{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T21:24:54Z","timestamp":1790112294014,"version":"4.0.1"},"reference-count":38,"publisher":"Springer Science and Business Media LLC","issue":"8","license":[{"start":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T00:00:00Z","timestamp":1784592000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T00:00:00Z","timestamp":1784592000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100001794","name":"The University of Queensland","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001794","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Support Care Cancer"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>To describe the information experiences of vaginal and vulvar cancer patients, including satisfaction, needs, and preferred sources at three key touchpoints: pre-diagnosis, diagnosis, and treatment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This cross-sectional mixed methods study recruited women aged 18+ years living in Queensland, Australia, and diagnosed with primary vaginal or vulvar cancer between 01 June 2022 and 31 August 2023. We obtained self-reports of satisfaction with cancer information (Satisfaction with Cancer Information Profile, SCIP-B, range 7\u201335), need for information (study-specific measure designed in consultation with consumers including six items from the health system and information domain of the Supportive Care Needs Survey-Short Form, SCNS-SF34), and preferred sources of receiving information (Health Information National Trends Survey, HINTS). Participant-informed recommendations to improve information provision were derived from qualitative interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Of the 39 women who completed the quantitative questionnaire, 16 also participated in a qualitative interview. Mean scores for satisfaction with information increased from pre-diagnosis (20.8, SD 7.1) to during diagnosis (24.0, SD 8.4) and remained stable during treatment (24.8, SD 8.2). Approximately three-quarters of participants reported at least one moderate-to-high unmet information need at each touchpoint. Doctors, internet searches, and family\/friends were the preferred information sources. Seventeen recommendations were developed relevant to pre-diagnosis (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20092), diagnosis (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20092), treatment (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20094), post-treatment (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20092), and across touchpoints (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20097).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Dissatisfaction with information and unmet information needs were prevalent among our participants diagnosed with vaginal or vulvar cancer. A variety of participant-informed recommendations were developed which can guide the improvement of information experiences across the cancer care continuum.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s00520-026-11022-0","type":"journal-article","created":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T16:52:03Z","timestamp":1784652723000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Vaginal and vulvar cancer patient experiences of the information pathway from pre-diagnosis to treatment"],"prefix":"10.1007","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0285-6318","authenticated-orcid":false,"given":"Tracey","family":"DiSipio","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Britta","family":"Wigginton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joan","family":"Cunningham","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Jordan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abbey","family":"Diaz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,7,21]]},"reference":[{"key":"11022_CR1","unstructured":"Cancer Australia (2023) Australian cancer plan (Summary). 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