{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,16]],"date-time":"2026-06-16T04:13:57Z","timestamp":1781583237706,"version":"3.54.5"},"reference-count":73,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2021,2,3]],"date-time":"2021-02-03T00:00:00Z","timestamp":1612310400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2021,2,3]],"date-time":"2021-02-03T00:00:00Z","timestamp":1612310400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Ministry for Innovation and Technology in Hungary"},{"DOI":"10.13039\/100018253","name":"Corvinus University of Budapest","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100018253","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2021,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Purpose<\/jats:title>\n                <jats:p>Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease that affects up to 1% of the population in Europe. The EQ-5D is the most commonly used generic instrument for measuring health-related quality of life among HS patients. This study aims to compare the measurement properties of the two adult versions of EQ-5D (EQ-5D-3L and EQ-5D-5L) in patients with HS.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>We recruited 200 consecutive patients with HS (mean age 37 years, 38% severe or very severe HS) to participate in a multicentre cross-sectional survey. Patients completed the EQ-5D-3L, EQ-5D-5L, Dermatology Life Quality Index (DLQI) and Skindex-16 questionnaires.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>More than twice as many different health state profiles occurred in the EQ-5D-5L compared to the EQ-5D-3L (101 vs. 43). A significant reduction in ceiling effect was found for the mobility, self-care and usual activities dimensions. A good agreement was established between the EQ-5D-3L and EQ-5D-5L with an intraclass correlation coefficient of 0.872 (95% CI 0.830\u20130.903; <jats:italic>p<\/jats:italic> &lt; 0.001) that was confirmed by a Bland-Altman plot. EQ-5D-5L improved both the absolute and relative informativity in all dimensions except for anxiety\/depression. EQ-5D-3L and EQ-5D-5L demonstrated similar convergent validity with DLQI and Skindex-16. EQ-5D-5L was able to better discriminate between known groups of patients based on the number of comorbidities and disease severity (HS-Physician's Global Assessment).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>In patients with HS, the EQ-5D-5L outperformed the EQ-5D-3L in feasibility, ceiling effects, informativity and known-groups validity for many important clinical characteristics. We recommend using the EQ-5D-5L in HS patients across various settings, including clinical care, research and economic evaluations.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s11136-020-02732-x","type":"journal-article","created":{"date-parts":[[2021,2,3]],"date-time":"2021-02-03T16:04:06Z","timestamp":1612368246000},"page":"1477-1490","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":25,"title":["The measurement performance of the EQ-5D-5L versus EQ-5D-3L in patients with hidradenitis suppurativa"],"prefix":"10.1007","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1450-4790","authenticated-orcid":false,"given":"Alex","family":"Bat\u00f3","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6095-2295","authenticated-orcid":false,"given":"Valentin","family":"Brodszky","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5266-4667","authenticated-orcid":false,"given":"L. Hunor","family":"Gergely","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6530-7052","authenticated-orcid":false,"given":"Kriszti\u00e1n","family":"G\u00e1sp\u00e1r","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4949-8711","authenticated-orcid":false,"given":"Norbert","family":"Wikonk\u00e1l","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00c1gnes","family":"Kiny\u00f3","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2386-4525","authenticated-orcid":false,"given":"\u00c1kos","family":"Szab\u00f3","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zsuzsanna","family":"Beretzky","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2109-9014","authenticated-orcid":false,"given":"Andrea","family":"Szegedi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0973-5228","authenticated-orcid":false,"given":"\u00c9va","family":"Remenyik","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9947-1755","authenticated-orcid":false,"given":"Norbert","family":"Kiss","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4306-5093","authenticated-orcid":false,"given":"Mikl\u00f3s","family":"S\u00e1rdy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9674-620X","authenticated-orcid":false,"given":"Fanni","family":"Rencz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2021,2,3]]},"reference":[{"issue":"1","key":"2732_CR1","doi-asserted-by":"publisher","first-page":"18","DOI":"10.1038\/s41572-020-0149-1","volume":"6","author":"R