{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T13:15:06Z","timestamp":1791465306972,"version":"4.3.4"},"reference-count":102,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T00:00:00Z","timestamp":1719964800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T00:00:00Z","timestamp":1719964800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Stafford Fox Medical Research Foundation","award":["489798"],"award-info":[{"award-number":["489798"]}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["1199502"],"award-info":[{"award-number":["1199502"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100008718","name":"Mason Foundation","doi-asserted-by":"crossref","award":["47107"],"award-info":[{"award-number":["47107"]}],"id":[{"id":"10.13039\/100008718","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100014834","name":"McCusker Charitable Foundation","doi-asserted-by":"crossref","award":["49979"],"award-info":[{"award-number":["49979"]}],"id":[{"id":"10.13039\/100014834","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Ian and Talei Stewart"},{"name":"Buxton Foundation","award":["4676"],"award-info":[{"award-number":["4676"]}]},{"name":"Henty Community","award":["4879"],"award-info":[{"award-number":["4879"]}]},{"name":"Mr Douglas Stutt"},{"name":"Blake Beckett Trust Foundation","award":["4579"],"award-info":[{"award-number":["4579"]}]},{"name":"Alison Hunter Memorial Foundation","award":["4570"],"award-info":[{"award-number":["4570"]}]},{"name":"Change for ME Charity","award":["4575"],"award-info":[{"award-number":["4575"]}]},{"DOI":"10.13039\/501100001791","name":"Griffith University","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001791","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2024,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Purpose<\/jats:title>\n                <jats:p>Post COVID-19 Condition (PCC), being persistent COVID-19 symptoms, is reminiscent of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS)\u2014a chronic multi-systemic illness characterised by neurocognitive, autonomic, endocrinological and immunological disturbances. This novel cross-sectional investigation aims to: (1) compare symptoms among people with ME\/CFS (pwME\/CFS) and people with PCC (pwPCC) to inform developing PCC diagnostic criteria; and (2) compare health outcomes between patients and people without acute or chronic illness (controls) to highlight the illness burdens of ME\/CFS and PCC.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>Sociodemographic and health outcome data were collected from n\u2009=\u200961 pwME\/CFS, n\u2009=\u200931 pwPCC and n\u2009=\u200954 controls via validated, self-administered questionnaires, including the 36-Item Short-Form Health Survey version 2 (SF-36v2) and World Health Organization Disability Assessment Schedule version 2.0 (WHODAS 2.0). PwME\/CFS and pwPCC also provided self-reported severity and frequency of symptoms derived from the Canadian and International Consensus Criteria for ME\/CFS and the World Health Organization case definition for PCC.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>Both illness cohorts similarly experienced key ME\/CFS symptoms. Few differences in symptoms were observed, with memory disturbances, muscle weakness, lymphadenopathy and nausea more prevalent, light-headedness more severe, unrefreshed sleep more frequent, and heart palpitations less frequent among pwME\/CFS (all p\u2009&lt;\u20090.05). The ME\/CFS and PCC participants\u2019 SF-36v2 or WHODAS 2.0 scores were comparable (all p\u2009&gt;\u20090.05); however, both cohorts returned significantly lower scores in all SF-36v2 and WHODAS 2.0 domains when compared with controls (all p\u2009&lt;\u20090.001).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>This Australian-first investigation demonstrates the congruent and debilitating nature of ME\/CFS and PCC, thereby emphasising the need for multidisciplinary care to maximise patient health outcomes.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1007\/s11136-024-03710-3","type":"journal-article","created":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T17:02:00Z","timestamp":1720026120000},"page":"2489-2507","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["Illness presentation and quality of life in myalgic encephalomyelitis\/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study"],"prefix":"10.1007","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8452-6656","authenticated-orcid":false,"given":"Breanna","family":"Weigel","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0815-3162","authenticated-orcid":false,"given":"Natalie","family":"Eaton-Fitch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7667-770X","authenticated-orcid":false,"given":"Kiran","family":"Thapaliya","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9270-2437","authenticated-orcid":false,"given":"Sonya","family":"Marshall-Gradisnik","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,7,3]]},"reference":[{"key":"3710_CR1","unstructured":"Soriano, J. B., Allan, M., Alsokhn, C., Alwan, N. A., Askie, L., Davis, H. E., Diaz, J. V., Dua, T., De Groote, W., Jakob, R., Lado, M., Marshall, J., Murthy, S., Preller, J., Relan, P., Schiess, N., & Seahwag, A. A. (2021). Clinical case definition of post COVID-19 condition by a Delphi consensus. Available from: https:\/\/www.who.int\/publications\/i\/item\/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1."},{"key":"3710_CR2","doi-asserted-by":"publisher","first-page":"559","DOI":"10.1212\/WNL.0000000000010640","volume":"95","author":"A Nath","year":"2020","unstructured":"Nath, A. (2020). Long-haul COVID. Neurology, 95, 559\u2013560. https:\/\/doi.org\/10.1212\/WNL.0000000000010640","journal-title":"Neurology"},{"issue":"3","key":"3710_CR3","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1038\/s41579-022-00846-2","volume":"21","author":"HE Davis","year":"2023","unstructured":"Davis, H. E., McCorkell, L., Moore Vogel, J., & Topol, E. J. (2023). Long COVID: Major findings, mechanisms and recommendations. Nature Reviews Microbiology, 21(3), 133\u2013146. https:\/\/doi.org\/10.1038\/s41579-022-00846-2","journal-title":"Nature Reviews Microbiology"},{"key":"3710_CR4","doi-asserted-by":"publisher","first-page":"55","DOI":"10.1016\/j.ejim.2021.06.009","volume":"92","author":"C Fern\u00e1ndez-de-las-Pe\u00f1as","year":"2021","unstructured":"Fern\u00e1ndez-de-las-Pe\u00f1as, C., Palacios-Ce\u00f1a, D., G\u00f3mez-Mayordomo, V., Florencio, L. L., Cuadrado, M. L., Plaza-Manzano, G., & Navarro-Santana, M. (2021). Prevalence of post-COVID-19 symptoms in hospitalized and non-hospitalized COVID-19 survivors: A systematic review and meta-analysis. European Journal of Internal Medicine, 92, 55\u201370. https:\/\/doi.org\/10.1016\/j.ejim.2021.06.009","journal-title":"European Journal of Internal Medicine"},{"key":"3710_CR5","doi-asserted-by":"publisher","DOI":"10.1093\/braincomms\/fcab297","author":"JB