{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,13]],"date-time":"2025-11-13T21:27:53Z","timestamp":1763069273586,"version":"3.37.3"},"reference-count":58,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2017,12,8]],"date-time":"2017-12-08T00:00:00Z","timestamp":1512691200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2017,12,8]],"date-time":"2017-12-08T00:00:00Z","timestamp":1512691200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"DOI":"10.13039\/100000065","name":"National Institute of Neurological Disorders and Stroke","doi-asserted-by":"publisher","award":["R01NS077946","R01NS040068"],"award-info":[{"award-number":["R01NS077946","R01NS040068"]}],"id":[{"id":"10.13039\/100000065","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"crossref","award":["UL1TR000433"],"award-info":[{"award-number":["UL1TR000433"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100000069","name":"National Institute of Arthritis and Musculoskeletal and Skin Diseases","doi-asserted-by":"publisher","award":["1K01AR064275"],"award-info":[{"award-number":["1K01AR064275"]}],"id":[{"id":"10.13039\/100000069","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2018,3]]},"DOI":"10.1007\/s11136-017-1755-6","type":"journal-article","created":{"date-parts":[[2017,12,8]],"date-time":"2017-12-08T18:54:47Z","timestamp":1512759287000},"page":"811-822","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures"],"prefix":"10.1007","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1840-2537","authenticated-orcid":false,"given":"Jin-Shei","family":"Lai","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Siera","family":"Goodnight","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy R.","family":"Downing","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca E.","family":"Ready","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jane S.","family":"Paulsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna L.","family":"Kratz","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie C.","family":"Stout","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael K.","family":"McCormack","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Cella","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christopher","family":"Ross","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jenna","family":"Russell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Noelle E.","family":"Carlozzi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2017,12,8]]},"reference":[{"issue":"6","key":"1755_CR1","doi-asserted-by":"publisher","first-page":"971","DOI":"10.1016\/0092-8674(93)90585-E","volume":"72","author":"ME MacDonald","year":"1993","unstructured":"MacDonald, M. E., Ambrose, C. M., Duyao, M. P., Myers, R. H., Lin, C., Srinidhi, L., Barnes, G., Taylor, S. A., James, M., & Groot, N. & Huntington\u2019s Disease Collaborative Research Group. (1993). A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington\u2019s disease chromosomes. Cell, 72(6), 971\u2013983.","journal-title":"Cell"},{"issue":"3","key":"1755_CR2","doi-asserted-by":"publisher","first-page":"367","DOI":"10.1111\/cge.12574","volume":"89","author":"F Squitieri","year":"2016","unstructured":"Squitieri, F., Griguoli, A., Capelli, G., Porcellini, A., & D\u2019Alessio, B. (2016). Epidemiology of Huntington disease: First post-HTT gene analysis of prevalence in Italy. Clinical Genetics, 89(3), 367\u2013370.","journal-title":"Clinical Genetics"},{"key":"1755_CR3","doi-asserted-by":"publisher","first-page":"204","DOI":"10.1038\/nrneurol.2014.24","volume":"10","author":"CA