{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T17:12:21Z","timestamp":1789665141122,"version":"4.0.1"},"reference-count":70,"publisher":"Springer Science and Business Media LLC","issue":"7","license":[{"start":{"date-parts":[[2016,1,4]],"date-time":"2016-01-04T00:00:00Z","timestamp":1451865600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"name":"Norwegian Marfan Foundation, Sophies Minde Association","award":["1"],"award-info":[{"award-number":["1"]}]},{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2016,7]]},"DOI":"10.1007\/s11136-015-1214-1","type":"journal-article","created":{"date-parts":[[2016,1,4]],"date-time":"2016-01-04T09:56:45Z","timestamp":1451901405000},"page":"1779-1790","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":33,"title":["Satisfaction with life in adults with Marfan syndrome (MFS): associations with health-related consequences of MFS, pain, fatigue, and demographic factors"],"prefix":"10.1007","volume":"25","author":[{"given":"Gry","family":"Velvin","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Trine","family":"Bathen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Svend","family":"Rand-Hendriksen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy \u00d8stertun","family":"Geirdal","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2016,1,4]]},"reference":[{"issue":"9","key":"1214_CR1","doi-asserted-by":"crossref","first-page":"991","DOI":"10.1007\/s10067-010-1509-0","volume":"29","author":"L Kulczycka","year":"2010","unstructured":"Kulczycka, L., Sysa-Jedrzcjowska, A., & Robak, E. (2010). Quality of life and satisfaction with life in SLE-patients\u2014The importance of clinical manifestation. Clinical Rheumatology, 29(9), 991\u2013997.","journal-title":"Clinical Rheumatology"},{"key":"1214_CR2","first-page":"680659","volume":"2014","author":"R Lucas-Carrosca","year":"2014","unstructured":"Lucas-Carrosca, R., den Oudsten, B. C., Eser, E., & Power, M. J. (2014). Using satisfaction with life scale in people with Parkinson\u2019s Disease: A validation Study. Scientific World Journal, 2014, 680659. doi: 10.1155\/2014\/680659 .","journal-title":"Scientific World Journal"},{"issue":"17\u201318","key":"1214_CR3","doi-asserted-by":"crossref","first-page":"1594","DOI":"10.3109\/09638288.2010.540293","volume":"33","author":"K \u00d8stlie","year":"2011","unstructured":"\u00d8stlie, K., Magnus, P., Skjeldal, O. H., Garfelt, B., & Tambs, K. (2011). Mental health and satisfaction with life among upper limb amputees: A Norwegian population-based survey comparing adult acquired major upper limb amputees with a control group. Journal of Disability and Rehabilitation, 33(17\u201318), 1594\u20131607.","journal-title":"Journal of Disability and Rehabilitation"},{"issue":"4","key":"1214_CR4","doi-asserted-by":"crossref","first-page":"417","DOI":"10.1002\/(SICI)1096-8628(19960424)62:4<417::AID-AJMG15>3.0.CO;2-R","volume":"62","author":"A Paepe De","year":"1996","unstructured":"De Paepe, A., Devereux, R. B., Dietz, H. C., Hennekam, R. C., & Pyeritz, R. E. (1996). Revised diagnostic criteria for the Marfan syndrome. American Journal of Medical Genetic, 62(4), 417\u2013426.","journal-title":"American Journal of Medical Genetic"},{"issue":"7","key":"1214_CR5","doi-asserted-by":"crossref","first-page":"476","DOI":"10.1136\/jmg.2009.072785","volume":"47","author":"BL Loeys","year":"2010","unstructured":"Loeys, B. L., Dietz, H. C., Braverman, A. C., Callewaert, B. L., de Backer, J., Devreux, R. B., et al. (2010). The revised Ghent Nosology for the Marfan syndrome. Journal of Medical Genetics, 47(7), 476\u2013485.","journal-title":"Journal of Medical Genetics"},{"key":"1214_CR6","doi-asserted-by":"crossref","first-page":"137","DOI":"10.2147\/TACG.S60472","volume":"8","author":"Y Kodolitsch Von","year":"2015","unstructured":"Von Kodolitsch, Y., de Backer, J., Schuler, H., Bannas, P., Behzadi, C., Bernhardt, A. M., et