Badenoch","year":"2022","unstructured":"Badenoch, J. B., Rengasamy, E. R., Watson, C., Jansen, K., Chakraborty, S., Sundaram, R. D., Hafeez, D., Burchill, E., Saini, A., Thomas, L., Cross, B., Hunt, C. K., Conti, I., Ralovska, S., Hussain, Z., Butler, M., Pollak, T. A., Koychev, I., Michael, B. D., \u2026 Rooney, A. G. (2022). Persistent neuropsychiatric symptoms after COVID-19: A systematic review and meta-analysis. Brain Communications. https:\/\/doi.org\/10.1093\/braincomms\/fcab297","journal-title":"Brain Communications"},{"issue":"9","key":"3710_CR6","doi-asserted-by":"publisher","first-page":"428","DOI":"10.1177\/01410768211032850","volume":"114","author":"OL Aiyegbusi","year":"2021","unstructured":"Aiyegbusi, O. L., Hughes, S. E., Turner, G., Cruz Rivera, S., McMullan, C., Singh Chandan, J., Haroon, S., Price, G., Haf Davies, E., Nirantharakumar, K., Sapey, E., & Calvert, M. J. (2021). Symptoms, complications, and management of Long COVID: A review. Journal of the Royal Society of Medicine, 114(9), 428\u2013442. https:\/\/doi.org\/10.1177\/01410768211032850","journal-title":"Journal of the Royal Society of Medicine"},{"issue":"5","key":"3710_CR7","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2021.11417","volume":"4","author":"T Nasserie","year":"2021","unstructured":"Nasserie, T., Hittle, M., & Goodman, S. N. (2021). Assessment of the frequency and variety of persistent symptoms among patients with COVID-19\u2014A systematic review. JAMA Network Open, 4(5), e2111417. https:\/\/doi.org\/10.1001\/jamanetworkopen.2021.11417","journal-title":"JAMA Network Open"},{"key":"3710_CR8","unstructured":"Baraniuk, J. (2022). Myalgic encephalomyelitis (chronic fatigue syndrome). BMJ Best Practice. Available from: https:\/\/bestpractice.bmj.com\/topics\/en-gb\/277."},{"key":"3710_CR9","doi-asserted-by":"publisher","first-page":"179","DOI":"10.1016\/j.jare.2021.11.013","volume":"40","author":"OA Sukocheva","year":"2022","unstructured":"Sukocheva, O. A., Maksoud, R., Beeraka, N. M., Madhunapantula, S. V., Sinelnikov, M., Nikolenko, V. N., Neganova, M. E., Klochkov, S. G., Amjad Kamal, M., Staines, D. R., & Marshall-Gradisnik, S. M. (2022). Analysis of post COVID-19 condition and its overlap with myalgic encephalomyelitis\/chronic fatigue syndrome. Journal of Advanced Research, 40, 179\u2013196. https:\/\/doi.org\/10.1016\/j.jare.2021.11.013","journal-title":"Journal of Advanced Research"},{"issue":"6611","key":"3710_CR10","doi-asserted-by":"publisher","first-page":"1150","DOI":"10.1126\/science.abo1261","volume":"377","author":"SM Marshall-Gradisnik","year":"2022","unstructured":"Marshall-Gradisnik, S. M., & Eaton-Fitch, N. (2022). Understanding myalgic encephalomyelitis. Science, 377(6611), 1150\u20131151. https:\/\/doi.org\/10.1126\/science.abo1261","journal-title":"Science"},{"issue":"1","key":"3710_CR11","doi-asserted-by":"publisher","first-page":"7","DOI":"10.1300\/J092v11n01_02","volume":"11","author":"BM Carruthers","year":"2003","unstructured":"Carruthers, B. M., Jain, A. K., De Meirleir, K. L., Peterson, D. L., Klimas, N. G., Lerner, A. M., Bested, A. C., Flor-Henry, P., Joshi, P., Powles, A. C. P., Sherkey, J. A., & Van de Sande, M. I. (2003). Myalgic encephalomyelitis\/chronic fatigue syndrome. Journal of Chronic Fatigue Syndrome, 11(1), 7\u2013115. https:\/\/doi.org\/10.1300\/J092v11n01_02","journal-title":"Journal of Chronic Fatigue Syndrome"},{"issue":"4","key":"3710_CR12","doi-asserted-by":"publisher","first-page":"327","DOI":"10.1111\/j.1365-2796.2011.02428.x","volume":"270","author":"BM Carruthers","year":"2011","unstructured":"Carruthers, B. M., Van de Sande, M. I., De Meirleir, K. L., Klimas, N. G., Broderick, G., Mitchell, T., Staines, D. R., Powles, A. C. P., Speight, N., Vallings, R., Bateman, L., Baumgarten-Austrheim, B., Bell, D. S., Carlo-Stella, N., Chia, J., Darragh, A., Jo, D., Lewis, D., Light, A. R., \u2026 Stevens, S. (2011). Myalgic encephalomyelitis: International consensus criteria. Journal of Internal Medicine, 270(4), 327\u2013338. https:\/\/doi.org\/10.1111\/j.1365-2796.2011.02428.x","journal-title":"Journal of Internal Medicine"},{"issue":"4","key":"3710_CR13","doi-asserted-by":"publisher","first-page":"223","DOI":"10.1515\/reveh-2015-0026","volume":"30","author":"AC Bested","year":"2015","unstructured":"Bested, A. C., & Marshall, L. M. (2015). Review of myalgic encephalomyelitis\/chronic fatigue syndrome: An evidence-based approach to diagnosis and management by clinicians. Reviews on Environmental Health, 30(4), 223\u2013249. https:\/\/doi.org\/10.1515\/reveh-2015-0026","journal-title":"Reviews on Environmental Health"},{"issue":"6","key":"3710_CR14","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0197811","volume":"13","author":"L Chu","year":"2018","unstructured":"Chu, L., Valencia, I. J., Garvert, D. W., & Montoya, J. G. (2018). Deconstructing post-exertional malaise in myalgic encephalomyelitis\/chronic fatigue syndrome: A patient-centred, cross-sectional survey. PLoS ONE, 13(6), e0197811. https:\/\/doi.org\/10.1371\/journal.pone.0197811","journal-title":"PLoS ONE"},{"issue":"9","key":"3710_CR15","doi-asserted-by":"publisher","first-page":"895","DOI":"10.1016\/j.molmed.2021.06.002","volume":"27","author":"AL Komaroff","year":"2021","unstructured":"Komaroff, A. L., & Lipkin, W. I. (2021). Insights from myalgic encephalomyelitis\/chronic fatigue syndrome may help unravel the pathogenesis of postacute COVID-19 syndrome. Trends in Molecular Medicine, 27(9), 895\u2013906. https:\/\/doi.org\/10.1016\/j.molmed.2021.06.002","journal-title":"Trends in Molecular Medicine"},{"issue":"5","key":"3710_CR16","doi-asserted-by":"publisher","first-page":"418","DOI":"10.3390\/medicina57050418","volume":"57","author":"TL Wong","year":"2021","unstructured":"Wong, T. L., & Weitzer, D. J. (2021). Long COVID and myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS)\u2014A systematic review and comparison of clinical presentation and symptomatology. Medicina (Kaunas, Lithuania), 57(5), 418. https:\/\/doi.org\/10.3390\/medicina57050418","journal-title":"Medicina (Kaunas, Lithuania)"},{"issue":"3","key":"3710_CR17","doi-asserted-by":"publisher","first-page":"91","DOI":"10.3390\/diagnostics9030091","volume":"9","author":"M Cortes Rivera","year":"2019","unstructured":"Cortes Rivera, M., Mastronardi, C., Silva-Aldana, C. T., Arcos-Burgos, M., & Lidbury, B. A. (2019). Myalgic encephalomyelitis\/chronic fatigue syndrome: A comprehensive review. Diagnostics, 9(3), 91. https:\/\/doi.org\/10.3390\/diagnostics9030091","journal-title":"Diagnostics"},{"key":"3710_CR18","doi-asserted-by":"publisher","first-page":"12","DOI":"10.3389\/fped.2019.00012","volume":"7","author":"L Chu","year":"2019","unstructured":"Chu, L., Valencia, I. J., Garvert, D. W., & Montoya, J. G. (2019). Onset patterns and course of myalgic encephalomyelitis\/chronic fatigue syndrome. Frontiers in Pediatrics, 7, 12. https:\/\/doi.org\/10.3389\/fped.2019.00012","journal-title":"Frontiers in Pediatrics"},{"issue":"2","key":"3710_CR19","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1080\/21641846.2021.1922140","volume":"9","author":"LA