Ross","year":"2014","unstructured":"Ross, C. A., Aylward, E. H., Wild, E. J., Langbehn, D. R., Long, J. D., Warner, J. H., Scahill, R. I., Leavitt, B. R., Stout, J. C., & Paulsen, J. S. (2014). Huntington disease: Natural history, biomarkers and prospects for therapeutics. Nature Reviews Neurology, 10, 204\u2013216.","journal-title":"Nature Reviews Neurology"},{"issue":"10","key":"1755_CR4","doi-asserted-by":"publisher","first-page":"11561160","DOI":"10.1136\/jnnp-2012-304636","volume":"84","author":"SJW Evans","year":"2013","unstructured":"Evans, S. J. W., Douglas, I., Rawlins, M. D., Wexler, N. S., Tabrizi, S. J., & Smeeth, L. (2013). Prevalence of adult Huntington\u2019s disease in the UK based on diagnoses recorded in general practice records. Journal of Neurology, Neurosurgery & Psychiatry, 84(10), 1156\u20131160.","journal-title":"Journal of Neurology, Neurosurgery & Psychiatry"},{"issue":"2","key":"1755_CR5","doi-asserted-by":"publisher","first-page":"144","DOI":"10.1159\/000443738","volume":"46","author":"MD Rawlins","year":"2016","unstructured":"Rawlins, M. D., Wexler, N. S., Wexler, A. R., Tabrizi, S. J., Douglas, I., Evans, S. J., & Smeeth, L. (2016). The prevalence of huntington\u2019s disease. Neuroepidemiology, 46(2), 144\u2013153.","journal-title":"Neuroepidemiology"},{"issue":"1","key":"1755_CR6","doi-asserted-by":"publisher","first-page":"85","DOI":"10.2217\/fnl.09.78","volume":"5","author":"JS Paulsen","year":"2010","unstructured":"Paulsen, J. S. (2010). Early detection of Huntington\u2019s disease. Future Neurology, 5(1), 85\u2013104.","journal-title":"Future Neurology"},{"issue":"2","key":"1755_CR7","doi-asserted-by":"publisher","first-page":"212","DOI":"10.1177\/1359105312438109","volume":"18","author":"NE Carlozzi","year":"2013","unstructured":"Carlozzi, N. E., & Tulsky, D. S. (2013). Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease. Journal of Health Psychology, 18(2), 212\u2013225.","journal-title":"Journal of Health Psychology"},{"key":"1755_CR8","volume-title":"Healthy people 2010: Understanding and improving health","author":"U.S. Department of Health and Human Services","year":"2000","unstructured":"U.S. Department of Health and Human Services. (2000). Healthy people 2010: Understanding and improving health (2nd\u00a0ed.). Washington, DC: U.S. Government Printing Office.","edition":"2"},{"issue":"13","key":"1755_CR9","doi-asserted-by":"publisher","first-page":"2229","DOI":"10.1002\/mds.23181","volume":"25","author":"L Mickes","year":"2010","unstructured":"Mickes, L., Jacobson, M., Peavy, G., Wixted, J. T., Lessig, S., Goldstein, J. L., & Corey-Bloom, J. (2010). A comparison of two brief screening measures of cognitive impairment in Huntington\u2019s disease. Movement Disorders, 25(13), 2229\u20132233.","journal-title":"Movement Disorders"},{"key":"1755_CR10","doi-asserted-by":"publisher","first-page":"19","DOI":"10.1016\/j.jneumeth.2015.12.007","volume":"265","author":"JC Stout","year":"2016","unstructured":"Stout, J. C., Glikmann-Johnston, Y., & Andrews, S. C. (2016). Cognitive assessment strategies in Huntington\u2019s disease research. Journal of Neuroscience Methods, 265, 19\u201324.","journal-title":"Journal of Neuroscience Methods"},{"key":"1755_CR11","doi-asserted-by":"publisher","first-page":"136","DOI":"10.1002\/mds.870110204","volume":"11","author":"HPH Kremer","year":"1996","unstructured":"Kremer, H. P. H. & Hungtington Study Group. (1996). Unified Huntington\u2019s disease rating scale: Reliability and consistency. Movement Disorders, 11, 136\u2013142.","journal-title":"Movement Disorders"},{"issue":"1","key":"1755_CR12","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1037\/a0020937","volume":"25","author":"JC