{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,29]],"date-time":"2025-08-29T09:46:19Z","timestamp":1756460779082},"reference-count":18,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2011,8,16]],"date-time":"2011-08-16T00:00:00Z","timestamp":1313452800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2012,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Family history questionnaires (FHQ) are useful tools for cancer genetic counseling, providing an informational basis for pedigree construction and individualized cancer risk assessment. Reported return rates of mailed FHQs amongst familial cancer clinics that utilize them are lower than desired however, and it is unknown whether patients perceive required completion of a FHQ as a barrier to access of cancer genetics services. This study critically evaluated the use of a mailed FHQ for all routine new patient referrals to a single hereditary cancer clinic in Quebec, Canada. Reasons for response\/non\u2010response to a FHQ and the effect of administration of a questionnaire on patients\u2019 self\u2010reported level of motivation to pursue genetic counseling, were examined. Of 112 eligible individuals referred during the study period, 86 completed a semi\u2010structured telephone survey; of these, 45% had returned the mailed FHQ prior to the telephone survey (Responders) and 55% had not (Non\u2010responders). Overall, the majority of participants indicated a FHQ is an acceptable and understandable method of collecting family history information. Most prevalent reasons for not returning the FHQ were (bad) timing (56%), and difficulty accessing family history information (46%). Non\u2010response was significantly associated with difficulty in asking relatives for the requested information (<jats:italic>p<\/jats:italic>\u2009=\u20090.011), and Non\u2010responders cited fewer overall perceived benefits of cancer genetic counseling as compared with Responders (<jats:italic>p<\/jats:italic>\u2009&lt;\u20090.0001). One quarter of Non\u2010responders returned the mailed FHQ following administration of the telephone survey, suggesting implementation of a follow\u2010up prompt is a cost\u2010effective way to increase response.<\/jats:p>","DOI":"10.1007\/s10897-011-9399-0","type":"journal-article","created":{"date-parts":[[2011,8,17]],"date-time":"2011-08-17T15:34:52Z","timestamp":1313595292000},"page":"273-291","source":"Crossref","is-referenced-by-count":6,"title":["Reading Between the Lines: A Comparison of Responders and Non\u2010responders to a Family History Questionnaire and Implications for Cancer Genetic Counselling"],"prefix":"10.1002","volume":"21","author":[{"given":"Julia H.","family":"Appleby\u2010Tagoe","sequence":"first","affiliation":[{"name":"Department of Medical Genetics, Montreal General Hospital McGill University Health Centre 1650 Cedar Ave., Room L10\u2010120 Montreal QC H3G 1A4 Canada"},{"name":"Genetic Services, Alberta Health Services\u2014South Zone Lethbridge AB Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William D.","family":"Foulkes","sequence":"additional","affiliation":[{"name":"Department of Medical Genetics, Montreal General Hospital McGill University Health Centre 1650 Cedar Ave., Room L10\u2010120 Montreal QC H3G 1A4 Canada"},{"name":"Program in Cancer Genetics, Departments of Oncology and Human Genetics McGill University Montreal QC Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Palma","sequence":"additional","affiliation":[{"name":"Department of Medical Genetics, Montreal General Hospital McGill University Health Centre 1650 Cedar Ave., Room L10\u2010120 Montreal QC H3G 1A4 Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2011,8,16]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-009-9228-x"},{"key":"e_1_2_6_3_1","doi-asserted-by":"crossref","unstructured":"Armel S. R. Hitchman K. Millar K. Zahavich L. Demsky R. Murphy J. et al. (2011).The use of family history questionnaires: an examination of genetic risk estimates and genetic testing eligibility in the non\u2010responder population.Journal of Genetic Counseling.doi:10.1007\/s10897\u2010011\u20109359\u20108.","DOI":"10.1007\/s10897-011-9359-8"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1034\/j.1399-0004.1999.550605.x"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1016662524428"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-007-9106-3"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1009451213035"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/1099-1611(200011\/12)9:6<522::AID-PON492>3.0.CO;2-S"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.314.7076.281"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10350-003-0034-5"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.37.6.470"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1047-2797(03)00073-5"},{"key":"e_1_2_6_13_1","volume-title":"Research methods","author":"McBurney D. 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