{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T02:04:36Z","timestamp":1791511476483,"version":"4.3.4"},"reference-count":48,"publisher":"Springer Science and Business Media LLC","issue":"6","license":[{"start":{"date-parts":[[2018,3,8]],"date-time":"2018-03-08T00:00:00Z","timestamp":1520467200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2018,6]]},"DOI":"10.1007\/s11136-018-1827-2","type":"journal-article","created":{"date-parts":[[2018,3,8]],"date-time":"2018-03-08T06:52:47Z","timestamp":1520491967000},"page":"1545-1554","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Life for patients with myelofibrosis: the physical, emotional and financial impact, collected using narrative medicine\u2014Results from the Italian \u2018Back to Life\u2019 project"],"prefix":"10.1007","volume":"27","author":[{"given":"Francesca","family":"Palandri","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giulia","family":"Benevolo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alessandra","family":"Iurlo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabetta","family":"Abruzzese","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelo M.","family":"Carella","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chiara","family":"Paoli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giuseppe A.","family":"Palumbo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Massimiliano","family":"Bonifacio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Cilloni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alessandro","family":"Andriani","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Attilio","family":"Guarini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diamante","family":"Turri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elena Maria","family":"Elli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Antonietta","family":"Falcone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Barbara","family":"Anaclerico","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pellegrino","family":"Musto","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicola","family":"Di Renzo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mario","family":"Tiribelli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Renato","family":"Zambello","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caterina","family":"Spinosa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alessandra","family":"Ricco","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Letizia","family":"Raucci","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bruno","family":"Martino","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mario","family":"Annunziata","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvia","family":"Pascale","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna Marina","family":"Liberati","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giorgio","family":"La Nasa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margherita","family":"Maffioli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Massimo","family":"Breccia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Novella","family":"Pugliese","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvia","family":"Betti","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gianfranco","family":"Giglio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Antonietta","family":"Cappuccio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4318-8608","authenticated-orcid":false,"given":"Luigi","family":"Reale","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2018,3,8]]},"reference":[{"key":"1827_CR1","doi-asserted-by":"publisher","first-page":"305","DOI":"10.1016\/1040-8428(90)90007-F","volume":"10","author":"RE Smith","year":"1990","unstructured":"Smith, R. E., Chelmowski, M. K., & Szabo, E. J. (1990). Myelofibrosis: A review of clinical and pathologic features and treatment. Critical Reviews in Oncology\/Hematology, 10, 305.","journal-title":"Critical Reviews in Oncology\/Hematology"},{"key":"1827_CR2","doi-asserted-by":"publisher","first-page":"2452","DOI":"10.1056\/NEJMra063728","volume":"355","author":"PJ Campbell","year":"2006","unstructured":"Campbell, P. J., & Green, A. R. (2006). The myeloproliferative disorders. The New England Journal of Medicine, 355, 2452.","journal-title":"The New England Journal of Medicine"},{"key":"1827_CR3","doi-asserted-by":"publisher","first-page":"3026","DOI":"10.1182\/blood-2008-06-158386","volume":"112","author":"JJ Lataillade","year":"2008","unstructured":"Lataillade, J. J., Pierre-Louis, O., Hasselbalch, H. C., et