Stout","year":"2011","unstructured":"Stout, J. C., Paulsen, J. S., Queller, S., Solomon, A. C., Whitlock, K. B., Campbell, J. C., Carlozzi, N., Duff, K., Beglinger, L. J., Langbehn, D. R., Johnson, S. A., Biglan, K. M., & Aylward, E. H. (2011). Neurocognitive signs in prodromal Huntington disease. Neuropsychology, 25(1), 1\u201314.","journal-title":"Neuropsychology"},{"key":"1755_CR13","volume-title":"Symbol digit modalities test: Manual","author":"A Smith","year":"1995","unstructured":"Smith, A. (1995). Symbol digit modalities test: Manual. Los Angeles: Western Psychological Services."},{"issue":"1","key":"1755_CR14","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1037\/0096-3445.121.1.15","volume":"121","author":"JR Stroop","year":"1992","unstructured":"Stroop, J. R. (1992). Studies of interference in serial verbal reactions (Reprinted from Journal Experimental-Psychology, vol.\u00a018, pp. 643\u2013662, 1935). Journal of Experimental Psychology-General, 121(1), 15\u201323.","journal-title":"Journal of Experimental Psychology-General"},{"key":"1755_CR15","doi-asserted-by":"publisher","first-page":"643","DOI":"10.1037\/h0054651","volume":"18","author":"JR Stroop","year":"1935","unstructured":"Stroop, J. R. (1935). Studies of interference in serial verbal reactions. Journal of Experimental Psychology, 18, 643\u2013662.","journal-title":"Journal of Experimental Psychology"},{"key":"1755_CR16","volume-title":"Contributions to neuropsychological assessment","author":"AL Benton","year":"1994","unstructured":"Benton, A. L., Sivan, A. B., Hamsher, K. D., Varney, N. R., & Spreen, O. (1994). Contributions to neuropsychological assessment (2nd\u00a0ed.). New York: Oxford University Press.","edition":"2nd"},{"issue":"1","key":"1755_CR17","doi-asserted-by":"publisher","first-page":"19","DOI":"10.1037\/0003-066X.46.1.19","volume":"46","author":"MA Conway","year":"1991","unstructured":"Conway, M. A. (1991). In defense of everyday memory. American Psychologist, 46(1), 19\u201326.","journal-title":"American Psychologist"},{"issue":"1","key":"1755_CR18","doi-asserted-by":"publisher","first-page":"16","DOI":"10.1037\/0003-066X.46.1.16","volume":"46","author":"EF Loftus","year":"1991","unstructured":"Loftus, E. F. (1991). The glitter of everyday memory \u2026 and the gold. American Psychologist, 46(1), 16\u201318.","journal-title":"American Psychologist"},{"issue":"4","key":"1755_CR19","doi-asserted-by":"publisher","first-page":"181","DOI":"10.1023\/B:NERV.0000009483.91468.fb","volume":"13","author":"N Chaytor","year":"2003","unstructured":"Chaytor, N., & Schmitter-Edgecombe, M. (2003). The ecological validity of neuropsychological tests: A review of the literature on everyday cognitive skills. Neuropsychology Review, 13(4), 181\u2013197.","journal-title":"Neuropsychology Review"},{"issue":"4","key":"1755_CR20","doi-asserted-by":"publisher","first-page":"973","DOI":"10.1097\/00001199-200008000-00002","volume":"15","author":"CH Silver","year":"2000","unstructured":"Silver, C. H. (2000). Ecological validity of neuropsychological assessment in childhood traumatic brain injury. The Journal of Head Trauma Rehabilitation, 15(4), 973\u2013988.","journal-title":"The Journal of Head Trauma Rehabilitation"},{"issue":"7","key":"1755_CR21","doi-asserted-by":"publisher","first-page":"926","DOI":"10.1016\/j.ctrv.2012.05.002","volume":"38","author":"AD Hutchinson","year":"2012","unstructured":"Hutchinson, A. D., Hosking, J. R., Kichenadasse, G., Mattiske, J. K., & Wilson, C. (2012). Objective and subjective cognitive impairment following