al. (2015). Perspectives on the revised Ghent criteria for the diagnosis of Marfan syndrome. The Application of Clinical Genetics, 8, 137\u2013155.","journal-title":"The Application of Clinical Genetics"},{"issue":"4","key":"1214_CR7","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1034\/j.1399-0004.2001.600406.x","volume":"60","author":"KF Peters","year":"2001","unstructured":"Peters, K. F., Horne, R., Kong, F., Francomano, C. A., & Biesecker, B. B. (2001). Living with Marfan syndrome II. Medication adherence and physical activity modification. Clinical Genetics, 60(4), 283\u2013292.","journal-title":"Clinical Genetics"},{"key":"1214_CR8","doi-asserted-by":"crossref","first-page":"1931","DOI":"10.1002\/ajmg.a.36574","volume":"164A","author":"T Bathen","year":"2014","unstructured":"Bathen, T., Velvin, G., Robinson, H. S., & Rand-Hendriksen, S. (2014). Fatigue in adults with Marfan syndrome, occurrence and associations to pain and other factors. American Journal of Medical Genetics, 164A, 1931\u20131939.","journal-title":"American Journal of Medical Genetics"},{"issue":"8","key":"1214_CR9","doi-asserted-by":"crossref","first-page":"517","DOI":"10.1097\/GIM.0b013e3181ea4c1c","volume":"12","author":"S Rand-Hendriksen","year":"2010","unstructured":"Rand-Hendriksen, S., Johansen, H., Semb, S. O., Geiran, O., Stanghelle, J. K., & Finset, A. (2010). Health-related quality of life with Marfan syndrome: A cross-sectional study of Short Form 36 in 84 adults with verified diagnosis. Genetics in Medicine, 12(8), 517\u2013524.","journal-title":"Genetics in Medicine"},{"issue":"1","key":"1214_CR10","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1111\/j.1399-0004.2005.00446.x","volume":"68","author":"KF Peters","year":"2005","unstructured":"Peters, K. F., Apse, K. A., Blackford, A., McHugh, B., Michalic, D., & Biesecker, B. B. (2005). Living with Marfan syndrome IV, coping with stigma. Clinical Genetics, 68(1), 6\u201314.","journal-title":"Clinical Genetics"},{"issue":"4","key":"1214_CR11","doi-asserted-by":"crossref","first-page":"216","DOI":"10.1159\/000082265","volume":"7","author":"S Bie De","year":"2004","unstructured":"De Bie, S., De, Paepe. A., Delvaux, I., Davis, S., & Hennekam, R. C. (2004). Marfan syndrome in Europe. A questionnaire study on patients perceptions. Journal of Community Genetics, 7(4), 216\u2013226.","journal-title":"Journal of Community Genetics"},{"issue":"12","key":"1214_CR12","doi-asserted-by":"crossref","first-page":"3082","DOI":"10.1002\/ajmg.a.37370","volume":"167","author":"G Velvin","year":"2015","unstructured":"Velvin, G., Bathen, T., Rand-Hendriksen, S., & \u00d8stertun, Geirdal A. (2015). Work participation in adults with MFS; demographic characteristics, MFS-related health problems, chronic pain and fatigue. American Journal of Clinical Genetics Part A, 167(12), 3082\u20133090.","journal-title":"American Journal of Clinical Genetics Part A"},{"issue":"2","key":"1214_CR13","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1034\/j.1399-0004.2002.620203.x","volume":"62","author":"KF Peters","year":"2002","unstructured":"Peters, K. F., Kong, F., Hanslo, M., Francomano, C., & Biesecker, B. B. (2002). Living with Marfan syndrome III. Quality of life and reproductive planning. Clinical Genetics, 62(2), 110\u2013120.","journal-title":"Clinical Genetics"},{"issue":"5","key":"1214_CR14","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1136\/jmg.35.5.405","volume":"35","author":"A Tongerloo Van","year":"1998","unstructured":"Van Tongerloo, A., & De Paepe, A. (1998). Psychosocial adaptation in adolescents and young adults with Marfan syndrome: An exploratory study. Journal of Medical Genetics, 35(5), 405\u2013409.","journal-title":"Journal of Medical Genetics"},{"issue":"2","key":"1214_CR15","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1111\/cge.12422","volume":"87","author":"G