{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,11]],"date-time":"2026-07-11T05:42:58Z","timestamp":1783748578187,"version":"3.55.0"},"reference-count":51,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2007,10,5]],"date-time":"2007-10-05T00:00:00Z","timestamp":1191542400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000005","name":"U.S. Department of Defense","doi-asserted-by":"publisher","award":["W81XWH\u201004\u20101\u20100562"],"award-info":[{"award-number":["W81XWH\u201004\u20101\u20100562"]}],"id":[{"id":"10.13039\/100000005","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2007,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The Facing Our Risk of Cancer Empowered (FORCE) website is devoted to women at risk for hereditary breast and ovarian cancers. One of the most frequently discussed topics on the archived messaged board has been prophylactic mastectomy (PM) for women with a BRCA1\/2 mutation. We reviewed the messages, over a 4 year period, of 21 high risk women and their \u201cconversational\u201d partners who originally posted on a thread about genetic testing, genetic counseling and family history. We used a qualitative research inductive process involving close reading, coding and identification of recurrent patterns, relationships and processes in the data. The women sought emotional support, specific experiential knowledge and information from each other. They frequently found revealing their post PM status problematic because of possible negative reactions and adopted self\u2010protective strategies of evasion and concealment outside of their web\u2010based community. The FORCE message board was considered to be a safe place in which the women could be truthful about their choices and feelings. Results are discussed in terms of Goffman's concepts \u201cstigma\u201d and \u201cdisclosure\u201d and Charmaz's concepts \u201cinterruptions,\u201d \u201cintrusions\u201d and a \u201cdreaded future.\u201d<\/jats:p>","DOI":"10.1007\/s10897-007-9112-5","type":"journal-article","created":{"date-parts":[[2007,10,4]],"date-time":"2007-10-04T20:10:06Z","timestamp":1191528606000},"page":"789-798","source":"Crossref","is-referenced-by-count":26,"title":["Women with <i>BRCA1<\/i> or <i>BRCA2<\/i> Mutations Renegotiating a Post\u2010Prophylactic Mastectomy Identity: Self\u2010Image and Self\u2010Disclosure."],"prefix":"10.1002","volume":"16","author":[{"given":"Regina H.","family":"Kenen","sequence":"first","affiliation":[{"name":"Department of Sociology and Anthropology The College of New Jersey PO Box 7718 Ewing NJ 08628\u20100718 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela J.","family":"Shapiro","sequence":"additional","affiliation":[{"name":"Division of Population Science Fox Chase Cancer Center Philadelphia PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liisa","family":"Hantsoo","sequence":"additional","affiliation":[{"name":"Department of Psychiatry University of Pennsylvania School of Medicine Philadelphia PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Friedman","sequence":"additional","affiliation":[{"name":"Facing Our Risk of Cancer Empowered Tampa FL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James C.","family":"Coyne","sequence":"additional","affiliation":[{"name":"Department of Psychiatry University of Pennsylvania School of Medicine Philadelphia PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,10,5]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1300\/J074v18n01_05"},{"key":"e_1_2_6_3_1","first-page":"187","article-title":"Breast and ovarian cancer genetics and prevention","volume":"5","author":"Altaha R.","year":"2003","journal-title":"The West Virginia Medical Journal"},{"key":"e_1_2_6_4_1","volume-title":"Cancer facts and figures 2006.","author":"American Cancer Society","year":"2006"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1086\/375033"},{"key":"e_1_2_6_6_1","volume-title":"Best friends: The pleasures and perils of girl's and women's friendships.","author":"Apter T.","year":"1998"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025659701805"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.prs.0000217383.99038.f5"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/94.18.1365"},{"key":"e_1_2_6_10_1","volume-title":"Good days, bad days.","author":"Charmaz K.","year":"1991"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2002.20.5.1164"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1037\/0278-6133.16.6.506"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.617"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1086\/301749"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.92.3.378"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2005.09.233"},{"key":"e_1_2_6_17_1","volume-title":"Discovery of grounded theory: The strategies for qualitative research","author":"Glaser B. 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