Sabat","year":"2020","unstructured":"Sabat, R., Jemec, G. B. E., Matusiak, L., Kimball, A. B., Prens, E., & Wolk, K. (2020). Hidradenitis suppurativa. Nature Reviews Disease Primers, 6(1), 18.","journal-title":"Nature Reviews Disease Primers"},{"issue":"4","key":"2732_CR2","doi-asserted-by":"publisher","first-page":"619","DOI":"10.1111\/jdv.12966","volume":"29","author":"CC Zouboulis","year":"2015","unstructured":"Zouboulis, C. C., Desai, N., Emtestam, L., Hunger, R. E., Ioannides, D., Juhasz, I., et al. (2015). European S1 guideline for the treatment of hidradenitis suppurativa\/acne inversa. Journal of the European Academy of Dermatology and Venereology, 29(4), 619\u2013644.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"1","key":"2732_CR3","doi-asserted-by":"publisher","first-page":"174","DOI":"10.1111\/jdv.15940","volume":"34","author":"N Kirsten","year":"2020","unstructured":"Kirsten, N., Petersen, J., Hagenstrom, K., & Augustin, M. (2020). Epidemiology of hidradenitis suppurativa in Germany - an observational cohort study based on a multisource approach. Journal of the European Academy of Dermatology and Venereology, 34(1), 174\u2013179.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"4","key":"2732_CR4","doi-asserted-by":"publisher","first-page":"774","DOI":"10.1111\/bjd.16998","volume":"180","author":"P Theut Riis","year":"2019","unstructured":"Theut Riis, P., Pedersen, O. B., Sigsgaard, V., Erikstrup, C., Paarup, H. M., Nielsen, K. R., et al. (2019). Prevalence of patients with self-reported hidradenitis suppurativa in a cohort of Danish blood donors: a cross-sectional study. British Journal of Dermatology, 180(4), 774\u2013781.","journal-title":"British Journal of Dermatology"},{"key":"2732_CR5","doi-asserted-by":"publisher","unstructured":"Nguyen, T. V., Damiani, G., Orenstein, L. A. V., Hamzavi, I., & Jemec, G. (2020). Hidradenitis Suppurativa: An Update on Epidemiology, Phenotypes, Diagnosis, Pathogenesis, Comorbidities and Quality of Life. Journal of the European Academy of Dermatology and Venereology. https:\/\/doi.org\/10.1111\/jdv.16677","DOI":"10.1111\/jdv.16677"},{"key":"2732_CR6","doi-asserted-by":"crossref","unstructured":"Killasli, H., Sartorius, K., Emtestam, L., & Svensson, A. (2020). Hidradenitis Suppurativa in Sweden: A Registry-Based Cross-Sectional Study of 13,538 Patients. Dermatology, 1-8.","DOI":"10.1159\/000505545"},{"issue":"1","key":"2732_CR7","doi-asserted-by":"publisher","first-page":"9","DOI":"10.4161\/derm.2.1.12490","volume":"2","author":"S Fimmel","year":"2010","unstructured":"Fimmel, S., & Zouboulis, C. C. (2010). Comorbidities of hidradenitis suppurativa (acne inversa). Dermatoendocrinol, 2(1), 9\u201316.","journal-title":"Dermatoendocrinol"},{"issue":"1","key":"2732_CR8","doi-asserted-by":"publisher","first-page":"129","DOI":"10.1111\/jdv.14517","volume":"32","author":"E Dauden","year":"2018","unstructured":"Dauden, E., Lazaro, P., Aguilar, M. D., Blasco, A. J., Suarez, C., Marin, I., et al. (2018). Recommendations for the management of comorbidity in hidradenitis suppurativa. Journal of the European Academy of Dermatology and Venereology, 32(1), 129\u2013144.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"5","key":"2732_CR9","doi-asserted-by":"publisher","first-page":"1009","DOI":"10.1111\/bjd.17537","volume":"180","author":"JR Ingram","year":"2019","unstructured":"Ingram, J. R., Collier, F., Brown, D., Burton, T., Burton, J., Chin, M. F., et al. (2019). British Association of Dermatologists guidelines for the management of hidradenitis suppurativa (acne inversa) 2018. British Journal of Dermatology, 180(5), 1009\u20131017.","journal-title":"British Journal of Dermatology"},{"issue":"6","key":"2732_CR10","doi-asserted-by":"publisher","first-page":"1546","DOI":"10.1111\/bjd.14038","volume":"173","author":"DM Saunte","year":"2015","unstructured":"Saunte, D. M., Boer, J., Stratigos, A., Szepietowski, J. C., Hamzavi, I., Kim, K. H., et al. (2015). Diagnostic delay in hidradenitis suppurativa is a global problem. British Journal of Dermatology, 173(6), 1546\u20131549.","journal-title":"British Journal of Dermatology"},{"key":"2732_CR11","doi-asserted-by":"crossref","unstructured":"Loget, J., Saint-Martin, C., Guillem, P., Kanagaratnam, L., Becherel, P. A., Nassif, A., et al. (2018). [Misdiagnosis of hidradenitis suppurativa continues to be a major