Jason","year":"2021","unstructured":"Jason, L. A., Islam, M. F., Conroy, K., Cotler, J., Torres, C., Johnson, M., & Mabie, B. (2021). COVID-19 symptoms over time: Comparing long-haulers to ME\/CFS. Fatigue: Biomedicine, Health & Behavior, 9(2), 59\u201368. https:\/\/doi.org\/10.1080\/21641846.2021.1922140","journal-title":"Fatigue: Biomedicine, Health & Behavior"},{"key":"3710_CR20","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2020.00826","author":"L Nacul","year":"2020","unstructured":"Nacul, L., O\u2019Boyle, S., Palla, L., Nacul, F. E., Mudie, K., Kingdon, C. C., Cliff, J. M., Clark, T. G., Dockrell, H. M., & Lacerda, E. M. (2020). How myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS) progresses: The natural history of ME\/CFS. Frontiers in Neurology. https:\/\/doi.org\/10.3389\/fneur.2020.00826","journal-title":"Frontiers in Neurology"},{"key":"3710_CR21","doi-asserted-by":"publisher","first-page":"911","DOI":"10.1038\/s41591-022-01810-6","volume":"28","author":"J Choutka","year":"2022","unstructured":"Choutka, J., Jansari, V., Hornig, M., & Iwasaki, A. (2022). Unexplained post-acute infection syndromes. Nature Medicine, 28, 911\u2013923. https:\/\/doi.org\/10.1038\/s41591-022-01810-6","journal-title":"Nature Medicine"},{"key":"3710_CR22","doi-asserted-by":"publisher","first-page":"804","DOI":"10.1186\/s12967-023-04636-z","volume":"21","author":"H Chang","year":"2023","unstructured":"Chang, H., Kuo, C.-F., Yu, T.-S., Ke, L.-Y., Hung, C.-L., & Tsai, S.-Y. (2023). Increased risk of chronic fatigue syndrome following infection: A 17-year population-based cohort study. Journal of Translational Medicine, 21, 804. https:\/\/doi.org\/10.1186\/s12967-023-04636-z","journal-title":"Journal of Translational Medicine"},{"key":"3710_CR23","doi-asserted-by":"publisher","first-page":"268","DOI":"10.1186\/s12967-018-1644-y","volume":"16","author":"S Rasa","year":"2018","unstructured":"Rasa, S., Nora-Krukle, Z., Henning, N., Eliassen, E., Shikova, E., Harrer, T., Scheibenbogen, C., Murovska, M., & Prusty, B. K. (2018). Chronic viral infections in myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS). Journal of Translational Medicine, 16, 268. https:\/\/doi.org\/10.1186\/s12967-018-1644-y","journal-title":"Journal of Translational Medicine"},{"issue":"12","key":"3710_CR24","doi-asserted-by":"publisher","first-page":"3682","DOI":"10.1002\/jmv.25744","volume":"92","author":"E Shikova","year":"2020","unstructured":"Shikova, E., Reshkova, V., Kumanova, A., Raleva, S., Alexandrova, D., Capo, N., Murovska, M., & The European Network on ME\/CFS (EUROMENE). (2020). Cytomegalovirus Epstein-Barr virus, and human herpesvirus-6 infections in patients with myalgic encephalomyelitis\/chronic fatigue syndrome. Journal of Medical Virology, 92(12), 3682\u201389. https:\/\/doi.org\/10.1002\/jmv.25744","journal-title":"Journal of Medical Virology"},{"issue":"4","key":"3710_CR25","doi-asserted-by":"publisher","first-page":"901","DOI":"10.1177\/17423953211043106","volume":"18","author":"LA Jason","year":"2021","unstructured":"Jason, L. A., Yoo, S., & Bhatia, S. (2021). Patient perceptions of infectious illnesses preceding myalgic encephalomyelitis\/chronic fatigue syndrome. Chronic Illness, 18(4), 901\u2013910. https:\/\/doi.org\/10.1177\/17423953211043106","journal-title":"Chronic Illness"},{"key":"3710_CR26","doi-asserted-by":"publisher","DOI":"10.1016\/j.bbii.2023.100022","volume":"4","author":"LA Jason","year":"2023","unstructured":"Jason, L. A., Natelson, B. H., Bonilla, H., Sherif, Z. A., Vernon, S. D., Verduzco Gutierrez, M., O\u2019Brien, L., & Taylor, E. (2023). What Long COVID investigators can learn from four decades of ME\/CFS research. Brain Behavior and Immunity Integrative, 4, 100022. https:\/\/doi.org\/10.1016\/j.bbii.2023.100022","journal-title":"Brain Behavior and Immunity Integrative"},{"issue":"1","key":"3710_CR27","doi-asserted-by":"publisher","first-page":"98","DOI":"10.1186\/s10020-022-00528-y","volume":"28","author":"E Martini Sasso","year":"2022","unstructured":"Martini Sasso, E., Muraki, K., Eaton-Fitch, N., Smith, P., Lesslar, O. L., Deed, G., & Marshall-Gradisnik, S. M. (2022). Transient receptor potential melastatin 3 dysfunction in post COVID-19 condition and myalgic encephalomyelitis\/chronic fatigue syndrome patients. Molecular Medicine, 28(1), 98. https:\/\/doi.org\/10.1186\/s10020-022-00528-y","journal-title":"Molecular Medicine"},{"key":"3710_CR28","doi-asserted-by":"publisher","DOI":"10.3389\/fnins.2023.1125208","author":"K Thapaliya","year":"2023","unstructured":"Thapaliya, K., Marshall-Gradisnik, S. M., Barth, M., Eaton-Fitch, N., & Barnden, L. (2023). Brainstem volume changes in myalgic encephalomyelitis\/chronic fatigue syndrome and long COVID patients. Frontiers in Neuroscience. https:\/\/doi.org\/10.3389\/fnins.2023.1125208","journal-title":"Frontiers in Neuroscience"},{"key":"3710_CR29","doi-asserted-by":"publisher","DOI":"10.1016\/j.amjmed.2023.06.028","author":"LD Hayes","year":"2023","unstructured":"Hayes, L. D., Sanal-Hayes, N. E. M., Mclaughlin, M., Berry, E. C. J., & Sculthorpe, N. F. (2023). People with long COVID and ME\/CFS exhibit similarly impaired balance and physical capacity: A case-case-control study. American Journal of Medicine. https:\/\/doi.org\/10.1016\/j.amjmed.2023.06.028","journal-title":"American Journal of Medicine"},{"issue":"1","key":"3710_CR30","doi-asserted-by":"publisher","first-page":"28","DOI":"10.3390\/medicina58010028","volume":"58","author":"CLMC Van Campen","year":"2022","unstructured":"Van Campen, C. L. M. C., Rowe, P. C., & Visser, F. C. (2022). Orthostatic symptoms and reductions in cerebral blood flow in long-haul COVID-19 patients: Similarities with myalgic encephalomyelitis\/chronic fatigue syndrome. Medicina, 58(1), 28. https:\/\/doi.org\/10.3390\/medicina58010028","journal-title":"Medicina"},{"key":"3710_CR31","doi-asserted-by":"publisher","DOI":"10.1136\/bmj-2022-072117","volume":"378","author":"T Greenhalgh","year":"2022","unstructured":"Greenhalgh, T., Sivan, M., Delaney, B., Evans, R., & Milne, R. (2022). Long COVID\u2014An update for primary care. BMJ, 378, e072117. https:\/\/doi.org\/10.1136\/bmj-2022-072117","journal-title":"BMJ"},{"key":"3710_CR32","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n1648","volume":"374","author":"H Crook","year":"2021","unstructured":"Crook, H., Raza, S., Nowell, J., Young, M., & Edison, P. (2021). Long COVID\u2014Mechanisms, risk factors, and management. BMJ, 374, n1648. https:\/\/doi.org\/10.1136\/bmj.n1648","journal-title":"BMJ"},{"key":"3710_CR33","doi-asserted-by":"publisher","first-page":"194","DOI":"10.1038\/s41590-021-01104-y","volume":"23","author":"S Mehandru","year":"2022","unstructured":"Mehandru, S., & Merad, M. (2022). Pathological sequelae of long-haul COVID. Nature Immunology, 23, 194\u2013202. https:\/\/doi.org\/10.1038\/s41590-021-01104-y","journal-title":"Nature Immunology"},{"key":"3710_CR34","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1186\/s12916-023-02893-9","volume":"21","author":"R Maksoud","year":"2023","unstructured":"Maksoud, R., Magawa, C., Eaton-Fitch, N., Thapaliya, K., & Marshall-Gradisnik, S. M. (2023). Biomarkers for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS): A systematic review. BMC Medicine, 21, 189. https:\/\/doi.org\/10.1186\/s12916-023-02893-9","journal-title":"BMC Medicine"},{"key":"3710_CR35","unstructured":"National Institute for Health and Care Excellence. (2023) Scottish Intercollegiate Guidelines Network, and Royal College of General Practitioners. COVID-19 rapid guideline: Managing the long-term effects of COVID-19. Available from: https:\/\/www.nice.org.uk\/guidance\/ng188."