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Assessing disease impact can inform clinical interventions. Best\u2010worst scaling (BWS) was used to elicit parental priorities among 16 short\u2010term, DMD\u2010related worries identified through community engagement. Respondents viewed 16 subsets of worries, identified using a balanced, incomplete block design, and identified the most and least worrying items. Priorities were assessed using best\u2010worst scores (spanning +1 to \u22121) representing the relative number of times items were endorsed as most and least worrying. Independent\u2010sample t\u2010tests compared prioritization of parents with ambulatory and non\u2010ambulatory children. Participants (<jats:italic>n<\/jats:italic>\u2009=\u2009119) most prioritized worries about weakness progression (<jats:italic>BW score\u2009=<\/jats:italic>\u20090.64) and getting the right care over time (<jats:italic>BW\u2009=<\/jats:italic>\u20090.25). Compared to parents of non\u2010ambulatory children, parents of ambulatory children more highly prioritized missing treatments (<jats:italic>BW\u2009=<\/jats:italic>\u20090.31 vs. 0.13, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001) and being a good enough parent (<jats:italic>BW\u2009=<\/jats:italic>\u20090.06 vs. \u22120.08, <jats:italic>p<\/jats:italic>\u2009=\u20090.010), and less prioritized child feeling like a burden (<jats:italic>BW\u2009=\u2009\u2212<\/jats:italic>0.24 vs. \u22120.07, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001). Regardless of child's disease stage, caregiver interventions should address the emotional impact of caring for a child with a progressive, fatal disease. We demonstrate an accessible, clinically\u2010relevant approach to prioritize disease impact using BWS, which offers an alternative to the use of traditional rating\/ranking scales.<\/jats:p>","DOI":"10.1007\/s10897-015-9872-2","type":"journal-article","created":{"date-parts":[[2015,8,20]],"date-time":"2015-08-20T02:13:57Z","timestamp":1440036837000},"page":"305-313","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":29,"title":["Prioritizing Parental Worry Associated with Duchenne Muscular Dystrophy Using Best\u2010Worst Scaling"],"prefix":"10.1002","volume":"25","author":[{"given":"Holly Landrum","family":"Peay","sequence":"first","affiliation":[{"name":"Parent Project Muscular Dystrophy 401 Hackensack Ave 9th Floor Hackensack NJ 07601 USA"},{"name":"Department of Clinical Genetics Leiden University Medical Centre Leiden The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I. 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