{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T14:08:07Z","timestamp":1783001287069,"version":"3.54.5"},"reference-count":38,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2009,10,23]],"date-time":"2009-10-23T00:00:00Z","timestamp":1256256000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2010,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Research indicates that health care professionals\u2019 attitudes may affect patients\u2019 decisions regarding prenatal Huntington Disease testing, but few studies have sampled genetic counselors. In this qualitative study, genetic counselors described their experiences counseling individuals at risk for HD regarding reproductive decision\u2010making. Five major research questions were investigated: 1) What are genetic counselor responsibilities? 2) What issues arise for patients and counselors? 3) How do counselors reconcile prenatal testing with presymptomatic testing? 4) To what extent are counselors\u2019 initial expectations of at\u2010risk patients\u2019 beliefs and behaviors met? and 5) What advice would counselors offer to novice practitioners about working with this patient population? Fifteen genetic counselors experienced in counseling individuals at risk for HD participated in a semi\u2010structured phone interview that yielded several themes. For example, participants identified their primary responsibility as<jats:italic>information provision<\/jats:italic>; less prevalent were<jats:italic>psychosocial support<\/jats:italic>and<jats:italic>facilitating decision makin<\/jats:italic>g. The most common ethical challenge was testing prenatally for HD which also results in presymptomatic testing of minors. Participants were divided about how directive to be in response to this ethical issue and about termination of a gene positive pregnancy.<\/jats:p>","DOI":"10.1007\/s10897-009-9265-5","type":"journal-article","created":{"date-parts":[[2009,10,22]],"date-time":"2009-10-22T15:35:03Z","timestamp":1256225703000},"page":"131-147","source":"Crossref","is-referenced-by-count":9,"title":["Genetic Counselors\u2019 Perceived Responsibilities Regarding Reproductive Issues for Patients at Risk for Huntington Disease"],"prefix":"10.1002","volume":"19","author":[{"given":"Karrie A.","family":"Hines","sequence":"first","affiliation":[{"name":"Department of Obstetrics and Gynecology Indiana University School of Medicine Indianapolis IN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"McCarthy Veach","sequence":"additional","affiliation":[{"name":"Department of Educational Psychology University of Minnesota 250 Education Sciences Building, 56 E. River Road Minneapolis MN 55455 USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bonnie S.","family":"LeRoy","sequence":"additional","affiliation":[{"name":"Department of Genetics, Cell Biology, and Development, Institute of Human Genetics University of Minnesota Minneapolis MN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2009,10,23]]},"reference":[{"key":"e_1_2_17_2_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1015275022199"},{"key":"e_1_2_17_3_1","doi-asserted-by":"publisher","DOI":"10.1053\/spen.2001.26451"},{"key":"e_1_2_17_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/hmg\/6.2.301"},{"key":"e_1_2_17_5_1","doi-asserted-by":"publisher","DOI":"10.1034\/j.1399-0004.2003.00093.x"},{"key":"e_1_2_17_6_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.ejhg.5201774"},{"key":"e_1_2_17_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-005-0619-3"},{"key":"e_1_2_17_8_1","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1111\/j.1399-0004.2005.00505.x","article-title":"Predictive genetic testing in young people for adult\u2010onset conditions: where is the empirical evidence?","volume":"69","author":"Duncan R. 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