{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,13]],"date-time":"2026-05-13T14:21:43Z","timestamp":1778682103042,"version":"3.51.4"},"reference-count":33,"publisher":"Springer Science and Business Media LLC","issue":"4","license":[{"start":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T00:00:00Z","timestamp":1773360000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T00:00:00Z","timestamp":1773360000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100001782","name":"University of Melbourne","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001782","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Qual Life Res"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To qualitatively understand the experiences of patient\/caregivers, and clinicians of piloting a generic Paediatric Patient Reported Outcome Measure (P-PROM), the EQ-5D-Y-5L, in Routine Outpatient Care for Kids (ROCK), known as the P-PROM ROCK Program.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Semi-structured interviews and focus groups were conducted online and in-person between April-June 2024. Participants were eligible if they received (patient\/caregiver) or delivered (clinician) the P-PROM ROCK Program in the pilot feasibility and acceptability randomised clinical trial. Interviews were audio recorded and transcribed. Detailed notes were generated for focus groups. Transcripts and notes were coded and summarised into themes using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Nine interviews (n\u2009=\u20099 patient\/caregivers) and two focus groups (n\u2009=\u20097 clinicians) were conducted. Participants shared that the simplicity and ease of the co-designed P-PROM ROCK Program (including EQ-5D-Y-5L, personalised PROMpt, patient and clinician resources, and integration with systems) was critical to completion and use of EQ-5D-Y-5L in clinical care. When P-PROM results were discussed in appointments, participants shared how this improved communication, resulted in more holistic care, and provided parents with new perspectives on their child\u2019s health. P-PROM results were not always discussed, and participants suggested reminder systems to minimise this. Additionally, short appointments and highly specialised clinical scope were barriers to holistic care. Finally, participants found the intervention too brief and wanted longer to better understand its benefits and limitations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The simplicity and ease of P-PROM programs are essential to their uptake and impact in clinical care. The P-PROM ROCK Program requires further refinements and piloting to truly understand its impact.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Trial registration<\/jats:title>\n                    <jats:p>\n                      ISRCTN16030620,\n                      <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"https:\/\/www.isrctn.com\/ISRCTN16030620\" ext-link-type=\"uri\">https:\/\/www.isrctn.com\/ISRCTN16030620<\/jats:ext-link>\n                      .\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s11136-026-04202-2","type":"journal-article","created":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T13:40:25Z","timestamp":1773409225000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Qualitative insights from patient\/caregivers, and clinicians on routine use of the EQ-5D-Y-5L in clinical paediatric care\u2014results from a pilot feasibility and acceptability trial"],"prefix":"10.1007","volume":"35","author":[{"given":"Renee","family":"Jones","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathe","family":"Holmes","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy","family":"Devlin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kim","family":"Dalziel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Harriet","family":"Hiscock","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2026,3,13]]},"reference":[{"key":"4202_CR1","doi-asserted-by":"publisher","DOI":"10.1201\/b16139","volume-title":"Patient-reported outcomes: Measurement, implementation and interpretation","author":"JC