{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T12:25:42Z","timestamp":1793363142813,"version":"4.5.0"},"reference-count":94,"publisher":"Springer Science and Business Media LLC","issue":"5","license":[{"start":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T00:00:00Z","timestamp":1740096000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T00:00:00Z","timestamp":1740096000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100004622","name":"KWF Kankerbestrijding","doi-asserted-by":"publisher","award":["11788"],"award-info":[{"award-number":["11788"]}],"id":[{"id":"10.13039\/501100004622","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Netherlands Organization for Scientific Research","award":["198.007"],"award-info":[{"award-number":["198.007"]}]},{"name":"Netherlands Organization for Scientific Research","award":["480-08-009"],"award-info":[{"award-number":["480-08-009"]}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n          <jats:sec>\n            <jats:title>Purpose<\/jats:title>\n            <jats:p>As the prognosis for adolescents and young adults (AYAs) with breast cancer has improved, long-term health-related quality of life (HRQoL) has become increasingly important. This study aimed to analyze the long-term HRQoL of AYA breast cancer survivors compared to an age-matched normative population and to identify factors associated with HRQoL.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Methods<\/jats:title>\n            <jats:p>Secondary analyses were conducted using data from the SURVAYA study. The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core-30 (EORTC QLQ-C30) was used to assess HRQoL. The Mann\u2013Whitney U test was used to compare HRQoL scores of AYA breast cancer survivors with those of the normative population (n\u2009=\u2009409). Linear regression models were constructed to identify patient and treatment characteristics associated with HRQoL.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results<\/jats:title>\n            <jats:p>A total of 944 female AYA breast cancer survivors were included, with a median age of 36.0\u00a0years and a median follow-up of 12.2\u00a0years. AYA breast cancer survivors scored significantly lower on five functional scales: physical, role, emotional, cognitive, and social, and higher on five symptom scales: fatigue, pain, dyspnea, insomnia, and financial impact compared to the normative population. Being in a relationship, having a positive body image, and adaptive coping were positively associated with HRQoL, while older age, chemotherapy, unemployment, and maladaptive coping were negatively associated.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusion<\/jats:title>\n            <jats:p>AYA breast cancer survivors experience significantly compromised long-term HRQoL compared to an age-matched normative population. These results highlight the need for tailored follow-up care and long-term support, as well as the importance of shared decision-making about the benefits and risks of treatments before initiation.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1007\/s11136-025-03914-1","type":"journal-article","created":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T04:14:06Z","timestamp":1740111246000},"page":"1483-1500","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Long-term health-related quality of life among adolescent and young adult breast cancer survivors"],"prefix":"10.1007","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-3558-3946","authenticated-orcid":false,"given":"Noelle J. M. C.","family":"Vrancken Peeters","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roos","family":"Kerklaan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carla","family":"Vlooswijk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhod\u00e9 M.","family":"Bijlsma","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Suzanne E. J.","family":"Kaal","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacqueline M.","family":"Tromp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique E. M. M.","family":"Bos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tom","family":"van der Hulle","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maaike","family":"de Boer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janine","family":"Nuver","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mathilde C. M.","family":"Kouwenhoven","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Winette T. A.","family":"van der Graaf","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olga","family":"Husson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,2,21]]},"reference":[{"key":"3914_CR1","unstructured":"National Cancer Institute, & Lance Armstrong Foundation. (2006). Closing the gap: Research and care imperatives for adolescents and young adults with cancer. Report of the Adolescent and Young Adult Oncology Progress Review Group."},{"issue":"7","key":"3914_CR2","doi-asserted-by":"publisher","first-page":"988","DOI":"10.1002\/cncr.29870","volume":"122","author":"AW Smith","year":"2016","unstructured":"Smith, A. W., Seibel, N. L., Lewis, D. R., Albritton, K. H., Blair, D. F., Blanke, C. D., Archie Bleyer, W., Freyer, D. R., Geiger, A. M., Hayes-Lattin, B., Tricoli, J. V., Wagner, L. I., & Zebrack, B. J. (2016). Next steps for adolescent and young adult oncology workshop: An update on progress and recommendations for the future. Cancer, 122(7), 988\u2013999. https:\/\/doi.org\/10.1002\/cncr.29870","journal-title":"Cancer"},{"issue":"8","key":"3914_CR3","doi-asserted-by":"publisher","first-page":"5407","DOI":"10.3390\/curroncol29080428","volume":"29","author":"C Vlooswijk","year":"2022","unstructured":"Vlooswijk, C., van de Poll-Franse, L. V., Janssen, S. H. M., Derksen, E., Reuvers, M. J. P., Bijlsma, R., Kaal, S. E. J., Kerst, J. M., Tromp, J. M., Bos, M. E. M. M., van der Hulle, T., Lalisang, R. I., Nuver, J., Kouwenhoven, M. C. M., van der Graaf, W. T. A., & Husson, O. (2022). Recruiting adolescent and young adult cancer survivors for patient-reported outcome research: Experiences and sample characteristics of the SURVAYA study. Current Oncology (Toronto, Ont.), 29(8), 5407\u20135425. https:\/\/doi.org\/10.3390\/curroncol29080428","journal-title":"Current Oncology (Toronto, Ont.)"