Velvin","year":"2015","unstructured":"Velvin, G., Bathen, T., Rand-Hendriksen, S., & Geirdal, A. \u00d8. (2015). Systematic review of the psychosocial aspects of living with Marfan syndrome. Clinical Genetics, 87(2), 109\u2013116.","journal-title":"Clinical Genetics"},{"issue":"3","key":"1214_CR16","doi-asserted-by":"crossref","first-page":"122","DOI":"10.1097\/00004703-199006000-00005","volume":"11","author":"MB Schneider","year":"1990","unstructured":"Schneider, M. B., Davis, J. G., Boxer, R. A., Fisher, M., & Friedman, S. B. (1990). Marfan syndrome in adolescent and young adults: Psychosocial functioning and knowledge. Journal of Development & Behavioral Pediatrics, 11(3), 122\u2013127.","journal-title":"Journal of Development & Behavioral Pediatrics"},{"issue":"4","key":"1214_CR17","doi-asserted-by":"crossref","first-page":"441","DOI":"10.1177\/1049732308314853","volume":"18","author":"E Giarelli","year":"2008","unstructured":"Giarelli, E., Bernhardt, B. A., Mack, R., & Pyeritz, R. E. (2008). Adolescents\u2019 transition to self-management of a chronic genetic disorder. Quality of Health Research, 18(4), 441\u2013457.","journal-title":"Quality of Health Research"},{"issue":"3","key":"1214_CR18","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1080\/13548500600580824","volume":"12","author":"S Rand-Hendriksen","year":"2007","unstructured":"Rand-Hendriksen, S., S\u00f8rensen, I., Holmstr\u00f6m, H., Andersson, S., & Finset, A. (2007). Fatigue, cognitive functioning and psychological distress in Marfan syndrome, a pilot study. Psychology Health & Medicine, 12(3), 305\u2013313.","journal-title":"Psychology Health & Medicine"},{"key":"1214_CR19","doi-asserted-by":"crossref","first-page":"243","DOI":"10.1176\/appi.psy.49.3.243","volume":"49","author":"P Fusar-Poli","year":"2008","unstructured":"Fusar-Poli, P., Klersy, C., Stramesi, F., Callegari, A., Arbustini, E., & Politi, G. (2008). Determinants of quality of life in Marfan syndrome. Journal of Psychosomatic Research, 49, 243\u2013248.","journal-title":"Journal of Psychosomatic Research"},{"issue":"5","key":"1214_CR20","doi-asserted-by":"crossref","first-page":"360","DOI":"10.1034\/j.1399-0004.2001.600507.x","volume":"60","author":"J Verbraecken","year":"2001","unstructured":"Verbraecken, J., Declerck, A., Van de Heyning, P., De Backer, J., & Wouters, E. F. (2001). Evaluation of sleep apnea in patients with Ehlers\u2013Danlos syndrome and Marfan: A questionnaire study. Clinical Genetics, 60(5), 360\u2013365.","journal-title":"Clinical Genetics"},{"key":"1214_CR21","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1002\/ajmg.a.30525","volume":"134A","author":"JRH Foran","year":"2005","unstructured":"Foran, J. R. H., Pyeritz, R. E., Dietz, H. C., & Sponseller, P. D. (2005). Characterization of the symptoms associated with dural ectasia in the Marfan patients. American Journal of Medical Genetics, 134A, 58\u201365.","journal-title":"American Journal of Medical Genetics"},{"key":"1214_CR22","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1007\/s10900-007-9066-4","volume":"33","author":"TW Strine","year":"2008","unstructured":"Strine, T. W., Daniel, P., Chapman, \u00c6., Lina, S., Balluz, \u00c6., David, G., et al. (2008). The association between life satisfaction and heath related quality of life, chronic illness and health behaviors among U.S. community-dwelling adults. Journal of Community Health, 33, 40\u201350.","journal-title":"Journal of Community Health"},{"key":"1214_CR23","doi-asserted-by":"crossref","first-page":"164","DOI":"10.1037\/1040-3590.5.2.164","volume":"5","author":"W Pavot","year":"1993","unstructured":"Pavot, W., & Diener, E. (1993). Review of the Satisfaction with Life Scale. Psychological Assessment, 5, 164\u2013172.","journal-title":"Psychological Assessment"},{"key":"1214_CR24","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1080\/17439760701756946","volume":"3","author":"W