Cappelleri","year":"2013","unstructured":"Cappelleri, J. C., Zou, K. H., Bushmakin, A. G., Alvir, J. M. J., Alemayehu, D., & Symonds, T. (2013). Patient-reported outcomes: Measurement, implementation and interpretation. Crc Press. https:\/\/doi.org\/10.1201\/b16139"},{"issue":"4","key":"4202_CR2","doi-asserted-by":"publisher","first-page":"1015","DOI":"10.1111\/hex.13254","volume":"24","author":"K Churruca","year":"2021","unstructured":"Churruca, K., Pomare, C., Ellis, L. A., Long, J. C., Henderson, S. B., Murphy, L. E. D., et al. (2021). Patient-reported outcome measures (PROMs): A review of generic and condition-specific measures and a discussion of trends and issues. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 24(4), 1015\u20131024. https:\/\/doi.org\/10.1111\/hex.13254","journal-title":"Health Expectations: An International Journal of Public Participation in Health Care and Health Policy"},{"key":"4202_CR3","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.f167","volume":"346","author":"N Black","year":"2013","unstructured":"Black, N. (2013). Patient reported outcome measures could help transform healthcare. BMJ (Clinical Research Ed.), 346, Article f167. https:\/\/doi.org\/10.1136\/bmj.f167","journal-title":"BMJ (Clinical Research Ed.)"},{"issue":"2","key":"4202_CR4","doi-asserted-by":"publisher","first-page":"315","DOI":"10.1016\/j.jval.2014.12.006","volume":"18","author":"A Janssens","year":"2015","unstructured":"Janssens, A., Thompson Coon, J., Rogers, M., Allen, K., Green, C., Jenkinson, C., et al. (2015). A systematic review of generic multidimensional patient-reported outcome measures for children, Part I: Descriptive characteristics. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 18(2), 315\u2013333. https:\/\/doi.org\/10.1016\/j.jval.2014.12.006","journal-title":"Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research"},{"key":"4202_CR5","doi-asserted-by":"publisher","DOI":"10.1038\/s41591-025-03906-1","author":"NL Crossnohere","year":"2025","unstructured":"Crossnohere, N. L., Schuster, A. L. R., Bruckel, J., Chen, R. C., Cizik, A. M., Cruz Rivera, S., et al. (2025). Patient-reported outcome measures add value as clinical trial endpoints. Nature Medicine. https:\/\/doi.org\/10.1038\/s41591-025-03906-1","journal-title":"Nature Medicine"},{"key":"4202_CR6","doi-asserted-by":"crossref","unstructured":"Bele S, Chugh A, Mohamed B, Teela L, Haverman L, Santana MJ. Patient-reported outcome measures in routine pediatric clinical care: a systematic review. Frontiers in Pediatrics. 2020","DOI":"10.3389\/fped.2020.00364"},{"key":"4202_CR7","doi-asserted-by":"publisher","unstructured":"Bele S, Santana MJ. Patient-reported outcome measures to deliver patient and family-centered care in pediatrics: the ball is now in our court. Frontiers in Health Services. 2025; Volume 5 - 2025. https:\/\/doi.org\/10.3389\/fped.2020.00364","DOI":"10.3389\/fped.2020.00364"},{"key":"4202_CR8","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-018-0072-3","volume":"2","author":"A Foster","year":"2018","unstructured":"Foster, A., Croot, L., Brazier, J., Harris, J., & O\u2019Cathain, A. (2018). The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: A systematic review of reviews. Journal of Patient-Reported Outcomes, 2, Article 46. https:\/\/doi.org\/10.1186\/s41687-018-0072-3","journal-title":"Journal of Patient-Reported Outcomes"},{"key":"4202_CR9","unstructured":"Hilton K, Anderson A. IHI psychology of change framework to advance and sustain improvement. IHI White Paper Boston: Institute for Healthcare Improvement; 2018."},{"issue":"1","key":"4202_CR10","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-8-139","volume":"8","author":"EK Proctor","year":"2013","unstructured":"Proctor, E. K., Powell, B. J., & McMillen, J. C. (2013). Implementation strategies: Recommendations for specifying and reporting. Implementation Science: IS, 8(1), Article 139. https:\/\/doi.org\/10.1186\/1748-5908-8-139","journal-title":"Implementation Science: IS"},{"issue":"1","key":"4202_CR11","doi-asserted-by":"publisher","first-page":"241","DOI":"10.1007\/s11136-021-02950-x","volume":"31","author":"MM van Muilekom","year":"2022","unstructured":"van Muilekom, M. M., Teela, L., van Oers, H. A., van Goudoever, J. B., Grootenhuis, M. A., & Haverman, L. (2022). Patients\u2019 and parents\u2019 perspective on the implementation of patient reported outcome measures in pediatric clinical practice using the KLIK PROM portal. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation, 31(1), 241\u2013254. https:\/\/doi.org\/10.1007\/s11136-021-02950-x","journal-title":"Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation"},{"issue":"1","key":"4202_CR12","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-023-00563-1","volume":"7","author":"E McCabe","year":"2023","unstructured":"McCabe, E., Rabi, S., Bele, S., Zwicker, J. D., & Santana, M. J. (2023). Factors affecting implementation of patient-reported outcome and experience measures in a pediatric health system. Journal of Patient-Reported Outcomes, 7(1), Article 24. https:\/\/doi.org\/10.1186\/s41687-023-00563-1","journal-title":"Journal of Patient-Reported Outcomes"},{"issue":"7","key":"4202_CR13","doi-asserted-by":"publisher","first-page":"1951","DOI":"10.1007\/s11136-019-02115-x","volume":"28","author":"S Kreimeier","year":"2019","unstructured":"Kreimeier, S., \u00c5str\u00f6m, M., Burstr\u00f6m, K., Egmar, A.-C., Gusi, N., Herdman, M., et al. (2019). EQ-5D-Y-5L: Developing a revised EQ-5D-Y with increased response categories. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation, 28(7), 1951\u20131961. https:\/\/doi.org\/10.1007\/s11136-019-02115-x","journal-title":"Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation"},{"key":"4202_CR14","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-025-03996-x","author":"R Jones","year":"2025","unstructured":"Jones, R., Dalziel, K., Hiscock, H., McLean, K., Truong, D., Dao, A. T. P., et al. (2025). \u201cIf we ask, we must act\u201d: Co-designing the implementation of the EQ-5D-Y-5L as a paediatric patient reported outcome measure in routine hospital outpatient care for kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2). Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation. https:\/\/doi.org\/10.1007\/s11136-025-03996-x","journal-title":"Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care And Rehabilitation"},{"key":"4202_CR15","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-025-03990-3","author":"R Jones","year":"2025","unstructured":"Jones, R., Dalziel, K., Hiscock, H., van Heudsen, A., & Devlin, N. (2025). Use of a generic paediatric patient reported outcome measure (P-PROM) in routine hospital outpatient care for kids (ROCK): A qualitative exploration of adolescent, caregiver and service provider perspectives (P-PROM ROCK Phase 1). Quality of Life Research. https:\/\/doi.org\/10.1007\/s11136-025-03990-3","journal-title":"Quality of Life Research"},{"issue":"5","key":"4202_CR16","doi-asserted-by":"publisher","first-page":"1505","DOI":"10.1007\/s11136-013-0596-1","volume":"23","author":"M-J Santana","year":"2014","unstructured":"Santana, M.-J., & Feeny, D. (2014). Framework to assess the effects of using patient-reported outcome measures in chronic care management. Quality of Life Research, 23(5), 1505\u20131513. https:\/\/doi.org\/10.1007\/s11136-013-0596-1","journal-title":"Quality of Life Research"},{"issue":"6","key":"4202_CR17","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349\u2013357.","journal-title":"International Journal for Quality in Health Care"},{"key":"4202_CR18","unstructured":"Jones R, Devlin N, McLean K, Roberts G, Berry A, Shanthikumar S, Trajanovska M, King S, Hiscock H, Dalziel K. Impact of EQ-5D-Y-5L in routine care: A pilot feasibility acceptability randomized clinical trial. JAMA Netowrk Open, accepted December2026."},{"key":"4202_CR19","doi-asserted-by":"publisher","unstructured":"Jones R, O'Loughlin R, Xiong X, Bahrampour M, Devlin N, Hiscock H, et al. Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study. Pharmacoeconomics. 2024;42(Suppl 1):39\u201355. https:\/\/doi.org\/10.1007\/s40273-023-01330-220. Jones R, O\u2019Loughlin R, Xiong X, Bahrampour M, McGregor K, Yip S, et al. Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study. Children [Internet]. 