{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T14:57:34Z","timestamp":1789657054650,"version":"4.0.1"},"reference-count":32,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2017,3,14]],"date-time":"2017-03-14T00:00:00Z","timestamp":1489449600000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"DOI":"10.13039\/501100006431","name":"Canc\u00e9rop\u00f4le \u00cele-de-France","doi-asserted-by":"publisher","award":["2013-130"],"award-info":[{"award-number":["2013-130"]}],"id":[{"id":"10.13039\/501100006431","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Familial Cancer"],"published-print":{"date-parts":[[2017,7]]},"DOI":"10.1007\/s10689-017-9970-4","type":"journal-article","created":{"date-parts":[[2017,3,14]],"date-time":"2017-03-14T04:38:02Z","timestamp":1489466282000},"page":"447-457","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":21,"title":["Supporting disclosure of genetic information to family members: professional practice and timelines in cancer genetics"],"prefix":"10.1007","volume":"16","author":[{"given":"Benjamin","family":"Derbez","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Antoine","family":"de Pauw","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dominique","family":"Stoppa-Lyonnet","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sandrine","family":"de Montgolfier","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2017,3,14]]},"reference":[{"issue":"1","key":"9970_CR1","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1057\/sth.2009.22","volume":"9","author":"M Arribas-Ayllon","year":"2010","unstructured":"Arribas-Ayllon M, Featherstone K, Atkinson P (2010) The practical ethics of genetic responsibility: non-disclosure and the autonomy of affect. Soc Theory Health 9(1):3\u201323. doi:\n10.1057\/sth.2009.22","journal-title":"Soc Theory Health"},{"issue":"3","key":"9970_CR2","doi-asserted-by":"publisher","first-page":"280","DOI":"10.1177\/0969733007075862","volume":"14","author":"S Barnoy","year":"2007","unstructured":"Barnoy S, Tabak N (2007) Israeli nurses and genetic information disclosure. Nurs Ethics 14(3):280\u2013294. doi:\n10.1177\/0969733007075862","journal-title":"Nurs Ethics"},{"issue":"13","key":"9970_CR3","doi-asserted-by":"publisher","first-page":"3417","DOI":"10.1002\/cncr.26471","volume":"118","author":"AR Bradbury","year":"2012","unstructured":"Bradbury AR, Patrick-Miller L, Egleston BL, Olopade OI, Daly MB, Moore CW, Daugherty CK et al (2012) When parents disclose BRCA1\/2 test results: their communication and perceptions of offspring response. Cancer 118(13):3417\u20133425. doi:\n10.1002\/cncr.26471","journal-title":"Cancer"},{"issue":"1","key":"9970_CR4","doi-asserted-by":"publisher","first-page":"53","DOI":"10.1016\/j.pec.2013.02.001","volume":"92","author":"Z Bruwer","year":"2013","unstructured":"Bruwer Z, Futter M, Ramesar R (2013) Communicating cancer risk within an African context: experiences, disclosure patterns and uptake rates following genetic testing for Lynch syndrome. Patient Educ Couns 92(1):53\u201360. doi:\n10.1016\/j.pec.2013.02.001","journal-title":"Patient Educ Couns"},{"issue":"4","key":"9970_CR5","doi-asserted-by":"publisher","first-page":"330","DOI":"10.1007\/s10897-010-9296-y","volume":"19","author":"K Chivers Seymour","year":"2010","unstructured":"Chivers Seymour K, Addington-Hall J, Lucassen AM, Foster CL (2010) What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research. J Genet Couns 19(4):330\u2013342. doi:\n10.1007\/s10897-010-9296-y","journal-title":"J Genet Couns"},{"issue":"3","key":"9970_CR6","doi-asserted-by":"publisher","first-page":"483","DOI":"10.1007\/s10897-015-9896-7","volume":"25","author":"D