{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T14:27:56Z","timestamp":1791210476370,"version":"4.1.0"},"reference-count":29,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2005,6,16]],"date-time":"2005-06-16T00:00:00Z","timestamp":1118880000000},"content-version":"vor","delay-in-days":76,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2005,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The current study aimed to gain an understanding of the perspectives of those parents provided with a prenatal diagnosis of spina bifida or hydrocephalus and who decided to continue with their pregnancy. Qualitative interviews were conducted with 15 parents who learned of their unborn child's spina bifida and\/or hydrocephalus in the prenatal period. The interviewer asked parents about their experiences of receiving a prenatal diagnosis and their experience of coping throughout the remainder of the antenatal period. Parents\u2019 reactions and experiences fell into five domains: response to diagnosis, experience of medical systems, information gathering, decision\u2010making regarding continuation of the pregnancy following diagnosis and responses of significant others. Each of these domains is explicated. The findings derived from the current study have implications for professionals who provide support to parents during the prenatal period. Future research needs to further explore the common and unique issues for parents living in both urban and rural areas.<\/jats:p>","DOI":"10.1007\/s10897-005-0488-9","type":"journal-article","created":{"date-parts":[[2005,6,13]],"date-time":"2005-06-13T14:50:41Z","timestamp":1118674241000},"page":"151-162","source":"Crossref","is-referenced-by-count":54,"title":["Experiences of Prenatal Diagnosis of Spina Bifida or Hydrocephalus in Parents Who Decide to Continue with Their Pregnancy"],"prefix":"10.1002","volume":"14","author":[{"given":"Julie","family":"Chaplin","sequence":"first","affiliation":[{"name":"School of Psychology and Counseling Queensland University of Technology Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Schweitzer","sequence":"additional","affiliation":[{"name":"School of Psychology and Counseling Queensland University of Technology Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shelley","family":"Perkoulidis","sequence":"additional","affiliation":[{"name":"School of Psychology and Counseling Queensland University of Technology Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2005,6,16]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.322.7284.463"},{"key":"e_1_2_1_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/jms.7.4.169"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(96)00155-4"},{"key":"e_1_2_1_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.1970100802"},{"key":"e_1_2_1_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF01408072"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1159\/000263947"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.1352\/0047-6765(1998)036<0055:PDODSM>2.0.CO;2"},{"key":"e_1_2_1_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/0011000097254001"},{"key":"e_1_2_1_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.1970070403"},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-0223(199911)19:11<1043::AID-PD697>3.0.CO;2-T"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.1970130711"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.3109\/01674828509016718"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1096-8628(19980923)79:3<172::AID-AJMG4>3.0.CO;2-P"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.3109\/00016348909028667"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.31.11.864"},{"key":"e_1_2_1_17_1","volume-title":"Doing counselling research.","author":"McLeod J.","year":"1994"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF00962074"},{"key":"e_1_2_1_19_1","first-page":"52","article-title":"Determinants of parental decision to abort or continue after non\u2010aneuploid ultrasound\u2010detected fetal abnormalities","volume":"80","author":"Pryde P. G.","year":"1992","journal-title":"Obstet Gynecol"},{"key":"e_1_2_1_20_1","volume-title":"The tentative pregnancy\u2014prenatal diagnosis and the future of motherhood.","author":"Rothman B.","year":"1988"},{"key":"e_1_2_1_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(95)00102-6"},{"key":"e_1_2_1_22_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1469-0705.1994.04020124.x"},{"key":"e_1_2_1_23_1","doi-asserted-by":"publisher","DOI":"10.1053\/beog.2000.0108"},{"key":"e_1_2_1_24_1","volume-title":"Prenatal diagnosis: The human side","author":"Statham H.","year":"2003"},{"key":"e_1_2_1_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0033-3506(03)00080-5"},{"key":"e_1_2_1_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(05)61038-0"},{"key":"e_1_2_1_27_1","first-page":"A183","article-title":"Analysis of decision to continue or terminate pregnancies diagnosed with sex chromosome abnormalities by severity of prognosis, socioeconomic level and sex of fetus","volume":"39","author":"Tannebaurn H. L.","year":"1986","journal-title":"Am J Med Genet"},{"key":"e_1_2_1_28_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.1320290320"},{"issue":"36","key":"e_1_2_1_29_1","first-page":"1736","article-title":"Sensitive and specific screening for detection of Spina Bifida by echography in the second trimester: Systematic review and meta\u2010analysis","volume":"144","author":"Vos J. M.","year":"2000","journal-title":"Nederlands Tijdschrift Voor Geneeskunde"},{"key":"e_1_2_1_30_1","doi-asserted-by":"publisher","DOI":"10.1067\/mob.2000.103943"}],"container-title":["Journal of Genetic Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1007\/s10897-005-0488-9","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1007\/s10897-005-0488-9","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,15]],"date-time":"2023-09-15T06:07:03Z","timestamp":1694758023000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1007\/s10897-005-0488-9"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2005,4]]},"references-count":29,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2005,4]]}},"alternative-id":["10.1007\/s10897-005-0488-9"],"URL":"https:\/\/doi.org\/10.1007\/s10897-005-0488-9","archive":["Portico"],"relation":{},"ISSN":["1059-7700","1573-3599"],"issn-type":[{"value":"1059-7700","type":"print"},{"value":"1573-3599","type":"electronic"}],"subject":[],"published":{"date-parts":[[2005,4]]}}}