issue. The R-ENS Verneuil study]. Annales de Dermatologie et de V\u00e9n\u00e9r\u00e9ologie, 145(5), 331-338.","DOI":"10.1016\/j.annder.2018.01.043"},{"issue":"6","key":"2732_CR12","doi-asserted-by":"publisher","first-page":"990","DOI":"10.1111\/bjd.19435","volume":"183","author":"JR Ingram","year":"2020","unstructured":"Ingram, J. R. (2020). The epidemiology of hidradenitis suppurativa. British Journal of Dermatology, 183(6), 990\u2013998.","journal-title":"British Journal of Dermatology"},{"issue":"5","key":"2732_CR13","doi-asserted-by":"publisher","first-page":"421","DOI":"10.1159\/000508787","volume":"236","author":"G Kokolakis","year":"2020","unstructured":"Kokolakis, G., Wolk, K., Schneider-Burrus, S., Kalus, S., Barbus, S., Gomis-Kleindienst, S., et al. (2020). Delayed diagnosis of hidradenitis suppurativa and its effect on patients and healthcare system. Dermatology, 236(5), 421\u2013430.","journal-title":"Dermatology"},{"issue":"6","key":"2732_CR14","first-page":"e171","volume":"183","author":"L Matusiak","year":"2018","unstructured":"Matusiak, L. (2018). Profound consequences of hidradenitis suppurativa: A review. British Journal of Dermatology, 183(6), e171\u2013e177.","journal-title":"British Journal of Dermatology"},{"issue":"9","key":"2732_CR15","doi-asserted-by":"publisher","first-page":"1633","DOI":"10.1111\/jdv.15519","volume":"33","author":"PV Chernyshov","year":"2019","unstructured":"Chernyshov, P. V., Zouboulis, C. C., Tomas-Aragones, L., Jemec, G. B., Svensson, A., Manolache, L., et al. (2019). Quality of life measurement in hidradenitis suppurativa: position statement of the European Academy of Dermatology and Venereology task forces on Quality of Life and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa. Journal of the European Academy of Dermatology and Venereology, 33(9), 1633\u20131643.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"5 Suppl 1","key":"2732_CR16","doi-asserted-by":"publisher","first-page":"S19","DOI":"10.1016\/j.jaad.2015.07.054","volume":"73","author":"M Gooderham","year":"2015","unstructured":"Gooderham, M., & Papp, K. (2015). The psychosocial impact of hidradenitis suppurativa. Journal of the American Academy of Dermatology, 73(5 Suppl 1), S19-22.","journal-title":"Journal of the American Academy of Dermatology"},{"issue":"1","key":"2732_CR17","doi-asserted-by":"publisher","first-page":"e24","DOI":"10.1111\/jdv.15122","volume":"33","author":"A Chiricozzi","year":"2019","unstructured":"Chiricozzi, A., Bettoli, V., De Pita, O., Dini, V., Fabbrocini, G., Monfrecola, G., et al. (2019). HIDRAdisk: an innovative visual tool to assess the burden of hidradenitis suppurativa. Journal of the European Academy of Dermatology and Venereology, 33(1), e24\u2013e26.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"key":"2732_CR18","doi-asserted-by":"crossref","unstructured":"Kirby, J. S., Thorlacius, L., Villumsen, B., Ingram, J. R., Garg, A., Christensen, K. B., et al. (2019). The Hidradenitis Suppurativa Quality of Life (HiSQOL) score: development and validation of a measure for clinical trials. British Journal of Dermatology","DOI":"10.1111\/bjd.18692"},{"issue":"1","key":"2732_CR19","doi-asserted-by":"publisher","first-page":"215","DOI":"10.1016\/j.jaad.2017.08.030","volume":"78","author":"J Pinard","year":"2018","unstructured":"Pinard, J., Vleugels, R. A., Joyce, C., Merola, J. F., & Patel, M. (2018). Hidradenitis suppurativa burden of disease tool: Pilot testing of a disease-specific quality of life questionnaire. Journal of the American Academy of Dermatology, 78(1), 215-217.e212.","journal-title":"Journal of the American Academy of Dermatology"},{"issue":"2","key":"2732_CR20","doi-asserted-by":"publisher","first-page":"152","DOI":"10.1177\/1203475416677721","volume":"21","author":"M Sisic","year":"2017","unstructured":"Sisic, M., Kirby, J. S., Boyal, S., Plant, L., McLellan, C., & Tan, J. (2017). Development of a Quality-of-Life Measure for Hidradenitis Suppurativa. J Cutan Med Surg, 21(2), 152\u2013155.","journal-title":"J Cutan Med Surg"},{"issue":"5","key":"2732_CR21","doi-asserted-by":"publisher","first-page":"337","DOI":"10.3109\/07853890109002087","volume":"33","author":"R Rabin","year":"2001","unstructured":"Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine, 33(5), 337\u2013343.","journal-title":"Annals of Medicine"},{"issue":"11","key":"2732_CR22","doi-asserted-by":"publisher","first-page":"2693","DOI":"10.1007\/s11136-016-1375-6","volume":"25","author":"F Rencz","year":"2016","unstructured":"Rencz, F., Gulacsi, L., Drummond, M., Golicki, D., Prevolnik Rupel, V., Simon, J., et al. (2016). EQ-5D in central and Eastern Europe: 