},{"issue":"1","key":"3914_CR4","doi-asserted-by":"publisher","first-page":"100744","DOI":"10.1016\/j.esmoop.2022.100744","volume":"8","author":"A Trama","year":"2023","unstructured":"Trama, A., Stark, D., Bozovic-Spasojevic, I., Gaspar, N., Peccatori, F., Toss, A., Bernasconi, A., Quarello, P., Scheinemann, K., Jezdic, S., Blondeel, A., Mountzios, G., Bielack, S., Saloustros, E., & Ferrari, A. (2023). Cancer burden in adolescents and young adults in Europe. ESMO Open, 8(1), 100744. https:\/\/doi.org\/10.1016\/j.esmoop.2022.100744","journal-title":"ESMO Open"},{"issue":"5","key":"3914_CR5","doi-asserted-by":"publisher","DOI":"10.1016\/j.esmoop.2021.100255","volume":"6","author":"L You","year":"2021","unstructured":"You, L., Lv, Z., Li, C., Ye, W., Zhou, Y., Jin, J., & Han, Q. (2021). Worldwide cancer statistics of adolescents and young adults in 2019: A systematic analysis of the Global Burden of Disease Study 2019. ESMO Open, 6(5), 100255. https:\/\/doi.org\/10.1016\/j.esmoop.2021.100255","journal-title":"ESMO Open"},{"issue":"16","key":"3914_CR6","doi-asserted-by":"publisher","first-page":"3708","DOI":"10.1002\/cncr.33003","volume":"126","author":"AM Berkman","year":"2020","unstructured":"Berkman, A. M., Livingston, J. A., Merriman, K., Hildebrandt, M., Wang, J., Dibaj, S., McQuade, J., You, N., Ying, A., Barcenas, C., Bodurka, D., DePombo, A., Lee, H. J., de Groot, J., & Roth, M. (2020). Long-term survival among 5-year survivors of adolescent and young adult cancer. Cancer, 126(16), 3708\u20133718. https:\/\/doi.org\/10.1002\/cncr.33003","journal-title":"Cancer"},{"issue":"7","key":"3914_CR7","doi-asserted-by":"publisher","first-page":"1009","DOI":"10.1002\/cncr.29869","volume":"122","author":"THM Keegan","year":"2016","unstructured":"Keegan, T. H. M., Ries, L. A. G., Barr, R. D., Geiger, A. M., Dahlke, D. V., Pollock, B. H., & Bleyer, W. A. (2016). Comparison of cancer survival trends in the United States of adolescents and young adults with those in children and older adults. Cancer, 122(7), 1009\u20131016. https:\/\/doi.org\/10.1002\/cncr.29869","journal-title":"Cancer"},{"issue":"19","key":"3914_CR8","doi-asserted-by":"publisher","first-page":"4847","DOI":"10.3390\/cancers13194847","volume":"13","author":"SHM Janssen","year":"2021","unstructured":"Janssen, S. H. M., van der Graaf, W. T. A., van der Meer, D. J., Manten-Horst, E., & Husson, O. (2021). Adolescent and young adult (AYA) cancer survivorship practices: An overview. Cancers, 13(19), 4847. https:\/\/doi.org\/10.3390\/cancers13194847","journal-title":"Cancers"},{"issue":"2","key":"3914_CR9","doi-asserted-by":"publisher","first-page":"17","DOI":"10.1007\/s11912-020-01011-9","volume":"23","author":"Z Jin","year":"2021","unstructured":"Jin, Z., Griffith, M. A., & Rosenthal, A. C. (2021). Identifying and meeting the needs of adolescents and young adults with cancer. Current Oncology Reports, 23(2), 17. https:\/\/doi.org\/10.1007\/s11912-020-01011-9","journal-title":"Current Oncology Reports"},{"issue":"6","key":"3914_CR10","doi-asserted-by":"publisher","first-page":"485","DOI":"10.3322\/caac.21585","volume":"69","author":"AG Close","year":"2019","unstructured":"Close, A. G., Dreyzin, A., Miller, K. D., Seynnaeve, B. K. N., & Rapkin, L. B. (2019). Adolescent and young adult oncology-past, present, and future. CA: A Cancer Journal for Clinicians, 69(6), 485\u2013496. https:\/\/doi.org\/10.3322\/caac.21585","journal-title":"CA: A Cancer Journal for Clinicians"},{"issue":"6","key":"3914_CR11","doi-asserted-by":"publisher","first-page":"516","DOI":"10.1001\/jamasurg.2013.1680","volume":"148","author":"EC Smith","year":"2013","unstructured":"Smith, E. C., Ziogas, A., & Anton-Culver, H. (2013). Delay in surgical treatment and survival after breast cancer diagnosis in young women by race\/ethnicity. JAMA Surgery, 148(6), 516. https:\/\/doi.org\/10.1001\/jamasurg.2013.1680","journal-title":"JAMA Surgery"},{"issue":"5","key":"3914_CR12","doi-asserted-by":"publisher","first-page":"495","DOI":"10.1001\/jamapediatrics.2015.4689","volume":"170","author":"RD Barr","year":"2016","unstructured":"Barr, R. D., Ferrari, A., Ries, L., Whelan, J., & Bleyer, W. A. (2016). Cancer in adolescents and young adults: A narrative review of the current status and a view of the future. JAMA Pediatrics, 170(5), 495\u2013501. https:\/\/doi.org\/10.1001\/jamapediatrics.2015.4689","journal-title":"JAMA Pediatrics"},{"key":"3914_CR13","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(24)00523-0","author":"T Hughes","year":"2024","unstructured":"Hughes, T., Harper, A., Gupta, S., Frazier, A. L., van der Graaf, W. T., Moreno, F., Joseph, A., & Fidler-Benaoudia, M. M. (2024). The current and future global burden of cancer among adolescents and young adults: a population-based study. The Lancet Oncology. https:\/\/doi.org\/10.1016\/S1470-2045(24)00523-0","journal-title":"The Lancet Oncology."},{"issue":"9","key":"3914_CR14","doi-asserted-by":"publisher","first-page":"2289","DOI":"10.1002\/ijc.33417","volume":"148","author":"DJ van der Meer","year":"2021","unstructured":"van der Meer, D. J., Kramer, I., van Maaren, M. C., van Diest, P. J., Linn, S. C., Maduro, J. H., Strobbe, L. J. A., Siesling, S., Schmidt, M. K., & Voogd, A. C. (2021). Comprehensive trends in incidence, treatment, survival and mortality of first primary invasive breast cancer stratified by age, stage and receptor subtype in the Netherlands between 1989 and 2017. International Journal of Cancer, 148(9), 2289\u20132303. https:\/\/doi.org\/10.1002\/ijc.33417","journal-title":"International Journal of Cancer"},{"key":"3914_CR15","doi-asserted-by":"publisher","first-page":"e2200354","DOI":"10.1200\/GO.22.00354","volume":"9","author":"NS El Saghir","year":"2023","unstructured":"El Saghir, N. S., Khalil, L. E., El Dick, J., Atwani, R. W., Safi, N., Charafeddine, M., Al-Masri, A., El Saghir, B. N., Chaccour, M., Tfayli, A., Assi, H., Abbas, J., Ayoub, Z., Sbaity, E., & Moukadem, H. A. (2023). Improved survival of young patients with breast cancer 40 years and younger at diagnosis. JCO Global Oncology, 9, e2200354. https:\/\/doi.org\/10.1200\/GO.22.00354","journal-title":"JCO Global Oncology"},{"issue":"7","key":"3914_CR16","doi-asserted-by":"publisher","first-page":"896","DOI":"10.1016\/S1470-2045(16)00162-5","volume":"17","author":"A Trama","year":"2016","unstructured":"Trama, A., Botta, L., Foschi, R., Ferrari, A., Stiller, C., Desandes, E., Maule, M. M., Merletti, F., Gatta, G., EUROCARE-5 Working Group. (2016). Survival of European adolescents and young adults diagnosed with cancer in 2000\u201307: Population-based data from EUROCARE-5. The Lancet Oncology, 17(7), 896\u2013906. https:\/\/doi.org\/10.1016\/S1470-2045(16)00162-5","journal-title":"The Lancet Oncology"},{"key":"3914_CR17","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2022-003642","author":"A Javan Biparva","year":"2022","unstructured":"Javan Biparva, A., Raoofi, S., Rafiei, S., Pashazadeh Kan, F., Kazerooni, M., Bagheribayati, F., Masoumi, M., Doustmehraban, M., Sanaei, M., Zarabi, F., Raoofi, N., Chomalu, Z. B., Ahmadi, B., Talab, F. S., Hoseini, B. S., Asadollahi, E., Mir, M., Deylami, S., Zareei, M., \u2026 Ghashghaee, A. (2022). Global quality of life in breast cancer: systematic review and meta-analysis. BMJ Supportive & Palliative Care. https:\/\/doi.org\/10.1136\/bmjspcare-2022-003642","journal-title":"BMJ Supportive & Palliative Care"},{"issue":"4","key":"3914_CR18","doi-asserted-by":"publisher","first-page":"406","DOI":"10.1200\/JCO.2010.30.6951","volume":"29","author":"M Epplein","year":"2011","unstructured":"Epplein, M., Zheng, Y., Zheng, W., Chen, Z., Gu, K., Penson, D., Lu, W., & Shu, X.-O. (2011). Quality of life after breast cancer diagnosis and survival. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 29(4), 406\u2013412. https:\/\/doi.org\/10.1200\/JCO.2010.30.6951","journal-title":"Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology"},{"key":"3914_CR19","doi-asserted-by":"publisher","first-page":"22","DOI":"10.1016\/j.breast.2021.12.001","volume":"61","author":"MJ Heins","year":"2022","unstructured":"Heins, M. J., de Ligt, K. M., Verloop, J., Siesling, S., Korevaar, J. C., & PSCCR group. (2022). Adverse health effects after breast cancer up to 14 years after diagnosis. Breast (Edinburgh, Scotland), 61, 22\u201328. https:\/\/doi.org\/10.1016\/j.breast.2021.12.001","journal-title":"Breast (Edinburgh, Scotland)"},{"issue":"1","key":"3914_CR20","doi-asserted-by":"publisher","first-page":"39","DOI":"10.1093\/jnci\/94.1.39","volume":"94","author":"PA Ganz","year":"2002","unstructured":"Ganz, P. A., Desmond, K. A., Leedham, B., Rowland, J. H., Meyerowitz, B. E., & Belin, T. R. (2002). Quality of life in long-term, disease-free survivors of breast cancer: A follow-up study. Journal of the National Cancer Institute, 94(1), 39\u201349. https:\/\/doi.org\/10.1093\/jnci\/94.1.39","journal-title":"Journal of the National Cancer Institute"},{"issue":"19","key":"3914_CR21","doi-asserted-by":"publisher","first-page":"4884","DOI":"10.1002\/cncr.27445","volume":"118","author":"E Tai","year":"2012","unstructured":"Tai, E., Buchanan, N., Townsend, J., Fairley, T., Moore, A., & Richardson, L. C. (2012). Health status of adolescent and young adult cancer survivors. Cancer, 118(19), 4884\u20134891. https:\/\/doi.org\/10.1002\/cncr.27445","journal-title":"Cancer"},{"issue":"9","key":"3914_CR22","doi-asserted-by":"publisher","first-page":"3099","DOI":"10.1007\/s00520-018-4151-z","volume":"26","author":"E Harju","year":"2018","unstructured":"Harju, E., Roser, K., Dehler, S., & Michel, G. (2018). Health-related quality of life in adolescent and young adult cancer survivors. Supportive Care in Cancer, 26(9), 3099\u20133110. https:\/\/doi.org\/10.1007\/s00520-018-4151-z","journal-title":"Supportive Care in Cancer"},{"issue":"1","key":"3914_CR23","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1016\/j.suc.2022.08.014","volume":"103","author":"J Abdo","year":"2023","unstructured":"Abdo, J., Ortman, H., Rodriguez, N., Tillman, R., Riordan, E. O., & Seydel, A. (2023). Quality of life issues following breast cancer treatment. The Surgical Clinics of North America, 103(1), 155\u2013167. https:\/\/doi.org\/10.1016\/j.suc.2022.08.014","journal-title":"The Surgical Clinics of North America"},{"issue":"4","key":"3914_CR24","doi-asserted-by":"publisher","first-page":"564","DOI":"10.1007\/s11764-020-00950-3","volume":"15","author":"H Carreira","year":"2021","unstructured":"Carreira, H., Williams, R., Dempsey, H., Stanway, S., Smeeth, L., & Bhaskaran, K. (2021). Quality of life and mental health in breast cancer survivors compared with non-cancer controls: A study of patient-reported outcomes in the United Kingdom. Journal of Cancer Survivorship, 15(4), 564\u2013575. https:\/\/doi.org\/10.1007\/s11764-020-00950-3","journal-title":"Journal of Cancer Survivorship"},{"issue":"18","key":"3914_CR25","doi-asserted-by":"publisher","first-page":"2808","DOI":"10.1016\/j.ejca.2015.08.027","volume":"51","author":"C Quinten","year":"2015","unstructured":"Quinten, C., Coens, C., Ghislain, I., Zikos, E., Sprangers, M. A. G., Ringash, J., Martinelli, F., Ediebah, D. E., Maringwa, J., Reeve, B. B., Greimel, E., King, M. T., Bjordal, K., Flechtner, H.-H., Koch, J.-V., Taphoorn, M. J. B., Weis, J., Wildiers, H., Velikova, G., & Bottomley, A. (2015). The effects of age on health-related quality of life in cancer populations: A pooled analysis of randomized controlled trials using the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 involving 6024 cancer patients. European Journal of Cancer, 51(18), 2808\u20132819. https:\/\/doi.org\/10.1016\/j.ejca.2015.08.027","journal-title":"European Journal of Cancer"},{"issue":"2","key":"3914_CR26","doi-asserted-by":"publisher","first-page":"102234","DOI":"10.1016\/j.esmoop.2024.102234","volume":"9","author":"NJMC Vrancken Peeters","year":"2024","unstructured":"Vrancken Peeters, N. J. M. C., Vlooswijk, C., Bijlsma, R. M., Kaal, S. E. J., Kerst, J. M., Tromp, J. M., Bos, M. E. M. M., van der Hulle, T., Lalisang, R. I., Nuver, J., Kouwenhoven, M. C. M., van der Ploeg, I. M. C., van der Graaf, W. T. A., & Husson, O. (2024). Sexual quality of life of adolescents and young adult breast cancer survivors. ESMO Open, 9(2), 102234. https:\/\/doi.org\/10.1016\/j.esmoop.2024.102234","journal-title":"ESMO Open"},{"issue":"4","key":"3914_CR27","doi-asserted-by":"publisher","first-page":"673","DOI":"10.1016\/j.bjps.2009.01.024","volume":"63","author":"AS Solvi","year":"2010","unstructured":"Solvi, A. S., Foss, K., von Soest, T., Roald, H. E., Skolleborg, K. C., & Holte, A. (2010). Motivational factors and psychological processes in cosmetic breast augmentation surgery. Journal of Plastic, Reconstructive & Aesthetic Surgery, 63(4), 673\u2013680. https:\/\/doi.org\/10.1016\/j.bjps.2009.01.024","journal-title":"Journal of Plastic, Reconstructive & Aesthetic Surgery"},{"issue":"11","key":"3914_CR28","doi-asserted-by":"publisher","first-page":"2415","DOI":"10.1002\/ijc.30370","volume":"139","author":"J Li","year":"2016","unstructured":"Li, J., Humphreys, K., Eriksson, M., Dar, H., Brandberg, Y., Hall, P., & Czene, K. (2016). Worse quality of life in young and recently diagnosed breast cancer survivors compared with female survivors of other cancers: A cross-sectional study. International Journal of Cancer, 139(11), 2415\u20132425. https:\/\/doi.org\/10.1002\/ijc.30370","journal-title":"International Journal of Cancer"},{"key":"3914_CR29","unstructured":"NKR. (2023). Integraal Kankercentrum Nederland. Retrieved August 23, 2023, from https:\/\/iknl.nl\/nkr"},{"issue":"14","key":"3914_CR30","doi-asserted-by":"publisher","first-page":"2188","DOI":"10.1016\/j.ejca.2011.04.034","volume":"47","author":"LV van de Poll-Franse","year":"2011","unstructured":"van de Poll-Franse, L. V., Horevoorts, N., van Eenbergen, M., Denollet, J., Roukema, J. A., Aaronson, N. K., Vingerhoets, A., Coebergh, J. W., de Vries, J., Essink-Bot, M.