{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T03:03:16Z","timestamp":1761102196721},"reference-count":32,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2016,6,6]],"date-time":"2016-06-06T00:00:00Z","timestamp":1465171200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2016,6,6]],"date-time":"2016-06-06T00:00:00Z","timestamp":1465171200000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"name":"Not applicable","award":["Not applicable"],"award-info":[{"award-number":["Not applicable"]}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2017,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Global media has the power to influence the ways the public engage with health services. On May 14th 2013, Angelina Jolie published an article in the New York Times magazine, outlining her decision to undergo BRCA mutation testing due to a family history of cancer; then proceed with a mastectomy. The article evoked significant interest from the media and the public. During the months that followed, the Familial Cancer Program (FCP) at Genetic Services of Western Australia (GSWA) experienced a significant increase in referrals and enquiries. Resources were overstretched and it became clear we needed to adjust work practices to manage the escalating numbers. New strategies were devised to cope with the influx of enquiries, albeit without the benefit of additional resources. We conducted an audit of referrals to the FCP made between January 2012 and December 2014. This included a comparison of the months prior to and following the New York Times article. The aim of the audit was to quantify the impact of the \u201cAngelina Jolie effect\u201d on referrals to the FCP. Whilst the increased awareness of the role of genetic services in risk assessment and testing for familial breast and ovarian cancer was considered positive, pre\u2010referral risk assessment at the primary health level to evaluate the appropriateness of their patients for referral could have been helpful. Potentially, many inappropriate referrals to FCP may have been avoided with primary health evaluation thus lessening the burden on our service and preventing unnecessary worry in well women who possessed minimal family history or risk factors. It is important to understand the factors driving the uptake of risk reduction activities, particularly if engagement with a genetics service is considered part of that pathway. Continued education about cancer risk due to family history, individual features and awareness surrounding genetic testing criteria, costs and availability is required for both the public and health professionals.<\/jats:p>","DOI":"10.1007\/s10897-016-9982-5","type":"journal-article","created":{"date-parts":[[2016,6,6]],"date-time":"2016-06-06T01:07:49Z","timestamp":1465175269000},"page":"52-62","update-policy":"http:\/\/dx.doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["A Retrospective Exploration of the Impact of the \u2018Angelina Jolie Effect\u2019 on the Single State\u2010Wide Familial Cancer Program in Perth, Western Australia"],"prefix":"10.1002","volume":"26","author":[{"given":"Rebecca","family":"Freedman","sequence":"first","affiliation":[{"name":"Genetic Services of Western Australia King Edward Memorial Hospital Level 4 Agnes Walsh House, Bagot Road Subiaco Western Australia 6008 Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helen","family":"Mountain","sequence":"additional","affiliation":[{"name":"Genetic Services of Western Australia King Edward Memorial Hospital Level 4 Agnes Walsh House, Bagot Road Subiaco Western Australia 6008 Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dian","family":"Karina","sequence":"additional","affiliation":[{"name":"Genetic Services of Western Australia King Edward Memorial Hospital Level 4 Agnes Walsh House, Bagot Road Subiaco Western Australia 6008 Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lyn","family":"Schofield","sequence":"additional","affiliation":[{"name":"Genetic Services of Western Australia King Edward Memorial Hospital Level 4 Agnes Walsh House, Bagot Road Subiaco Western Australia 6008 Australia"},{"name":"Western Australian