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The present study aimed to (1) explore how mothers and fathers assess the health-related quality of life (HRQoL) of their surviving child and (2) evaluate risk factors for poor parent-reported HRQoL in childhood cancer survivors about 2.5\u00a0years after diagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We assessed parent-reported HRQoL of 305 child and adolescent survivors\u2009&lt;\u200918\u00a0years diagnosed with leukemia or tumors of central nervous system (CNS) with the KINDL-R questionnaire in a prospective observational study with a longitudinal mixed-methods design.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      In agreement with our hypotheses, our results show that fathers rate their children\u2019s HRQoL total score as well as the condition-specific domains\n                      <jats:italic>family<\/jats:italic>\n                      (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.013,\n                      <jats:italic>d<\/jats:italic>\n                      \u2009=\u20090.3),\n                      <jats:italic>friends<\/jats:italic>\n                      (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.027,\n                      <jats:italic>d<\/jats:italic>\n                      \u2009=\u20090.27), and\n                      <jats:italic>disease<\/jats:italic>\n                      (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.035,\n                      <jats:italic>d<\/jats:italic>\n                      \u2009=\u20090.26) higher than mothers about 2.5\u00a0years after diagnosis. Taking variance of inter-individual differences due to family affiliation into account, the mixed model regression revealed significant associations between the diagnosis of CNS tumors (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.018, 95% CI [\u2212\u00a07.78, \u2212\u00a00.75]), an older age at diagnosis, (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.011, 95% CI [\u2212\u00a00.96, \u2212\u00a00.12]), and non-participation in rehabilitation (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u2009.013, 95% CI [\u2212\u00a010.85, \u2212\u00a01.28]) with poor HRQoL in children more than 2 years after being diagnosed with cancer.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Based on the results, it is necessary for health care professionals to consider the differences in parental perceptions regarding children\u2019s aftercare after surviving childhood cancer. High risk patients for poor HRQoL should be detected early, and families should be offered support post-cancer diagnosis to protect survivors\u2019 HRQoL during aftercare. Further research should focus on characteristics of pediatric childhood cancer survivors and families with low participation in rehabilitation programs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s11136-023-03436-8","type":"journal-article","created":{"date-parts":[[2023,5,19]],"date-time":"2023-05-19T11:01:48Z","timestamp":1684494108000},"page":"2965-2974","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Parent-reported health-related quality of life in pediatric childhood cancer survivors and factors associated with poor health-related quality of life in aftercare"],"prefix":"10.1007","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2116-398X","authenticated-orcid":false,"given":"Jana","family":"Winzig","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Inhestern","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Verena","family":"Paul","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mona L.","family":"Nasse","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Konstantin A.","family":"Krauth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Kandels","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Rutkowski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gabriele","family":"Escherich","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Corinna","family":"Bergelt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2023,5,19]]},"reference":[{"key":"3436_CR1","unstructured":"Erdmann F, Kaatsch P, Grabow D, Spix C. 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