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Grounded in phenomenology and informed by autoethnographic principles, the study examines how the body\u2019s changing disposition shapes lived meaning and coping in chronic illness. Phenomenological vignettes serve as experiential entry points, followed by reflective interpretation inspired by Havi Carel, Maurice Merleau-Ponty, Drew Leder, and Kay Toombs. Two experiential themes emerge. First,\n                    <jats:italic>When the body doesn\u2019t always follow one\u2019s lead anymore<\/jats:italic>\n                    shows how myasthenia gravis disrupts habitual rhythm and bodily trust. Bodily hesitation and the oscillation between resistance and responsiveness give rise to illness weariness-an existential modality distinct from physical fatigue or mood. Within this terrain, uncompromisingness appears as a quiet, existential stance; a refusal to let illness fully determine the direction of one\u2019s life, expressed through a persistent insistence on participation and dignity. Second,\n                    <jats:italic>Physical activity and relational support as existential coping practices<\/jats:italic>\n                    demonstrates how movement and relationship sustain existential positioning. Physical activity becomes an existential practice through which hope, orientation, and embodied rhythm are maintained, not by erasing illness weariness but by placing it alongside an uncompromising insistence on participation. At the same time, relational support, here exemplified by an attuned neurologist, serves as a subtle relational nudge that grounds and strengthens the will to continue. The study conceptualizes illness weariness and uncompromisingness as a continuum of existential responses shaped by bodily fluctuation and relational context. These insights extend beyond myasthenia gravis and point to the importance of existential attentiveness and relational continuity in clinical care.\n                  <\/jats:p>","DOI":"10.1007\/s11019-026-10332-8","type":"journal-article","created":{"date-parts":[[2026,2,23]],"date-time":"2026-02-23T06:38:58Z","timestamp":1771828738000},"page":"323-335","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Are you weary of illness? Coping and existential positioning in life with myasthenia gravis"],"prefix":"10.1007","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3267-8038","authenticated-orcid":false,"given":"Malene","family":"Missel","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0664-0709","authenticated-orcid":false,"given":"Nanna","family":"Witting","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4163-263X","authenticated-orcid":false,"given":"Malene","family":"Beck","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,2,23]]},"reference":[{"key":"10332_CR1","doi-asserted-by":"publisher","DOI":"10.1007\/s11019-011-9311-6","author":"R Ahlz\u00e9n","year":"2011","unstructured":"Ahlz\u00e9n, R. 2011. 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As no other participants were involved, no formal ethical approval was required. Written informed consent was obtained from the author MM prior to commencing the study. While no formal approval was required, the inherently personal nature of autoethnographic inquiry calls for ongoing ethical awareness beyond procedural compliance. Nonetheless, ethical considerations have been integral to the research process. As Forber-Pratt (\n                      \n                      , p. 822) notes,\n                      \u201cautoethnography is not for the faint of heart\u201d\n                      . Throughout the development of the article, the first author has engaged in continuous reflexive dialogue with the co-authors, critically examining questions such as;\n                      What does it mean to share one\u2019s embodied illness experience in a research context? What are the risks of over- or under-exposure? How can the personal be articulated without becoming private?\n                      These questions have been addressed through collaborative reflection, with the aim of ensuring that personal experience serves as a legitimate and meaningful entry point into broader phenomenological and clinical insight \u2013 not as self-exposure, but as an ethical and epistemic contribution to understanding illness.This work is grounded in the idea, expressed by scholars such as Arthur Frank (\n                      \n                      ), Havi Carel (\n                      \n                      ), and Kay Toombs (\n                      \n                      ), that personal narratives are vital to illuminating the lived meaning of illness and can challenge dominant medical frameworks by offering alternative modes of understanding and ways of being-in-the-world during illness.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}}]}}