2000\u20132015. Quality of Life Research, 25(11), 2693\u20132710.","journal-title":"Quality of Life Research"},{"issue":"8","key":"2732_CR23","doi-asserted-by":"publisher","first-page":"1245","DOI":"10.1007\/s10198-020-01195-8","volume":"21","author":"M Kennedy-Martin","year":"2020","unstructured":"Kennedy-Martin, M., Slaap, B., Herdman, M., van Reenen, M., Kennedy-Martin, T., Greiner, W., et al. (2020). Which multi-attribute utility instruments are recommended for use in cost-utility analysis? A review of national health technology assessment (HTA) guidelines. The European Journal of Health Economics, 21(8), 1245\u20131257.","journal-title":"The European Journal of Health Economics"},{"issue":"8","key":"2732_CR24","doi-asserted-by":"publisher","first-page":"805","DOI":"10.1007\/s40273-017-0488-2","volume":"35","author":"P Tappenden","year":"2017","unstructured":"Tappenden, P., Carroll, C., Stevens, J. W., Rawdin, A., Grimm, S., Clowes, M., et al. (2017). Adalimumab for treating moderate-to-severe hidradenitis suppurativa: An evidence review group perspective of a nice single technology appraisal. Pharmacoeconomics, 35(8), 805\u2013815.","journal-title":"Pharmacoeconomics"},{"issue":"5","key":"2732_CR25","doi-asserted-by":"publisher","first-page":"1161","DOI":"10.1111\/bjd.17151","volume":"180","author":"M Argyropoulou","year":"2019","unstructured":"Argyropoulou, M., Kanni, T., Kyprianou, M., Melachroinopoulos, N., & Giamarellos-Bourboulis, E. J. (2019). Cost-savings of adalimumab in hidradenitis suppurativa: a retrospective analysis of a real-world cohort. British Journal of Dermatology, 180(5), 1161\u20131168.","journal-title":"British Journal of Dermatology"},{"key":"2732_CR26","doi-asserted-by":"publisher","unstructured":"Willems, D., Charokopou, M., Evers, S., & Hiligsmann, M. (2020). Early health economic modelling for a treatment candidate in hidradenitis suppurativa. J Med Econ [Epub ahead of print]. https:\/\/doi.org\/10.1080\/13696998.2020.1840181, 1.","DOI":"10.1080\/13696998.2020.1840181"},{"issue":"5","key":"2732_CR27","doi-asserted-by":"publisher","first-page":"519","DOI":"10.1080\/09546634.2018.1529383","volume":"30","author":"EJ Yang","year":"2019","unstructured":"Yang, E. J., Beck, K. M., Bhutani, T., Feldman, S. R., & Shi, V. Y. (2019). Pharmacy costs of systemic medications for hidradenitis suppurativa in the United States. Journal of Dermatological Treatment, 30(5), 519\u2013521.","journal-title":"Journal of Dermatological Treatment"},{"key":"2732_CR28","doi-asserted-by":"publisher","first-page":"65","DOI":"10.1016\/j.coph.2019.04.006","volume":"46","author":"\u0141 Matusiak","year":"2019","unstructured":"Matusiak, \u0141, Jemec, G. B., & Szepietowski, J. C. (2019). Pharmacological development in hidradenitis suppurativa. Current Opinion in Pharmacology, 46, 65\u201372.","journal-title":"Current Opinion in Pharmacology"},{"key":"2732_CR29","doi-asserted-by":"crossref","unstructured":"EuroQol--a new facility for the measurement of health-related quality of life (1990). Health Policy, 16(3), 199-208.","DOI":"10.1016\/0168-8510(90)90421-9"},{"issue":"10","key":"2732_CR30","doi-asserted-by":"publisher","first-page":"1727","DOI":"10.1007\/s11136-011-9903-x","volume":"20","author":"M Herdman","year":"2011","unstructured":"Herdman, M., Gudex, C., Lloyd, A., Janssen, M., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res, 20(10), 1727\u20131736.","journal-title":"Qual Life Res"},{"issue":"3","key":"2732_CR31","doi-asserted-by":"publisher","first-page":"264","DOI":"10.2340\/00015555-0866","volume":"90","author":"L Matusiak","year":"2010","unstructured":"Matusiak, L., Bieniek, A., & Szepietowski, J. C. (2010). Psychophysical aspects of hidradenitis suppurativa. Acta Dermato Venereologica, 90(3), 264\u2013268.","journal-title":"Acta Dermato Venereologica"},{"issue":"3","key":"2732_CR32","doi-asserted-by":"publisher","first-page":"261","DOI":"10.1159\/000358009","volume":"228","author":"GR Vinding","year":"2014","unstructured":"Vinding, G. R., Knudsen, K. M., Ellervik, C., Olesen, A. B., & Jemec, G. B. (2014). Self-reported skin morbidities and health-related quality of life: a population-based nested case-control study. Dermatology, 228(3), 261\u2013268.","journal-title":"Dermatology"},{"issue":"2","key":"2732_CR33","doi-asserted-by":"publisher","first-page":"222","DOI":"10.2340\/00015555-2129","volume":"96","author":"PT Riis","year":"2016","unstructured":"Riis, P. T., Vinding, G. R., Ring, H. C., & Jemec, G. B. (2016). Disutility in patients with hidradenitis suppurativa: A cross-sectional study using EuroQoL-5D. Acta Dermato Venereologica, 96(2), 222\u2013226.","journal-title":"Acta