-L., & Mols, F. (2011). The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts. European Journal of Cancer (Oxford, England: 1990), 47(14), 2188\u20132194. https:\/\/doi.org\/10.1016\/j.ejca.2011.04.034","journal-title":"European Journal of Cancer (Oxford, England: 1990)"},{"issue":"5","key":"3914_CR31","doi-asserted-by":"publisher","first-page":"667","DOI":"10.1016\/j.ejca.2010.11.004","volume":"47","author":"LV van de Poll-Franse","year":"2011","unstructured":"van de Poll-Franse, L. V., Mols, F., Gundy, C. M., Creutzberg, C. L., Nout, R. A., Verdonck-de Leeuw, I. M., Taphoorn, M. J., & Aaronson, N. K. (2011). Normative data for the EORTC QLQ-C30 and EORTC-sexuality items in the general Dutch population. European Journal of Cancer, 47(5), 667\u2013675. https:\/\/doi.org\/10.1016\/j.ejca.2010.11.004","journal-title":"European Journal of Cancer"},{"key":"3914_CR32","doi-asserted-by":"publisher","unstructured":"Gail, M. H. (2014). Frequency matching. In Wiley StatsRef: Statistics reference online. Wiley. https:\/\/doi.org\/10.1002\/9781118445112.stat05163","DOI":"10.1002\/9781118445112.stat05163"},{"issue":"5","key":"3914_CR33","doi-asserted-by":"publisher","first-page":"365","DOI":"10.1093\/jnci\/85.5.365","volume":"85","author":"NK Aaronson","year":"1993","unstructured":"Aaronson, N. K., Ahmedzai, S., Bergman, B., Bullinger, M., Cull, A., Duez, N. J., Filiberti, A., Flechtner, H., Fleishman, S. B., de Haes, J. C. J. M., Kaasa, S., Klee, M., Osoba, D., Razavi, D., Rofe, P. B., Schraub, S., Sneeuw, K., Sullivan, M., & Takeda, F. (1993). The European Organization for Research and Treatment of Cancer QLQ-C30: A quality-of-life instrument for use in international clinical trials in oncology. Journal of the National Cancer Institute, 85(5), 365\u2013376. https:\/\/doi.org\/10.1093\/jnci\/85.5.365","journal-title":"Journal of the National Cancer Institute"},{"key":"3914_CR34","doi-asserted-by":"publisher","first-page":"128","DOI":"10.1016\/j.ejca.2022.10.026","volume":"178","author":"K Cocks","year":"2023","unstructured":"Cocks, K., Wells, J. R., Johnson, C., Schmidt, H., Koller, M., Oerlemans, S., Velikova, G., Pinto, M., Tomaszewski, K. A., Aaronson, N. K., Exall, E., Finbow, C., Fitzsimmons, D., Grant, L., Groenvold, M., Tolley, C., Wheelwright, S., Bottomley, A., European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group. (2023). Content validity of the EORTC quality of life questionnaire QLQ-C30 for use in cancer. European Journal of Cancer (Oxford, England: 1990), 178, 128\u2013138. https:\/\/doi.org\/10.1016\/j.ejca.2022.10.026","journal-title":"European Journal of Cancer (Oxford, England: 1990)"},{"key":"3914_CR35","unstructured":"Fayers, P. M., NK, A., K, B., M, G., D, C., & A, B. (2001). EORTC QLQ-C30 Scoring Manual The EORTC QLQ-C30 Introduction. EORTC QLQ-C30 Scoring Manual, 30, 1\u201367. Retrieved from http:\/\/www.eortc.be\/qol\/files\/scmanualqlq-c30.pdf"},{"issue":"35","key":"3914_CR36","doi-asserted-by":"publisher","first-page":"5345","DOI":"10.1200\/JCO.22.02776","volume":"41","author":"D Osoba","year":"2023","unstructured":"Osoba, D., Rodrigues, G., Myles, J., Zee, B., & Pater, J. (2023). Interpreting the Significance of Changes in Health-Related Quality-of-Life Scores. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 41(35), 5345\u20135350. https:\/\/doi.org\/10.1200\/JCO.22.02776","journal-title":"Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology"},{"issue":"2","key":"3914_CR37","doi-asserted-by":"publisher","first-page":"e21","DOI":"10.1016\/j.clbc.2013.10.003","volume":"14","author":"PK Morrow","year":"2014","unstructured":"Morrow, P. K., Broxson, A. C., Munsell, M. F., Basen-Enquist, K., Rosenblum, C. K., Schover, L. R., Nguyen, L. H., Hsu, L., Castillo, L., Hahn, K. M., Litton, J. K., Kwiatkowski, D. N., & Hortobagyi, G. N. (2014). Effect of age and race on quality of life in young breast cancer survivors. Clinical Breast Cancer, 14(2), e21-31. https:\/\/doi.org\/10.1016\/j.clbc.2013.10.003","journal-title":"Clinical Breast Cancer"},{"issue":"1","key":"3914_CR38","doi-asserted-by":"publisher","first-page":"E39","DOI":"10.1097\/NCC.0000000000000251","volume":"39","author":"CL Paterson","year":"2016","unstructured":"Paterson, C. L., Lengacher, C. A., Donovan, K. A., Kip, K. E., & Tofthagen, C. S. (2016). Body image in younger breast cancer survivors: A systematic review. Cancer Nursing, 39(1), E39-58. https:\/\/doi.org\/10.1097\/NCC.0000000000000251","journal-title":"Cancer Nursing"},{"issue":"6","key":"3914_CR39","doi-asserted-by":"publisher","first-page":"1411","DOI":"10.1002\/pon.3157","volume":"22","author":"AW Timperi","year":"2013","unstructured":"Timperi, A. W., Ergas, I. J., Rehkopf, D. H., Roh, J. M., Kwan, M. L., & Kushi, L. H. (2013). Employment status and quality of life in recently diagnosed breast cancer survivors. Psycho-Oncology, 22(6), 1411\u20131420. https:\/\/doi.org\/10.1002\/pon.3157","journal-title":"Psycho-Oncology"},{"key":"3914_CR40","doi-asserted-by":"publisher","unstructured":"van Leeuwen, M., Kieffer, J. M., Young, T. E., Annunziata, M. A., Arndt, V., Arraras, J. I., Autran, D., Hani, H. B., Chakrabarti, M., Chinot, O., Cho, J., Aloisio da Costa Vieira, R., Darlington, A.-S., Debruyne, P. R., Dirven, L., Doege, D., Eller, Y., Eichler, M., \u2026 QLG, E. (2023). Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire. Journal of Cancer Survivorship: Research and Practice, 17(4), 1111\u20131130. https:\/\/doi.org\/10.1007\/s11764-021-01160-1","DOI":"10.1007\/s11764-021-01160-1"},{"issue":"8","key":"3914_CR41","doi-asserted-by":"publisher","first-page":"1311","DOI":"10.1016\/S0191-8869(00)00113-6","volume":"30","author":"N Garnefski","year":"2001","unstructured":"Garnefski, N., Kraaij, V., & Spinhoven, P. (2001). Negative life events, cognitive emotion regulation and emotional problems. Personality and Individual Differences, 30(8), 1311\u20131327. https:\/\/doi.org\/10.1016\/S0191-8869(00)00113-6","journal-title":"Personality and Individual Differences"},{"issue":"6","key":"3914_CR42","doi-asserted-by":"publisher","first-page":"1045","DOI":"10.1016\/j.paid.2006.04.010","volume":"41","author":"N Garnefski","year":"2006","unstructured":"Garnefski, N., & Kraaij, V. (2006). Cognitive emotion regulation questionnaire\u2014Development of a short 18-item version (CERQ-short). Personality and Individual Differences, 41(6), 1045\u20131053. https:\/\/doi.org\/10.1016\/j.paid.2006.04.010","journal-title":"Personality and Individual Differences"},{"issue":"6","key":"3914_CR43","doi-asserted-by":"publisher","first-page":"558","DOI":"10.4097\/kja.19087","volume":"72","author":"JH Kim","year":"2019","unstructured":"Kim, J. H. (2019). Multicollinearity and misleading statistical results. Korean Journal of Anesthesiology, 72(6), 558\u2013569. https:\/\/doi.org\/10.4097\/kja.19087","journal-title":"Korean Journal of Anesthesiology"},{"key":"3914_CR44","unstructured":"Team, R. C. (2023). R: A Language and environment for statistical computing. R Foundation for Statistical Computing. Retrieved from https:\/\/www.r-project.org\/"},{"issue":"12","key":"3914_CR45","doi-asserted-by":"publisher","first-page":"3920","DOI":"10.1245\/s10434-019-07653-9","volume":"26","author":"BL Murphy","year":"2019","unstructured":"Murphy, B. L., Day, C. N., Hoskin, T. L., Habermann, E. B., & Boughey, J. C. (2019). Adolescents and young adults with breast cancer have more aggressive disease and treatment than patients in their forties. Annals of Surgical Oncology, 26(12), 3920\u20133930. https:\/\/doi.org\/10.1245\/s10434-019-07653-9","journal-title":"Annals of Surgical Oncology"},{"issue":"9","key":"3914_CR46","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0108002","volume":"9","author":"MH Selamat","year":"2014","unstructured":"Selamat, M. H., Loh, S. Y., Mackenzie, L., & Vardy, J. (2014). Chemobrain experienced by breast cancer survivors: A meta-ethnography study investigating research and care implications. PLoS ONE, 9(9), e108002. https:\/\/doi.org\/10.1371\/journal.pone.0108002","journal-title":"PLoS ONE"},{"issue":"4","key":"3914_CR47","doi-asserted-by":"publisher","first-page":"920","DOI":"10.3390\/cancers14040920","volume":"14","author":"LR Haggstrom","year":"2022","unstructured":"Haggstrom, L. R., Vardy, J. L., Carson, E.