Pavot","year":"2008","unstructured":"Pavot, W., & Diener, E. (2008). The Satisfaction with Life Scale and the emerging construct of life satisfaction. Journal of Positive Psychology, 3, 137\u2013152.","journal-title":"Journal of Positive Psychology"},{"issue":"1","key":"1214_CR25","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1207\/s15327752jpa5701_17","volume":"57","author":"W Pavot","year":"1991","unstructured":"Pavot, W., Diener, E., Colvin, C. R., & Sandvik, E. (1991). Further validation of the Satisfaction with Life Scale: evidence for the cross-method convergence of well-being measures. Journal of Personality Assessment, 57(1), 149\u2013161.","journal-title":"Journal of Personality Assessment"},{"key":"1214_CR26","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1146\/annurev.psych.54.101601.145056","volume":"54","author":"E Diener","year":"2003","unstructured":"Diener, E., Oishi, S., & Lucas, R. (2003). Personality, culture and subjective well-being: Emotional and cognitive evaluations of life. Annual Review of Psychology, 54, 403\u2013425.","journal-title":"Annual Review of Psychology"},{"key":"1214_CR27","unstructured":"Tesch-Romer, C., Motel-Klingebiel, A., & von Kondratowitz, H. J. (2003). Quality of life. In A. Lowenstein, & J. Ogg (Eds.), Old age and autonomy. The role of service systems and intergenerational family solidarity (pp. 259\u2013284). Israel: OASIS: University of Haifa, Final report."},{"issue":"10","key":"1214_CR28","doi-asserted-by":"crossref","first-page":"1447","DOI":"10.1016\/0277-9536(95)00113-L","volume":"41","author":"A Bowling","year":"1995","unstructured":"Bowling, A. (1995). What things are important in people\u2019s lives? A survey of the public\u2019s judgments to inform scales of health related quality of life. Social Science and Medicine, 41(10), 1447\u20131462.","journal-title":"Social Science and Medicine"},{"issue":"1","key":"1214_CR29","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1023\/A:1011564713657","volume":"2","author":"A Bowling","year":"2001","unstructured":"Bowling, A., & Windsor, J. (2001). Towards the good life: A population survey of dimensions of quality of life. Journal of Happiness Studies, 2(1), 55\u201381.","journal-title":"Journal of Happiness Studies"},{"issue":"1","key":"1214_CR30","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1207\/s15327752jpa4901_13","volume":"49","author":"E Diener","year":"1985","unstructured":"Diener, E., Emmons, R. A., Larson, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49(1), 71\u201375.","journal-title":"Journal of Personality Assessment"},{"key":"1214_CR31","author":"E Diener","year":"2012","unstructured":"Diener, E., Inglehart, R., & Tail, L. (2012). Theory and validity of life satisfaction scales. Social Indicators Research. doi: 10.1007\/s11205.012.0076.y .","journal-title":"Social Indicators Research"},{"issue":"1","key":"1214_CR32","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1007\/s11205-013-0408-6","volume":"118","author":"N Loewe","year":"2014","unstructured":"Loewe, N., Bagherzadeh, M., Araya-Castillo, L., Thieme, C., & Bastista-Foquet, J. M. (2014). Life domains satisfaction as predictors of overall life satisfaction among workers. Evidence from Chile. Social Indicators Research, 118(1), 71\u201386.","journal-title":"Social Indicators Research"},{"key":"1214_CR33","unstructured":"Rand-Hendriksen, S. (2010). Marfan syndrome\u2014A diagnostic challenge. Aspects of a Norwegian cohort study. University of Oslo: Faculty of Medicine. Dissertation for the Degree of PHD."