Dermato Venereologica"},{"issue":"6","key":"2732_CR34","doi-asserted-by":"publisher","first-page":"1038","DOI":"10.1016\/j.jaad.2017.07.027","volume":"77","author":"IH Hamzavi","year":"2017","unstructured":"Hamzavi, I. H., Sundaram, M., Nicholson, C., Zivkovic, M., Parks-Miller, A., Lee, J., et al. (2017). Uncovering burden disparity: A comparative analysis of the impact of moderate-to-severe psoriasis and hidradenitis suppurativa. Journal of the American Academy of Dermatology, 77(6), 1038\u20131046.","journal-title":"Journal of the American Academy of Dermatology"},{"issue":"2","key":"2732_CR35","doi-asserted-by":"publisher","first-page":"313","DOI":"10.1111\/jdv.14511","volume":"32","author":"R Kjaersgaard Andersen","year":"2018","unstructured":"Kjaersgaard Andersen, R., Theut Riis, P., & Jemec, G. B. E. (2018). Factors predicting the self-evaluated health of hidradenitis suppurativa patients recruited from an outpatient clinic. Journal of the European Academy of Dermatology and Venereology, 32(2), 313\u2013317.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"key":"2732_CR36","doi-asserted-by":"crossref","unstructured":"Sampogna, F., Abeni, D., Gieler, U., Tomas Aragones, L., Lien, L., & Poot, F., et al. (2020). Exploring the EQ-5D Dimension of Pain\/Discomfort in Dermatology Outpatients from a Multicentre Study in 13 European Countries. Acta Dermato Venereologica, 100(8), adv00120.","DOI":"10.2340\/00015555-3477"},{"issue":"12","key":"2732_CR37","doi-asserted-by":"publisher","first-page":"3409","DOI":"10.1007\/s11136-017-1699-x","volume":"26","author":"AK Poor","year":"2017","unstructured":"Poor, A. K., Rencz, F., Brodszky, V., Gulacsi, L., Beretzky, Z., Hidvegi, B., et al. (2017). Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L in psoriasis patients. Quality of Life Research, 26(12), 3409\u20133419.","journal-title":"Quality of Life Research"},{"issue":"5","key":"2732_CR38","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1007\/s00403-017-1743-2","volume":"309","author":"J Yfantopoulos","year":"2017","unstructured":"Yfantopoulos, J., Chantzaras, A., & Kontodimas, S. (2017). Assessment of the psychometric properties of the EQ-5D-3L and EQ-5D-5L instruments in psoriasis. Archives of Dermatological Research, 309(5), 357\u2013370.","journal-title":"Archives of Dermatological Research"},{"issue":"6","key":"2732_CR39","doi-asserted-by":"publisher","first-page":"645","DOI":"10.1007\/s40273-018-0642-5","volume":"36","author":"I Buchholz","year":"2018","unstructured":"Buchholz, I., Janssen, M. F., Kohlmann, T., & Feng, Y. S. (2018). A systematic review of studies comparing the measurement properties of the three-level and five-level versions of the EQ-5D. Pharmacoeconomics, 36(6), 645\u2013661.","journal-title":"Pharmacoeconomics"},{"issue":"11","key":"2732_CR40","doi-asserted-by":"publisher","first-page":"2584","DOI":"10.1111\/jdv.16642","volume":"34","author":"LH Gergely","year":"2020","unstructured":"Gergely, L. H., G\u00e1sp\u00e1r, K., Brodszky, V., Kiny\u00f3, \u00c1., Szegedi, A., Remenyik, \u00c9., et al. (2020). Validity of EQ-5D-5L, Skindex-16, DLQI and DLQI-R in patients with hidradenitis suppurativa. Journal of the European Academy of Dermatology and Venereology, 34(11), 2584\u20132592.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"key":"2732_CR41","unstructured":"Hurley, H. (1989). Dermatologic surgery, principles and practice. Dermatologic surgery, principles and practice. Marcel Dekker, New York, 729-739."},{"issue":"12","key":"2732_CR42","doi-asserted-by":"publisher","first-page":"846","DOI":"10.7326\/0003-4819-157-12-201212180-00004","volume":"157","author":"AB Kimball","year":"2012","unstructured":"Kimball, A. B., Kerdel, F., Adams, D., Mrowietz, U., Gelfand, J. M., Gniadecki, R., et al. (2012). Adalimumab for the treatment of moderate to severe Hidradenitis suppurativa: a parallel randomized trial. Annals of Internal Medicine, 157(12), 846\u2013855.","journal-title":"Annals of Internal Medicine"},{"issue":"4","key":"2732_CR43","doi-asserted-by":"publisher","first-page":"831","DOI":"10.1111\/j.1365-2133.2009.09198.x","volume":"161","author":"K Sartorius","year":"2009","unstructured":"Sartorius, K., Emtestam, L., Jemec, G. B., & Lapins, J. (2009). Objective scoring of hidradenitis suppurativa reflecting the role of tobacco smoking and obesity. Br J Dermatol, 161(4), 831\u2013839.","journal-title":"Br J Dermatol"},{"issue":"2","key":"2732_CR44","doi-asserted-by":"publisher","first-page":"275","DOI":"10.1111\/j.1524-4733.2007.00230.x","volume":"11","author":"MF Janssen","year":"2008","unstructured":"Janssen, M. F., Birnie, E., Haagsma, J. A., & Bonsel, G. J. (2008). Comparing