chemotherapy for cancer: A systematic review. Cancer Treatment Reviews, 38(7), 926\u2013934.","journal-title":"Cancer Treatment Reviews"},{"key":"1755_CR22","doi-asserted-by":"publisher","first-page":"1860","DOI":"10.1212\/WNL.0b013e318258f744","volume":"78","author":"D Cella","year":"2012","unstructured":"Cella, D., Lai, J. S., Nowinski, C., Victorson, D., Peterman, A., Miller, D., Bethoux, F., Heinemann, A., Rubin, S., Cavasos, J., Reder, A., Sufit, R., Simuni, T., Holmes, G., Siderowf, A., Wojna, V., Bode, R., McKinney, N., Podrabsky, T., Wortman, K., Choi, S., Gershon, R., Rothrock, N., & Moy, C. (2012). Neuro-QOL: Brief measures of health-related quality of life for clinical research in neurology. Neurology, 78, 1860\u20131867.","journal-title":"Neurology"},{"issue":"Suppl 1","key":"1755_CR23","first-page":"S28-S36","volume":"92","author":"D Cella","year":"2011","unstructured":"Cella, D., Nowinski, C., Peterman, A., Victorson, D., Miller, D., Lai, J.-S., & Moy, C. (2011). The neurology quality of life measurement (Neuro-QOL) initiative. Archives of Physical Medicine and Rehabilitation, 92(Suppl 1), S28-S36.","journal-title":"Archives of Physical Medicine and Rehabilitation"},{"key":"1755_CR24","volume-title":"Fundamentals of item response theory","author":"RK Hambleton","year":"1991","unstructured":"Hambleton, R. K., Swaminathan, H., & Rogers, H. J. (1991). Fundamentals of item response theory. Newbury Park, CA: SAGE Publications, Inc."},{"key":"1755_CR25","volume-title":"Rating scale analysis: Rasch measurement","author":"BD Wright","year":"1985","unstructured":"Wright, B. D., & Masters, G. N. (1985). Rating scale analysis: Rasch measurement. Chicago: MESA Press."},{"issue":"6","key":"1755_CR26","doi-asserted-by":"publisher","first-page":"342","DOI":"10.1097\/01376517-200712000-00005","volume":"39","author":"L Perez","year":"2007","unstructured":"Perez, L., Huang, J., Jansky, L., Nowinski, C., Victorson, D., Peterman, A., & Cella, D. (2007). Using focus groups to inform the Neuro-QOL measurement tool: exploring patient-centered, health-related quality of life concepts across neurological conditions. Journal of Neuroscience Nursing, 39(6), 342\u2013353.","journal-title":"Journal of Neuroscience Nursing"},{"issue":"3","key":"1755_CR27","doi-asserted-by":"publisher","first-page":"475","DOI":"10.1007\/s11136-011-9958-8","volume":"21","author":"R Gershon","year":"2012","unstructured":"Gershon, R., Lai, J., Bode, R., Choi, S., Moy, C., Bleck, T., Miller, D., Peterman, A., & Cella, D. (2012). Neuro-QOL: Quality of life item banks for adults with neurological disorders: Item development and calibrations based upon clinical and general population testing. Quality of Life Research, 21(3), 475\u2013486.","journal-title":"Quality of Life Research"},{"issue":"10","key":"1755_CR28","doi-asserted-by":"publisher","first-page":"2029","DOI":"10.1017\/S0033291713002535","volume":"44","author":"P Rock","year":"2014","unstructured":"Rock, P., Roiser, J., Riedel, W., & Blackwell, A. (2014). Cognitive impairment in depression: A systematic review and meta-analysis. Psychological Medicine, 44(10), 2029.","journal-title":"Psychological Medicine"},{"issue":"10","key":"1755_CR29","doi-asserted-by":"publisher","first-page":"2441","DOI":"10.1007\/s11136-016-1386-3","volume":"25","author":"NE Carlozzi","year":"2016","unstructured":"Carlozzi, N. E., Schilling, S. G., Lai, J. S., Paulsen, J. S., Hahn, E. A., Perlmutter, J. S., Ross, C. A., Downing, N. R., Kratz, A. L., McCormack, M. K., Nance, M. A., Quaid, K. A., Stout, J. C., Gershon, R. C., Ready, R. E., Miner, J. A., Barton, S. K., Perlman, S. L., Rao, S. M., Frank, S., Shoulson, I., Marin, H., Geschwind, M. D., Dayalu, P., Goodnight, S. M., & Cella, D. (2016). HDQLIFE: Development and assessment of health-related quality of life in Huntington disease (HD). Quality of Life Research, 25(10), 2441\u20132455.","journal-title":"Quality of Life Research"},{"issue":"1","key":"1755_CR30","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1212\/WNL.29.1.1","volume":"29","author":"I Shoulson","year":"1979","unstructured":"Shoulson, I., & Fahn, S. (1979). Huntington disease clinical care and evaluation. Neurology, 29(1), 1\u20131.","journal-title":"Neurology"},{"issue":"2","key":"1755_CR31","doi-asserted-by":"publisher","first-page":"452","DOI":"10.1212\/WNL.54.2.452","volume":"54","author":"K Marder","year":"2000","unstructured":"Marder, K., Zhao, H., Myers, R. H., Cudkowicz, M., Kayson, E., Kieburtz, K., Orme, C., Paulsen, J., Penney, J. B. Jr., Siemers, E., Shoulson, I., & Huntington Study Group. (2000). Rate of functional decline in Huntington\u2019s disease. Neurology, 54(2), 452\u2013458.","journal-title":"Neurology"},{"issue":"15","key":"1755_CR32","doi-asserted-by":"publisher","first-page":"2595","DOI":"10.1002\/mds.23337","volume":"25","author":"JS Paulsen","year":"2010","unstructured":"Paulsen, J. S., Wang, C., Duff, K., Barker, R., Nance, M., Beglinger, L., Moser, D., Williams, J. K., Simpson, S., Langbehn, D., & van Kammen, D. P. (2010). Challenges assessing clinical endpoints in early Huntington disease. Movement Disorders, 25(15), 2595\u20132603.","journal-title":"Movement Disorders"},{"key":"1755_CR33","doi-asserted-by":"publisher","first-page":"290","DOI":"10.1016\/j.jbi.2015.05.003","volume":"55","author":"DA Hanauer","year":"2015","unstructured":"Hanauer, D. A., Mei, Q., Law, J., Khanna, R., & Zheng, K. (2015). Supporting information retrieval from electronic health records: A report of University of Michigan\u2019s nine-year experience in developing and using the Electronic Medical Record Search Engine (EMERSE). Journal of Biomedical Informatics, 55, 290\u2013300.","journal-title":"Journal of Biomedical Informatics"},{"issue":"6","key":"1755_CR34","doi-asserted-by":"publisher","first-page":"883","DOI":"10.1001\/archneur.63.6.883","volume":"63","author":"JS Paulsen","year":"2006","unstructured":"Paulsen, J. S., Hayden, M., Stout, J. C., Langbehn, D. R., Aylward, E., Ross, C. A., Guttman, M., Nance, M., Kieburtz, K., Oakes, D., Shoulson, I., Kayson, E., Johnson, S., Penziner, E., & Investigators, P.-H. (2006). Preparing for preventive clinical trials\u2014The Predict-HD study. Archives of Neurology, 63(6), 883\u2013890.","journal-title":"Archives of Neurology"},{"issue":"2","key":"1755_CR35","doi-asserted-by":"publisher","first-page":"220","DOI":"10.1037\/a0035919","volume":"59","author":"D Amtmann","year":"2014","unstructured":"Amtmann, D., Kim, J., Chung, H., Bamer, A. M., Askew, R. L., Wu, S., Cook, K. F., & Johnson, K. L. (2014). Comparing CESD-10, PHQ-9, and PROMIS depression instruments in individuals with multiple sclerosis. Rehabilitation Psychology, 59(2), 220\u2013229.","journal-title":"Rehabilitation Psychology"},{"issue":"3","key":"1755_CR36","doi-asserted-by":"publisher","first-page":"263","DOI":"10.1177\/1073191111411667","volume":"18","author":"PA Pilkonis","year":"2011","unstructured":"Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the patient-reported outcomes measurement information system (PROMIS): Depression, anxiety, and anger. Assessment, 18(3), 263\u2013283.","journal-title":"Assessment"},{"issue":"11","key":"1755_CR37","doi-asserted-by":"publisher","first-page":"1179","DOI":"10.1016\/j.jclinepi.2010.04.011","volume":"63","author":"D