{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T14:27:21Z","timestamp":1791210441322,"version":"4.1.0"},"reference-count":23,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2008,5,15]],"date-time":"2008-05-15T00:00:00Z","timestamp":1210809600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["R01\u2010DE016148"],"award-info":[{"award-number":["R01\u2010DE016148"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["P50\u2010DE016215"],"award-info":[{"award-number":["P50\u2010DE016215"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2008,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>This study investigated the experience of receiving a diagnosis of clefting in the prenatal or postnatal period. Open\u2010ended interviews were conducted with 20 parents of children with cleft lip with or without cleft palate. Interviews were transcribed and analyzed using a qualitative descriptive approach with an emphasis on thematic analysis. Common themes emerged from participants\u2019 responses regarding the delivery of the diagnosis, preparation for the birth of their child, advantages and disadvantages of prenatal diagnosis, use of the Internet, views on abortion and genetic testing, among other issues. All participants in the prenatal group indicated they were satisfied they learned of the cleft before the birth of their child. Some participants in the postnatal group would rather have received the diagnosis prenatally, while others were content with learning of the diagnosis in the delivery room. Greater awareness of the parental experience of the timing of receiving a cleft diagnosis may assist health care professionals in providing care for these families.<\/jats:p>","DOI":"10.1007\/s10897-008-9152-5","type":"journal-article","created":{"date-parts":[[2008,5,14]],"date-time":"2008-05-14T18:29:01Z","timestamp":1210789741000},"page":"336-350","source":"Crossref","is-referenced-by-count":75,"title":["A Qualitative Description of Receiving a Diagnosis of Clefting in the Prenatal or Postnatal Period"],"prefix":"10.1002","volume":"17","author":[{"given":"Rachel","family":"Nusbaum","sequence":"first","affiliation":[{"name":"Department of Human Genetics University of Pittsburgh Pittsburgh PA USA"},{"name":"Lombardi Comprehensive Cancer Center Jess and Mildred Fisher Center for Familial Cancer Research Washington DC USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robin E.","family":"Grubs","sequence":"additional","affiliation":[{"name":"Department of Human Genetics University of Pittsburgh Pittsburgh PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph E.","family":"Losee","sequence":"additional","affiliation":[{"name":"Division of Pediatric Plastic Surgery Children's Hospital of Pittsburgh Pittsburgh PA USA"},{"name":"Cleft\u2010Craniofacial Center Children's Hospital of Pittsburgh Pittsburgh PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carla","family":"Weidman","sequence":"additional","affiliation":[{"name":"Cleft\u2010Craniofacial Center Children's Hospital of Pittsburgh Pittsburgh PA USA"},{"name":"Child Development Unit Children's Hospital of Pittsburgh Pittsburgh PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew D.","family":"Ford","sequence":"additional","affiliation":[{"name":"Cleft\u2010Craniofacial Center Children's Hospital of Pittsburgh Pittsburgh PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary L.","family":"Marazita","sequence":"additional","affiliation":[{"name":"Department of Human Genetics University of Pittsburgh Pittsburgh PA USA"},{"name":"Center for Craniofacial and Dental Genetics, Department of Oral Biology University of Pittsburgh Suite 500 Bridgeside Point Building, 100 Technology Dr. Pittsburgh PA 15219 USA"},{"name":"Department of Psychiatry, School of Medicine University of Pittsburgh Pittsburgh PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2008,5,15]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.14219\/jada.archive.2003.0053"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1025659701805"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_1999_036_0030_mgotcp_2.3.co_2"},{"key":"e_1_2_7_5_1","first-page":"105","article-title":"The early prenatal diagnosis of cleft lip and the decision\u2010making process","volume":"36","author":"Blumenfeld Z.","year":"1999","journal-title":"Cleft Palate\u2010Craniofacial Journal"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.112.2.308"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.155.10.1131"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.1054\/bjps.2000.3330"},{"key":"e_1_2_7_9_1","first-page":"57","article-title":"Antenatal diagnosis of cleft lip and palate: Supporting the parents","volume":"9","author":"Forth S.","year":"2003","journal-title":"Journal of Neonatal Nursing"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_2003_040_0186_pdocla_2.0.co_2"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/uog.978"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1022901131305"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1749-6632.1998.tb08949.x"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006534-199801000-00001"},{"key":"e_1_2_7_15_1","volume-title":"Qualitative data analysis: An expanded sourcebook.","author":"Miles M. 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