the standard EQ-5D three-level system with a five-level version. Value Health, 11(2), 275\u2013284.","journal-title":"Value Health"},{"issue":"12","key":"2732_CR45","doi-asserted-by":"publisher","first-page":"2726","DOI":"10.1038\/sj.jid.5701142","volume":"127","author":"H Both","year":"2007","unstructured":"Both, H., Essink-Bot, M. L., Busschbach, J., & Nijsten, T. (2007). Critical review of generic and dermatology-specific health-related quality of life instruments. J Invest Dermatol, 127(12), 2726\u20132739.","journal-title":"J Invest Dermatol"},{"key":"2732_CR46","doi-asserted-by":"crossref","unstructured":"Paudyal, P., Apfelbacher, C., Jones, C., Siddiqui, S., El-Turki, A., DeGiovanni, C., et al. (2020). \"DLQI Seems to be 'Action', and Skindex-29 Seems to be 'Emotion'\": Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures. Acta Dermato Venereologica, 100(8), adv00105.","DOI":"10.2340\/00015555-3417"},{"issue":"9","key":"2732_CR47","doi-asserted-by":"publisher","first-page":"1235","DOI":"10.1016\/j.jval.2020.03.019","volume":"23","author":"F Rencz","year":"2020","unstructured":"Rencz, F., Brodszky, V., Gul\u00e1csi, L., Golicki, D., Ruzsa, G., Pickard, A. S., et al. (2020). Parallel valuation of the EQ-5D-3L and EQ-5D-5L by Time trade-off in Hungary. Value Health, 23(9), 1235\u20131245.","journal-title":"Value Health"},{"issue":"3","key":"2732_CR48","doi-asserted-by":"publisher","first-page":"210","DOI":"10.1111\/j.1365-2230.1994.tb01167.x","volume":"19","author":"AY Finlay","year":"1994","unstructured":"Finlay, A. Y., & Khan, G. K. (1994). Dermatology Life Quality Index (DLQI)\u2013a simple practical measure for routine clinical use. Clinical and Experimental Dermatology, 19(3), 210\u2013216.","journal-title":"Clinical and Experimental Dermatology"},{"issue":"2","key":"2732_CR49","doi-asserted-by":"publisher","first-page":"105","DOI":"10.1177\/120347540100500202","volume":"5","author":"MM Chren","year":"2001","unstructured":"Chren, M. M., Lasek, R. J., Sahay, A. P., & Sands, L. P. (2001). Measurement properties of Skindex-16: a brief quality-of-life measure for patients with skin diseases. Journal of Cutaneous Medicine and Surgery, 5(2), 105\u2013110.","journal-title":"Journal of Cutaneous Medicine and Surgery"},{"issue":"7","key":"2732_CR50","doi-asserted-by":"publisher","first-page":"1717","DOI":"10.1007\/s11136-012-0322-4","volume":"22","author":"MF Janssen","year":"2013","unstructured":"Janssen, M. F., Pickard, A. S., Golicki, D., Gudex, C., Niewada, M., Scalone, L., et al. (2013). Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: A multi-country study. Quality of Life Research, 22(7), 1717\u20131727.","journal-title":"Quality of Life Research"},{"issue":"6","key":"2732_CR51","doi-asserted-by":"publisher","first-page":"575","DOI":"10.1007\/s40273-020-00893-8","volume":"38","author":"AJ Thompson","year":"2020","unstructured":"Thompson, A. J., & Turner, A. J. (2020). A Comparison of the EQ-5D-3L and EQ-5D-5L. Pharmacoeconomics, 38(6), 575\u2013591.","journal-title":"Pharmacoeconomics"},{"issue":"12","key":"2732_CR52","doi-asserted-by":"publisher","first-page":"3407","DOI":"10.1007\/s11136-020-02595-2","volume":"29","author":"K Kangwanrattanakul","year":"2020","unstructured":"Kangwanrattanakul, K., & Parmontree, P. (2020). Psychometric properties comparison between EQ-5D-5L and EQ-5D-3L in the general Thai population. Quality of Life Research, 29(12), 3407\u20133417.","journal-title":"Quality of Life Research"},{"issue":"8476","key":"2732_CR53","doi-asserted-by":"publisher","first-page":"307","DOI":"10.1016\/S0140-6736(86)90837-8","volume":"1","author":"JM Bland","year":"1986","unstructured":"Bland, J. M., & Altman, D. G. (1986). Statistical methods for assessing agreement between two methods of clinical measurement. Lancet, 1(8476), 307\u2013310.","journal-title":"Lancet"},{"issue":"2","key":"2732_CR54","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1016\/j.jcm.2016.02.012","volume":"15","author":"TK Koo","year":"2016","unstructured":"Koo, T. K., & Li, M. Y. (2016). A guideline of selecting and reporting intraclass correlation coefficients for reliability research. Journal of Chiropractic Medicine, 15(2), 155\u2013163.","journal-title":"Journal of Chiropractic Medicine"},{"issue":"2","key":"2732_CR55","doi-asserted-by":"publisher","first-page":"420","DOI":"10.1037\/0033-2909.86.2.420","volume":"86","author":"PE Shrout","year":"1979","unstructured":"Shrout, P. E., & Fleiss, J. L. (1979). Intraclass correlations: uses in assessing rater reliability. Psychol Bull, 86(2), 420\u2013428.","journal-title":"Psychol