},{"key":"3710_CR36","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1016\/j.pbiomolbio.2023.04.008","volume":"182","author":"S Srikanth","year":"2023","unstructured":"Srikanth, S., Boulos, J. R., Dover, T., Boccuto, L., & Dean, D. (2023). Identification and diagnosis of long COVID-19: A scoping review. Progress in Biophysics and Molecular Biology, 182, 1\u20137. https:\/\/doi.org\/10.1016\/j.pbiomolbio.2023.04.008","journal-title":"Progress in Biophysics and Molecular Biology"},{"issue":"7","key":"3710_CR37","doi-asserted-by":"publisher","first-page":"955","DOI":"10.1016\/j.cmi.2022.02.018","volume":"28","author":"D Yelin","year":"2022","unstructured":"Yelin, D., Moschopoulos, C. D., Margalit, I., Gkrania-Klotsas, E., Landi, F., Stahl, J.-P., & Yahav, D. (2022). ESCMID rapid guidelines for assessment and management of long COVID. Clinical Microbiology & Infection, 28(7), 955\u2013972. https:\/\/doi.org\/10.1016\/j.cmi.2022.02.018","journal-title":"Clinical Microbiology & Infection"},{"issue":"22","key":"3710_CR38","doi-asserted-by":"publisher","first-page":"1934","DOI":"10.1001\/jama.2023.8823","volume":"329","author":"T Thaweethai","year":"2023","unstructured":"Thaweethai, T., Jolley, S. E., Karlson, E. W., Levitan, E. B., Levy, B., McComsey, G. A., McCorkell, L., Nadkarni, G. N., Parthasarathy, S., Singh, U., Walker, T. A., Selvaggi, C. A., Shinnick, D. J., Schulte, C. C. M., Atchley-Challenner, R., Horwitz, L. I., Foulkes, A. S., & Recover Consortium Authors. (2023). Development of a definition of postacute sequelae of SARS-CoV-2 infection. JAMA, 329(22), 1934\u20131946. https:\/\/doi.org\/10.1001\/jama.2023.8823","journal-title":"JAMA"},{"key":"3710_CR39","doi-asserted-by":"crossref","unstructured":"Basharat, S., Chao, Y.-S., & McGill, S. C. (2022). Subtypes of post-COVID-19 condition: A review of the emerging evidence. In: CADTH Health Technology Review Canadian agency for drugs and technologies in health: Ottawa, Canada. Available from: https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK601826\/.","DOI":"10.51731\/cjht.2022.516"},{"key":"3710_CR40","doi-asserted-by":"publisher","first-page":"1187163","DOI":"10.3389\/fmed.2023.1187163","volume":"10","author":"AL Komaroff","year":"2023","unstructured":"Komaroff, A. L., & Lipkin, W. I. (2023). ME\/CFS and long COVID share similar symptoms and biological abnormalities: Road map to the literature. Frontiers in Medicine, 10, 1187163. https:\/\/doi.org\/10.3389\/fmed.2023.1187163","journal-title":"Frontiers in Medicine"},{"key":"3710_CR41","doi-asserted-by":"publisher","first-page":"05014","DOI":"10.7189\/jogh.12.05014","volume":"12","author":"Q Healey","year":"2022","unstructured":"Healey, Q., Sheikh, A., Daines, L., & Vasileiou, E. (2022). Symptoms and signs of long COVID: A rapid review and meta-analysis. Journal of Global Health, 12, 05014. https:\/\/doi.org\/10.7189\/jogh.12.05014","journal-title":"Journal of Global Health"},{"key":"3710_CR42","doi-asserted-by":"publisher","first-page":"16144","DOI":"10.1038\/s41598-021-95565-8","volume":"11","author":"S Lopez-Leon","year":"2021","unstructured":"Lopez-Leon, S., Wegman-Ostrosky, T., Perelman, C., Sepulveda, R., Rebolledo, P. A., Cuapio, A., & Villapol, S. (2021). More than 50 long-term effects of COVID-19: A systematic review and meta-analysis. Science and Reports, 11, 16144. https:\/\/doi.org\/10.1038\/s41598-021-95565-8","journal-title":"Science and Reports"},{"key":"3710_CR43","doi-asserted-by":"publisher","first-page":"88","DOI":"10.1186\/s13643-023-02250-0","volume":"12","author":"A Natarajan","year":"2023","unstructured":"Natarajan, A., Shetty, A., Delanerolle, G., Zeng, Y., Zhang, Y., Raymont, V., Rathod, S., Halabi, S., Elliot, K., Shi, J. Q., & Phiri, P. (2023). A systematic review and meta-analysis of long COVID symptoms. Systematic Reviews, 12, 88. https:\/\/doi.org\/10.1186\/s13643-023-02250-0","journal-title":"Systematic Reviews"},{"issue":"1","key":"3710_CR44","doi-asserted-by":"publisher","first-page":"429","DOI":"10.1186\/s12967-022-03638-7","volume":"20","author":"F Retornaz","year":"2022","unstructured":"Retornaz, F., Rebaudet, S., Stavris, C., & Jammes, Y. (2022). Long-term neuromuscular consequences of SARS-Cov-2 and their similarities with myalgic encephalomyelitis\/chronic fatigue syndrome: Results of the retrospective CoLGEM study. Journal of Translational Medicine, 20(1), 429. https:\/\/doi.org\/10.1186\/s12967-022-03638-7","journal-title":"Journal of Translational Medicine"},{"issue":"1","key":"3710_CR45","doi-asserted-by":"publisher","first-page":"569","DOI":"10.1186\/s12967-022-03764-2","volume":"20","author":"N Azcue","year":"2022","unstructured":"Azcue, N., G\u00f3mez-Esteban, J. C., Acera, M., Tijero, B., Fernandez, T., Ayo-Mentxakatorre, N., P\u00e9rez-Concha, T., Murueta-Goyena, A., Lafuente, J. V., Prada, \u00c1., de Munain, A. L., Ruiz-Irastorza, G., Ribacoba, L., Gabilondo, I., & Del Pino R. Brain fog of Post-COVID-19. (2022). Condition and chronic fatigue syndrome, same medical disorder? Journal of Translational Medicine, 20(1), 569. https:\/\/doi.org\/10.1186\/s12967-022-03764-2","journal-title":"Journal of Translational Medicine"},{"issue":"4","key":"3710_CR46","doi-asserted-by":"publisher","first-page":"1179","DOI":"10.3233\/WOR-220581","volume":"74","author":"SD Vernon","year":"2023","unstructured":"Vernon, S. D., Hartle, M., Sullivan, K., Bell, J., Abbaszadeh, S., Unutmaz, D., & Bateman, L. (2023). Post-exertional malaise among people with long COVID compared to myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS). Work, 74(4), 1179\u20131186. https:\/\/doi.org\/10.3233\/WOR-220581","journal-title":"Work"},{"issue":"1","key":"3710_CR47","doi-asserted-by":"publisher","first-page":"5104","DOI":"10.1038\/s41467-022-32507-6","volume":"13","author":"C Kedor","year":"2022","unstructured":"Kedor, C., Freitag, H., Meyer-Arndt, L., Wittke, K., Hanitsch, L. G., Zoller, T., Steinbeis, F., Haffke, M., Rudolf, G., Heidecker, B., Bobbert, T., Spranger, J., Volk, H.