D\u2019Audiffret Van Haecke","year":"2016","unstructured":"D\u2019Audiffret Van Haecke D, de Montgolfier S (2016) Genetic test results and disclosure to family members: qualitative Interviews of Healthcare Professionals\u2019 Perceptions of Ethical and Professional Issues in France. J Genet Couns 25(3):483\u2013494. doi:\n10.1007\/s10897-015-9896-7","journal-title":"J Genet Couns"},{"key":"9970_CR7","doi-asserted-by":"publisher","first-page":"86","DOI":"10.1186\/1745-6215-15-86","volume":"15","author":"E Geus De","year":"2014","unstructured":"De Geus E, Aalfs CM, Verdam MGE, de Haes HCJM, Smets EMA (2014) Informing relatives about their hereditary or familial cancer risk: study protocol for a randomized controlled trial. Trials 15:86. doi:\n10.1186\/1745-6215-15-86","journal-title":"Trials"},{"key":"9970_CR8","doi-asserted-by":"publisher","first-page":"290","DOI":"10.1038\/gim.2015.72","volume":"18","author":"S Dheensa","year":"2016","unstructured":"Dheensa S, Fenwick A, Shkedi-Rafid S, Crawford G, Lucassen A (2016) Health-care professionals\u2019 responsibility to patients\u2019 relatives in genetic medicine: a systematic review and synthesis of empirical research. Genet Med 18:290\u2013301. doi:\n10.1038\/gim.2015.72\n\n (with supplementary table S1 online)","journal-title":"Genet Med"},{"key":"9970_CR9","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1002\/ajmg.c.10005","volume":"119C","author":"RB Dugan","year":"2003","unstructured":"Dugan RB, Wiesner GL, Juengst ET, O\u2019Riordan M, Matthews AL, Robin NH (2003) Duty to warn at-risk relatives for genetic disease: genetic counselors\u2019 clinical experience. Am J Med Genet C Semin Med Genet 119C:27\u201334","journal-title":"Am J Med Genet C Semin Med Genet"},{"issue":"4","key":"9970_CR10","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1186\/bcr70","volume":"2","author":"RA Eeles","year":"2000","unstructured":"Eeles RA (2000) Future possibilities in the prevention of breast cancer: intervention strategies in BRCA1 and BRCA2 mutation carriers. Breast Cancer Res 2(4):283\u2013290","journal-title":"Breast Cancer Res"},{"key":"9970_CR11","unstructured":"Farnos C, Rial-Sebbag E (2013) The genetic information to relatives in 2012, to a patient empowerment for the benefit of his relatives. Presented at the Medical Law Topical Seminar, Les \u00e9tudes hospitali\u00e8res, Bordeaux"},{"issue":"6","key":"9970_CR12","doi-asserted-by":"publisher","first-page":"1458","DOI":"10.1002\/ajmg.a.33385","volume":"152 A","author":"LE Forrest","year":"2010","unstructured":"Forrest LE, Delatycki MB, Curnow L, Skene L, Aitken M (2010) Genetic health professionals and the communication of genetic information in families: practice during and after a genetic consultation. Am J Med Genet A 152 A(6):1458\u20131466. doi:\n10.1002\/ajmg.a.33385","journal-title":"Am J Med Genet A"},{"issue":"10","key":"9970_CR13","doi-asserted-by":"publisher","first-page":"999","DOI":"10.1038\/sj.ejhg.5201883","volume":"15","author":"CL Gaff","year":"2007","unstructured":"Gaff CL, Clarke AJ, Atkinson P, Sivell S, Elwyn G, Iredale R, Edwards A et al (2007) Process and outcome in communication of genetic information within families: a systematic review. Eur J Human Genet 15(10):999\u20131011. doi:\n10.1038\/sj.ejhg.5201883","journal-title":"Eur J Human Genet"},{"key":"9970_CR14","volume-title":"The interpretation of cultures: selected essays","author":"C Geertz","year":"1973","unstructured":"Geertz C (1973) The interpretation of cultures: selected essays. Basic Books, New York"},{"issue":"1","key":"9970_CR15","doi-asserted-by":"publisher","first-page":"103","DOI":"10.1007\/s10689-005-2581-5","volume":"5","author":"B