Cella","year":"2010","unstructured":"Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., Dewalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Pilkonis, P., Revicki, D., Rose, M., Weinfurt, K., Hays, R., & Lai, J. S. & PROMIS Cooperative Group. (2010). The patient-reported outcomes measurement information system (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005\u20132008. Journal of Clinical Epidemiology, 63(11), 1179\u20131194.","journal-title":"Journal of Clinical Epidemiology"},{"issue":"5 Suppl 1","key":"1755_CR38","first-page":"S3S11","volume":"45","author":"D Cella","year":"2007","unstructured":"Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J. F., Bruce, B., & Rose, M. (2007). The patient-reported outcomes measurement information system (PROMIS): Progress of an NIH Roadmap Cooperative Group during its first two years. Medical Care, 45(5 Suppl 1), S3\u2013S11.","journal-title":"Medical Care"},{"issue":"1","key":"1755_CR39","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1176\/appi.neuropsych.13070169","volume":"27","author":"J Callaghan","year":"2015","unstructured":"Callaghan, J., Stopford, C., Arran, N., Boisse, M.-F., Coleman, A., Santos, R. D., Dumas, E. M., Hart, E. P., Justo, D., & Owen, G. (2015). Reliability and factor structure of the short problem behaviors assessment for Huntington\u2019s disease (PBA-s) in the TRACK-HD and REGISTRY studies. Journal of Neuropsychiatry and Clinical Neurosciences, 27(1), 59\u201364.","journal-title":"Journal of Neuropsychiatry and Clinical Neurosciences"},{"issue":"11","key":"1755_CR40","doi-asserted-by":"publisher","first-page":"815","DOI":"10.2471\/BLT.09.067231","volume":"88","author":"TB \u00dcst\u00fcn","year":"2010","unstructured":"\u00dcst\u00fcn, T. B., Chatterji, S., Kostanjsek, N., Rehm, J., Kennedy, C., Epping-Jordan, J., Saxena, S., Korff, M. v., & Pull, C. (2010). Developing the World Health Organization disability assessment schedule 2.0. Bulletin of the World Health Organization, 88(11), 815\u2013823.","journal-title":"Bulletin of the World Health Organization"},{"issue":"8","key":"1755_CR41","doi-asserted-by":"publisher","first-page":"1963","DOI":"10.1007\/s11136-015-0930-x","volume":"24","author":"NE Carlozzi","year":"2015","unstructured":"Carlozzi, N. E., Kratz, A. L., Downing, N. R., Goodnight, S., Miner, J. A., Migliore, N., & Paulsen, J. S. (2015). Validity of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) in individuals with Huntington disease (HD). Quality of Life Research, 24(8), 1963\u20131971","journal-title":"Quality of Life Research"},{"issue":"1","key":"1755_CR42","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1037\/0096-3445.121.1.15","volume":"121","author":"JR Stroop","year":"1992","unstructured":"Stroop, J. R. (1992). Studies of interference in serial verbal reactions (Reprinted from Journal Experimental-Psychology, vol.\u00a018, pp. 643\u2013662, 1935). Journal of Experimental Psychology: General, 121(1), 15.","journal-title":"Journal of Experimental Psychology: General"},{"issue":"2","key":"1755_CR43","doi-asserted-by":"publisher","first-page":"414","DOI":"10.1016\/j.psychres.2010.04.030","volume":"178","author":"LJ Beglinger","year":"2010","unstructured":"Beglinger, L. J., O\u2019Rourke, J. J., Wang, C., Langbehn, D. R., Duff, K., & Paulsen, J. S. (2010). Earliest functional declines in Huntington disease. Psychiatry Research, 178(2), 414\u2013418.","journal-title":"Psychiatry Research"},{"key":"1755_CR44","volume-title":"Statistical power analysis for the behavioral sciences","author":"J