{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T15:42:58Z","timestamp":1786981378315,"version":"build-2736575974"},"reference-count":50,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2016,5,23]],"date-time":"2016-05-23T00:00:00Z","timestamp":1463961600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2016,5,23]],"date-time":"2016-05-23T00:00:00Z","timestamp":1463961600000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"DOI":"10.13039\/100012280","name":"Rare Disease Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100012280","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Candian Institutes of Health Research","award":["ID0EXAAG407"],"award-info":[{"award-number":["ID0EXAAG407"]}]},{"name":"APOGEE-Net\\CanG\u00e8ne","award":["ID0EZBAG408"],"award-info":[{"award-number":["ID0EZBAG408"]}]},{"DOI":"10.13039\/100012280","name":"Rare Diseases Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100012280","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2016,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>We describe the rationale, development, and usability testing for an integrated e\u2010learning tool and decision aid for parents facing decisions about genome\u2010wide sequencing (GWS) for their children with a suspected genetic condition. The online tool, DECIDE, is designed to provide decision\u2010support and to promote high quality decisions about undergoing GWS with or without return of optional incidental finding results. DECIDE works by integrating educational material with decision aids. Users may tailor their learning by controlling both the amount of information and its format \u2013 text and diagrams and\/or short videos. The decision aid guides users to weigh the importance of various relevant factors in their own lives and circumstances. After considering the pros and cons of GWS and return of incidental findings, DECIDE summarizes the user's responses and apparent preferred choices. In a usability study of 16 parents who had already chosen GWS after conventional genetic counselling, all participants found DECIDE to be helpful. Many would have been satisfied to use it alone to guide their GWS decisions, but most would prefer to have the option of consulting a health care professional as well to aid their decision. Further testing is necessary to establish the effectiveness of using DECIDE as an adjunct to or instead of conventional pre\u2010test genetic counselling for clinical genome\u2010wide sequencing.<\/jats:p>","DOI":"10.1007\/s10897-016-9971-8","type":"journal-article","created":{"date-parts":[[2016,5,24]],"date-time":"2016-05-24T01:03:22Z","timestamp":1464051802000},"page":"1298-1308","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":42,"title":["DECIDE: a Decision Support Tool to Facilitate Parents\u2019 Choices Regarding Genome\u2010Wide Sequencing"],"prefix":"10.1002","volume":"25","author":[{"given":"Patricia","family":"Birch","sequence":"first","affiliation":[{"name":"Department of Medical Genetics, Children's and Women's Hospital University of British Columbia Box 153, 4500 Oak Street Vancouver BC V6H 3N1 Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Adam","sequence":"additional","affiliation":[{"name":"Department of Medical Genetics, Children's and Women's Hospital University of British Columbia Box 153, 4500 Oak Street Vancouver BC V6H 3N1 Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N.","family":"Bansback","sequence":"additional","affiliation":[{"name":"School of Population and Public Health University of British Columbia Vancouver BC Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R. R.","family":"Coe","sequence":"additional","affiliation":[{"name":"Department of Medical Genetics, Children's and Women's Hospital University of British Columbia Box 153, 4500 Oak Street Vancouver BC V6H 3N1 Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Hicklin","sequence":"additional","affiliation":[{"name":"School of Population and Public Health University of British Columbia Vancouver BC Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Lehman","sequence":"additional","affiliation":[{"name":"Department of Medical Genetics, Children's and Women's Hospital University of British Columbia Box 153, 4500 Oak Street Vancouver BC V6H 3N1 Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K. 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