Godard","year":"2006","unstructured":"Godard B, Hurlimann T, Letendre M, \u00c9galit\u00e9 N (2006) Guidelines for disclosing genetic information to family members: from development to use. Fam Cancer 5(1):103\u2013116. doi:\n10.1007\/s10689-005-2581-5","journal-title":"Fam Cancer"},{"issue":"1","key":"9970_CR16","doi-asserted-by":"publisher","first-page":"16","DOI":"10.1007\/s10897-012-9514-x","volume":"22","author":"J Hodgson","year":"2013","unstructured":"Hodgson J, Gaff C (2013) Enhancing family communication about genetics: ethical and professional dilemmas. J Genet Couns 22(1):16\u201321. doi:\n10.1007\/s10897-012-9514-x","journal-title":"J Genet Couns"},{"issue":"1","key":"9970_CR17","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/1897-4287-10-4","volume":"10","author":"A Kardashian","year":"2012","unstructured":"Kardashian A, Fehniger J, Creasman J, Cheung E, Beattie MS (2012) A Pilot study of the sharing risk information tool (ShaRIT) for families with hereditary breast and ovarian cancer syndrome. Hered Cancer Clin Pract 10(1):1\u201310. doi:\n10.1186\/1897-4287-10-4","journal-title":"Hered Cancer Clin Pract"},{"issue":"2","key":"9970_CR18","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1007\/s10897-012-9531-9","volume":"22","author":"J Lapointe","year":"2013","unstructured":"Lapointe J, C\u00f4t\u00e9 C, Bouchard K, Godard B, Simard J, Dorval M (2013) Life events may contribute to family communication about cancer risk following BRCA1\/2 testing. J Genet Couns 22(2):249\u2013257. doi:\n10.1007\/s10897-012-9531-9","journal-title":"J Genet Couns"},{"key":"9970_CR19","volume-title":"Science in action: how to follow scientists and engineers through society","author":"B Latour","year":"2005","unstructured":"Latour B, Biezunski M (2005) Science in action: how to follow scientists and engineers through society. La D\u00e9couverte, Paris"},{"issue":"5","key":"9970_CR20","doi-asserted-by":"publisher","first-page":"306","DOI":"10.1136\/jme.2008.027029","volume":"35","author":"SM Liao","year":"2009","unstructured":"Liao SM (2009) Is there a duty to share genetic information? J Med Ethics 35(5):306\u2013309. doi:\n10.1136\/jme.2008.027029","journal-title":"J Med Ethics"},{"key":"9970_CR21","unstructured":"Law No. 2011\u2013814 dated 7 July 2011 (art. 2) (2011) Code de la sant\u00e9 publique. L1131-1, JORF"},{"issue":"9","key":"9970_CR22","doi-asserted-by":"publisher","first-page":"903","DOI":"10.1038\/ejhg.2012.286","volume":"21","author":"KA McClellan","year":"2013","unstructured":"McClellan KA, Kleiderman E, Black L, Bouchard K, Dorval M, Simard J, Avard D et al (2013) Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk. Eur J Hum Genet 21(9):903\u2013910. doi:\n10.1038\/ejhg.2012.286","journal-title":"Eur J Hum Genet"},{"issue":"3","key":"9970_CR23","doi-asserted-by":"publisher","first-page":"315","DOI":"10.1038\/ejhg.2015.174","volume":"24","author":"\u00c1 Mendes","year":"2016","unstructured":"Mendes \u00c1, Paneque M, Sousa L, Clarke A, Sequeiros J (2016) How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence. Eur J Human Genet 24(3):315\u2013325. doi:\n10.1038\/ejhg.2015.174","journal-title":"Eur J Human Genet"},{"issue":"7458","key":"9970_CR24","doi-asserted-by":"publisher","first-page":"165","DOI":"10.1136\/bmj.329.7458.165","volume":"329","author":"M Parker","year":"2004","unstructured":"Parker M, Lucassen AM (2004) Genetic information: a joint account?. BMJ (Clin Res Ed) 329(7458):165\u2013167. doi:\n10.1136\/bmj.329.7458.165","journal-title":"BMJ (Clin Res Ed)"},{"issue":"1","key":"9970_CR25","doi-asserted-by":"publisher","first-page":"135","DOI":"10.1007\/s10549-013-2669-9","volume":"141","author":"P