},{"issue":"10","key":"1214_CR34","doi-asserted-by":"crossref","first-page":"1439","DOI":"10.1016\/0277-9536(95)00117-P","volume":"41","author":"M Farquhar","year":"1995","unstructured":"Farquhar, M. (1995). Elderly people\u2019s definitions of quality of life. Social Science and Medicine, 41(10), 1439\u20131446.","journal-title":"Social Science and Medicine"},{"key":"1214_CR35","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1007\/s11205-008-9295-7","volume":"92","author":"S Viren","year":"2009","unstructured":"Viren, S., & Chamorro-Premuzic, T. (2009). Psychometric evaluation of the Malay Satisfaction with Life Scale. Social Indicators Research, 92, 25\u201333.","journal-title":"Social Indicators Research"},{"key":"1214_CR36","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1007\/s11205-007-9113-7","volume":"86","author":"M Vassar","year":"2008","unstructured":"Vassar, M. (2008). A note on the score reliability for the Satisfaction with Life Scale: An RG study. Social Indicators Research, 86, 47\u201357.","journal-title":"Social Indicators Research"},{"issue":"4","key":"1214_CR37","doi-asserted-by":"crossref","first-page":"1103","DOI":"10.1016\/j.ridd.2012.02.002","volume":"33","author":"R Luca-Carrasco","year":"2012","unstructured":"Luca-Carrasco, R., & Salvador-Carulla, L. (2012). Life satisfaction in persons with intellectual disabilities. Research in Development Disability, 33(4), 1103\u20131109.","journal-title":"Research in Development Disability"},{"issue":"8","key":"1214_CR38","doi-asserted-by":"crossref","first-page":"1307","DOI":"10.1007\/s11136-011-9859-x","volume":"20","author":"J Clench-Aas","year":"2011","unstructured":"Clench-Aas, J., Bang-Nes, R., Dalgard, O. S., & Aar\u00f8, L. E. (2011). Dimensionality and measurement invariance in the Satisfaction with Life Scale in Norway. Journal of Quality of Life Research, 20(8), 1307\u20131317.","journal-title":"Journal of Quality of Life Research"},{"key":"1214_CR39","unstructured":"NSD\u2014EU-SILC. (2009). Survey on income and living condition. Norwegian Statistical Data. http:\/\/www.nsd.uib.no\/nsddata\/serier\/levekaarundersokelser.html ."},{"key":"1214_CR40","unstructured":"Bang Nes, R., & Clench-Aas, J. (2011). Psychological health in Norway. Survey Report. International Comparisons report nr.2 (Psykisk helse i Norge. Tilstandsrapport med internasjonale sammenligninger 2011:2). Institute of public Health in Norway Report 2."},{"issue":"12","key":"1214_CR41","doi-asserted-by":"crossref","first-page":"1001","DOI":"10.3109\/09638288.2013.825650","volume":"36","author":"R Lucas-Carrasco","year":"2014","unstructured":"Lucas-Carrasco, R., Sastre-Garriga, J., Gal\u00e0n, I., Den Oudsten, B. L., & Power, M. J. (2014). Preliminary validation of the Spanish version of the Satisfaction with Life Scale in persons with multiple sclerosis. Disability and Rehabilitation, 36(12), 1001\u20131005.","journal-title":"Disability and Rehabilitation"},{"key":"1214_CR42","unstructured":"S\u00e6tre, P. L. (2007). Tilfredshet med livet, lykke og livskvalitet hos voksne med Tourettes syndrom. (Satifaction with Life, Happiness and Quality of life in adults with Tourette syndrome). Norway: University of Oslo, Psychological Faculty Institute. http:\/\/www.duo.uio.no\/bitstream\/handle\/10852\/18351\/InnleveringHEL3.pdf?sequence=1 ."},{"issue":"6","key":"1214_CR43","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1007\/s00127-004-0755-3","volume":"39","author":"C Meyer","year":"2004","unstructured":"Meyer, C., Rumph, H. J., Hapke, U., & John, U. (2004). Impact of psychiatric disorders in the general population: Satisfaction with life and the influence of comorbidity and disorder duration. Social Psychiatry and Psychiatric Epidemiology, 39(6), 435\u2013441.","journal-title":"Social Psychiatry and Psychiatric Epidemiology"},{"key":"1214_CR44","doi-asserted-by":"crossref","first-page":"233","DOI":"10.1016\/0003-6870(87)90010-X","volume":"18","author":"I Kuorinka","year":"1987","unstructured":"Kuorinka, I., Jonsson, B., Kilbom, A., Vinterberg, H., Biering-S\u00f8rensen, F., Andersson, G., & J\u00f8rgensen, K. (1987). Standardized Nordic Questionnaires for the analysis of musculoskeletal symptoms. Applied Ergonomics, 18, 233\u2013237.","journal-title":"Applied