-D., Skurk, C., Konietschke, F., Paul, F., Behrends, U., Bellmann-Strobl, J., & Scheibenbogen, C. (2022). A prospective observational study of post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity. Nature Communications, 13(1), 5104. https:\/\/doi.org\/10.1038\/s41467-022-32507-6","journal-title":"Nature Communications"},{"issue":"14","key":"3710_CR48","doi-asserted-by":"publisher","first-page":"3106","DOI":"10.1177\/13591053221084494","volume":"27","author":"J Hunt","year":"2022","unstructured":"Hunt, J., Blease, C., & Geraghty, K. J. (2022). Long COVID at the crossroads: Comparisons and lessons from the treatment of patients with myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS). Journal of Health Psychology, 27(14), 3106\u20133120. https:\/\/doi.org\/10.1177\/13591053221084494","journal-title":"Journal of Health Psychology"},{"issue":"4","key":"3710_CR49","doi-asserted-by":"publisher","first-page":"208","DOI":"10.1080\/21641846.2018.1515583","volume":"6","author":"D Maroti","year":"2018","unstructured":"Maroti, D., & Bileviciute-Ljungar, I. (2018). Similarities and differences between health-related quality of life in patients with exhaustion syndrome and chronic fatigue syndrome. Fatigue: Biomedicine, Health & Behavior, 6(4), 208\u201319. https:\/\/doi.org\/10.1080\/21641846.2018.1515583","journal-title":"Fatigue: Biomedicine, Health & Behavior"},{"issue":"4","key":"3710_CR50","doi-asserted-by":"publisher","first-page":"e1967","DOI":"10.1002\/pri.1967","volume":"27","author":"KCA de Sousa","year":"2022","unstructured":"Alves de Sousa, K. C., Gardel, D. G., & Lopes, A. J. (2022). Postural balance and its association with functionality and quality of life in non-hospitalized patients with post-acute COVID-19 syndrome. Physiotherapy Research International, 27(4), e1967. https:\/\/doi.org\/10.1002\/pri.1967","journal-title":"Physiotherapy Research International"},{"key":"3710_CR51","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20054049","author":"A Calvache-Mateo","year":"2023","unstructured":"Calvache-Mateo, A., L\u00f3pez-L\u00f3pez, L., Mart\u00edn-N\u00fa\u00f1ez, J., Heredia-Ciur\u00f3, A., Granados-Santiago, M., Ortiz-Rubio, A., & Valenza, M. C. (2023). Pain and clinical presentation: A cross-sectional study of patients with new-onset chronic pain in long-COVID-19 syndrome. International Journal of Environmental Research and Public Health. https:\/\/doi.org\/10.3390\/ijerph20054049","journal-title":"International Journal of Environmental Research and Public Health"},{"issue":"1","key":"3710_CR52","doi-asserted-by":"publisher","first-page":"64","DOI":"10.1186\/1477-7525-12-64","volume":"12","author":"SC Johnston","year":"2014","unstructured":"Johnston, S. C., Brenu, E. W., Hardcastle, S. L., Huth, T. K., Staines, D. R., & Marshall-Gradisnik, S. M. (2014). A comparison of health status in patients meeting alternative definitions for chronic fatigue syndrome\/myalgic encephalomyelitis. Health and Quality of Life Outcomes, 12(1), 64. https:\/\/doi.org\/10.1186\/1477-7525-12-64","journal-title":"Health and Quality of Life Outcomes"},{"key":"3710_CR53","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare9101290","author":"C-J Chang","year":"2021","unstructured":"Chang, C.-J., Hung, L.-Y., Kogelnik, A. M., Kaufman, D., Aiyar, R. S., Chu, A. M., Wilhelmy, J., Li, P., Tannenbaum, L., Xiao, W., & Davis, R. W. (2021). A comprehensive examination of severely ill ME\/CFS patients. Healthcare. https:\/\/doi.org\/10.3390\/healthcare9101290","journal-title":"Healthcare"},{"key":"3710_CR54","doi-asserted-by":"publisher","first-page":"167","DOI":"10.3238\/arztebl.m2022.0147","volume":"119","author":"C F\u00f6rster","year":"2022","unstructured":"F\u00f6rster, C., Colomba, M. G., Wetzel, A.-J., & Joos, S. (2022). Persisting symptoms after COVID-19\u2014Prevalence and risk factors in a population-based cohort. Deutsches \u00c4rzteblatt International, 119, 167\u2013174. https:\/\/doi.org\/10.3238\/arztebl.m2022.0147","journal-title":"Deutsches \u00c4rzteblatt International"},{"key":"3710_CR55","doi-asserted-by":"publisher","first-page":"365","DOI":"10.1007\/s15010-022-01886-9","volume":"51","author":"B Giszas","year":"2023","unstructured":"Giszas, B., Trommer, S., Sch\u00fc\u00dfler, N., Rodewald, A., Besteher, B., Bleidorn, J., Dickmann, P., Finke, K., Katzer, K., Lehmann-Pohl, K., Lemh\u00f6fer, C., Pletz, M. W., Puta, C., Quickert, S., Walter, M., Stallmach, A., & Reuken, P. A. (2023). Post-COVID-19 condition is not only a question of persistent symptoms: Structured screening including health-related quality of life reveals two separate clusters of post-COVID. Infection, 51, 365\u2013377. https:\/\/doi.org\/10.1007\/s15010-022-01886-9","journal-title":"Infection"},{"key":"3710_CR56","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2023.111519","volume":"175","author":"Z Sirotiak","year":"2023","unstructured":"Sirotiak, Z., Thomas, E. B. K., & Brellenthin, A. G. (2023). Stress, anxiety, and depression severity among individuals with no history, previous history, or current history of long COVID. Journal of Psychosomatic Research, 175, 111519. https:\/\/doi.org\/10.1016\/j.jpsychores.2023.111519","journal-title":"Journal of Psychosomatic Research"},{"key":"3710_CR57","doi-asserted-by":"publisher","first-page":"14505","DOI":"10.1038\/s41598-022-18673-z","volume":"12","author":"M Nehme","year":"2022","unstructured":"Nehme, M., Braillard, O., Chappuis, F., CoviCare Study Team, and Guessous I. (2022). The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment, and increased healthcare utilization. Scientific Reports, 12, 14505. https:\/\/doi.org\/10.1038\/s41598-022-18673-z","journal-title":"Scientific Reports"},{"issue":"10","key":"3710_CR58","doi-asserted-by":"publisher","first-page":"647","DOI":"10.20344\/amp.19047","volume":"36","author":"P Gaspar","year":"2023","unstructured":"Gaspar, P., Dias, M., Parreira, I., Gon\u00e7alves, H. D., Parlato, F., Maione, V., Atalaia Barbacena, H., Carreiro, C., & Duarte, L. (2023). Predictors of long-COVID-19 and its impact on quality of life: Longitudinal analysis at 3, 6, and 9 months after discharge from a Portuguese centre. Acta M\u00e9dica Portuguesa, 36(10), 647\u201360. https:\/\/doi.org\/10.20344\/amp.19047","journal-title":"Acta M\u00e9dica Portuguesa"},{"key":"3710_CR59","unstructured":"Biddle, N., & Korda, R. (2023). The experience of COVID-19 in Australia, including Long-COVID\u2014Evidence from the COVID-19 Impact Monitoring Survey Series, August 2022. Available from: https:\/\/csrm.cass.anu.edu.au\/research\/publications\/experience-covid-19-australia-including-long-covid-evidence-covid-19-impact."},{"issue":"1","key":"3710_CR60","doi-asserted-by":"publisher","first-page":"61","DOI":"10.1515\/sjpain-2018-0095","volume":"19","author":"EB Strand","year":"2019","unstructured":"Strand, E. B., Marit Mengshoel, A., Sandvik, L., Helland, I. B., Abraham, S., & Solberg, N. L. (2019). Pain is associated with reduced quality of life and functional status in patients with myalgic encephalomyelitis\/chronic fatigue syndrome. Scandinavian Journal of Pain, 19(1), 61\u201372. https:\/\/doi.org\/10.1515\/sjpain-2018-0095","journal-title":"Scandinavian Journal of Pain"},{"key":"3710_CR61","unstructured":"Reilly, A., & Buchanan, R. (2023). ME\/CFS national disability agreement review submission. Available from: https:\/\/www.pc.gov.au\/__data\/assets\/pdf_file\/0004\/230953\/sub023-disability-agreement.pdf."