-K., Segara, D., Lim, E., & Kiely, B. E. (2022). Effects of endocrine therapy on cognitive function in patients with breast cancer: A comprehensive review. Cancers, 14(4), 920. https:\/\/doi.org\/10.3390\/cancers14040920","journal-title":"Cancers"},{"issue":"3","key":"3914_CR48","doi-asserted-by":"publisher","first-page":"407","DOI":"10.1007\/s10549-016-3906-9","volume":"158","author":"PE Lee","year":"2016","unstructured":"Lee, P. E., Tierney, M. C., Wu, W., Pritchard, K. I., & Rochon, P. A. (2016). Endocrine treatment-associated cognitive impairment in breast cancer survivors: Evidence from published studies. Breast Cancer Research and Treatment, 158(3), 407\u2013420. https:\/\/doi.org\/10.1007\/s10549-016-3906-9","journal-title":"Breast Cancer Research and Treatment"},{"issue":"1","key":"3914_CR49","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1080\/02841860802314738","volume":"48","author":"CM Schilder","year":"2009","unstructured":"Schilder, C. M., Eggens, P. C., Seynaeve, C., Linn, S. C., Boogerd, W., Gundy, C. M., Beex, L. V., Van Dam, F. S., & Schagen, S. B. (2009). Neuropsychological functioning in postmenopausal breast cancer patients treated with tamoxifen or exemestane after AC-chemotherapy: Cross-sectional findings from the neuropsychological TEAM-side study. Acta Oncologica, 48(1), 76\u201385. https:\/\/doi.org\/10.1080\/02841860802314738","journal-title":"Acta Oncologica"},{"issue":"2","key":"3914_CR50","doi-asserted-by":"publisher","first-page":"299","DOI":"10.1007\/s10549-017-4627-4","volume":"168","author":"EA Underwood","year":"2018","unstructured":"Underwood, E. A., Rochon, P. A., Moineddin, R., Lee, P. E., Wu, W., Pritchard, K. I., & Tierney, M. C. (2018). Cognitive sequelae of endocrine therapy in women treated for breast cancer: A meta-analysis. Breast Cancer Research and Treatment, 168(2), 299\u2013310. https:\/\/doi.org\/10.1007\/s10549-017-4627-4","journal-title":"Breast Cancer Research and Treatment"},{"issue":"2","key":"3914_CR51","doi-asserted-by":"publisher","first-page":"429","DOI":"10.1007\/s10549-019-05149-4","volume":"175","author":"ML Gregorowitsch","year":"2019","unstructured":"Gregorowitsch, M. L., Ghedri, A., Young-Afat, D. A., Bijlsma, R., Baas, I. O., van Schaik-van de Mheen, C., Agterof, M. J., G\u00f6ker, E., ten Bokkel Huinink, D., van den Bongard, H. J. G. D., & Verkooijen, H. M. (2019). The effect of chemotherapy on subjective cognitive function in younger early-stage breast cancer survivors treated with chemotherapy compared to older patients. Breast Cancer Research and Treatment, 175(2), 429\u2013441. https:\/\/doi.org\/10.1007\/s10549-019-05149-4","journal-title":"Breast Cancer Research and Treatment"},{"issue":"51","key":"3914_CR52","doi-asserted-by":"publisher","first-page":"67","DOI":"10.1093\/jncimonographs\/lgv009","volume":"2015","author":"K Hermelink","year":"2015","unstructured":"Hermelink, K. (2015). Chemotherapy and cognitive function in breast cancer patients: The so-called chemo brain. Journal of the National Cancer Institute Monographs, 2015(51), 67\u201369. https:\/\/doi.org\/10.1093\/jncimonographs\/lgv009","journal-title":"Journal of the National Cancer Institute Monographs"},{"issue":"3","key":"3914_CR53","doi-asserted-by":"publisher","first-page":"210","DOI":"10.1093\/jnci\/90.3.210","volume":"90","author":"FSAM van Dam","year":"1998","unstructured":"van Dam, F. S. A. M., Boogerd, W., Schagen, S. B., Muller, M. J., Droogleever Fortuyn, M. E., Wall, E., & Rodenhuis, S. (1998). Impairment of Cognitive function in women receiving adjuvant treatment for high-risk breast cancer: High-dose versus standard-dose chemotherapy. JNCI: Journal of the National Cancer Institute, 90(3), 210\u2013218. https:\/\/doi.org\/10.1093\/jnci\/90.3.210","journal-title":"JNCI: Journal of the National Cancer Institute"},{"issue":"5","key":"3914_CR54","doi-asserted-by":"publisher","first-page":"635","DOI":"10.1002\/pon.5623","volume":"30","author":"ABC Dijkshoorn","year":"2021","unstructured":"Dijkshoorn, A. B. C., van Stralen, H. E., Sloots, M., Schagen, S. B., Visser-Meily, J. M. A., & Schepers, V. P. M. (2021). Prevalence of cognitive impairment and change in patients with breast cancer: A systematic review of longitudinal studies. Psycho-Oncology, 30(5), 635\u2013648. https:\/\/doi.org\/10.1002\/pon.5623","journal-title":"Psycho-Oncology"},{"issue":"3","key":"3914_CR55","doi-asserted-by":"publisher","first-page":"640","DOI":"10.1002\/(SICI)1097-0142(19990201)85:3<640::AID-CNCR14>3.0.CO;2-G","volume":"85","author":"SB Schagen","year":"1999","unstructured":"Schagen, S. B., van Dam, F. S. A. M., Muller, M. J., Boogerd, W., Lindeboom, J., & Bruning, P. F. (1999). Cognitive deficits after postoperative adjuvant chemotherapy for breast carcinoma. Cancer, 85(3), 640\u2013650. https:\/\/doi.org\/10.1002\/(SICI)1097-0142(19990201)85:3%3c640::AID-CNCR14%3e3.0.CO;2-G","journal-title":"Cancer"},{"issue":"17","key":"3914_CR56","doi-asserted-by":"publisher","first-page":"1875","DOI":"10.1200\/JCO.19.01866","volume":"38","author":"LI Wagner","year":"2020","unstructured":"Wagner, L. I., Gray, R. J., Sparano, J. A., Whelan, T. J., Garcia, S. F., Yanez, B., Tevaarwerk, A. J., Carlos, R. C., Albain, K. S., Olson, J. A., Goetz, M. P., Pritchard, K. I., Hayes, D. F., Geyer, C. E., Claire Dees, E., McCaskill-Stevens, W. J., Minasian, L. M., Sledge, G. W., & Cella, D. (2020). Patient-reported cognitive impairment among women with early breast cancer randomly assigned to endocrine therapy alone versus chemoendocrine therapy: Results from TAILORx. Journal of Clinical Oncology, 38(17), 1875\u20131886. https:\/\/doi.org\/10.1200\/JCO.19.01866","journal-title":"Journal of Clinical Oncology"},{"issue":"6","key":"3914_CR57","doi-asserted-by":"publisher","first-page":"S498","DOI":"10.1016\/j.amepre.2015.08.013","volume":"49","author":"ND Buchanan","year":"2015","unstructured":"Buchanan, N. D., Dasari, S., Rodriguez, J. L., Lee Smith, J., Hodgson, M. E., Weinberg, C. R., & Sandler, D. P. (2015). Post-treatment Neurocognition and Psychosocial Care Among Breast Cancer Survivors. American Journal of Preventive Medicine, 49(6), S498\u2013S508. https:\/\/doi.org\/10.1016\/j.amepre.2015.08.013","journal-title":"American Journal of Preventive Medicine"},{"issue":"22","key":"3914_CR58","doi-asserted-by":"publisher","first-page":"3555","DOI":"10.1002\/cncr.30208","volume":"122","author":"JS