10.7759\/cureus.14890","journal-title":"Cureus"},{"key":"9945_CR9","doi-asserted-by":"publisher","DOI":"10.2196\/31140","author":"P Voillot","year":"2022","unstructured":"Voillot P, Riche B, Portafax M, Foulqui\u00e9 P, Gedik A, Barbarot S et al (2022) Social media platforms listening study on atopic dermatitis: quantitative and qualitative findings. J Med Internet Res. https:\/\/doi.org\/10.2196\/31140","journal-title":"J Med Internet Res"},{"issue":"7","key":"9945_CR10","doi-asserted-by":"publisher","DOI":"10.5070\/D3237035730","volume":"23","author":"T Buntinx-Krieg","year":"2017","unstructured":"Buntinx-Krieg T, Caravaglio J, Domozych R, Dellavalle RP (2017) Dermatology on Reddit: elucidating trends in dermatologic communications on the world wide web. Dermatol Online J 23(7):13030\/qt9dr1f7x6","journal-title":"Dermatol Online J"},{"key":"9945_CR11","doi-asserted-by":"publisher","DOI":"10.5070\/D3263047973","author":"TA Petukhova","year":"2020","unstructured":"Petukhova TA, Wilson BN, Gadjiko M, Lee E, Wang J, Rossi A et al (2020) Utilization of Facebook for support and education by patients with skin cancer. Dermatol Online J. https:\/\/doi.org\/10.5070\/D3263047973","journal-title":"Dermatol Online J"},{"key":"9945_CR12","doi-asserted-by":"publisher","DOI":"10.1097\/DSS.0000000000002060","author":"R Parks","year":"2020","unstructured":"Parks R, Newsom EC, Park JH, Lawrence N (2020) Skincare addiction on Reddit: dermatology enthusiasts talk skin. Dermatol Surg. https:\/\/doi.org\/10.1097\/DSS.0000000000002060","journal-title":"Dermatol Surg"},{"key":"9945_CR13","unstructured":"Kemp S (2022) Digital 2022: Global Overview Report. DataReportal. https:\/\/datareportal.com\/reports\/digital-2022-global-overview-report"},{"key":"9945_CR14","doi-asserted-by":"publisher","DOI":"10.1007\/s11135-017-0574-8","author":"B Saunders","year":"2018","unstructured":"Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B et al (2018) Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. https:\/\/doi.org\/10.1007\/s11135-017-0574-8","journal-title":"Qual Quant"},{"key":"9945_CR15","doi-asserted-by":"publisher","DOI":"10.7748\/nr2011.01.18.2.52.c8284","author":"J Smith","year":"2011","unstructured":"Smith J, Firth J (2011) Qualitative data analysis: the framework approach. Nurse Res. https:\/\/doi.org\/10.7748\/nr2011.01.18.2.52.c8284","journal-title":"Nurse Res"},{"key":"9945_CR16","doi-asserted-by":"publisher","DOI":"10.2340\/00015555-1971","author":"A Skov","year":"2015","unstructured":"Skov A, Gniadecki R (2015) Delay in the histopathologic diagnosis of mycosis fungoides. Acta Derm Venereol. https:\/\/doi.org\/10.2340\/00015555-1971","journal-title":"Acta Derm Venereol"},{"key":"9945_CR17","doi-asserted-by":"publisher","DOI":"10.1097\/JPN.0000000000000214","author":"HN Kim","year":"2016","unstructured":"Kim HN, Wyatt TH, Li X, Gaylord M (2016) Use of social media by fathers of premature infants. J Perinat Neonatal Nurs. https:\/\/doi.org\/10.1097\/JPN.0000000000000214","journal-title":"J Perinat Neonatal Nurs"},{"key":"9945_CR18","doi-asserted-by":"publisher","DOI":"10.3390\/cancers12102856","author":"M Dumont","year":"2020","unstructured":"Dumont M, Peffault De Latour R, Ram-Wolff C, Bagot M, De Masson A (2020) Allogeneic hematopoietic stem cell transplantation in cutaneous T-cell lymphomas. Cancers. https:\/\/doi.org\/10.3390\/cancers12102856","journal-title":"Cancers"},{"issue":"3","key":"9945_CR19","doi-asserted-by":"publisher","DOI":"10.5070\/D3263047975","volume":"26","author":"E Schoenberg","year":"2020","unstructured":"Schoenberg E, Shalabi D, Wang JV, Saedi N, Keller M (2020) Public social media consultations for dermatologic conditions: an online survey. Dermatol Online J 26(3):13030\/qt5ht4k2rh","journal-title":"Dermatol Online J"},{"key":"9945_CR20","doi-asserted-by":"publisher","unstructured":"Huh J (2015) Clinical questions in online health communities: the case of \u201cSee your doctor\u201d threads. In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. ACM, New York, pp 1488\u20131499 https:\/\/doi.org\/10.1145\/2675133.2675259","DOI":"10.1145\/2675133.2675259"},{"key":"9945_CR21","doi-asserted-by":"publisher","DOI":"10.1007\/s00403-019-01944-7","author":"P Kamath","year":"2019","unstructured":"Kamath P, Kursewicz C, Ingrasci G, Jacobs R, Agarwal N, Nouri K (2019) Analysis of patient perceptions of Mohs surgery on social media platforms. Arch Dermatol Res. https:\/\/doi.org\/10.1007\/s00403-019-01944-7","journal-title":"Arch Dermatol Res"},{"issue":"8","key":"9945_CR22","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.4308","volume":"17","author":"SA Sadah","year":"2015","unstructured":"Sadah SA, Shahbazi M, Wiley MT, Hristidis V (2015) A study of the demographics of web-based health-related social media users. J Med Internet Res 17(8):e194. https:\/\/doi.org\/10.2196\/jmir.4308","journal-title":"J Med Internet Res"}],"container-title":["Supportive Care in Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00520-025-09945-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s00520-025-09945-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s00520-025-09945-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,15]],"date-time":"2025-11-15T01:12:16Z","timestamp":1763169136000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s00520-025-09945-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,10,16]]},"references-count":22,"journal-issue":{"issue":"11","published-print":{"date-parts":[[2025,11]]}},"alternative-id":["9945"],"URL":"https:\/\/doi.org\/10.1007\/s00520-025-09945-1","relation":{},"ISSN":["0941-4355","1433-7339"],"issn-type":[{"type":"print","value":"0941-4355"},{"type":"electronic","value":"1433-7339"}],"subject":[],"published":{"date-parts":[[2025,10,16]]},"assertion":[{"value":"13 December 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 September 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"16 October 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"This observational study was conducted in accordance with the Declaration of Helsinki. The University of Washington Human Subjects Division reviewed the protocol and determined it to be exempt from federal human subjects regulations (STUDY00017812).","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval"}},{"value":"The administrator of the Facebook group was informed about the study\u2019s purpose, methods of data de-identification, and temporary membership and provided permission for access. Due to the retrospective, observational nature of this research and the use of publicly posted data, no direct contact with individual participants was made, and no additional informed consent was required. No identifying information is included in the published results.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent to participate and publish"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"953"}}