},{"issue":"5","key":"3710_CR62","doi-asserted-by":"publisher","first-page":"722","DOI":"10.1016\/j.jinf.2022.01.031","volume":"84","author":"C Fern\u00e1ndez-de-las-Pe\u00f1as","year":"2022","unstructured":"Fern\u00e1ndez-de-las-Pe\u00f1as, C., Mart\u00edn-Guerrero, J. D., Cancela-Cilleruelo, I., Moro-L\u00f3pez-Menchero, P., Rodr\u00edguez-Jim\u00e9nez, J., Navarro-Pardo, E., & Pellicer-Valero, O. J. (2022). Exploring the recovery curves for long-term post-COVID functional limitations on daily living activities: The Long-COVID-Exp-CM multicenter study. Journal of Infection, 84(5), 722\u2013746. https:\/\/doi.org\/10.1016\/j.jinf.2022.01.031","journal-title":"Journal of Infection"},{"issue":"2","key":"3710_CR63","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0281884","volume":"18","author":"MM Hossain","year":"2023","unstructured":"Hossain, M. M., Das, J., Rahman, F., Nesa, F., Hossain, P., Islam, A. M. K., Tasnim, S., Faizah, F., Mazumder, H., Purohit, N., & Ramirez, G. (2023). Living with \u201cLong COVID\u201d: A systematic review and meta-synthesis of qualitative evidence. PLoS ONE, 18(2), e0281884. https:\/\/doi.org\/10.1371\/journal.pone.0281884","journal-title":"PLoS ONE"},{"key":"3710_CR64","unstructured":"House of Representatives Standing Committee on Health. (2023). Aged Care, and Sport. Sick and tired: Casting a long shadow\u2014Inquiry into long COVID and repeated COVID-19 infections. Commonwealth of Australia: Canberra, Australia. Available from: https:\/\/parlinfo.aph.gov.au\/parlInfo\/download\/committees\/reportrep\/RB000006\/toc_pdf\/SickandtiredCastingalongshadow.pdf."},{"issue":"10","key":"3710_CR65","doi-asserted-by":"publisher","first-page":"455","DOI":"10.5694\/mja2.51950","volume":"218","author":"TC Sorrell","year":"2023","unstructured":"Sorrell, T. C., Hensher, M., & Sanci, L. A. (2023). Long COVID in Australia: Achieving equitable access to supportive health care. Medical Journal of Australia, 218(10), 455\u2013457. https:\/\/doi.org\/10.5694\/mja2.51950","journal-title":"Medical Journal of Australia"},{"key":"3710_CR66","doi-asserted-by":"publisher","first-page":"46","DOI":"10.1186\/1475-9276-10-46","volume":"10","author":"JC De Carvalho Leite","year":"2011","unstructured":"De Carvalho Leite, J. C., De Lourdes, D. M., Killett, A., Kale, S., Nacul, L. C., McArthur, M., Hong, C. S., O\u2019Driscoll, L., Pheby, D. F. H., Campion, P., & Lacerda, E. M. (2011). Social support needs for equity in health and social care: A thematic analysis of experiences of people with chronic fatigue syndrome\/myalgic encephalomyelitis. International Journal for Equity in Health, 10, 46. https:\/\/doi.org\/10.1186\/1475-9276-10-46","journal-title":"International Journal for Equity in Health"},{"key":"3710_CR67","doi-asserted-by":"publisher","DOI":"10.3399\/bjgpopen20X101143","author":"T Kingstone","year":"2020","unstructured":"Kingstone, T., Taylor, A. K., O\u2019Donnell, C. A., Atherton, H., Blane, D. N., & Chew-Graham, C. A. (2020). Finding the \u201cright\u201d GP: A qualitative study of the experiences of people with Long-COVID. BJGP Open. https:\/\/doi.org\/10.3399\/bjgpopen20X101143","journal-title":"BJGP Open"},{"issue":"1","key":"3710_CR68","doi-asserted-by":"publisher","first-page":"28","DOI":"10.22606\/mcmr.2017.11005","volume":"1","author":"M Sunnquist","year":"2017","unstructured":"Sunnquist, M., Nicholson, L., Jason, L. A., & Friedman, K. J. (2017). Access to medical care for individuals with myalgic encephalomyelitis and chronic fatigue syndrome: A call for centers of excellence. Modern Clinical Medicine Research, 1(1), 28\u201335. https:\/\/doi.org\/10.22606\/mcmr.2017.11005","journal-title":"Modern Clinical Medicine Research"},{"issue":"1","key":"3710_CR69","doi-asserted-by":"publisher","first-page":"e13900","DOI":"10.1111\/hex.13900","volume":"27","author":"L Melby","year":"2023","unstructured":"Melby, L., & Das Nair, R. (2023). \u201cWe have no services for you so you\u2026 have to make the best out of it\u201d: A qualitative study of myalgic encephalomyelitis\/chronic fatigue syndrome patients\u2019 dissatisfaction with healthcare services. Health Expect, 27(1), e13900. https:\/\/doi.org\/10.1111\/hex.13900","journal-title":"Health Expect"},{"key":"3710_CR70","doi-asserted-by":"publisher","unstructured":"Weigel, B., & Haddock, R. (2023). How patient experiences can guide the development of long COVID health policy. https:\/\/doi.org\/10.25916\/b246-r560.","DOI":"10.25916\/b246-r560"},{"issue":"6","key":"3710_CR71","doi-asserted-by":"publisher","first-page":"1521","DOI":"10.1007\/s11136-019-02411-6","volume":"29","author":"N Eaton-Fitch","year":"2020","unstructured":"Eaton-Fitch, N., Johnston, S. C., Zalewski, P., Staines, D. R., & Marshall-Gradisnik, S. M. (2020). Health-related quality of life in patients with myalgic encephalomyelitis\/chronic fatigue syndrome: An Australian cross-sectional study. Quality of Life Research, 29(6), 1521\u20131531. https:\/\/doi.org\/10.1007\/s11136-019-02411-6","journal-title":"Quality of Life Research"},{"key":"3710_CR72","unstructured":"LimeSurvey GmbH. (2003). LimeSurvey: An open source survey tool. Hamburg, Germany: LimeSurvey GmbH. Available from: http:\/\/www.limesurvey.org."},{"key":"3710_CR73","unstructured":"National Health and Medical Research Council and Australian Research Council. (2007). National statement on ethical conduct in human research. Available from: https:\/\/www.nhmrc.gov.au\/about-us\/publications\/national-statement-ethical-conduct-human-research-2007-updated-2018."},{"issue":"20","key":"3710_CR74","doi-asserted-by":"publisher","first-page":"2191","DOI":"10.1001\/jama.2013.281053","volume":"310","author":"World Medical Association","year":"2013","unstructured":"World Medical Association. (2013). World medical association declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191\u20132194. https:\/\/doi.org\/10.1001\/jama.2013.281053","journal-title":"JAMA"},{"issue":"4","key":"3710_CR75","doi-asserted-by":"publisher","first-page":"344","DOI":"10.1016\/j.jclinepi.2007.11.008","volume":"61","author":"E Von Elm","year":"2008","unstructured":"Von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., G\u00f8tzsche, P. C., & Vandenbroucke, J. P. (2008). The strengthening the reporting of observational studies in epidemiology (STROBE) statement: Guidelines for reporting observational studies. Journal of Clinical Epidemiology, 61(4), 344\u2013349. https:\/\/doi.org\/10.1016\/j.jclinepi.2007.11.008","journal-title":"Journal of Clinical Epidemiology"},{"issue":"1","key":"3710_CR76","doi-asserted-by":"publisher","first-page":"8","DOI":"10.1186\/1478-7954-3-8","volume":"3","author":"D Wagner","year":"2005","unstructured":"Wagner, D., Nisenbaum, R., Heim, C., Jones, J. F., Unger, E. R., & Reeves, W. C. (2005). Psychometric properties of the CDC symptom inventory for assessment of chronic fatigue syndrome. Population Health Metrics, 3(1), 8. https:\/\/doi.org\/10.1186\/1478-7954-3-8","journal-title":"Population Health Metrics"},{"issue":"24","key":"3710_CR77","doi-asserted-by":"publisher","first-page":"3130","DOI":"10.1097\/00007632-200012150-00008","volume":"25","author":"JE Ware Jr","year":"2000","unstructured":"Ware, J. E., Jr. (2000). SF-36 health survey update. Spine, 25(24), 3130\u20133139. https:\/\/doi.org\/10.1097\/00007632-200012150-00008","journal-title":"Spine"},{"key":"3710_CR78","unstructured":"\u00dcst\u00fcn, T. B., Kostanjsek, N., Chatterji, S., Rehm, J., & World Health Organization. (2010). Measuring health and disability: Manual for WHO disability assessment schedule (WHODAS 2.0). Available from: https:\/\/www.who.int\/publications\/i\/item\/measuring-health-and-disability-manual-for-who-disability-assessment-schedule-(-whodas-2.0)."