{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T10:14:08Z","timestamp":1791195248348,"version":"4.1.0"},"reference-count":58,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2022,4,12]],"date-time":"2022-04-12T00:00:00Z","timestamp":1649721600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2022,4,12]],"date-time":"2022-04-12T00:00:00Z","timestamp":1649721600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"BD","award":["this research is supported by a BD AWR Fellowship"],"award-info":[{"award-number":["this research is supported by a BD AWR Fellowship"]}]},{"name":"BD","award":["a British Hernia Society Research Grant. Integrated Research Application System (IRAS) Number: 271652."],"award-info":[{"award-number":["a British Hernia Society Research Grant. Integrated Research Application System (IRAS) Number: 271652."]}]},{"name":"British Hernia Society","award":["REC Number: 19\/SC0565"],"award-info":[{"award-number":["REC Number: 19\/SC0565"]}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Hernia"],"published-print":{"date-parts":[[2022,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Introduction<\/jats:title>\n                <jats:p>Quality of Life (QoL) is an important consideration in patients with abdominal wall hernia (AWH). What matters to patients and their everyday experience living with AWH may depend on a variety of personal, psychological, social and environmental factors. At present, no study has addressed what is important to this particular group of patients by asking the patients themselves. This study aims to determine QoL from the patient\u2019s perspective by examining the lived experience in this patient population.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>We interviewed 15 patients with AWH until thematic saturation. The patients were purposively sampled from AWH clinic between February 2020 and June 2020 using topic guides and interview schedules. Verbatim interview transcripts were coded and analysed using NVivo12 software and Interpretative Phenomenological Analysis (IPA). We adhered to consolidated criteria for reporting qualitative research (COREQ).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>Fifteen participants (8 men and 7 women)  of age range 36\u201385\u00a0years, median 65\u00a0years, covering all Ventral Hernia Working Group (VHWG) grades. Five superordinate themes were identified each with several subordinate themes, as follows: (1) body image (subthemes\u2014\u2018changes to perceptions of self\u2019 and \u2018fears concerning perceptions of others\u2019). (2) Mental health (subthemes\u2014\u2018emotional responses\u2019, \u2018disruptions to previously solid aspects of identity\u2019, \u2018developing coping strategies\u2019). (3) Symptoms (subthemes\u2014\u2018managing pain\u2019, \u2018freedom of movement\u2019, \u2018restriction and adaptation of function\u2019). (4) Interpersonal relationships (subthemes\u2014\u2018difficulties socially connecting\u2019 and \u2018changes in sexual relations\u2019). (5) Employment (subthemes\u2014\u2018financial pressure\u2019, \u2018return to work issues\u2019 and \u2018costs to family\u2019).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>This is the first phenomenological qualitative study in the field of AWH and presents a rich account of what is important to these patients in terms of QoL. Developed from the patients\u2019 own words, the themes are interrelated and should shape our understanding of patients with AWH. This study provides qualitative examples of each theme. This study has identified new themes (body image, interpersonal relationships and employment) that are not incorporated in existing AWH-specific QoL instruments. This is important for surgeons because the study suggests that we are currently not capturing all data relevant to QoL in this specific patient group with current tools. The wider impact of this would be to help counsel patients and support them more holistically through the disease process and it's management. Further research is needed to generate a standardised AWH QoL instrument which incorporates bio-psycho-emotional\u2013social themes important to patients, as identified by patients.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s10029-022-02599-6","type":"journal-article","created":{"date-parts":[[2022,4,12]],"date-time":"2022-04-12T11:04:12Z","timestamp":1649761452000},"page":"795-808","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":36,"title":["Health-related quality of life in abdominal wall hernia: let\u2019s ask patients what matters to them?"],"prefix":"10.1007","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6687-151X","authenticated-orcid":false,"given":"O. A.","family":"Smith","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9751-5865","authenticated-orcid":false,"given":"M. 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