al. (2008). Does primary myelofibrosis involve a defective stem cell niche? From concept to evidence. Blood, 112, 3026.","journal-title":"Blood"},{"issue":"6","key":"1827_CR4","doi-asserted-by":"publisher","first-page":"737","DOI":"10.1016\/j.leukres.2006.12.002","volume":"31","author":"RA Mesa","year":"2007","unstructured":"Mesa, R. A., Verstovsek, S., & Cervantes, F. (2007). Primary myelofibrosis (PMF), post polycythemia vera myelofibrosis (post-PV MF), post essential thrombocythemia myelofibrosis (post-ET MF), blast phase PMF (PMF-BP): Consensus on terminology by the international working group for myelofibrosis research and treatment (IWG-MRT). Leukemia Research, 31(6), 737\u2013740.","journal-title":"Leukemia Research"},{"key":"1827_CR5","doi-asserted-by":"publisher","first-page":"986","DOI":"10.1182\/blood-2006-12-064626","volume":"110","author":"SO Ciurea","year":"2007","unstructured":"Ciurea, S. O., Merchant, D., Mahmud, N., et al. (2007). Pivotal contributions of megakaryocytes to the biology of idiopathic myelofibrosis. Blood, 110, 986.","journal-title":"Blood"},{"key":"1827_CR6","doi-asserted-by":"publisher","first-page":"8520","DOI":"10.1200\/JCO.2004.00.9316","volume":"23","author":"A Tefferi","year":"2005","unstructured":"Tefferi, A. (2005). Pathogenesis of myelofibrosis with myeloid metaplasia. Journal of Clinical Oncology, 23, 8520.","journal-title":"Journal of Clinical Oncology"},{"issue":"17","key":"1827_CR7","doi-asserted-by":"publisher","first-page":"2635","DOI":"10.1182\/blood-2014-07-575373","volume":"124","author":"F Cervantes","year":"2014","unstructured":"Cervantes, F. (2014). How I treat myelofibrosis. Blood, 124(17), 2635\u20132642.","journal-title":"Blood"},{"issue":"4","key":"1827_CR8","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1111\/ejh.12256","volume":"92","author":"O Moulard","year":"2014","unstructured":"Moulard, O., Mehta, J., Fryzek, J., et al. (2014) Epidemiology of myelofibrosis, essential thrombocythemia, and polycythemia vera in the European Union. European Journal of Hematology, 92(4), 289\u2013297.","journal-title":"European Journal of Hematology"},{"key":"1827_CR9","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1177\/107327481201904s04","volume":"19","author":"RS Komrokji","year":"2012","unstructured":"Komrokji, R. S., Verstovsek, S., Padron, E., et al. (2012) Advances in the management of myelofibrosis. Cancer Control. 19(4 Suppl), 4\u201315.","journal-title":"Cancer Control"},{"key":"1827_CR10","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1182\/asheducation-2010.1.115","volume":"2010","author":"RA Mesa","year":"2010","unstructured":"Mesa, R. A. (2010). Assessing new therapies and their overall impact in myelofibrosis. Hematology Am Soc Hematol Educ Program, 2010, 115\u2013121.","journal-title":"Hematology Am Soc Hematol Educ Program"},{"issue":"1","key":"1827_CR11","doi-asserted-by":"publisher","first-page":"89","DOI":"10.1016\/j.bbmt.2013.10.018","volume":"20","author":"V Gupta","year":"2014","unstructured":"Gupta, V., Malone, A. K., Hari, P. N., et al. (2014). Reduced- intensity hematopoietic cell transplantation for patients with primary myelofibrosis: a cohort analysis from the center for international blood and marrow transplant research. Biology of Blood Marrow Transplant, 20(1), 89\u201397.","journal-title":"Biology of Blood Marrow Transplant"},{"issue":"4","key":"1827_CR12","doi-asserted-by":"publisher","first-page":"324","DOI":"10.1007\/s11899-014-0239-9","volume":"9","author":"RM Scherber","year":"2014","unstructured":"Scherber, R. M., Geyer, H. L., & Mesa, R. A. (2014). Quality of life in MPN comes of age as a therapeutic target. Current Hematologic Malignancy Reports, 9(4), 324\u2013330.","journal-title":"Current Hematologic Malignancy Reports"},{"issue":"12","key":"1827_CR13","doi-asserted-by":"publisher","first-page":"1117","DOI":"10.1056\/NEJMoa1002028","volume":"363","author":"S Verstovsek","year":"2010","unstructured":"Verstovsek, S., Kantarjian, H., Mesa, R. A., et al. (2010). Safety and efficacy of INCB018424, a JAK1 and JAK2 inhibitor, in myelofibrosis. The New England Journal of Medicine, 363(12), 1117\u20131127.","journal-title":"The New England Journal of Medicine"},{"issue":"5","key":"1827_CR14","doi-asserted-by":"publisher","first-page":"691","DOI":"10.1016\/j.leukres.2007.10.015","volume":"32","author":"DP Steensma","year":"2008","unstructured":"Steensma, D. P., Heptinstall, K. V., Johnson, V. M., et al. (2008) Common troublesome symptoms and their impact on quality of life in patients with myelodysplastic