{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,6]],"date-time":"2025-12-06T08:19:55Z","timestamp":1765009195238,"version":"3.46.0"},"reference-count":44,"publisher":"Springer Science and Business Media LLC","issue":"4","license":[{"start":{"date-parts":[[2025,9,10]],"date-time":"2025-09-10T00:00:00Z","timestamp":1757462400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,9,10]],"date-time":"2025-09-10T00:00:00Z","timestamp":1757462400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"National Cancer Institute"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Familial Cancer"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>\n                    Li-Fraumeni syndrome (LFS) is an early-onset cancer syndrome caused by pathogenic germline\n                    <jats:italic>TP53<\/jats:italic>\n                    variants. Adolescents and young adults (AYAs) with LFS may have challenges navigating new romantic partnerships given the significant effects of LFS on multiple life domains that also affect partners (e.g., reproductive decision-making). Disclosing LFS-related information to new partners may be especially difficult given the uncertainty, complexity, and chronicity of LFS. This qualitative-descriptive study aimed to explore AYAs\u2019 LFS disclosure decisions and experiences in new romantic partnerships. Participants were individuals with LFS aged 15\u201339 years at enrollment in a National Cancer Institute study. The analytic sample included 33 AYAs who completed at least one telephone interview. Greene\u2019s disclosure decision-making model guided thematic analysis. Participants were mostly female (67%) and married\/in a long-term relationship (58%), with mean age 29 years and \u2265\u20091 primary cancer (61%). Key factors in LFS disclosure decision-making included perceived relevancy to partners (e.g., future children\u2019s genetic risk), partner traits (e.g., trustworthiness), and relationship quality (e.g., closeness). AYAs described LFS disclosures in new partnerships as a process. Disclosing LFS diagnosis often occurred early to fulfill a sense of moral obligation and emotionally self-protect from future rejection, while subsequent LFS disclosures depended on relationship quality and the topic\u2019s emotional valence or complexity. Partners often earned AYAs\u2019 trust by demonstrating a willingness to learn about and try to understand LFS. Clinicians and LFS communities could support AYAs by providing opportunities to discuss, normalize, and ameliorate challenges with LFS disclosures in new romantic partnerships (e.g., peer support groups, psychotherapy).\n                  <\/jats:p>","DOI":"10.1007\/s10689-025-00495-3","type":"journal-article","created":{"date-parts":[[2025,9,10]],"date-time":"2025-09-10T07:43:18Z","timestamp":1757490198000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Navigating disclosure in new romantic partnerships as an adolescent or young adult with Li-Fraumeni syndrome"],"prefix":"10.1007","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4099-528X","authenticated-orcid":false,"given":"Camella J.","family":"Rising","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8112-5005","authenticated-orcid":false,"given":"Chloe O.","family":"Huelsnitz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4510-0542","authenticated-orcid":false,"given":"Rowan","family":"Forbes Shepherd","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5427-1015","authenticated-orcid":false,"given":"Catherine","family":"Wilsnack","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9950-2745","authenticated-orcid":false,"given":"Patrick","family":"Boyd","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5317-060X","authenticated-orcid":false,"given":"Alix G.","family":"Sleight","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1663-0317","authenticated-orcid":false,"given":"Ashley S.","family":"Thompson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3646-9946","authenticated-orcid":false,"given":"Sadie P.","family":"Hutson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2473-7800","authenticated-orcid":false,"given":"Payal P.","family":"Khincha","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3133-820X","authenticated-orcid":false,"given":"Allison","family":"Werner-Lin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,9,10]]},"reference":[{"key":"495_CR1","doi-asserted-by":"publisher","first-page":"525","DOI":"10.1089\/jayao.2018.0028","volume":"7","author":"R Forbes Shepherd","year":"2018","unstructured":"Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE (2018) A systematic review of how young people live with inherited disease: what can we learn for Li-Fraumeni syndrome? 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J Genet Counsel 34:e1938. https:\/\/doi.org\/10.1002\/jgc4.1938","journal-title":"J Genet Counsel"}],"container-title":["Familial Cancer"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s10689-025-00495-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s10689-025-00495-3\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s10689-025-00495-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,6]],"date-time":"2025-12-06T08:17:31Z","timestamp":1765009051000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s10689-025-00495-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,9,10]]},"references-count":44,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["495"],"URL":"https:\/\/doi.org\/10.1007\/s10689-025-00495-3","relation":{},"ISSN":["1573-7292"],"issn-type":[{"type":"electronic","value":"1573-7292"}],"subject":[],"published":{"date-parts":[[2025,9,10]]},"assertion":[{"value":"9 May 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"18 August 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"10 September 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"We disclose that the senior author on this manuscript, Dr. Allison Werner-Lin, is on the Editorial Board of Familial Cancer. The authors have no other conflicting or competing interests to disclose. We disclose that the senior author on this manuscript, Dr. Allison Werner-Lin, is on the Editorial Board of\n                      Familial Cancer\n                      . The authors have no other conflicting or competing interests to disclose.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interests"}},{"value":"This study was approved by the National Institutes of Health (NIH) IRB (NIH Protocol 11-C-0255, ClinicalTrials.gov, Identifier NCT01443468).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"All participants provided consent before beginning audio-recorded telephone interviews.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent to participate"}}],"article-number":"71"}}