{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T01:16:07Z","timestamp":1790817367125,"version":"4.1.0"},"reference-count":31,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2017,12,20]],"date-time":"2017-12-20T00:00:00Z","timestamp":1513728000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2017,12,20]],"date-time":"2017-12-20T00:00:00Z","timestamp":1513728000000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"DOI":"10.13039\/100000054","name":"National Cancer Institute","doi-asserted-by":"publisher","award":["R25CA154290"],"award-info":[{"award-number":["R25CA154290"]}],"id":[{"id":"10.13039\/100000054","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2018,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Health information about inherited forms of cancer and the role of family history in cancer risk for the American Sign Language (ASL) Deaf community, a linguistic and cultural community, needs improvement. Cancer genetic education materials available in English print format are not accessible for many sign language users because English is not their native or primary language. Per Center for Disease Control and Prevention recommendations, the level of literacy for printed health education materials should not be higher than 6th grade level (~\u200911 to 12 years old), and even with this recommendation, printed materials are still not accessible to sign language users or other nonnative English speakers. Genetic counseling is becoming an integral part of healthcare, but often ASL users are not considered when health education materials are developed. As a result, there are few genetic counseling materials available in ASL. Online tools such as video and closed captioning offer opportunities for educators and genetic counselors to provide digital access to genetic information in ASL to the Deaf community. The Deaf Genetics Project team used a bilingual approach to develop a 37\u2010min interactive Cancer Genetics Education Module (CGEM) video in ASL with closed captions and quizzes, and demonstrated that this approach resulted in greater cancer genetic knowledge and increased intentions to obtain counseling or testing, compared to standard English text information (Palmer et al., <jats:italic>Disability and Health Journal<\/jats:italic>, 10(1):23\u201332, <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#CR25\">2017<\/jats:ext-link>). Though visually enhanced educational materials have been developed for sign language users with multimodal\/lingual approach, little is known about design features that can accommodate a diverse audience of sign language users so the material is engaging to a wide audience. The main objectives of this paper are to describe the development of the CGEM and to determine if viewer demographic characteristics are associated with two measurable aspects of CGEM viewing behavior: (1) length of time spent viewing and (2) number of pause, play, and seek events. These objectives are important to address, especially for Deaf individuals because the amount of simultaneous content (video, print) requires cross\u2010modal cognitive processing of visual and textual materials. The use of technology and presentational strategies is needed that enhance and not interfere with health learning in this population.<\/jats:p>","DOI":"10.1007\/s10897-017-0188-2","type":"journal-article","created":{"date-parts":[[2017,12,20]],"date-time":"2017-12-20T01:35:27Z","timestamp":1513733727000},"page":"457-469","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material"],"prefix":"10.1002","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1101-311X","authenticated-orcid":false,"given":"Patrick","family":"Boudreault","sequence":"first","affiliation":[{"name":"Department of Interpretation and Translation Gallaudet University Washington DC USA"},{"name":"Department of Modern and Classical Languages University of San Francisco San Francisco CA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alicia","family":"Wolfson","sequence":"additional","affiliation":[{"name":"Department of Psychiatry &amp; Biobehavioral Sciences David Geffen School of Medicine at UCLA Los Angeles CA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Barbara","family":"Berman","sequence":"additional","affiliation":[{"name":"Department of Health Policy and Management UCLA Fielding School of Public Health Los Angeles CA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vickie L.","family":"Venne","sequence":"additional","affiliation":[{"name":"Genomic Medicine Service, Veterans Health Administration Salt Lake City UT USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet S.","family":"Sinsheimer","sequence":"additional","affiliation":[{"name":"Department of Human Genetics David Geffen School of Medicine at UCLA Los Angeles CA USA"},{"name":"Department of Biomathematics David Geffen School of Medicine at UCLA Los Angeles CA USA"},{"name":"Department of Biostatistics UCLA Fielding School of Public Health Los Angeles CA USA"},{"name":"Institute for Society and Genetics UCLA Los Angeles CA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"Palmer","sequence":"additional","affiliation":[{"name":"Department of Psychiatry &amp; Biobehavioral Sciences David Geffen School of Medicine at UCLA Los Angeles CA USA"},{"name":"Department of Human Genetics David Geffen School of Medicine at UCLA Los Angeles CA USA"},{"name":"Department of Biomathematics David Geffen School of Medicine at UCLA Los Angeles CA USA"},{"name":"Institute for Society and Genetics UCLA Los Angeles CA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,12,20]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"ASL\u2010STEM(2009).ASL\u2010STEM forum. 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