syndromes (MDS): Results of a large internet-based survey. Leukemia Research, 32(5), 691\u2013698.","journal-title":"Leukemia Research"},{"issue":"3","key":"1827_CR15","doi-asserted-by":"publisher","first-page":"441","DOI":"10.3109\/10428194.2011.619608","volume":"53","author":"P Johansson","year":"2012","unstructured":"Johansson, P., Mesa, R., Scherber, R., et al. (2012). Association between quality of life and clinical parameters in patients with myeloproliferative neoplasms. Leukemia & Lymphoma, 53(3), 441\u2013444.","journal-title":"Leukemia & Lymphoma"},{"issue":"2","key":"1827_CR16","doi-asserted-by":"publisher","first-page":"401","DOI":"10.1182\/blood-2011-01-328955","volume":"118","author":"R Scherber","year":"2011","unstructured":"Scherber, R., Dueck, A. C., Johansson, P., Barbui, T., Barosi, G., Vannucchi, A. M., et al. (2011) The Myeloproliferative Neoplasm Symptom Assessment Form (MPN-SAF): International prospective validation and reliability trial in 402 patients. Blood, 118(2), 401\u2013408. https:\/\/doi.org\/10.1182\/blood-2011-01-328955 . (Epub 2011 May 2).","journal-title":"Blood"},{"key":"1827_CR17","unstructured":"Greenhalgh, T. (2016) Cultural contexts of health: the use of narrative research in the health sector. Copenhagen: WHO Regional Office for Europe; (Health Evidence Network (HEN) synthesis report 49). http:\/\/www.euro.who.int\/__data\/assets\/pdf_file\/0004\/317623\/HEN-synthesisreport-49.pdf . Accessed on 16 Jan 2017"},{"key":"1827_CR18","doi-asserted-by":"publisher","DOI":"10.1002\/9780470755167","volume-title":"Narrative research in health and illness","author":"B Hurwitz","year":"2004","unstructured":"Hurwitz, B., Greenhalgh, T., & Skultans, V. Narrative research in health and illness. London: British Medical Association Ed (2004)."},{"key":"1827_CR19","first-page":"3","volume-title":"Narrative based medicine: dialogue and discourse in clinical practice","author":"T Greenhalgh","year":"1998","unstructured":"Greenhalgh, T., & Hurwitz, B. (1998). Why study narrative? In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: dialogue and discourse in clinical practice (pp.\u00a03\u201316). London: British Medical Journal Books."},{"issue":"3","key":"1827_CR20","doi-asserted-by":"publisher","first-page":"342","DOI":"10.1097\/ACM.0b013e3182446fbb","volume":"87","author":"R Charon","year":"2012","unstructured":"Charon, R. (2012). At the membranes of care: narratives in narrative medicine. Academic Medicine, 87(3), 342\u2013347.","journal-title":"Academic Medicine"},{"key":"1827_CR21","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1097\/00001888-200404000-00013","volume":"79","author":"S DasGupta","year":"2004","unstructured":"DasGupta, S., & Charon, R. (2004). Personal illness narratives: Using reflective writing to teach empathy. Academic Medicine, 79, 4.","journal-title":"Academic Medicine"},{"key":"1827_CR22","volume-title":"The illness narratives: Suffering, healing, and the human condition","author":"A Kleinman","year":"1988","unstructured":"Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. New York: Basic books."},{"key":"1827_CR23","volume-title":"Narrative medicine for a sustainable healthcare system","author":"MG Marini","year":"2012","unstructured":"Marini, M. G., & Arreghini, L. (2012). Narrative medicine for a sustainable healthcare system. Milano: Lupetti."},{"key":"1827_CR24","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-22090-1","volume-title":"Narrative medicine: Bridging the gap between evidence-based care and medical humanities","author":"MG Marini","year":"2016","unstructured":"Marini, M. G. (2016). Narrative medicine: Bridging the gap between evidence-based care and medical humanities. London: Springer International Publishing."},{"key":"1827_CR25","first-page":"51","volume":"77","author":"R Tarricone","year":"2006","unstructured":"Tarricone, R. (2006). Cost-of-illness analysis. What Room in Health Economics? Health Policy, 77, 51\u201363.","journal-title":"What Room in Health Economics? Health Policy"},{"issue":"8","key":"1827_CR26","doi-asserted-by":"publisher","first-page":"855","DOI":"10.1016\/j.leukres.2013.05.009","volume":"37","author":"L Pieri","year":"2013","unstructured":"Pieri, L., Loiacono, I., & Vannucchi, A. M. (2013). The burden of symptoms in myelofibrosis: From patient-reported outcomes to health economics. Leukemia Research, 37(8), 855\u2013856.","journal-title":"Leukemia Research"},{"key":"1827_CR27","unstructured":"Personal data code protection. (2003). Law 30\/06\/2003 n.196. Published on the Italian Official Journal n.174., 29th July 2003, Supplementary n.123."