Ergonomics"},{"key":"1214_CR45","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1300\/J094v14n01_04","volume":"14","author":"S Svebak","year":"2006","unstructured":"Svebak, S., Hagen, K., & Zwart, J. A. (2006). One-year prevalence of chronic musculoskeletal pain in a large adult Norwegian county population: Relations with age and gender\u2014The HUNT study. Journal of Musculoskeletal Pain, 14, 21\u201328.","journal-title":"Journal of Musculoskeletal Pain"},{"key":"1214_CR46","doi-asserted-by":"crossref","first-page":"1121","DOI":"10.1001\/archneur.1989.00520460115022","volume":"46","author":"LB Krupp","year":"1989","unstructured":"Krupp, L. B., La Rocca, N. G., Muir-Nash, J., & Steinberg, A. D. (1989). The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Journal of Archives of Neurology, 46, 1121\u20131123.","journal-title":"Journal of Archives of Neurology"},{"key":"1214_CR47","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1080\/14034940410028406","volume":"33","author":"A Lerdal","year":"2005","unstructured":"Lerdal, A., Wahl, A. K., Rust\u00f8en, T., Hanestad, B. R., & Moum, T. (2005). Fatigue in the general population: A translation and test of the psychometric properties of the Norwegian version of the fatigue severity scale. Scandinavian Journal of Public Health, 33, 123\u2013130.","journal-title":"Scandinavian Journal of Public Health"},{"key":"1214_CR48","doi-asserted-by":"crossref","first-page":"288","DOI":"10.1136\/bmj.329.7460.288","volume":"329","author":"M Parker","year":"2004","unstructured":"Parker, M., Ashcroft, R., Wilkie, O., & Kent, A. (2004). Ethical review of research into rare genetic disorders. BMJ, 329, 288. doi: 10.1136\/bmj.329.7460.288 .","journal-title":"BMJ"},{"issue":"26","key":"1214_CR49","doi-asserted-by":"crossref","first-page":"2174","DOI":"10.3109\/09638280902946952","volume":"31","author":"IB Lidal","year":"2009","unstructured":"Lidal, I. B., Hjeltnes, N., Roisland, J., Stanghelle, J. K., & Biering-S\u00f8rensen, F. (2009). Employment of persons with spinal cord lesions injured more than 20\u00a0years ago. Disability and Rehabilitation, 31(26), 2174\u20132184.","journal-title":"Disability and Rehabilitation"},{"issue":"6","key":"1214_CR50","doi-asserted-by":"crossref","first-page":"840","DOI":"10.2307\/2095082","volume":"46","author":"RM Fernandez","year":"1981","unstructured":"Fernandez, R. M., & Kulik, J. C. (1981). A multilevel model of life satisfaction: Effects of individual characteristics and neighborhood composition. American Sociological Review, 46(6), 840\u2013850.","journal-title":"American Sociological Review"},{"issue":"4","key":"1214_CR51","doi-asserted-by":"crossref","first-page":"332","DOI":"10.2307\/2136948","volume":"27","author":"MR Haug","year":"2000","unstructured":"Haug, M. R., & Folmar, S. J. (2000). Longevity, gender, and life quality. Journal of Health and Social Behavior, 27(4), 332\u2013345.","journal-title":"Journal of Health and Social Behavior"},{"issue":"6","key":"1214_CR52","doi-asserted-by":"crossref","first-page":"599","DOI":"10.1177\/0164027500226002","volume":"22","author":"L Hao","year":"2000","unstructured":"Hao, L., & Johnson, R. W. (2000). Economic, cultural and social origins of emotional well-being. Research on Aging, 22(6), 599\u2013629.","journal-title":"Research on Aging"},{"key":"1214_CR53","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1080\/02813430601016944","volume":"25","author":"S Steinhaug","year":"2007","unstructured":"Steinhaug, S. (2007). Women\u2019s strategies for handling chronic muscle pain. A quality study. Scandinavian Journal of Primary Health Care, 25, 44\u201348.","journal-title":"Scandinavian Journal of Primary Health Care"},{"issue":"85","key":"1214_CR54","doi-asserted-by":"crossref","first-page":"1035","DOI":"10.1016\/j.socscimed.2003.12.001","volume":"59","author":"A Werner","year":"2004","unstructured":"Werner, A., Isaksen, L. W., & Malterud, K. (2004). I