{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,6]],"date-time":"2025-11-06T20:08:07Z","timestamp":1762459687203,"version":"3.37.3"},"reference-count":16,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2019,1,7]],"date-time":"2019-01-07T00:00:00Z","timestamp":1546819200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2019,1,7]],"date-time":"2019-01-07T00:00:00Z","timestamp":1546819200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["P30CA08748","2 UM1 CA121947-09","3U54CA137788-08S1"],"award-info":[{"award-number":["P30CA08748","2 UM1 CA121947-09","3U54CA137788-08S1"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2019,5]]},"DOI":"10.1007\/s11136-018-2089-8","type":"journal-article","created":{"date-parts":[[2019,1,8]],"date-time":"2019-01-08T18:10:31Z","timestamp":1546971031000},"page":"1265-1269","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Reliability and between-group stability of a health-related quality of life symptom index for persons with anal high-grade squamous intraepithelial lesions: an AIDS Malignancy Consortium Study (AMC-A03)"],"prefix":"10.1007","volume":"28","author":[{"name":"the ANCHOR HRQoL Implementation Group","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas M.","family":"Atkinson","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joel","family":"Palefsky","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yuelin","family":"Li","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrew","family":"Webb","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. Michael","family":"Berry","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephen","family":"Goldstone","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Levine","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Timothy J.","family":"Wilkin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gary","family":"Bucher","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Cella","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jack E.","family":"Burkhalter","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2019,1,7]]},"reference":[{"issue":"12","key":"2089_CR1","doi-asserted-by":"publisher","first-page":"1569","DOI":"10.1200\/JCO.2012.45.2524","volume":"31","author":"RA Nelson","year":"2013","unstructured":"Nelson, R. A., Levine, A. M., Bernstein, L., Smith, D. D., & Lai, L. L. (2013). Changing patterns of anal canal carcinoma in the United States. Journal of Clinical Oncology, 31(12), 1569\u20131575.","journal-title":"Journal of Clinical Oncology"},{"issue":"10","key":"2089_CR2","doi-asserted-by":"publisher","first-page":"1548","DOI":"10.1158\/1055-9965.EPI-15-0044","volume":"24","author":"MS Shiels","year":"2015","unstructured":"Shiels, M. S., Kreimer, A. R., Coghill, A. E., Darragh, T. M., & Devesa, S. S. (2015). Anal cancer incidence in the United States, 1977\u20132011: Distinct patterns by histology and behavior. Cancer Epidemiology, Biomarkers & Prevention, 24(10), 1548\u20131556.","journal-title":"Cancer Epidemiology, Biomarkers & Prevention"},{"issue":"9","key":"2089_CR3","doi-asserted-by":"publisher","first-page":"509","DOI":"10.1002\/cncy.21571","volume":"123","author":"JM Palefsky","year":"2015","unstructured":"Palefsky, J. M. (2015). Screening to prevent anal cancer: Current thinking and future directions. Cancer Cytopathology, 123(9), 509\u2013510.","journal-title":"Cancer Cytopathology"},{"issue":"4","key":"2089_CR4","doi-asserted-by":"publisher","first-page":"453","DOI":"10.1007\/s10350-004-6219-8","volume":"45","author":"GJ Chang","year":"2002","unstructured":"Chang, G. J., Berry, M. J., Jay, N., Palefsky, J. M., & Welton, M. L. (2002). Surgical treatment of high-grade anal squamous intraepithelial lesions. Diseases of the Colon & Rectum, 45(4), 453\u2013458.","journal-title":"Diseases of the Colon & Rectum"},{"issue":"1","key":"2089_CR5","doi-asserted-by":"publisher","first-page":"42","DOI":"10.1097\/DCR.0000000000000511","volume":"59","author":"ML van SiegenbeekHeukelom","year":"2016","unstructured":"Siegenbeek van Heukelom, M. L., Richel, O., Nieuwkerk, P. T., De Vries, H. J., & Prins, J. M. (2016). Health-related quality of life and sexual functioning of HIV-positive men who have sex with men who are treated for anal intraepithelial neoplasia. Disease Colon Rectum, 59(1), 42\u201347.","journal-title":"Disease Colon Rectum"},{"issue":"3","key":"2089_CR6","doi-asserted-by":"publisher","first-page":"352","DOI":"10.1007\/DCR.0b013e31820349c1","volume":"54","author":"J Tinmouth","year":"2011","unstructured":"Tinmouth, J., Raboud, J., Ali, M., Malloch, L., Su, D., Sano, M., et al. (2011). The psychological impact of being screened for anal cancer in HIV-infected men who have sex with men. Disease Colon Rectum, 54(3), 352\u2013359.","journal-title":"Disease Colon Rectum"},{"issue":"8","key":"2089_CR7","doi-asserted-by":"publisher","first-page":"984","DOI":"10.1016\/j.jval.2018.01.018","volume":"21","author":"JE