{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,14]],"date-time":"2026-07-14T07:01:31Z","timestamp":1784012491207,"version":"3.55.0"},"reference-count":44,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2007,6,27]],"date-time":"2007-06-27T00:00:00Z","timestamp":1182902400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2007,8]]},"abstract":"<jats:p>Providing medical management updates and long\u2010term support to families with hereditary cancer syndromes in rural areas is a challenge. To address this, we designed a one\u2010day retreat for <jats:italic>BRCA1<\/jats:italic>\/<jats:italic>2<\/jats:italic> carriers in our region. The retreat included educational updates about medical management, genetic privacy and discrimination, and addressed psychological and family issues. Evaluations completed at the conclusion of the retreat were overwhelmingly positive with requests for a similar event in the future. The impact of this retreat on a variety of health behaviors was assessed. Eligible participants completed questionnaires before and 6 months after the retreat. Questionnaires focused on lifestyle, cancer screening and prevention practices, psychological history and distress, decision\u2010making regarding genetic testing, and family communication issues. For individuals who completed both the pre and post retreat questionnaires, one\u2010half made lifestyle changes and nearly two\u2010thirds increased cancer screening, initiated chemoprevention, completed or planned to complete preventative surgery in the future. We conclude that this type of forum provides a valuable opportunity for <jats:italic>BRCA<\/jats:italic> carriers and their families to receive updated medical information, share personal experiences, provide and receive support, as well as change health behaviors.<\/jats:p>","DOI":"10.1007\/s10897-006-9078-8","type":"journal-article","created":{"date-parts":[[2007,6,28]],"date-time":"2007-06-28T16:45:59Z","timestamp":1183049159000},"page":"433-456","source":"Crossref","is-referenced-by-count":45,"title":["Results of an Intervention for Individuals and Families with <i>BRCA<\/i> Mutations: A Model for Providing Medical Updates and Psychosocial Support Following Genetic Testing"],"prefix":"10.1002","volume":"16","author":[{"given":"Wendy","family":"McKinnon","sequence":"first","affiliation":[{"name":"Department of Pediatrics University of Vermont College of Medicine Burlington VT 05401 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shelly","family":"Naud","sequence":"additional","affiliation":[{"name":"Department of Medical Biostatistics University of Vermont College of Medicine Burlington VT 05401 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Taka","family":"Ashikaga","sequence":"additional","affiliation":[{"name":"Department of Medical Biostatistics University of Vermont College of Medicine Burlington VT 05401 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rose","family":"Colletti","sequence":"additional","affiliation":[{"name":"Cancer Patient Support Program Fletcher Allen Health Care Burlington VT 05401 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Wood","sequence":"additional","affiliation":[{"name":"Department of Medicine University of Vermont College of Medicine Burlington VT 05401 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,6,27]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1086\/375033"},{"key":"e_1_2_7_3_1","first-page":"1251","article-title":"Factors associated with decisions about clinical BRCA1\/2 testing","volume":"9","author":"Armstrong K.","year":"2000","journal-title":"Cancer, Epidem, Bio Prev"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/91.15.1310"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/08964289.1990.9934587"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-8519.00234"},{"issue":"7","key":"e_1_2_7_7_1","first-page":"1005","article-title":"Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: findings from a focus group and a needs\u2010assessment survey","volume":"164","author":"Di Prospero L. 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