{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T15:18:47Z","timestamp":1786115927899,"version":"build-2736575974"},"reference-count":59,"publisher":"Springer Science and Business Media LLC","issue":"S1","license":[{"start":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T00:00:00Z","timestamp":1785283200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/deed.de"},{"start":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T00:00:00Z","timestamp":1785283200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/deed.de"}],"funder":[{"DOI":"10.13039\/501100003065","name":"University of Vienna","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100003065","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Wien Med Wochenschr"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Hintergrund<\/jats:title>\n                    <jats:p>Viele Betroffene von Myalgischer Enzephalomyelitis\/Chronischem Fatigue-Syndrom (ME\/CFS) sind hochgradig pflegebed\u00fcrftig. Gleichzeitig bedingt die Post-Exertionelle Malaise (PEM), das Kernmerkmal von ME\/CFS, dass bereits geringe k\u00f6rperliche, orthostatische, kognitive oder sensorische Belastungen eine disproportionale Zustandsverschlechterung ausl\u00f6sen k\u00f6nnen. Dadurch ergeben sich spezifische Anforderungen und erhebliche Herausforderungen in der h\u00e4uslichen Versorgung. Die pflegerische Versorgung wird bislang \u00fcberwiegend von Angeh\u00f6rigen getragen, die dabei nur unzureichend Hilfe und Unterst\u00fctzung finden. Gleichzeitig bestehen erhebliche Defizite in Wissen, Versorgungsstrukturen und professioneller Orientierung f\u00fcr die an der Betreuung beteiligten Pflege- und Gesundheitsberufe sowie \u00c4rzt:innen.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ziel<\/jats:title>\n                    <jats:p>Ziel dieses Leitfadens ist es, pflegerische Ma\u00dfnahmen so auszurichten, dass \u00dcberlastungen vermieden und Stabilit\u00e4t unterst\u00fctzt wird.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methoden<\/jats:title>\n                    <jats:p>Der Leitfaden basiert auf einer Zusammenstellung praxisorientierter Ma\u00dfnahmen, die sich aus Sicht von Betroffenen und pflegenden Angeh\u00f6rigen bew\u00e4hrt haben. Diese wurden durch Expert:innen aus Pflegewissenschaft, Physiotherapie, Allgemeinmedizin und Public Health fachlich eingeordnet und inhaltlich weiterentwickelt.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Ergebnisse<\/jats:title>\n                    <jats:p>Der Leitfaden beschreibt Anpassungen zentraler Pflegedimensionen \u2013\u00a0von Ern\u00e4hrung und K\u00f6rperpflege bis hin zu Kommunikation und Umgang mit emotionalen Belastungen\u00a0\u2013 an krankheitsspezifische Belastungsgrenzen. Erg\u00e4nzend werden Anforderungen an die Pflegebeziehung und die Planung von Hausbesuchen dargestellt sowie M\u00f6glichkeiten palliativer Pflegeprinzipien diskutiert.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s10354-026-01182-3","type":"journal-article","created":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T08:21:01Z","timestamp":1785313261000},"page":"28-51","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Guidance on Home-Based Care for People with Severe ME\/CFS: A Transdisciplinary Expert Statement","Transdisziplin\u00e4res Expert:innen-Statement: Pflegeleitfaden f\u00fcr Menschen mit schwerem ME\/CFS in der h\u00e4uslichen Versorgung"],"prefix":"10.1007","volume":"176","author":[{"given":"Joachim","family":"Hermisson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudia","family":"Schreiner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefanie","family":"Weichselbaumer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marlene","family":"Werner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Verena","family":"Hackl","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacob","family":"Roth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sandra","family":"Leiss","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna Christina","family":"Maukner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvia","family":"Wojczewski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Astrid","family":"Hainzl","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabine","family":"Hermisson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kevin","family":"Thonhofer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabine","family":"Pleschberger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn","family":"Hoffmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,7,29]]},"reference":[{"key":"1182_CR1","doi-asserted-by":"publisher","DOI":"10.17226\/19012","volume-title":"Beyond myalgic encephalomyelitis\/chronic fatigue syndrome: redefining an illness","author":"Institute of Medicine","year":"2015","unstructured":"Institute of Medicine. 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