},{"issue":"6","key":"3710_CR79","doi-asserted-by":"publisher","first-page":"361","DOI":"10.1111\/j.1600-0447.1983.tb09716.x","volume":"67","author":"AS Zigmond","year":"1983","unstructured":"Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361\u2013370. https:\/\/doi.org\/10.1111\/j.1600-0447.1983.tb09716.x","journal-title":"Acta Psychiatrica Scandinavica"},{"key":"3710_CR80","unstructured":"Multiple Sclerosis Clinical Practice Guidelines. (1998). Fatigue and multiple sclerosis: Evidence-based management strategies for fatigue in multiple sclerosis. Paralyzed Veterans of America: Washington D.C., United States. Available from: https:\/\/pva.org\/wp-content\/uploads\/2021\/09\/fatigue1b772.pdf."},{"key":"3710_CR81","unstructured":"Bell, D.S. (1995). The doctor\u2019s guide to chronic fatigue syndrome: Understanding, treating, and living with CFIDS."},{"key":"3710_CR82","unstructured":"IBM Corp. (2022). IBM statistical package for the social sciences (SPSS) statistics for windows, Version 29.0. Armonk, New York: IBM Corp."},{"key":"3710_CR83","volume-title":"Science editor\u2019s handbook","author":"TA Lang","year":"2013","unstructured":"Lang, T. A., & Altman, D. G. (2013). Basic statistical recording for articles published in biomedical journals; The statistical analyses and methods in the published literature\u201d or \u201cThe SAMPL guidelines. In P. Smart, H. Maisonneuve, & A. Polderman (Eds.), Science editor\u2019s handbook. European Association of Science. Available from:\u00a0https:\/\/www.equator-network.org\/wp-content\/uploads\/2013\/07\/SAMPL-Guidelines-6-27-13.pdf"},{"key":"3710_CR84","doi-asserted-by":"publisher","DOI":"10.4045\/tidsskr.22.0112","author":"K Stensen","year":"2022","unstructured":"Stensen, K., & Lydersen, S. (2022). Internal consistency: From alpha to omega. Tidsskr Nor Laegeforen. https:\/\/doi.org\/10.4045\/tidsskr.22.0112","journal-title":"Tidsskr Nor Laegeforen"},{"issue":"12","key":"3710_CR85","doi-asserted-by":"publisher","first-page":"953","DOI":"10.7326\/0003-4819-121-12-199412150-00009","volume":"121","author":"K Fukuda","year":"1994","unstructured":"Fukuda, K., Straus, S. E., Hickie, I., Sharpe, M. C., Dobbins, J. G., & Komaroff, A. (1994). The chronic fatigue syndrome: A comprehensive approach to its definition and study. Annals of Internal Medicine, 121(12), 953\u2013959. https:\/\/doi.org\/10.7326\/0003-4819-121-12-199412150-00009","journal-title":"Annals of Internal Medicine"},{"key":"3710_CR86","doi-asserted-by":"publisher","DOI":"10.1093\/ptj\/pzac005","author":"R Twomey","year":"2022","unstructured":"Twomey, R., DeMars, J., Franklin, K., Culos-Reed, S. N., Weatherald, J., & Wrightson, J. G. (2022). Chronic fatigue and postexertional malaise in people living with Long COVID: An observational study. Physical Therapy. https:\/\/doi.org\/10.1093\/ptj\/pzac005","journal-title":"Physical Therapy"},{"key":"3710_CR87","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2023.1090747","author":"H Bonilla","year":"2023","unstructured":"Bonilla, H., Quach, T. C., Tiwari, A., Bonilla, A. E., Miglis, M., Yang, P. C., Eggert, L. E., Sharifi, H., Horomanski, A., Subramanian, A., Smirnoff, L., Simpson, N., Halawi, H., Sum-Ping, O., Kalinowski, A., Patel, Z. M., Shafer, R. W., & Geng, L. N. (2023). Myalgic encephalomyelitis\/chronic fatigue syndrome is common in post-acute sequelae of SARS-CoV-2 infection (PASC): Results from a post-COVID-19 multidisciplinary clinic. Frontiers in Neurology. https:\/\/doi.org\/10.3389\/fneur.2023.1090747","journal-title":"Frontiers in Neurology"},{"key":"3710_CR88","doi-asserted-by":"publisher","DOI":"10.3390\/medicina58070850","author":"K Tokumasu","year":"2022","unstructured":"Tokumasu, K., Honda, H., Sunada, N., Sakurada, Y., Matsuda, Y., Yamamoto, K., Nakano, Y., Hasegawa, T., Yamamoto, Y., Otsuka, Y., Hagiya, H., Kataoka, H., Ueda, K., & Otsuka, F. (2022). Clinical characteristics of myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS) diagnosed in patients with long COVID. Medicina (Lithuania). https:\/\/doi.org\/10.3390\/medicina58070850","journal-title":"Medicina (Lithuania)"},{"issue":"8","key":"3710_CR89","doi-asserted-by":"publisher","first-page":"1119","DOI":"10.1080\/03007995.2023.2242244","volume":"39","author":"S AlMuhaissen","year":"2023","unstructured":"AlMuhaissen, S., Abu Libdeh, A., ElKhatib, Y., Alshayeb, R., Jaara, A., & Bardaweel, S. K. (2023). Myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS) and COVID-19: Is there a connection? Current Medical Research and Opinion, 39(8), 1119\u20131126. https:\/\/doi.org\/10.1080\/03007995.2023.2242244","journal-title":"Current Medical Research and Opinion"},{"issue":"1","key":"3710_CR90","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1186\/s12967-020-02455-0","volume":"18","author":"E-J Lim","year":"2020","unstructured":"Lim, E.-J., & Son, C.-G. (2020). Review of case definitions for myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS). Journal of Translational Medicine, 18(1), 289. https:\/\/doi.org\/10.1186\/s12967-020-02455-0","journal-title":"Journal of Translational Medicine"},{"issue":"12","key":"3710_CR91","doi-asserted-by":"publisher","DOI":"10.1111\/ijcp.14886","volume":"75","author":"MAEG Aly","year":"2021","unstructured":"Aly, M. A. E. G., & Saber, H. G. (2021). Long COVID and chronic fatigue syndrome: A survey of elderly female survivors in Egypt. International Journal of Clinical Practice, 75(12), e14886. https:\/\/doi.org\/10.1111\/ijcp.14886","journal-title":"International Journal of Clinical Practice"},{"key":"3710_CR92","doi-asserted-by":"publisher","first-page":"36","DOI":"10.1016\/j.ejim.2021.11.018","volume":"97","author":"C Fumagalli","year":"2022","unstructured":"Fumagalli, C., Zocchi, C., Tassetti, L., Silverii, M. V., Amato, C., Livi, L., Giovannoni, L., Verrillo, F., Bartoloni, A., Marcucci, R., Lavorini, F., Fumagalli, S., Ungar, A., Olivotto, I., Rasero, L., Fattirolli, F., Marchionni, N., & AOU Careggi COVID-19 Follow-up study Group. (2022). Factors associated with persistence of symptoms 1 year after COVID-19: A longitudinal, prospective phone-based interview follow-up cohort study. European Journal of Internal Medicine, 97, 36\u201341. https:\/\/doi.org\/10.1016\/j.ejim.2021.11.018","journal-title":"European Journal of Internal Medicine"},{"issue":"10302","key":"3710_CR93","doi-asserted-by":"publisher","first-page":"747","DOI":"10.1016\/S0140-6736(21)01755-4","volume":"398","author":"L Huang","year":"2021","unstructured":"Huang, L., Yao, Q., Gu, X., Wang, Q., Ren, L., Wang, Y., Hu, P., Guo, L., Liu, M., Xu, J., Zhang, X., Qu, Y., Fan, Y., Li, X., Li, C., Yu, T., Xia, J., Wei, M., Chen, L., \u2026 Cao, B. (2021). 