{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T02:32:58Z","timestamp":1771381978751,"version":"3.50.1"},"reference-count":71,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2018,6,16]],"date-time":"2018-06-16T00:00:00Z","timestamp":1529107200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2018,6,16]],"date-time":"2018-06-16T00:00:00Z","timestamp":1529107200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"name":"University of Toronto MSc Genetic Counselling Fund"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2018,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Genetic counselors adopt seemingly contradictory roles: advocating for individuals with genetic conditions while offering prenatal diagnosis and the option of selective termination to prevent the birth of a child with a disability. This duality contributes to the tension between the disability and clinical genetics communities. Varying opinions exist amongst the disability community: some value genetic services while others are opposed. However, there is limited research exploring the opinions of individuals with a disability regarding issues related to reproduction and genetic services in the context of personal experience. This exploratory qualitative study involved interviews with seven women and three men who self\u2010identify as having a disability. We sought to gain their perspectives on experiences with disability, thoughts about reproduction and parenting, and perceptions of genetic services. Transcripts of the interviews were analyzed thematically using qualitative content analysis. Data analysis showed that societal views of disability affected the lived experience and impacted reproductive decision\u2010making for those with a disability. It also showed differing interest in genetic services. Concerns about the perceived collective implications of genetic services were also raised. These findings contribute to the understanding of the disability perspective toward reproductive decision\u2010making and genetic services. A further goal is to promote a meaningful dialogue between the genetics and disability communities, with the potential to enhance the genetic and reproductive care provided to individuals with disabilities.<\/jats:p>","DOI":"10.1007\/s10897-018-0265-1","type":"journal-article","created":{"date-parts":[[2018,6,16]],"date-time":"2018-06-16T07:00:25Z","timestamp":1529132425000},"page":"1360-1373","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study"],"prefix":"10.1002","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5224-0028","authenticated-orcid":false,"given":"C.","family":"Roadhouse","sequence":"first","affiliation":[{"name":"Division of Clinical and Metabolic Genetics The Hospital for Sick Children Toronto ON Canada"},{"name":"Department of Molecular Genetics University of Toronto Toronto ON Canada"},{"name":"Department of Genetic Counselling The Hospital for Sick Children Toronto ON Canada"},{"name":"Department of Pediatrics, Clinical Genetics Program McMaster University Medical Center and McMaster Children's Hospital Hamilton ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Shuman","sequence":"additional","affiliation":[{"name":"Division of Clinical and Metabolic Genetics The Hospital for Sick Children Toronto ON Canada"},{"name":"Department of Molecular Genetics University of Toronto Toronto ON Canada"},{"name":"Department of Genetic Counselling The Hospital for Sick Children Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K.","family":"Anstey","sequence":"additional","affiliation":[{"name":"Clinical Ethics, Alberta Health Services, Calgary AB Calgary Canada"},{"name":"Division of Clinical Public Health, Dalla Lana School of Public Health University of Toronto Toronto ON Canada"},{"name":"Department of Occupational Science and Therapy University of Toronto Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K.","family":"Sappleton","sequence":"additional","affiliation":[{"name":"Centre for Innovation and Excellence in Child &amp; Family Centered Care The Hospital for Sick Children Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"D.","family":"Chitayat","sequence":"additional","affiliation":[{"name":"Division of Clinical and Metabolic Genetics The Hospital for Sick Children Toronto ON Canada"},{"name":"Department of Molecular Genetics University of Toronto Toronto ON Canada"},{"name":"Prenatal Diagnosis and Medical Genetics Program, Department of Obstetrics and Gynecology Mount Sinai Hospital Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Ignagni","sequence":"additional","affiliation":[{"name":"School of Disability Studies Ryerson University Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2018,6,16]]},"reference":[{"key":"e_1_2_11_2_1","first-page":"310","volume-title":"Pragmatic women and body politics","author":"Abel K.","year":"1998"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1369-7625.2007.00455.x"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.30.7.567"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12048"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2014.02.025"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-007-9116-1"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.5204\/mcj.46"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.2901"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1009412025722"},{"key":"e_1_2_11_11_1","first-page":"13","article-title":"The moral implications of prenatal genetic testing","volume":"2","author":"Chipman P.","year":"2006","journal-title":"Penn Bioethics"},{"key":"e_1_2_11_12_1","first-page":"1112","article-title":"Reactions of mothers and medical professionals to a film about Down syndrome","volume":"144","author":"Cooley W. 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