Mandelblatt","year":"2016","unstructured":"Mandelblatt, J. S., Clapp, J. D., Luta, G., Faul, L. A., Tallarico, M. D., McClendon, T. D., Whitley, J. A., Cai, L., Ahles, T. A., Stern, R. A., Jacobsen, P. B., Small, B. J., Pitcher, B. N., Dura-Fernandis, E., Muss, H. B., Hurria, A., Cohen, H. J., & Isaacs, C. (2016). Long-term trajectories of self-reported cognitive function in a cohort of older survivors of breast cancer: CALGB 369901 (Alliance). Cancer, 122(22), 3555\u20133563. https:\/\/doi.org\/10.1002\/cncr.30208","journal-title":"Cancer"},{"issue":"7","key":"3914_CR59","doi-asserted-by":"publisher","first-page":"djv099","DOI":"10.1093\/jnci\/djv099","volume":"107","author":"K Hermelink","year":"2015","unstructured":"Hermelink, K., Voigt, V., Kaste, J., Neufeld, F., Wuerstlein, R., Buhner, M., Munzel, K., Rjosk-Dendorfer, D., Grandl, S., Braun, M., von Koch, F. E., Hartl, K., Hasmuller, S., Bauerfeind, I., Debus, G., Herschbach, P., & Harbeck, N. (2015). Elucidating pretreatment cognitive impairment in breast cancer patients: The impact of cancer-related post-traumatic stress. JNCI Journal of the National Cancer Institute, 107(7), djv099. https:\/\/doi.org\/10.1093\/jnci\/djv099","journal-title":"JNCI Journal of the National Cancer Institute"},{"issue":"3","key":"3914_CR60","doi-asserted-by":"publisher","first-page":"703","DOI":"10.1007\/s10549-019-05433-3","volume":"178","author":"KM de Ligt","year":"2019","unstructured":"de Ligt, K. M., Heins, M., Verloop, J., Ezendam, N. P. M., Smorenburg, C. H., Korevaar, J. C., & Siesling, S. (2019). The impact of health symptoms on health-related quality of life in early-stage breast cancer survivors. Breast Cancer Research and Treatment, 178(3), 703\u2013711. https:\/\/doi.org\/10.1007\/s10549-019-05433-3","journal-title":"Breast Cancer Research and Treatment"},{"issue":"22","key":"3914_CR61","doi-asserted-by":"publisher","first-page":"4945","DOI":"10.1200\/JCO.2005.03.475","volume":"23","author":"V Arndt","year":"2005","unstructured":"Arndt, V., Merx, H., Stegmaier, C., Ziegler, H., & Brenner, H. (2005). Persistence of restrictions in quality of life from the first to the third year after diagnosis in women with breast cancer. Journal of Clinical Oncology, 23(22), 4945\u20134953. https:\/\/doi.org\/10.1200\/JCO.2005.03.475","journal-title":"Journal of Clinical Oncology"},{"issue":"3","key":"3914_CR62","doi-asserted-by":"publisher","first-page":"147","DOI":"10.1002\/pon.794","volume":"13","author":"JR Bloom","year":"2004","unstructured":"Bloom, J. R., Stewart, S. L., Chang, S., & Banks, P. J. (2004). Then and now: Quality of life of young breast cancer survivors. Psycho-Oncology, 13(3), 147\u2013160. https:\/\/doi.org\/10.1002\/pon.794","journal-title":"Psycho-Oncology"},{"issue":"7","key":"3914_CR63","doi-asserted-by":"publisher","first-page":"846","DOI":"10.1016\/j.ejca.2005.11.026","volume":"42","author":"G Prue","year":"2006","unstructured":"Prue, G., Rankin, J., Allen, J., Gracey, J., & Cramp, F. (2006). Cancer-related fatigue: A critical appraisal. European Journal of Cancer, 42(7), 846\u2013863. https:\/\/doi.org\/10.1016\/j.ejca.2005.11.026","journal-title":"European Journal of Cancer"},{"issue":"11","key":"3914_CR64","doi-asserted-by":"publisher","first-page":"2730","DOI":"10.1177\/00031348221078949","volume":"88","author":"L Boldyrev","year":"2022","unstructured":"Boldyrev, L., Ghebremichael, M. S., Lotz, M. M., Kovarie, G., Kennedy, K., Keates, S., & Pories, S. E. (2022). Sleepless and spent in survivorship: Fatigue and Insomnia in breast cancer survivors. The American Surgeon, 88(11), 2730\u20132736. https:\/\/doi.org\/10.1177\/00031348221078949","journal-title":"The American Surgeon"},{"issue":"5","key":"3914_CR65","doi-asserted-by":"publisher","first-page":"342","DOI":"10.1503\/cjs.000716","volume":"59","author":"D Waltho","year":"2016","unstructured":"Waltho, D., & Rockwell, G. (2016). Post\u2013breast surgery pain syndrome: Establishing a consensus for the definition of post-mastectomy pain syndrome to provide a standardized clinical and research approach\u2014A review of the literature and discussion. Canadian Journal of Surgery, 59(5), 342\u2013350. https:\/\/doi.org\/10.1503\/cjs.000716","journal-title":"Canadian Journal of Surgery"},{"issue":"6","key":"3914_CR66","doi-asserted-by":"publisher","first-page":"713","DOI":"10.1111\/jmwh.13012","volume":"64","author":"DL Lovelace","year":"2019","unstructured":"Lovelace, D. L., McDaniel, L. R., & Golden, D. (2019). Long-term effects of breast cancer surgery, treatment, and survivor care. Journal of Midwifery & Women\u2019s Health, 64(6), 713\u2013724. https:\/\/doi.org\/10.1111\/jmwh.13012","journal-title":"Journal of Midwifery & Women\u2019s Health"},{"issue":"1","key":"3914_CR67","doi-asserted-by":"publisher","first-page":"9","DOI":"10.1111\/tbj.12207","volume":"20","author":"GS De Oliveira","year":"2014","unstructured":"De Oliveira, G. S., Chang, R., Khan, S. A., Hansen, N. M., Khan, J. H., McCarthy, R. J., & Apkarian, A. V. (2014). Factors associated with the development of chronic pain after surgery for breast cancer: A prospective cohort from a Tertiary Center in the United States. The Breast Journal, 20(1), 9\u201314. https:\/\/doi.org\/10.1111\/tbj.12207","journal-title":"The Breast Journal"},{"key":"3914_CR68","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijrobp.2023.10.026","author":"J Karlsen","year":"2023","unstructured":"Karlsen, J., Tandstad, T., Steinshamn, S., Salvesen, \u00d8., Parlikar, N. D., Lundgren, S., & Reidunsdatter, R. J. (2023). Pulmonary function and lung fibrosis up to 12 years after breast cancer radiotherapy. International Journal of Radiation Oncology*Biology*Physics. https:\/\/doi.org\/10.1016\/j.ijrobp.2023.10.026","journal-title":"International Journal of Radiation Oncology*Biology*Physics"},{"issue":"6","key":"3914_CR69","doi-asserted-by":"publisher","first-page":"1157","DOI":"10.2214\/ajr.159.6.1442375","volume":"159","author":"SD Davis","year":"1992","unstructured":"Davis, S. D., Yankelevitz, D. F., & Henschke, C. I. (1992). Radiation effects on the lung: Clinical features, pathology, and imaging findings. American Journal of Roentgenology, 159(6), 1157\u20131164. https:\/\/doi.org\/10.2214\/ajr.159.6.1442375","journal-title":"American Journal of Roentgenology"},{"issue":"26","key":"3914_CR70","doi-asserted-by":"publisher","first-page":"1997","DOI":"10.1056\/NEJM200106283442607","volume":"344","author":"CL Shapiro","year":"2001","unstructured":"Shapiro, C. L., & Recht, A. (2001). Side effects of adjuvant treatment of breast cancer. New England Journal of Medicine, 344(26), 1997\u20132008. https:\/\/doi.org\/10.1056\/NEJM200106283442607","journal-title":"New England Journal of Medicine"},{"issue":"10","key":"3914_CR71","doi-asserted-by":"publisher","first-page":"2496","DOI":"10.1002\/cncr.22274","volume":"107","author":"V Arndt","year":"2006","unstructured":"Arndt, V., Stegmaier, C., Ziegler, H., & Brenner, H. (2006). A population-based study of the impact of specific symptoms on quality of life in women with breast cancer 1 year after diagnosis. Cancer, 107(10), 