1-year outcomes in hospital survivors with COVID-19: A longitudinal cohort study. The Lancet, 398(10302), 747\u2013758. https:\/\/doi.org\/10.1016\/S0140-6736(21)01755-4","journal-title":"The Lancet"},{"issue":"1","key":"3710_CR94","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1093\/occmed\/kqi013","volume":"55","author":"R Cairns","year":"2005","unstructured":"Cairns, R., & Hotopf, M. (2005). A systematic review describing the prognosis of chronic fatigue syndrome. Occupational Medicine (London), 55(1), 20\u201331. https:\/\/doi.org\/10.1093\/occmed\/kqi013","journal-title":"Occupational Medicine (London)"},{"key":"3710_CR95","unstructured":"Hensher, M., Angeles, M. R., De Graaff, B., Campbell, J., Athan, E., & Haddock, R. (2023). Managing the long term health consequences of COVID-19 in Australia. Available from: https:\/\/ahha.asn.au\/publication\/health-policy-issue-briefs\/deeble-issues-brief-no-40-managing-long-term-health."},{"issue":"7","key":"3710_CR96","doi-asserted-by":"publisher","first-page":"1461","DOI":"10.1038\/s41591-022-01840-0","volume":"28","author":"Z Al-Aly","year":"2022","unstructured":"Al-Aly, Z., Bowe, B., & Xie, Y. (2022). Long COVID after breakthrough SARS-CoV-2 infection. Nature Medicine, 28(7), 1461\u20131467. https:\/\/doi.org\/10.1038\/s41591-022-01840-0","journal-title":"Nature Medicine"},{"issue":"4","key":"3710_CR97","doi-asserted-by":"publisher","first-page":"1753","DOI":"10.1111\/hex.13518","volume":"25","author":"J Ireson","year":"2022","unstructured":"Ireson, J., Taylor, A., Richardson, E., Greenfield, B., & Jones, G. (2022). Exploring invisibility and epistemic injustice in Long COVID\u2014A citizen science qualitative analysis of patient stories from an online COVID community. Health Expectations, 25(4), 1753\u20131765. https:\/\/doi.org\/10.1111\/hex.13518","journal-title":"Health Expectations"},{"key":"3710_CR98","doi-asserted-by":"publisher","first-page":"100177","DOI":"10.1016\/j.ssmqr.2022.100177","volume":"2","author":"D Russell","year":"2022","unstructured":"Russell, D., Spence, N. J., Chase, J.-A.D., Schwartz, T., Tumminello, C. M., & Bouldin, E. (2022). Support amid uncertainty: Long COVID illness experiences and the role of online communities. SSM Qualitative Research in Health, 2, 100177. https:\/\/doi.org\/10.1016\/j.ssmqr.2022.100177","journal-title":"SSM Qualitative Research in Health"},{"issue":"1","key":"3710_CR99","doi-asserted-by":"publisher","first-page":"94","DOI":"10.1186\/s12967-022-03297-8","volume":"20","author":"N Eaton-Fitch","year":"2022","unstructured":"Eaton-Fitch, N., Du Preez, S., Cabanas, H., Muraki, K., Staines, D. R., & Marshall-Gradisnik, S. M. (2022). Impaired TRPM3-dependent calcium influx and restoration using Naltrexone in natural killer cells of myalgic encephalomyelitis\/chronic fatigue syndrome patients. Journal of Translational Medicine, 20(1), 94. https:\/\/doi.org\/10.1186\/s12967-022-03297-8","journal-title":"Journal of Translational Medicine"},{"issue":"7","key":"3710_CR100","doi-asserted-by":"publisher","first-page":"1476","DOI":"10.1002\/jnr.25048","volume":"100","author":"K Thapaliya","year":"2022","unstructured":"Thapaliya, K., Staines, D. R., Marshall-Gradisnik, S. M., Su, J., & Barnden, L. (2022). Volumetric differences in hippocampal subfields and associations with clinical measures in myalgic encephalomyelitis\/chronic fatigue syndrome. Journal of Neuroscience Research, 100(7), 1476\u20131486. https:\/\/doi.org\/10.1002\/jnr.25048","journal-title":"Journal of Neuroscience Research"},{"issue":"3","key":"3710_CR101","doi-asserted-by":"publisher","first-page":"164","DOI":"10.1089\/brain.2022.0049","volume":"13","author":"J Su","year":"2023","unstructured":"Su, J., Thapaliya, K., Eaton-Fitch, N., Marshall-Gradisnik, S. M., & Barnden, L. (2023). Connectivity between salience and default mode networks and subcortical nodes distinguishes between two classes of myalgic encephalomyelitis\/chronic fatigue syndrome. Brain Connectivity, 13(3), 164\u2013173. https:\/\/doi.org\/10.1089\/brain.2022.0049","journal-title":"Brain Connectivity"},{"issue":"12","key":"3710_CR102","doi-asserted-by":"publisher","first-page":"e0225995","DOI":"10.1371\/journal.pone.0225995","volume":"14","author":"EB Strand","year":"2019","unstructured":"Strand, E. B., Nacul, L., Marit Mengshoel, A., Helland, I. B., Grabowski, P., Krumina, A., Alegre-Martin, J., Efrim-Budisteanu, M., Sekulic, S., Pheby, D. F. H., Sakkas, G. K., Adella Sirbu, C., Authier, F. J., & European Network on ME\/CFS (EUROMENE). (2019). Myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union. PLoS One, 14(12), e0225995. https:\/\/doi.org\/10.1371\/journal.pone.0225995","journal-title":"PLoS One"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-024-03710-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11136-024-03710-3\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-024-03710-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,11]],"date-time":"2024-09-11T13:19:51Z","timestamp":1726060791000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s11136-024-03710-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7,3]]},"references-count":102,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2024,9]]}},"alternative-id":["3710"],"URL":"https:\/\/doi.org\/10.1007\/s11136-024-03710-3","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,7,3]]},"assertion":[{"value":"4 June 2024","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"3 July 2024","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors have no financial or non-financial competing interests relevant to the present manuscript to disclose.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"This research project has received ethical approval from the Griffith University HREC (Reference Number: 2019\/1005) and the Gold Coast University Hospital HREC (Reference Number: HREC\/2019\/QGC\/56469).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Informed consent was obtained electronically from all study participants prior to their participation in the research via completion of a mandatory consent question as part of the online self-administered survey.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}},{"value":"This research has been conducted in accordance with the Griffith University Research Ethics Manual, the Australian Government National Health and Medical Research Council National Statement on Ethical Conduct in Human Research 2007 (updated 2018) [], and the World Medical Association Declaration of Helsinki [].","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Research involving human and\/or animal participants"}},{"value":"All participants provided informed consent to participate in the present study and for the publication of their data in the form of combined, group results.","order":6,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent to publication"}}]}}