am not the kind of woman who complains of everything: Illness stories on self and shame in women with chronic pain. Social Science and Medicine, 59(85), 1035\u20131046.","journal-title":"Social Science and Medicine"},{"issue":"1","key":"1214_CR55","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1007\/s12126-004-1010-7","volume":"29","author":"E Lecovich","year":"2004","unstructured":"Lecovich, E., & Isralowitz, R. E. (2004). Visual impairments, functional and health status, and life satisfaction among elderly bedouins in Israel. Journal of Aging International, 29(1), 71\u201387.","journal-title":"Journal of Aging International"},{"issue":"3","key":"1214_CR56","doi-asserted-by":"crossref","first-page":"364","DOI":"10.1093\/geronb\/gbr015","volume":"66B","author":"RL Brown","year":"2011","unstructured":"Brown, R. L., & Barrett, A. E. (2011). Visual impairment and quality of life among older adults: An examination of explanations for the relationship. Oxford Journals Medicine & Health & Social Sciences. The Journals of Gerontology, 66B(3), 364\u2013373.","journal-title":"The Journals of Gerontology"},{"issue":"9","key":"1214_CR57","doi-asserted-by":"crossref","first-page":"1194","DOI":"10.1038\/eye.2011.151","volume":"25","author":"P Lazon de la Jara","year":"2011","unstructured":"Lazon de la Jara, P., Erickson, D., Erikson, P., & Stapleton, F. (2011). Visual and non-visual factors associated with patient\u2019s satisfaction and quality of life. Eye, 25(9), 1194\u20131201. doi: 10.1038\/eye.2011.151 .","journal-title":"Eye"},{"key":"1214_CR58","doi-asserted-by":"crossref","first-page":"683","DOI":"10.2147\/NDT.S25321","volume":"7","author":"BM St\u00e5lnacke","year":"2011","unstructured":"St\u00e5lnacke, B. M. (2011). Life satisfaction in patients with chronic pain-relation to pain, intensity, disability and psychological factors. Journal of Neuropsychiatric Disease and Treatment, 7, 683\u2013689.","journal-title":"Journal of Neuropsychiatric Disease and Treatment"},{"issue":"1","key":"1214_CR59","doi-asserted-by":"crossref","first-page":"93","DOI":"10.1007\/s11136-012-0132-8","volume":"22","author":"AM Boonstra","year":"2013","unstructured":"Boonstra, A. M., Michiel, F., Reneman, R., Stewart, E., Post, M. W., & Schiphorst, H. (2013). Life satisfaction in patients with chronic musculoskeletal pain and its predictors. Quality of Life Research, 22(1), 93\u2013101.","journal-title":"Quality of Life Research"},{"issue":"19","key":"1214_CR60","doi-asserted-by":"crossref","first-page":"1605","DOI":"10.1080\/09638280903110079","volume":"31","author":"B B\u00f6rsbo","year":"2009","unstructured":"B\u00f6rsbo, B., Peolsson, M., & Gerdle, B. (2009). The complex interplay between pain intensity, depression, anxiety and catastrophising with respect to quality of life and disability. Disability and Rehabilitation, 31(19), 1605\u20131613.","journal-title":"Disability and Rehabilitation"},{"key":"1214_CR61","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1016\/j.socscimed.2014.09.019","volume":"121","author":"P McNamee","year":"2014","unstructured":"McNamee, P., & Mendolia, S. (2014). The effect of chronic pain on life satisfaction: Evidence from Australian data. Social Science and Medicine, 121, 65\u201373.","journal-title":"Social Science and Medicine"},{"issue":"70","key":"1214_CR62","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1097\/00002060-199104000-00003","volume":"2","author":"FM Maynard","year":"1991","unstructured":"Maynard, F. M., & Roller, S. (1991). Recognizing typical coping styles of polio survivors can improve re-rehabilitation. A commentary. American Journal of Physical Medicine and Rehabilitation, 2(70), 70\u201372.","journal-title":"American Journal of Physical Medicine and Rehabilitation"},{"key":"1214_CR63","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1093\/rheumatology\/kel450","volume":"46","author":"G