},{"issue":"2","key":"1827_CR28","doi-asserted-by":"publisher","first-page":"387","DOI":"10.1111\/j.1532-5415.2009.02701.x","volume":"58","author":"G Epstein-Lubow","year":"2010","unstructured":"Epstein-Lubow, G., Gaudiano, B. A., Hinckley, M., et al. (2010). Evidence for the validity of the American Medical Association\u2019s Caregiver Self-Assessment Questionnaire as a screening measure for depression. Journal of American Geriatric Society, 58(2), 387\u2013388.","journal-title":"Journal of American Geriatric Society"},{"key":"1827_CR29","volume-title":"Basics of qualitative research. Techniques and procedures for developing Grounded Theory","author":"J Corbin","year":"2015","unstructured":"Corbin, J., & Strauss, A. (2015) Basics of qualitative research. Techniques and procedures for developing Grounded Theory. Los Angeles: SAGE Publications."},{"key":"1827_CR30","first-page":"68","volume-title":"Qualitative Data Analysis with NVivo","author":"P Bazeley","year":"2013","unstructured":"Bazeley, P., & Jackson, K. (2013) Qualitative Data Analysis with NVivo (pp.\u00a068\u201373). London: Sage."},{"issue":"3","key":"1827_CR31","doi-asserted-by":"publisher","first-page":"336","DOI":"10.1037\/1091-7527.24.3.336","volume":"24","author":"J Launer","year":"2006","unstructured":"Launer, J. (2006). New stories for old: Narrative-based primary care in Great Britain. Families, Systems and Health, 24(3), 336\u2013344.","journal-title":"Families, Systems and Health"},{"key":"1827_CR32","volume-title":"Psychology applied to modern life","author":"W Weiten","year":"2008","unstructured":"Weiten, W., & Lloyd, M. A. (2008) Psychology applied to modern life. (9th\u00a0edn.). Boston, MA: Wadsworth Cengage Learning","edition":"9"},{"issue":"N.2","key":"1827_CR33","doi-asserted-by":"publisher","first-page":"267","DOI":"10.1037\/0022-3514.56.2.267","volume":"56","author":"CS Carver","year":"1989","unstructured":"Carver, C. S., et al. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56(N.2), 267\u2013283.","journal-title":"Journal of Personality and Social Psychology"},{"issue":"6","key":"1827_CR34","doi-asserted-by":"publisher","first-page":"1721","DOI":"10.1111\/j.1467-6494.2006.00426.x","volume":"74","author":"N Heather","year":"2006","unstructured":"Heather, N., Rasmussen, C., Wrosch, M. F., Scheier, & Carver, C. S. (2006). Self-regulation processes and health: The importance of optimism and goal adjustment. Journal of Personality, 74(6), 1721\u20131748.","journal-title":"Journal of Personality"},{"key":"1827_CR35","doi-asserted-by":"publisher","first-page":"679","DOI":"10.1146\/annurev.psych.093008.100352","volume":"61","author":"CS Carver","year":"2010","unstructured":"Carver, C. S., & Connor-Smith, J. (2010). Personality and coping. Annual Review of Psychology, 61, 679\u2013704.","journal-title":"Annual Review of Psychology"},{"key":"1827_CR36","doi-asserted-by":"publisher","first-page":"101","DOI":"10.1111\/j.1365-2929.2005.02378.x","volume":"40","author":"TJ Kennedy","year":"2006","unstructured":"Kennedy, T. J., & Lingard, L. A. (2006). Making sense of grounded theory in medical education. Medical Education, 40, 101\u2013108.","journal-title":"Medical Education"},{"key":"1827_CR37","doi-asserted-by":"publisher","DOI":"10.1080\/14767058.2017.1339272","author":"MG Marini","year":"2017","unstructured":"Marini, M. G., Chesi, P., Bruscagnin, M., Ceccatelli, M., & Ruzzon, E. (2017). Digits and narratives of the experience of Italian families facing premature births. Journal of Maternal Fetal & Neonatal Medicine. https:\/\/doi.org\/10.1080\/14767058.2017.1339272 .","journal-title":"Journal of Maternal Fetal & Neonatal Medicine"},{"issue":"1","key":"1827_CR38","doi-asserted-by":"publisher","first-page":"FSO82","DOI":"10.4155\/fso.15.82","volume":"2","author":"MG Marini","year":"2016","unstructured":"Marini, M. G., Chesi, P., Mazzanti, L., Guazzarotti, L., Toni, T. D., Salerno, M. C., et al. (2016) Stories of experiences of care for growth hormone deficiency: The CRESCERE project. Future Science OA, 2(1), FSO82. https:\/\/doi.org\/10.4155\/fso.15.82 . (eCollection 2016 Mar).","journal-title":"Future Science OA"},{"issue":"1","key":"1827_CR39","doi-asserted-by":"publisher","first-page":"81","DOI":"10.2340\/00015555-2478","volume":"97","author":"A Cappuccio","year":"2017","unstructured":"Cappuccio, A., Limonta, T., Parodi, A., Cristaudo, A., Bugliaro, F., Cannav\u00f2, S. P., et al. (2017) Living with chronic spontaneous Urticaria in Italy: A narrative medicine project to improve the pathway of patient care. Acta Dermato-Venereologica, 