2496\u20132503. https:\/\/doi.org\/10.1002\/cncr.22274","journal-title":"Cancer"},{"issue":"11","key":"3914_CR72","doi-asserted-by":"publisher","first-page":"1294","DOI":"10.1093\/jnci\/djad107","volume":"115","author":"TM Siebinga","year":"2023","unstructured":"Siebinga, T. M., Janssen, S. H. M., Boumans, A. W., Van Eenbergen, M. C., Siflinger, B., Van Der Graaf, W. T. A., & Husson, O. (2023). Financial outcomes of adolescent and young adult cancer survivors: a longitudinal population-based registry study. JNCI: Journal of the National Cancer Institute, 115(11), 1294\u20131301. https:\/\/doi.org\/10.1093\/jnci\/djad107","journal-title":"JNCI: Journal of the National Cancer Institute"},{"issue":"4","key":"3914_CR73","doi-asserted-by":"publisher","DOI":"10.1016\/j.esmoop.2022.100521","volume":"7","author":"SHM Janssen","year":"2022","unstructured":"Janssen, S. H. M., van der Meer, D. J., van Eenbergen, M. C. H. J., Manten-Horst, E., van der Graaf, W. T. A., & Husson, O. (2022). Short- and long-term impact of cancer on employment and financial outcomes of adolescents and young adults (AYAs): A large population-based case-control registry study in the Netherlands. ESMO Open, 7(4), 100521. https:\/\/doi.org\/10.1016\/j.esmoop.2022.100521","journal-title":"ESMO Open"},{"key":"3914_CR74","unstructured":"European Cancer Organisation (ECO). (2024). Time to accelerate: The right to be forgotten. Retrieved May 10, 2024, from https:\/\/www.europeancancer.org\/resources\/355:time-to-accelerate-the-right-to-be-forgotten-a-position-paper-of-the-european-cancer-organisation.html"},{"issue":"6","key":"3914_CR75","doi-asserted-by":"publisher","first-page":"1119","DOI":"10.3109\/0284186X.2013.774461","volume":"52","author":"L Koch","year":"2013","unstructured":"Koch, L., Jansen, L., Herrmann, A., Stegmaier, C., Holleczek, B., Singer, S., Brenner, H., & Arndt, V. (2013). Quality of life in long-term breast cancer survivors\u2014A 10-year longitudinal population-based study. Acta Oncologica, 52(6), 1119\u20131128. https:\/\/doi.org\/10.3109\/0284186X.2013.774461","journal-title":"Acta Oncologica"},{"issue":"2","key":"3914_CR76","doi-asserted-by":"publisher","first-page":"499","DOI":"10.1007\/s10549-019-05188-x","volume":"175","author":"D Doege","year":"2019","unstructured":"Doege, D., Thong, M.-Y., Koch-Gallenkamp, L., Bertram, H., Eberle, A., Holleczek, B., Pritzkuleit, R., Waldeyer-Sauerland, M., Waldmann, A., Zeissig, S. R., Jansen, L., Brenner, H., & Arndt, V. (2019). Health-related quality of life in long-term disease-free breast cancer survivors versus female population controls in Germany. Breast Cancer Research and Treatment, 175(2), 499\u2013510. https:\/\/doi.org\/10.1007\/s10549-019-05188-x","journal-title":"Breast Cancer Research and Treatment"},{"issue":"8","key":"3914_CR77","doi-asserted-by":"publisher","first-page":"1854","DOI":"10.3390\/cancers13081854","volume":"13","author":"T Maurer","year":"2021","unstructured":"Maurer, T., Th\u00f6ne, K., Obi, N., Jung, A. Y., Behrens, S., Becher, H., & Chang-Claude, J. (2021). Health-related quality of life in a cohort of breast cancer survivors over more than 10 years post-diagnosis and in comparison to a control cohort. Cancers, 13(8), 1854. https:\/\/doi.org\/10.3390\/cancers13081854","journal-title":"Cancers"},{"issue":"9","key":"3914_CR78","doi-asserted-by":"publisher","first-page":"2639","DOI":"10.1007\/s11136-023-03408-y","volume":"32","author":"Y Gao","year":"2023","unstructured":"Gao, Y., Rosas, J. C., Fink, H., Behrens, S., Chang-Claude, J., & Seibold, P. (2023). Longitudinal changes of health-related quality of life over 10 years in breast cancer patients treated with radiotherapy following breast-conserving surgery. Quality of Life Research, 32(9), 2639\u20132652. https:\/\/doi.org\/10.1007\/s11136-023-03408-y","journal-title":"Quality of Life Research"},{"issue":"17","key":"3914_CR79","doi-asserted-by":"publisher","first-page":"2613","DOI":"10.1016\/j.ejca.2005.05.017","volume":"41","author":"F Mols","year":"2005","unstructured":"Mols, F., Vingerhoets, A. J. J. M., Coebergh, J. W., & van de Poll-Franse, L. V. (2005). Quality of life among long-term breast cancer survivors: A systematic review. European Journal of Cancer, 41(17), 2613\u20132619. https:\/\/doi.org\/10.1016\/j.ejca.2005.05.017","journal-title":"European Journal of Cancer"},{"issue":"2","key":"3914_CR80","doi-asserted-by":"publisher","first-page":"75","DOI":"10.5152\/tjbh.2014.1778","volume":"10","author":"F\u015e \u0130nan","year":"2014","unstructured":"\u0130nan, F. \u015e, & \u00dcst\u00fcn, B. (2014). Breast cancer and posttraumatic growth. The Journal of Breast Health, 10(2), 75\u201378. https:\/\/doi.org\/10.5152\/tjbh.2014.1778","journal-title":"The Journal of Breast Health"},{"issue":"1","key":"3914_CR81","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1089\/jayao.2017.0040","volume":"7","author":"SR Greup","year":"2018","unstructured":"Greup, S. R., Kaal, S. E. J., Jansen, R., Manten-Horst, E., Thong, M. S. Y., van der Graaf, W. T. A., Prins, J. B., & Husson, O. (2018). Post-traumatic growth and resilience in adolescent and young adult cancer patients: An overview. Journal of Adolescent and Young Adult Oncology, 7(1), 1\u201314. https:\/\/doi.org\/10.1089\/jayao.2017.0040","journal-title":"Journal of Adolescent and Young Adult Oncology"},{"issue":"3","key":"3914_CR82","doi-asserted-by":"publisher","first-page":"233","DOI":"10.1001\/jama.2023.25881","volume":"331","author":"JL Caswell-Jin","year":"2024","unstructured":"Caswell-Jin, J. L., Sun, L. P., Munoz, D., Lu, Yu., Li, Y., Huang, H., Hampton, J. M., Song, J., Jayasekera, J., Schechter, C., Alagoz, O., Stout, N. K., Trentham-Dietz, A., Lee, S. J., Huang, X., Mandelblatt, J. S., Berry, D. A., Kurian, A. W., & Plevritis, S. K. (2024). Analysis of breast cancer mortality in the US\u20141975 to 2019. JAMA, 331(3), 233. https:\/\/doi.org\/10.1001\/jama.2023.25881","journal-title":"JAMA"},{"issue":"6","key":"3914_CR83","doi-asserted-by":"publisher","first-page":"E395","DOI":"10.1097\/NCC.0000000000000865","volume":"44","author":"N Belpame","year":"2021","unstructured":"Belpame, N., Kars, M. C., Deslypere, E., Rober, P., Van Hecke, A., & Verhaeghe, S. (2021). Coping strategies of adolescent and young adult survivors of childhood cancer. Cancer Nursing, 44(6), E395\u2013E403. https:\/\/doi.org\/10.1097\/NCC.0000000000000865","journal-title":"Cancer Nursing"},{"issue":"1","key":"3914_CR84","doi-asserted-by":"publisher","first-page":"100047","DOI":"10.1016\/j.esmoop.2021.100047","volume":"6","author":"C Drabbe","year":"2021","unstructured":"Drabbe, C., Van der Graaf, W. T. A., De Rooij, B. H., Gr\u00fcnhagen, D. J., Soomers, V. L. M. N., Van de Sande, M. A. J., Been, L. B., Keymeulen, K. B. M. I., van der Geest, I. C. M., Van Houdt, W. J., & Husson, O. (2021). The age-related impact of surviving sarcoma on health-related quality of life: data from the SURVSARC study. ESMO Open, 6(1), 100047. https:\/\/doi.org\/10.1016\/j.esmoop.2021.100047","journal-title":"ESMO