{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T07:02:22Z","timestamp":1780470142848,"version":"3.54.1"},"reference-count":23,"publisher":"Springer Science and Business Media LLC","issue":"S1","license":[{"start":{"date-parts":[[2016,4,1]],"date-time":"2016-04-01T00:00:00Z","timestamp":1459468800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Eur J Health Econ"],"published-print":{"date-parts":[[2016,4]]},"DOI":"10.1007\/s10198-016-0786-1","type":"journal-article","created":{"date-parts":[[2016,4,16]],"date-time":"2016-04-16T13:35:23Z","timestamp":1460813723000},"page":"79-87","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":46,"title":["Social\/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe"],"prefix":"10.1007","volume":"17","author":[{"name":"The BURQOL-RD Research Network","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Kuhlmann","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T.","family":"Schmidt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Treskova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"L\u00f3pez-Bastida","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R.","family":"Linertov\u00e1","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Oliva-Moreno","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P.","family":"Serrano-Aguilar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Posada-de-la-Paz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P.","family":"Kanavos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Taruscio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Schieppati","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G.","family":"Iskrov","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"P\u00e9ntek","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Delgado","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J. M.","family":"von der Schulenburg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"U.","family":"Persson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Chevreul","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G.","family":"Fattore","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2016,4,16]]},"reference":[{"issue":"9563","key":"786_CR1","doi-asserted-by":"publisher","first-page":"767","DOI":"10.1016\/S0140-6736(07)60363-8","volume":"369","author":"A Ravelli","year":"2007","unstructured":"Ravelli, A., Martini, A.: Juvenile idiopathic arthritis. Lancet 369(9563), 767\u2013778 (2007). doi: 10.1016\/S0140-6736(07)60363-8","journal-title":"Lancet"},{"key":"786_CR2","unstructured":"Orphanet Report Series: Prevalence of rare diseases: bibliographic data (2014)"},{"issue":"3","key":"786_CR3","first-page":"194","volume":"71","author":"PJ Kahn","year":"2013","unstructured":"Kahn, P.J.: Juvenile idiopathic arthritis\u2014what the clinician needs to know. Bull. Hosp. Jt. Dis. 71(3), 194\u2013199 (2013)","journal-title":"Bull. Hosp. Jt. Dis."},{"issue":"1","key":"786_CR4","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/0168-8510(96)00822-6","volume":"37","author":"R Brooks","year":"1996","unstructured":"Brooks, R.: EuroQol: the current state of play. Health policy (Amst, Neth) 37(1), 53\u201372 (1996)","journal-title":"Health policy (Amst, Neth)"},{"key":"786_CR5","volume-title":"Methods for the economic evaluation of health care programmes","author":"MF Drummond","year":"2007","unstructured":"Drummond, M.F.: Methods for the economic evaluation of health care programmes, 3rd edn. Oxford medical publications, Oxford University Press, Oxford (2007)","edition":"3"},{"issue":"4","key":"786_CR6","doi-asserted-by":"crossref","first-page":"400","DOI":"10.1002\/gps.353","volume":"16","author":"D McDaid","year":"2001","unstructured":"McDaid, D.: Estimating the costs of informal care for people with Alzheimer\u2019s disease: methodological and practical challenges. Int. J. Geriatr. Psychiatry 16(4), 400\u2013405 (2001)","journal-title":"Int. J. Geriatr. Psychiatry"},{"issue":"1","key":"786_CR7","doi-asserted-by":"publisher","first-page":"36","DOI":"10.1007\/s10198-003-0189-y","volume":"5","author":"B Berg van den","year":"2004","unstructured":"van den Berg, B., Brouwer, W.B.F., Koopmanschap, M.A.: Economic valuation of informal care. An overview of methods and applications. Eur. J. Health Econ. HEPAC Health Econo. Prev. Care 5(1), 36\u201345 (2004). doi: 10.1007\/s10198-003-0189-y","journal-title":"Eur. J. Health Econ. HEPAC Health Econo. Prev. Care"},{"issue":"3","key":"786_CR8","doi-asserted-by":"crossref","first-page":"429","DOI":"10.2307\/3349801","volume":"60","author":"TA Hodgson","year":"1982","unstructured":"Hodgson, T.A., Meiners, M.R.: Cost-of-illness methodology: a guide to current practices and procedures. Milbank Mem. Fund Q. Health Soc. 60(3), 429\u2013462 (1982)","journal-title":"Milbank Mem. Fund Q. Health Soc."},{"issue":"11","key":"786_CR9","doi-asserted-by":"crossref","first-page":"1095","DOI":"10.1097\/00005650-199711000-00002","volume":"35","author":"P Dolan","year":"1997","unstructured":"Dolan, P.: Modeling valuations for EuroQol health states. Med. Care 35(11), 1095\u20131108 (1997)","journal-title":"Med. Care"},{"key":"786_CR10","first-page":"61","volume":"14","author":"FI Mahoney","year":"1965","unstructured":"Mahoney, F.I., Barthel, D.W.: Functional evaluation: the Barthel index. Md. State Med. J. 14, 61\u201365 (1965)","journal-title":"Md. State Med. J."},{"issue":"8","key":"786_CR11","doi-asserted-by":"crossref","first-page":"703","DOI":"10.1016\/0895-4356(89)90065-6","volume":"42","author":"S Shah","year":"1989","unstructured":"Shah, S., Vanclay, F., Cooper, B.: Improving the sensitivity of the Barthel index for stroke rehabilitation. J. Clin. Epidemiol. 42(8), 703\u2013709 (1989)","journal-title":"J. Clin. Epidemiol."},{"issue":"4","key":"786_CR12","doi-asserted-by":"crossref","first-page":"494","DOI":"10.1017\/S0714980800012484","volume":"19","author":"R H\u00e9bert","year":"2000","unstructured":"H\u00e9bert, R., Bravo, G., Pr\u00e9ville, M.: Reliability, validity and reference values of the Zarit burden interview for assessing informal caregivers of community-dwelling older persons with dementia. Can. J Aging 19(4), 494\u2013507 (2000)","journal-title":"Can. J Aging"},{"issue":"7","key":"786_CR13","doi-asserted-by":"crossref","first-page":"964","DOI":"10.1016\/j.healthpol.2014.12.016","volume":"119","author":"A Angelis","year":"2015","unstructured":"Angelis, A., Tordrup, D., Kanavos, P.: Socio-economic burden of rare diseases: a systematic review of cost of illness evidence. Health Policy 119(7), 964\u2013979 (2015)","journal-title":"Health Policy"},{"issue":"7","key":"786_CR14","doi-asserted-by":"publisher","first-page":"836","DOI":"10.1136\/ard.2003.008516","volume":"63","author":"K Minden","year":"2004","unstructured":"Minden, K., Niewerth, M., Listing, J., Biedermann, T., Sch\u00f6ntube, M., Zink, A.: Burden and cost of illness in patients with juvenile idiopathic arthritis. Ann. Rheum. Dis. 63(7), 836\u2013842 (2004). doi: 10.1136\/ard.2003.008516","journal-title":"Ann. Rheum. Dis."},{"issue":"5","key":"786_CR15","first-page":"863","volume":"27","author":"K Minden","year":"2009","unstructured":"Minden, K., Niewerth, M., Listing, J., M\u00f6bius, D., Thon, A., Ganser, G., Ermisch-Omran, B., Zink, A.: The economic burden of juvenile idiopathic arthritis-results from the German paediatric rheumatologic database. Clin. Exp. Rheumatol. 27(5), 863\u2013869 (2009)","journal-title":"Clin. Exp. Rheumatol."},{"issue":"11","key":"786_CR16","first-page":"2286","volume":"31","author":"J Haapasaari","year":"2004","unstructured":"Haapasaari, J., Kautiainen, H.J., Isom\u00e4ki, H.A., Hakala, M.: Etanercept does not essentially increase the total costs of the treatment of refractory juvenile idiopathic arthritis. J. Rheumatol. 31(11), 2286\u20132289 (2004)","journal-title":"J. Rheumatol."