Cohen","year":"1988","unstructured":"Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd\u00a0ed.). New York: Academic Press.","edition":"2"},{"key":"1755_CR45","volume-title":"Scale development: Theory and applications","author":"R DeVellis","year":"2017","unstructured":"DeVellis, R. (2017). Scale development: Theory and applications (4th\u00a0edn.). Los Angeles, CA: Sage.","edition":"4"},{"key":"1755_CR46","doi-asserted-by":"publisher","DOI":"10.4135\/9780857020123","volume-title":"The Sage dictionary of statistics","author":"D Cramer","year":"2004","unstructured":"Cramer, D., & Howitt, D. L. (2004). The Sage dictionary of statistics. Thousand Oaks, CA: Sage."},{"issue":"12 Suppl 2","key":"1755_CR47","doi-asserted-by":"publisher","first-page":"S15","DOI":"10.1053\/apmr.2000.20619","volume":"81","author":"EM Andresen","year":"2000","unstructured":"Andresen, E. M. (2000). Criteria for assessing the tools of disability outcomes research. Archives of Physical Medicine & Rehabilitation, 81(12 Suppl 2), S15\u2013S20.","journal-title":"Archives of Physical Medicine & Rehabilitation"},{"issue":"2","key":"1755_CR48","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1037\/h0046016","volume":"56","author":"DT Campbell","year":"1959","unstructured":"Campbell, D. T., & Fiske, D. W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, 56(2), 81\u2013105.","journal-title":"Psychological Bulletin"},{"key":"1755_CR49","volume-title":"Applying regression and correlation: A guide for students and researchers","author":"J Miles","year":"2001","unstructured":"Miles, J., & Shevlin, M. (2001). Applying regression and correlation: A guide for students and researchers. London: Sage Publications, Ltd."},{"key":"1755_CR50","volume-title":"Statistical power analysis for the behavioral sciences","author":"J Cohen","year":"1988","unstructured":"Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd\u00a0ed.). Hillsdale: L. Erlbaum Associates.","edition":"2"},{"issue":"2","key":"1755_CR51","doi-asserted-by":"publisher","first-page":"204","DOI":"10.1093\/jpepsy\/jst062","volume":"39","author":"EA Youngstrom","year":"2014","unstructured":"Youngstrom, E. A. (2014). A primer on receiver operating characteristic analysis and diagnostic efficiency statistics for pediatric psychology: We are ready to ROC. Journal of Pediatric Psychology, 39(2), 204\u2013221.","journal-title":"Journal of Pediatric Psychology"},{"key":"1755_CR52","volume-title":"Revised comprehensive norms for an expanded Halstead-Reitan Battery: Demographically adjusted neuropsychological norms for African American and Caucasian adults","author":"RK Heaton","year":"2004","unstructured":"Heaton, R. K., Miller, S. W., Taylor, J. T., & Grant, I. (2004). Revised comprehensive norms for an expanded Halstead-Reitan Battery: Demographically adjusted neuropsychological norms for African American and Caucasian adults. Lutz, FL: Psychological Assessment Resources, Inc."},{"issue":"9469","key":"1755_CR53","doi-asserted-by":"publisher","first-page":"1500","DOI":"10.1016\/S0140-6736(05)66422-7","volume":"365","author":"DA Grimes","year":"2005","unstructured":"Grimes, D. A., & Schulz, K. F. (2005). Refining clinical diagnosis with likelihood ratios. The Lancet, 365(9469), 1500\u20131505.","journal-title":"The Lancet"},{"issue":"1","key":"1755_CR54","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1016\/j.jclinepi.2006.03.012","volume":"60","author":"CB Terwee","year":"2007","unstructured":"Terwee, C. B., Bot, S. D., de Boer, M. R., van der Windt, D. A., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34\u201342.","journal-title":"Journal