Open"},{"issue":"10","key":"3914_CR85","doi-asserted-by":"publisher","first-page":"2348","DOI":"10.3390\/cancers13102348","volume":"13","author":"O Husson","year":"2021","unstructured":"Husson, O., Ligtenberg, M. J. L., van de Poll-Franse, L. V., Prins, J. B., van den Bent, M. J., van Eenbergen, M. C., Fles, R., Manten-Horst, E., Gietema, J. A., & van der Graaf, W. T. A. (2021). Comprehensive assessment of incidence, risk factors, and mechanisms of impaired medical and psychosocial health outcomes among adolescents and young adults with cancer: Protocol of the prospective observational COMPRAYA cohort study. Cancers, 13(10), 2348. https:\/\/doi.org\/10.3390\/cancers13102348","journal-title":"Cancers"},{"issue":"7","key":"3914_CR86","doi-asserted-by":"publisher","first-page":"1038","DOI":"10.1002\/cncr.29834","volume":"122","author":"AA Gupta","year":"2016","unstructured":"Gupta, A. A., Papadakos, J. K., Jones, J. M., Amin, L., Chang, E. K., Korenblum, C., Mina, D. S., McCabe, L., Mitchell, L., & Giuliani, M. E. (2016). Reimagining care for adolescent and young adult cancer programs: Moving with the times. Cancer, 122(7), 1038\u20131046. https:\/\/doi.org\/10.1002\/cncr.29834","journal-title":"Cancer"},{"issue":"9","key":"3914_CR87","doi-asserted-by":"publisher","first-page":"1184","DOI":"10.1016\/j.bjps.2016.06.004","volume":"69","author":"BHL Howes","year":"2016","unstructured":"Howes, B. H. L., Watson, D. I., Xu, C., Fosh, B., Canepa, M., & Dean, N. R. (2016). Quality of life following total mastectomy with and without reconstruction versus breast-conserving surgery for breast cancer: A case-controlled cohort study. Journal of plastic, Reconstructive & Aesthetic Surgery: JPRAS, 69(9), 1184\u20131191. https:\/\/doi.org\/10.1016\/j.bjps.2016.06.004","journal-title":"Journal of plastic, Reconstructive & Aesthetic Surgery: JPRAS"},{"issue":"2","key":"3914_CR88","doi-asserted-by":"publisher","first-page":"107","DOI":"10.1056\/NEJMoa1404037","volume":"371","author":"O Pagani","year":"2014","unstructured":"Pagani, O., Regan, M. M., Walley, B. A., Fleming, G. F., Colleoni, M., L\u00e1ng, I., Gomez, H. L., Tondini, C., Burstein, H. J., Perez, E. A., Ciruelos, E., Stearns, V., Bonnefoi, H. R., Martino, S., Geyer, C. E., Pinotti, G., Puglisi, F., Crivellari, D., Ruhstaller, T., \u2026 Francis, P. A. (2014). Adjuvant exemestane with ovarian suppression in premenopausal breast cancer. New England Journal of Medicine, 371(2), 107\u2013118. https:\/\/doi.org\/10.1056\/NEJMoa1404037","journal-title":"New England Journal of Medicine"},{"issue":"4","key":"3914_CR89","doi-asserted-by":"publisher","first-page":"292","DOI":"10.4274\/ejbh.galenos.2022.2022-5-8","volume":"18","author":"L Alnaim","year":"2022","unstructured":"Alnaim, L. (2022). Health-related quality of life in women with breast cancer undergoing treatment with hormonal therapy\u2014A review study. European Journal of Breast Health, 18(4), 292\u2013298. https:\/\/doi.org\/10.4274\/ejbh.galenos.2022.2022-5-8","journal-title":"European Journal of Breast Health"},{"key":"3914_CR90","doi-asserted-by":"publisher","first-page":"117822342211454","DOI":"10.1177\/11782234221145440","volume":"17","author":"A Johnsson","year":"2023","unstructured":"Johnsson, A., Fugl-Meyer, K., Bordas, P., \u00c5hman, J., & Von Wachenfeldt, A. (2023). Side effects and its management in adjuvant endocrine therapy for breast cancer: A matter of communication and counseling. Breast Cancer: Basic and Clinical Research, 17, 117822342211454. https:\/\/doi.org\/10.1177\/11782234221145440","journal-title":"Breast Cancer: Basic and Clinical Research"},{"issue":"9","key":"3914_CR91","doi-asserted-by":"publisher","first-page":"956","DOI":"10.1038\/bjc.2016.71","volume":"114","author":"K-A Phillips","year":"2016","unstructured":"Phillips, K.-A., Regan, M. M., Ribi, K., Francis, P. A., Puglisi, F., Bellet, M., Spazzapan, S., Karlsson, P., Budman, D. R., Zaman, K., Abdi, E. A., Domchek, S. M., Feng, Y., Price, K. N., Coates, A. S., Gelber, R. D., Maruff, P., Boyle, F., Forbes, J. F., \u2026 Bernhard, J. (2016). Adjuvant ovarian function suppression and cognitive function in women with breast cancer. British Journal of Cancer, 114(9), 956\u2013964. https:\/\/doi.org\/10.1038\/bjc.2016.71","journal-title":"British Journal of Cancer"},{"key":"3914_CR92","doi-asserted-by":"publisher","unstructured":"Treatment-induced ovarian insufficiency and early menopause in breast cancer survivors. (2023). Clinical Journal of Oncology Nursing. https:\/\/doi.org\/10.1188\/23.CJON.7-12","DOI":"10.1188\/23.CJON.7-12"},{"issue":"7","key":"3914_CR93","doi-asserted-by":"publisher","first-page":"1114","DOI":"10.1002\/cncr.33348","volume":"127","author":"J Park","year":"2021","unstructured":"Park, J., Rodriguez, J. L., O\u2019Brien, K. M., Nichols, H. B., Hodgson, M. E., Weinberg, C. R., & Sandler, D. P. (2021). Health-related quality of life outcomes among breast cancer survivors. Cancer, 127(7), 1114\u20131125. https:\/\/doi.org\/10.1002\/cncr.33348","journal-title":"Cancer"},{"issue":"1","key":"3914_CR94","doi-asserted-by":"publisher","first-page":"426","DOI":"10.1186\/s12885-022-09408-4","volume":"22","author":"VM Wintraecken","year":"2022","unstructured":"Wintraecken, V. M., Vulik, S., de Wild, S., Dirksen, C., Koppert, L. B., de Vries, J., & Smidt, M. L. (2022). A descriptive systematic review of the relationship between personality traits and quality of life of women with non-metastatic breast cancer. BMC Cancer, 22(1), 426. https:\/\/doi.org\/10.1186\/s12885-022-09408-4","journal-title":"BMC Cancer"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-025-03914-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11136-025-03914-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-025-03914-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,9]],"date-time":"2025-05-09T10:44:50Z","timestamp":1746787490000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s11136-025-03914-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2,21]]},"references-count":94,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2025,5]]}},"alternative-id":["3914"],"URL":"https:\/\/doi.org\/10.1007\/s11136-025-03914-1","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,2,21]]},"assertion":[{"value":"29 January 2025","order":1,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"21 February 2025","order":2,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no conflict of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}},{"value":"The SURVAYA study was conducted in accordance with the Declaration of Helsinki, approved and reviewed by the Netherlands Cancer Institute Institutional Review Board (IRB-IRBd18122) on 6 February 2019 and registered within clinical trial registration (NCT05379387). The Netherlands Cancer Registry (NCR) provided approval of the linkage, access, and utilization of the clinical data.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Informed consent was obtained from all subjects (responders) involved in the study.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}}]}}