},{"key":"786_CR17","unstructured":"Ghatnekar, O., Glenng\u00e5rd, A., Olofsson, S., Persson, U.: A literature review of instruments for measuring health-related quality of life in rare diseases. The Swedish institute for health economics\u2014internal report of BURQOL-RD (2011)"},{"issue":"2","key":"786_CR18","doi-asserted-by":"publisher","first-page":"149","DOI":"10.1016\/j.jbspin.2007.07.007","volume":"75","author":"A Bruns","year":"2008","unstructured":"Bruns, A., Hil\u00e1rio, M.O.E., Jennings, F., Silva, C.A., Natour, J.: Quality of life and impact of the disease on primary caregivers of juvenile idiopathic arthritis patients. Jt. Bone Spine revue du Rhum 75(2), 149\u2013154 (2008). doi: 10.1016\/j.jbspin.2007.07.007","journal-title":"Jt. Bone Spine revue du Rhum"},{"issue":"1","key":"786_CR19","doi-asserted-by":"publisher","first-page":"167","DOI":"10.1007\/s11999-007-0010-9","volume":"466","author":"BM Jolles","year":"2008","unstructured":"Jolles, B.M., Bogoch, E.R.: Quality of life after TKA for patients with juvenile rheumatoid arthritis. Clin. Orthop. Relat. Res. 466(1), 167\u2013178 (2008). doi: 10.1007\/s11999-007-0010-9","journal-title":"Clin. Orthop. Relat. Res."},{"issue":"6","key":"786_CR20","first-page":"922","volume":"25","author":"C Duarte-Salazar","year":"2007","unstructured":"Duarte-Salazar, C., Guzm\u00e1n-V\u00e1zquez, S., Soto-Molina, H., Ch\u00e1idez-Rosales, P., Ilizaliturri-S\u00e1nchez, V., Nieves-Silva, J., Valero-Gonz\u00e1lez, F., Aguilera-Zepeda, J.M.: Disability impact on quality of life in Mexican adults with juvenile idiopathic arthritis and juvenile ankylosing spondylitis. Clin. Exp. Rheumatol. 25(6), 922\u2013927 (2007)","journal-title":"Clin. Exp. Rheumatol."},{"issue":"3","key":"786_CR21","doi-asserted-by":"publisher","first-page":"275","DOI":"10.1007\/s00296-008-0672-y","volume":"29","author":"B Amine","year":"2009","unstructured":"Amine, B., Rostom, S., Benbouazza, K., Abouqal, R., Hajjaj-Hassouni, N.: Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis. Rheumatol. Int. 29(3), 275\u2013279 (2009). doi: 10.1007\/s00296-008-0672-y","journal-title":"Rheumatol. Int."},{"issue":"4","key":"786_CR22","doi-asserted-by":"publisher","first-page":"655","DOI":"10.1007\/s11136-005-3690-1","volume":"15","author":"KT April","year":"2006","unstructured":"April, K.T., Feldman, D.E., Platt, R.W., Duffy, C.M.: Comparison between Children with Juvenile Idiopathic Arthritis (JIA) and their parents concerning perceived quality of life. Qual. Life Res. 15(4), 655\u2013661 (2006). doi: 10.1007\/s11136-005-3690-1","journal-title":"Qual. Life Res."},{"issue":"2","key":"786_CR23","doi-asserted-by":"publisher","first-page":"199","DOI":"10.1002\/art.21852","volume":"55","author":"KL Shaw","year":"2006","unstructured":"Shaw, K.L., Southwood, T.R., Duffy, C.M., McDonagh, J.E.: Health-related quality of life in adolescents with juvenile idiopathic arthritis. Arthritis Rheum. 55(2), 199\u2013207 (2006). doi: 10.1002\/art.21852","journal-title":"Arthritis Rheum."}],"container-title":["The European Journal of Health Economics"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s10198-016-0786-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s10198-016-0786-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s10198-016-0786-1","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,5,29]],"date-time":"2019-05-29T11:03:05Z","timestamp":1559127785000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s10198-016-0786-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,4]]},"references-count":23,"journal-issue":{"issue":"S1","published-print":{"date-parts":[[2016,4]]}},"alternative-id":["786"],"URL":"https:\/\/doi.org\/10.1007\/s10198-016-0786-1","relation":{},"ISSN":["1618-7598","1618-7601"],"issn-type":[{"value":"1618-7598","type":"print"},{"value":"1618-7601","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,4]]}}}