Bull"},{"issue":"4","key":"2732_CR56","doi-asserted-by":"publisher","first-page":"284","DOI":"10.1037\/1040-3590.6.4.284","volume":"6","author":"DV Cicchetti","year":"1994","unstructured":"Cicchetti, D. V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychological Assessment, 6(4), 284.","journal-title":"Psychological Assessment"},{"issue":"5","key":"2732_CR57","doi-asserted-by":"publisher","first-page":"895","DOI":"10.1007\/s11136-006-9160-6","volume":"16","author":"MF Bas Janssen","year":"2007","unstructured":"Bas Janssen, M. F., Birnie, E., & Bonsel, G. J. (2007). Evaluating the discriminatory power of EQ-5D, HUI2 and HUI3 in a US general population survey using Shannon\u2019s indices. Quality of Life Research\u202f: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 16(5), 895\u2013904.","journal-title":"Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation"},{"issue":"3","key":"2732_CR58","doi-asserted-by":"publisher","first-page":"379","DOI":"10.1002\/j.1538-7305.1948.tb01338.x","volume":"27","author":"CE Shannon","year":"1948","unstructured":"Shannon, C. E. (1948). A mathematical theory of communication. Bell System Technical Journal, 27(3), 379\u2013423.","journal-title":"Bell System Technical Journal"},{"key":"2732_CR59","unstructured":"Shannon, C. E., & Weaver, W. (1949). The mathematical theory of communication."},{"issue":"1","key":"2732_CR60","doi-asserted-by":"publisher","first-page":"141","DOI":"10.1007\/s11136-018-2003-4","volume":"28","author":"F Rencz","year":"2019","unstructured":"Rencz, F., Lakatos, P. L., Gulacsi, L., Brodszky, V., Kurti, Z., Lovas, S., et al. (2019). Validity of the EQ-5D-5L and EQ-5D-3L in patients with Crohn\u2019s disease. Quality of Life Research, 28(1), 141\u2013152.","journal-title":"Quality of Life Research"},{"issue":"11","key":"2732_CR61","doi-asserted-by":"publisher","first-page":"2897","DOI":"10.1007\/s11136-018-1929-x","volume":"27","author":"A Bilbao","year":"2018","unstructured":"Bilbao, A., Garc\u00eda-P\u00e9rez, L., Arenaza, J. C., Garc\u00eda, I., Ariza-Cardiel, G., Trujillo-Mart\u00edn, E., et al. (2018). Psychometric properties of the EQ-5D-5L in patients with hip or knee osteoarthritis: reliability, validity and responsiveness. Quality of Life Research, 27(11), 2897\u20132908.","journal-title":"Quality of Life Research"},{"issue":"1","key":"2732_CR62","doi-asserted-by":"publisher","first-page":"144","DOI":"10.1186\/s12955-020-01394-0","volume":"18","author":"I Spronk","year":"2020","unstructured":"Spronk, I., Bonsel, G. J., Polinder, S., van Baar, M. E., Janssen, M. F., & Haagsma, J. A. (2020). Exploring the relation between the EQ-5D-5L pain\/discomfort and pain and itching in a sample of burn patients. Health Qual Life Outcomes, 18(1), 144.","journal-title":"Health Qual Life Outcomes"},{"key":"2732_CR63","unstructured":"Swinscow, T. D. V., & Campbell, M. J. (2002). Statistics at square one: Bmj London. 0727915525"},{"issue":"6","key":"2732_CR64","doi-asserted-by":"publisher","first-page":"427","DOI":"10.1007\/s00403-019-02025-5","volume":"312","author":"AR J\u00f8rgensen","year":"2020","unstructured":"J\u00f8rgensen, A. R., Holm, J. G., Ghazanfar, M. N., Yao, Y., Ring, H. C., & Thomsen, S. F. (2020). Factors affecting quality of life in patients with hidradenitis suppurativa. Archives of Dermatological Research, 312(6), 427\u2013436.","journal-title":"Archives of Dermatological Research"},{"issue":"1","key":"2732_CR65","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1159\/000455236","volume":"3","author":"N Kluger","year":"2017","unstructured":"Kluger, N., Ranta, M., & Serlachius, M. (2017). The Burden of Hidradenitis Suppurativa in a Cohort of Patients in Southern Finland: A Pilot Study. Skin Appendage Disorders, 3(1), 20\u201327.","journal-title":"Skin Appendage Disorders"},{"issue":"1","key":"2732_CR66","doi-asserted-by":"publisher","first-page":"61","DOI":"10.1007\/s40257-014-0105-5","volume":"16","author":"A Alavi","year":"2015","unstructured":"Alavi, A., Anooshirvani, N., Kim, W. B., Coutts, P., & Sibbald, R. G. (2015). Quality-of-life impairment in patients with hidradenitis suppurativa: a Canadian study. American Journal of Clinical Dermatology, 16(1), 61\u201365.","journal-title":"American Journal of Clinical Dermatology"},{"issue":"4","key":"2732_CR67","doi-asserted-by":"publisher","first-page":"197","DOI":"10.1159\/000475822","volume":"3","author":"AC Katoulis","year":"2017","unstructured":"Katoulis, A. C., Liakou, A. I., Rotsiamis, N., Bonovas, S., Bozi, E., Rallis, E., et al. (2017). Descriptive epidemiology of hidradenitis suppurativa in greece: A study of 152 cases. Skin Appendage Disorders, 3(4), 197\u2013201.","journal-title":"Skin Appendage Disorders"},{"key":"2732_CR68","volume-title":"Statistical power analysis for the behavioral sciences. Abingdon","author":"J Cohen","year":"1988","unstructured":"Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Abingdon. United Kingdom: Routledge."