Familial Cancer Registry, Genetic Services of Western Australia King Edward Memorial Hospital Bagot Road Subiaco Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2016,6,6]]},"reference":[{"issue":"3","key":"e_1_2_15_2_1","first-page":"516","article-title":"Genetic mapping of the BRCA1 region on chromosome 17q21","volume":"54","author":"Albertsen H.","year":"1994","journal-title":"American Journal of Human Genetics"},{"key":"e_1_2_15_3_1","unstructured":"Australian Bureau of Statistics(2013) Census data. Retrieved online at:http:\/\/www.censusdata.abs.gov.au\/censusservices\/getproduct\/census\/2011\/quickstat\/5?opendocument&navpos=220)."},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.279.10.762"},{"key":"e_1_2_15_5_1","unstructured":"Cancer Australia(2015)Breast Cancer Statisticswww.canceraustralia.gov.auhttp:\/\/canceraustralia.gov.au\/affected\u2010cancer\/cancer\u2010types\/breast\u2010cancer\/breast\u2010cancer\u2010statisticswith information obtained from Australian Institute of Health and Welfare (2015)."},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.2005.tb07029.x"},{"key":"e_1_2_15_7_1","unstructured":"Corderoy A.(2015).Landmark high court ruling on BRCA1 gene patent as pensioner wins legal case.Sydney Morning Herald. Retrieved online at:http:\/\/www.smh.com.au\/national\/health\/landmark\u2010high\u2010court\u2010ruling\u2010on\u2010brca1\u2010gene\u2010patent\u2010as\u2010pensioner\u2010wins\u2010legal\u2010case\u201020151006\u2010gk2wvu.html#ixzz43thXRF6X."},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/archinte.163.13.1601"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-008-9150-7"},{"key":"e_1_2_15_10_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1023284219871"},{"key":"e_1_2_15_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.2009.067850"},{"issue":"442","key":"e_1_2_15_12_1","first-page":"1","article-title":"The Angelina Jolie effect: how high impact celebrity profile can have a major impact on provision of cancer related services","volume":"16","author":"Evans G.","year":"2014","journal-title":"Breast Cancer Research"},{"key":"e_1_2_15_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/cge.12291"},{"key":"e_1_2_15_14_1","doi-asserted-by":"publisher","DOI":"10.1093\/her\/7.1.107"},{"key":"e_1_2_15_15_1","unstructured":"High Court of Australia(2015).D'arcy versus Myriad Inc & AnorRetrieved online at:http:\/\/www.hcourt.gov.au\/assets\/publications\/judgment\u2010summaries\/2015\/hca\u201035\u20102015\u201010\u201007.pdf."},{"key":"e_1_2_15_16_1","doi-asserted-by":"publisher","DOI":"10.5694\/mja13.11218"},{"key":"e_1_2_15_17_1","unstructured":"Jolie A.(2013).My medical choice.New York Times Magazine.Retrieved online athttp:\/\/www.nytimes.com\/2013\/05\/14\/opinion\/my\u2010medical\u2010choicehtml?8qa&_r=0"},{"key":"e_1_2_15_18_1","doi-asserted-by":"publisher","DOI":"10.1093\/ije\/dyn090"},{"key":"e_1_2_15_19_1","volume-title":"Facilitating the Genetic Counseling Process: A Manual for Practice.","author":"McCarthy Veach P.","year":"2003"},{"key":"e_1_2_15_20_1","unstructured":"McVeigh K.(2013).US supreme court rules human genes cannot be patented.The Guardian Australian Edition.Retrieved online at:http:\/\/www.theguardian.com\/law\/2013\/jun\/13\/supreme\u2010court\u2010genes\u2010patent\u2010dna."},{"key":"e_1_2_15_21_1","unstructured":"Medical unit ABC news blog (2013).\u2018Angelina Jolie effect\u2019 still having an impact on breast cancer. Retrieved online athttp:\/\/abcnews.go.com\/blogs\/health\/medical\u2010unit\/."},{"key":"e_1_2_15_22_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870440108405508"},{"key":"e_1_2_15_23_1","doi-asserted-by":"publisher","DOI":"10.1093\/pubmed\/fdq052"},{"key":"e_1_2_15_24_1","unstructured":"O'leary C.(2013a).Jolie effect clogs cancer services.West Australian Newspaper Wednesday 17th July 2013."},{"key":"e_1_2_15_25_1","unstructured":"O'leary C.(2013b).Jolie helps boost cancer referrals.West Australian Newspaper Monday 11th Nov 2013."},{"key":"e_1_2_15_26_1","unstructured":"Ockden W.(2015).High court finds BRCA1 cannot be patented. 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