of Clinical Epidemiology"},{"issue":"2","key":"1755_CR55","doi-asserted-by":"publisher","first-page":"196","DOI":"10.1176\/jnp.2010.22.2.196","volume":"22","author":"K Duff","year":"2010","unstructured":"Duff, K., Paulsen, J. S., Beglinger, L. J., Langbehn, D. R., Wang, C., Stout, J. C., Ross, C. A., Aylward, E., Carlozzi, N. E., & Queller, S. (2010). \u201cFrontal\u201d behaviors before the diagnosis of Huntington\u2019s disease and their relationship to markers of disease progression: Evidence of early lack of awareness. The Journal of Neuropsychiatry and Clinical Neurosciences, 22(2), 196\u2013207.","journal-title":"The Journal of Neuropsychiatry and Clinical Neurosciences"},{"issue":"4","key":"1755_CR56","doi-asserted-by":"publisher","first-page":"1049","DOI":"10.1007\/s11136-013-0548-9","volume":"23","author":"J-S Lai","year":"2014","unstructured":"Lai, J.-S., Zelko, F., Krull, K., Cella, D., Nowinski, C., Manley, P., & Goldman, S. (2014). Parent-reported cognition of children with cancer and its potential clinical usefulness. Quality of Life Research, 23(4), 1049\u20131058.","journal-title":"Quality of Life Research"},{"issue":"1","key":"1755_CR57","doi-asserted-by":"publisher","first-page":"125","DOI":"10.1007\/s11136-009-9560-5","volume":"19","author":"S Choi","year":"2010","unstructured":"Choi, S., Reise, S., Pilkonis, P., Hays, R., & Cella, D. (2010). Efficiency of static and computer adaptive short forms compared to full-length measures of depressive symptoms. Quality of Life Research, 19(1), 125\u2013136.","journal-title":"Quality of Life Research"},{"issue":"2","key":"1755_CR58","doi-asserted-by":"publisher","first-page":"285","DOI":"10.1007\/s00381-010-1230-y","volume":"27","author":"JS Lai","year":"2011","unstructured":"Lai, J. S., Zelko, F., Butt, Z., Cella, D., Kieran, M. W., Krull, K. R., Magasi, S., & Goldman, S. (2011). Parent-perceived child cognitive function: Results from a sample drawn from the US general population. Child\u2019s Nervous System, 27(2), 285\u2013293.","journal-title":"Child\u2019s Nervous System"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s11136-017-1755-6\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-017-1755-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-017-1755-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,5,16]],"date-time":"2020-05-16T21:20:34Z","timestamp":1589664034000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s11136-017-1755-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,12,8]]},"references-count":58,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2018,3]]}},"alternative-id":["1755"],"URL":"https:\/\/doi.org\/10.1007\/s11136-017-1755-6","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"type":"print","value":"0962-9343"},{"type":"electronic","value":"1573-2649"}],"subject":[],"published":{"date-parts":[[2017,12,8]]},"assertion":[{"value":"26 November 2017","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 December 2017","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"All authors report no disclosures and no conflicts of interest relevant to the manuscript.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}},{"value":"This project was approved by the Institutional Research Board of all participating institutions. All procedures performed in this study involving human participants were in accordance with the ethical standards of the institutional and\/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Informed consent was obtained from all individual participants included in the study.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}