},{"issue":"5 Suppl 1","key":"2732_CR69","doi-asserted-by":"publisher","first-page":"S47","DOI":"10.1016\/j.jaad.2015.07.046","volume":"73","author":"B Horv\u00e1th","year":"2015","unstructured":"Horv\u00e1th, B., Janse, I. C., & Sibbald, G. R. (2015). Pain management in patients with hidradenitis suppurativa. Journal of the American Academy of Dermatology, 73(5 Suppl 1), S47-51.","journal-title":"Journal of the American Academy of Dermatology"},{"issue":"Suppl 6","key":"2732_CR70","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1111\/jdv.15826","volume":"33","author":"V Bettoli","year":"2019","unstructured":"Bettoli, V., Cazzaniga, S., Scuderi, V., Zedde, P., Di Landro, A., & Naldi, L. (2019). Hidradenitis suppurativa epidemiology: from the first Italian registry in 2009 to the most recent epidemiology updates - Italian Registry Hidradenitis Suppurativa project 2. Journal of the European Academy of Dermatology and Venereology, 33(Suppl 6), 4\u20136.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"6","key":"2732_CR71","doi-asserted-by":"publisher","first-page":"1164","DOI":"10.1111\/jdv.15353","volume":"33","author":"O Grimstad","year":"2019","unstructured":"Grimstad, O., Tzellos, T., Dufour, D. N., Bremnes, O., Skoie, I. M., Snekvik, I., et al. (2019). Evaluation of medical and surgical treatments for hidradenitis suppurativa using real-life data from the Scandinavian registry (HISREG). Journal of the European Academy of Dermatology and Venereology, 33(6), 1164\u20131171.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"6","key":"2732_CR72","doi-asserted-by":"publisher","first-page":"1302","DOI":"10.1111\/jdv.16132","volume":"34","author":"AB Kimball","year":"2020","unstructured":"Kimball, A. B., Crowley, J. J., Papp, K., Calimlim, B., Duan, Y., Fleischer, A. B., et al. (2020). Baseline patient-reported outcomes from UNITE: an observational, international, multicentre registry to evaluate hidradenitis suppurativa in clinical practice. Journal of the European Academy of Dermatology and Venereology, 34(6), 1302\u20131308.","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"4","key":"2732_CR73","doi-asserted-by":"publisher","first-page":"579","DOI":"10.1007\/s40257-020-00504-4","volume":"21","author":"EP Prens","year":"2020","unstructured":"Prens, E. P., Lugo-Somolinos, A. M., Paller, A. S., Kerdel, F., Duan, Y., Teixeira, H. D., et al. (2020). Baseline characteristics from UNITE: An observational, international, multicentre registry to evaluate Hidradenitis Suppurativa (Acne Inversa) in clinical practice. American Journal of Clinical Dermatology, 21(4), 579\u2013590.","journal-title":"American Journal of Clinical Dermatology"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-020-02732-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11136-020-02732-x\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-020-02732-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,1,28]],"date-time":"2023-01-28T23:18:35Z","timestamp":1674947915000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s11136-020-02732-x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,2,3]]},"references-count":73,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2021,5]]}},"alternative-id":["2732"],"URL":"https:\/\/doi.org\/10.1007\/s11136-020-02732-x","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,2,3]]},"assertion":[{"value":"2 December 2020","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"3 February 2021","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"In connection to this article, AB, FR and ZB have received grant support from the Higher Education Institutional Excellence Program 2020 of the Ministry of Human Capacities in the framework of the \u2018Financial and Public Services\u2019 research project (TKP2020-IKA-02) at the Corvinus University of Budapest. All other authors declare that they have no conflict of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of interest"}},{"value":"All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and\/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. The study protocol was approved by the Scientific and Ethical Committee of the Medical Research Council in Hungary (Reference No. 40579-2\/2017\/EKU).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Informed consent was obtained from all patients included in the study.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}