Percheron","year":"2007","unstructured":"Percheron, G., Fayet, G., Ningler, T., Le Parc, J. M., Denot-Ledunois, S., Leroy, M., et al. (2007). Muscle strength and body composition in adult women with Marfan syndrome. Rheumatology, 46, 957\u2013962.","journal-title":"Rheumatology"},{"key":"1214_CR64","doi-asserted-by":"crossref","first-page":"187","DOI":"10.1007\/s10286-008-0475-y","volume":"18","author":"Van Dijk","year":"2008","unstructured":"Dijk, Van., Boer, M. C., Mulder, B. J., van Montfrans, G. A., & Wieling, W. (2008). Is fatigue in Marfan syndrome related to orthostatic intolerance?. Clinical Autonomic Research, 18, 187\u2013193.","journal-title":"Clinical Autonomic Research"},{"key":"1214_CR65","doi-asserted-by":"crossref","first-page":"370","DOI":"10.1016\/j.jpainsymman.2009.12.026","volume":"40","author":"NC Voermans","year":"2010","unstructured":"Voermans, N. C., Knoop, H., Bleijenberg, G., & van Engelen, B. G. (2010). Pain in Ehlers-Danlos syndrome is common, severe, and associated with functional impairment. Journal of Pain Symptom Management, 40, 370\u2013378.","journal-title":"Journal of Pain Symptom Management"},{"key":"1214_CR66","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1016\/S0022-3999(01)00228-8","volume":"52","author":"U Bultman","year":"2001","unstructured":"Bultman, U., Kant, I., Kasl, S. V., Beurskens, A. J., & van den Brandt, P. A. (2001). Fatigue and psychological distress in the working population: Psychometrics, prevalence, and correlates. Journal of Psychosomatic Research, 52, 445\u2013452.","journal-title":"Journal of Psychosomatic Research"},{"issue":"10","key":"1214_CR67","first-page":"40","volume":"8","author":"SD Targum","year":"2011","unstructured":"Targum, S. D., & Fava, M. (2011). Fatigue as a residual symptom of depression. Innovation in Clinical Neuroscience, 8(10), 40\u201343.","journal-title":"Innovation in Clinical Neuroscience"},{"key":"1214_CR68","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1017\/idm.2012.5","volume":"7","author":"HG Harder","year":"2012","unstructured":"Harder, H. G., Rash, J. A., & Nelson, S. (2012). Influence of labor participation among persons with disabilities: A systematic review and best evidence synthesis. International Journal of Disability Management, 7, 10\u201326.","journal-title":"International Journal of Disability Management"},{"issue":"1","key":"1214_CR69","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1097\/01.jom.0000249782.60321.2a","volume":"49","author":"JA Ricci","year":"2007","unstructured":"Ricci, J. A., Chee, E., Lorandeau, A. L., & Bergern, J. (2007). Fatigue in the US workforce: Prevalence and implications for lost productive work time. JOEM, Journal of Occupational and Environmental Medicine, 49(1), 1\u201310.","journal-title":"JOEM, Journal of Occupational and Environmental Medicine"},{"issue":"8","key":"1214_CR70","first-page":"1","volume":"9","author":"K Hiele Van der","year":"2014","unstructured":"Van der Hiele, K., Middelkoop, H. A., Ruimschotel, R., Kamminga, N. G., & Visser, L. H. (2014). A pilot study on factors involved with work participation in the early stages of multiple sclerosis. PLoS One, 9(8), 1\u20137.","journal-title":"PLoS One"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-015-1214-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s11136-015-1214-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-015-1214-1","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,6,1]],"date-time":"2019-06-01T07:59:49Z","timestamp":1559375989000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s11136-015-1214-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,1,4]]},"references-count":70,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2016,7]]}},"alternative-id":["1214"],"URL":"https:\/\/doi.org\/10.1007\/s11136-015-1214-1","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,1,4]]}}}