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We conducted an interview study to explore experiences from and perceived impact on life after genetic testing for HNPCC. Three major themes emerged: reactions and emotions, family relations and implications for life. Among the reactions described were suspecting heredity, feelings of guilt, the importance of experiential knowledge, and coping strategies. The impact on family relations was related to perceived responsibility for conveying information, encountering different reactions among family members, and difficulties in communication and relations. The implications described included uncertainty, adaptation, new choices and changes in life, family planning issues, and experiences of surveillance programs. We suggest that the themes and sub\u2010themes identified should be taken into account during genetic counselling in order to facilitate the spread of information and to prepare family members for the impact on life that knowledge about hereditary cancer may have.<\/jats:p>","DOI":"10.1007\/s10897-007-9117-0","type":"journal-article","created":{"date-parts":[[2007,8,17]],"date-time":"2007-08-17T00:38:06Z","timestamp":1187311086000},"page":"811-820","source":"Crossref","is-referenced-by-count":28,"title":["Living with Hereditary Non\u2010polyposis Colorectal Cancer; Experiences from and Impact of Genetic Testing"],"prefix":"10.1002","volume":"16","author":[{"given":"C.","family":"Carlsson","sequence":"first","affiliation":[{"name":"Department of Oncology, Institute of Clinical Sciences Lund University Hospital Lund 221 85 Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Nilbert","sequence":"additional","affiliation":[{"name":"Department of Oncology, Institute of Clinical Sciences Lund University Hospital Lund 221 85 Sweden"},{"name":"Department of Clinical Sciences, Copenhagen University Clinical Research Unit, Hvidovre University Hospital Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,8,18]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1097-0215(19990412)81:2<214::AID-IJC8>3.0.CO;2-L"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.ejhg.5200532"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2003.11.002"},{"issue":"4","key":"e_1_2_7_5_1","first-page":"345","article-title":"Attitudes toward colon cancer gene testing: Factors predicting test uptake","volume":"8","author":"Codori A. 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