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Drawing upon 24 semi\u2010structured interviews with at risk persons and their family members, this study explored initial discovery of HD in the family. Qualitative data analysis revealed four different, though sometimes related, trajectories of discovery: (1) something is wrong, (2) out of the blue, (3) knowing, but dismissing, and 4) growing up with HD. These pathways highlighted the importance of the temporal and historical contexts in which genetic risk for HD was discovered. Notably, ignorance about HD was the most salient feature shaping participants\u2019 narratives of discovery. Implications for research and clinical practice are discussed.<\/jats:p>","DOI":"10.1007\/s10897-006-9018-7","type":"journal-article","created":{"date-parts":[[2006,3,15]],"date-time":"2006-03-15T20:00:27Z","timestamp":1142452827000},"page":"105-117","source":"Crossref","is-referenced-by-count":21,"title":["Discovering the Family History of Huntington Disease (HD)"],"prefix":"10.1002","volume":"15","author":[{"given":"Holly","family":"Etchegary","sequence":"first","affiliation":[{"name":"Department of Epidemiology and Community Medicine School of Psychology, University of Ottawa Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2006,3,16]]},"reference":[{"key":"e_1_2_8_2_1","volume-title":"Risk society.","author":"Beck U.","year":"1992"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.1998.tb03769.x"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105302007002397"},{"key":"e_1_2_8_5_1","volume-title":"Unpublished doctoral dissertation","author":"Cox S.","year":"1999"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1545-5300.2002.00677.x"},{"key":"e_1_2_8_7_1","volume-title":"\u201cI have the gene, but I don't have Huntington disease\u201d: Negotiating genetic risk","author":"Etchegary H.","year":"2005"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1089\/gte.2006.10.60"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(98)00086-X"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(00)00064-2"},{"key":"e_1_2_8_11_1","volume-title":"Huntington's disease.","author":"Harper P.","year":"1996"},{"key":"e_1_2_8_12_1","volume-title":"Decision making: A psychological analysis of conflict, choice and commitment.","author":"Janis I.","year":"1977"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/87.4.286"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105302007005628"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.69.5.574"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.3109\/13651509709024715"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.GIM.0000106165.74751.15"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.1320450112"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1096-8628(20000103)90:1<49::AID-AJMG10>3.0.CO;2-3"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870449608400256"},{"key":"e_1_2_8_21_1","first-page":"68","volume-title":"Material discourses of health and illness","author":"Smith J. 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