Burkhalter","year":"2018","unstructured":"Burkhalter, J. E., Atkinson, T. M., Berry-Lawhorn, J., Goldstone, S., Einstein, M. H., Wilkin, T. J., Lee, J., et al. (2018). Initial development and content validation of a health-related symptom index for persons either treated or monitored for anal high-grade squamous intraepithelial lesions. Value Health, 21(8), 984\u2013992.","journal-title":"Value Health"},{"issue":"8","key":"2089_CR8","doi-asserted-by":"publisher","first-page":"967","DOI":"10.1016\/j.jval.2011.06.014","volume":"14","author":"DL Patrick","year":"2011","unstructured":"Patrick, D. L., Burke, L. B., Gwaltney, C. J., Leidy, N. K., Martin, M. L., Molsen, E., & Ring, L. (2011). Content validity-establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) Instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1\u2014Eliciting concepts for a new PRO instrument. Value in Health, 14(8), 967\u2013977.","journal-title":"Value in Health"},{"issue":"8","key":"2089_CR9","doi-asserted-by":"publisher","first-page":"978","DOI":"10.1016\/j.jval.2011.06.013","volume":"14","author":"DL Patrick","year":"2011","unstructured":"Patrick, D. L., Burke, L. B., Gwaltney, C. J., Leidy, N. K., Martin, M. L., Molsen, E., & Ring, L. (2011). Content validity-establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2\u2014Assessing respondent Understanding. Value in Health, 14(8), 978\u2013988.","journal-title":"Value in Health"},{"key":"2089_CR10","doi-asserted-by":"publisher","DOI":"10.4135\/9781412983655","volume-title":"Cognitive interviewing: A tool for improving questionnaire design","author":"GB Willis","year":"2005","unstructured":"Willis, G. B. (2005). Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks: Sage."},{"key":"2089_CR11","unstructured":"US Department of Health and Human Services. (2009). Guidance for industry. Patient-reported outcome measures: Use in medical product development to support labeling claims. Accessed September 19, 2018, from \n                    http:\/\/www.fda.gov\/downloads\/Drugs\/GuidanceComplianceRegulatoryInformation\/Guidances\/UCM193282.pdf\n                    \n                  ."},{"issue":"1","key":"2089_CR12","doi-asserted-by":"publisher","first-page":"139","DOI":"10.1200\/JCO.1998.16.1.139","volume":"16","author":"D Osaba","year":"1998","unstructured":"Osaba, D., Rodrigues, G., Myles, J., Zee, B., & Pater, J. (1998). Interpreting the significance of changes in health-related quality-of-life scores. Journal of Clinical Oncology, 16(1), 139\u2013144.","journal-title":"Journal of Clinical Oncology"},{"issue":"3","key":"2089_CR13","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1007\/BF02310555","volume":"16","author":"LJ Cronbach","year":"1951","unstructured":"Cronbach, L. J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16(3), 297\u2013334.","journal-title":"Psychometrika"},{"key":"2089_CR14","doi-asserted-by":"publisher","first-page":"53","DOI":"10.5116\/ijme.4dfb.8dfd","volume":"2","author":"M Tavakol","year":"2011","unstructured":"Tavakol, M., & Dennick, R. (2011). Making sense of Cronbach\u2019s alpha. International Journal of Medical Education, 2, 53\u201355.","journal-title":"International Journal of Medical Education"},{"issue":"29","key":"2089_CR15","doi-asserted-by":"publisher","first-page":"4764","DOI":"10.3748\/wjg.v19.i29.4764","volume":"19","author":"SSM Ng","year":"2013","unstructured":"Ng, S. S. M., Leung, W. W., Wong, C. Y. N., Hon, S. S. F., Mak, T. W. C., Ngo, D. K. Y., & Lee, J. F. Y. (2013). Quality of life after laparoscopic vs open sphincterpreserving resection for rectal cancer. World Journal of Gastroenterology, 19(29), 4764\u20134773.","journal-title":"World Journal of Gastroenterology"},{"key":"2089_CR16","unstructured":"IBM Corp. Released 2017. IBM SPSS statistics for Windows, version 25.0. Armonk, NY: IBM Corp."}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-018-2089-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1007\/s11136-018-2089-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-018-2089-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,5,16]],"date-time":"2020-05-16T21:25:59Z","timestamp":1589664359000},"score":1,"resource":{"primary":{"URL":"http:\/\/link.springer.com\/10.1007\/s11136-018-2089-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,1,7]]},"references-count":16,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2019,5]]}},"alternative-id":["2089"],"URL":"https:\/\/doi.org\/10.1007\/s11136-018-2089-8","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"type":"print","value":"0962-9343"},{"type":"electronic","value":"1573-2649"}],"subject":[],"published":{"date-parts":[[2019,1,7]]},"assertion":[{"value":"13 December 2018","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"7 January 2019","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}}]}}