97(1):81\u201385. https:\/\/doi.org\/10.2340\/00015555-2478 .","journal-title":"Acta Dermato-Venereologica"},{"issue":"5","key":"1827_CR40","doi-asserted-by":"publisher","first-page":"351","DOI":"10.2217\/pmt.14.35","volume":"4","author":"MG Marini","year":"2014","unstructured":"Marini, M. G., Reale, L., Cappuccio, A., Spizzichino, M., Zini, P., Amato, F., et al. (2014). Narrative medicine to highlight values of Italian pain therapists in a changing healthcare system. Pain Management, 4(5), 351\u2013362. https:\/\/doi.org\/10.2217\/pmt.14.35 .","journal-title":"Pain Management"},{"key":"1827_CR41","unstructured":"Research, & Projects. http:\/\/www.narrativemedicine.eu\/projects . Accessed on 28 Nov 2017."},{"key":"1827_CR42","unstructured":"Istat. (2012). Annuario statistico italiano."},{"issue":"6","key":"1827_CR43","doi-asserted-by":"publisher","first-page":"435","DOI":"10.3111\/13696998.2014.903257","volume":"17","author":"E Gimenez","year":"2014","unstructured":"Gimenez, E., Besses, C., Boque, C., et al. (2014). Indirect and non-medical economic burden, quality-of-life, and disabilities of the myelofibrosis disease in Spain. Journal of Medical Economics, 17(6), 435\u2013441.","journal-title":"Journal of Medical Economics"},{"key":"1827_CR44","doi-asserted-by":"crossref","first-page":"4827","DOI":"10.1182\/blood.V124.21.4827.4827","volume":"24","author":"R Mesa","year":"2014","unstructured":"Mesa, R., Miller, C. B., Thyne, M., Mangan, J., Goldberger, S., et al. (2014). Gaps in perception between patients and physicians regarding symptomatology and treatment attitudes for myeloproliferative neoplasms: MPN LANDMARK SURVEY.\u00a0Blood, 24, 4827.","journal-title":"Blood"},{"issue":"17","key":"1827_CR45","first-page":"13221330","volume":"96","author":"K Robin Yabroff","year":"2004","unstructured":"Robin Yabroff, K., Lawrence, W. F., Clauser, S., Davis, W. W., & Brown, M. L. (2004). Burden of illness in cancer survivors: Findings from a population-based national sample.\u00a0Journal of the National Cancer Institute, 96(17), 1322\u20131330.","journal-title":"Journal of the National Cancer Institute"},{"key":"1827_CR46","doi-asserted-by":"publisher","first-page":"359","DOI":"10.1002\/1098-240X(200010)23:5<359::AID-NUR3>3.0.CO;2-J","volume":"23","author":"L Ayres","year":"2000","unstructured":"Ayres, L. (2000) Narratives of family caregiving: Four story types. Research in Nursing and Health, 23, 359\u2013371.","journal-title":"Research in Nursing and Health"},{"key":"1827_CR47","doi-asserted-by":"crossref","unstructured":"Levit Laura, A., et al. (Eds.). (2013). Patient-centered communication and shared decision making. In Delivering high-quality cancer care: Charting a new course for a system in crisis. Washington, DC: National Academies Press.","DOI":"10.17226\/18359"},{"issue":"9","key":"1827_CR48","doi-asserted-by":"publisher","first-page":"1513","DOI":"10.1002\/cncr.29223","volume":"121","author":"H Sklenarova","year":"2015","unstructured":"Sklenarova, H., et al. (2015). When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors.\u00a0Cancer,\u00a0121(9), 1513\u20131519.","journal-title":"Cancer"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s11136-018-1827-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-018-1827-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-018-1827-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,10,12]],"date-time":"2019-10-12T09:45:25Z","timestamp":1570873525000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s11136-018-1827-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,3,8]]},"references-count":48,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2018,6]]}},"alternative-id":["1827"],"URL":"https:\/\/doi.org\/10.1007\/s11136-018-1827-2","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,3,8]]},"assertion":[{"value":"1 March 2018","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 March 2018","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"A. Iurlo has acted a consultant for and received honoraria from Novartis; M. Pellegrino has received honoraria from Novartis, as producer of deferasirox and ruxolitinib that are agents used for the treatment of myelofibrosis; M.Breccia has received honoraria from Novartis, BMS, Pfizer and Incyte; M. Bonifacio has received research fundings from Novartis; all other authors declared no conflict of interests.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}},{"value":"Informed consent was obtained from all individual participants included in the study.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}