Pujol","year":"2013","unstructured":"Pujol P, Lyonnet DS, Frebourg T, Blin J, Picot MC, Lasset C, Nogues C et al (2013) Lack of referral for genetic counseling and testing in BRCA1\/2 and Lynch syndromes: a nationwide study based on 240,134 consultations and 134,652 genetic tests. Breast Cancer Res Treat 141(1):135\u2013144. doi:\n10.1007\/s10549-013-2669-9","journal-title":"Breast Cancer Res Treat"},{"issue":"23","key":"9970_CR26","doi-asserted-by":"crossref","first-page":"3070","DOI":"10.1001\/jama.283.23.3068g","volume":"283","author":"D Schrag","year":"2000","unstructured":"Schrag D, Kuntz KM, Garber JE, Weeks JC (2000) Benefit of prophylactic mastectomy for women with BRCA1 or BRCA2 mutations. JAMA 283(23):3070\u20133072","journal-title":"JAMA"},{"key":"9970_CR27","doi-asserted-by":"crossref","DOI":"10.1017\/CBO9780511557842","volume-title":"Qualitative analysis for social scientists","author":"AL Strauss","year":"1987","unstructured":"Strauss AL (1987) Qualitative analysis for social scientists. Cambridge University Press, Cambridge"},{"key":"9970_CR28","doi-asserted-by":"crossref","first-page":"391","DOI":"10.1136\/jme.2009.033324","volume":"36","author":"YH Stol","year":"2010","unstructured":"Stol YH, Menko FH, Westerman MJ, Janssens RM (2010) Informing family members about a hereditary predisposition to cancer: attitudes and practices among clinical geneticists. J Med Ethics 36:391\u2013395","journal-title":"J Med Ethics"},{"key":"9970_CR29","doi-asserted-by":"crossref","unstructured":"Suthers GK, Armstrong J, McCormack J, Trott D (2006) Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder. J Med Genet 43(8):665\u2013670","DOI":"10.1136\/jmg.2005.039172"},{"key":"9970_CR30","doi-asserted-by":"crossref","first-page":"199","DOI":"10.1023\/A:1023234802124","volume":"12","author":"J Weil","year":"2003","unstructured":"Weil J (2003) Psychosocial genetic counselling in the post non-directive area: a point of view. J Genet Couns 12:199\u2013211","journal-title":"J Genet Couns"},{"issue":"1","key":"9970_CR31","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1159\/000080300","volume":"7","author":"BJ Wilson","year":"2004","unstructured":"Wilson BJ, Forrest K, van Teijlingen ER, McKee L, Haites N, Matthews E, Simpson SA (2004) Family communication about genetic risk: the little that is known. Commun Genet 7(1):15\u201324. doi:\n10.1159\/000080300","journal-title":"Commun Genet"},{"issue":"4","key":"9970_CR32","doi-asserted-by":"publisher","first-page":"691","DOI":"10.1007\/s10689-010-9380-3","volume":"9","author":"M Wiseman","year":"2010","unstructured":"Wiseman M, Dancyger C, Michie S (2010) Communicating genetic risk information within families: a review. Fam Cancer 9(4):691\u2013703. doi:\n10.1007\/s10689-010-9380-3","journal-title":"Fam Cancer"}],"container-title":["Familial Cancer"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s10689-017-9970-4\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s10689-017-9970-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s10689-017-9970-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,6,22]],"date-time":"2017-06-22T07:02:49Z","timestamp":1498114969000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s10689-017-9970-4"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,3,14]]},"references-count":32,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2017,7]]}},"alternative-id":["9970"],"URL":"https:\/\/doi.org\/10.1007\/s10689-017-9970-4","relation":{},"ISSN":["1389-9600","1573-7292"],"issn-type":[{"value":"1389-9600","type":"print"},{"value":"1573-7292","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,3,14]]}}}