2023; 10(10). 10.3390\/children10101604","DOI":"10.1007\/s40273-023-01330-220"},{"issue":"4","key":"4202_CR20","doi-asserted-by":"publisher","first-page":"1893","DOI":"10.1007\/s11135-017-0574-8","volume":"52","author":"B Saunders","year":"2018","unstructured":"Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893\u20131907. https:\/\/doi.org\/10.1007\/s11135-017-0574-8","journal-title":"Quality & Quantity"},{"key":"4202_CR21","doi-asserted-by":"publisher","DOI":"10.1136\/bmj-2022-074256","volume":"381","author":"CH Saunders","year":"2023","unstructured":"Saunders, C. H., Sierpe, A., von Plessen, C., Kennedy, A. M., Leviton, L. C., Bernstein, S. L., et al. (2023). Practical thematic analysis: A guide for multidisciplinary health services research teams engaging in qualitative analysis. BMJ (Clinical Research Ed.), 381, Article e074256. https:\/\/doi.org\/10.1136\/bmj-2022-074256","journal-title":"BMJ (Clinical Research Ed.)"},{"issue":"3","key":"4202_CR22","doi-asserted-by":"publisher","first-page":"241","DOI":"10.1080\/0142159X.2022.2057287","volume":"45","author":"FM Olmos-Vega","year":"2023","unstructured":"Olmos-Vega, F. M., Stalmeijer, R. E., Varpio, L., & Kahlke, R. (2023). A practical guide to reflexivity in qualitative research: AMEE guide no. 149. Medical Teacher, 45(3), 241\u2013251. https:\/\/doi.org\/10.1080\/0142159X.2022.2057287","journal-title":"Medical Teacher"},{"issue":"4","key":"4202_CR23","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1177\/1473325012439737","volume":"11","author":"JF Gilgun","year":"2012","unstructured":"Gilgun, J. F., & Sands, R. G. (2012). The contribution of qualitative approaches to developmental intervention research. Qualitative Social Work, 11(4), 349\u2013361. https:\/\/doi.org\/10.1177\/1473325012439737","journal-title":"Qualitative Social Work"},{"issue":"10","key":"4202_CR24","doi-asserted-by":"publisher","first-page":"1605","DOI":"10.1177\/1049732320920229","volume":"30","author":"W Duggleby","year":"2020","unstructured":"Duggleby, W., Peacock, S., Ploeg, J., Swindle, J., Kaewwilai, L., & Lee, H. (2020). Qualitative research and its importance in adapting interventions. Qualitative Health Research, 30(10), 1605\u20131613. https:\/\/doi.org\/10.1177\/1049732320920229","journal-title":"Qualitative Health Research"},{"issue":"1","key":"4202_CR25","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-023-00617-4","volume":"7","author":"DA Snowdon","year":"2023","unstructured":"Snowdon, D. A., Srikanth, V., Beare, R., Noeske, K. E., Le, E., O\u2019Bree, B., et al. (2023). Acceptability of the routine use and collection of a generic patient reported outcome measure from the perspective of healthcare staff: A qualitative study. Journal of Patient-Reported Outcomes, 7(1), Article 81. https:\/\/doi.org\/10.1186\/s41687-023-00617-4","journal-title":"Journal of Patient-Reported Outcomes"},{"issue":"3","key":"4202_CR26","doi-asserted-by":"publisher","first-page":"16","DOI":"10.35680\/2372-0247.1851","volume":"11","author":"R Di Rico","year":"2024","unstructured":"Di Rico, R., Ng, L., & Capell, J. T. (2024). Exploring consumer and clinician attitudes towards patient reported outcome measures (PROMs) in an Australian inpatient musculoskeletal rehabilitation unit: A qualitative pilot study. Patient Experience Journal, 11(3), 16\u201328.","journal-title":"Patient Experience Journal"},{"issue":"1","key":"4202_CR27","doi-asserted-by":"publisher","first-page":"223","DOI":"10.1186\/s12955-018-1045-1","volume":"16","author":"H Wheat","year":"2018","unstructured":"Wheat, H., Horrell, J., Valderas, J. M., Close, J., Fosh, B., & Lloyd, H. (2018). Can practitioners use patient reported measures to enhance person centred coordinated care in practice? A qualitative study. Health and Quality of Life Outcomes, 16(1), 223\u2013223. https:\/\/doi.org\/10.1186\/s12955-018-1045-1","journal-title":"Health and Quality of Life Outcomes"},{"issue":"Suppl 1","key":"4202_CR28","doi-asserted-by":"publisher","first-page":"9","DOI":"10.1007\/s40273-024-01357-z","volume":"42","author":"C Mpundu-Kaambwa","year":"2024","unstructured":"Mpundu-Kaambwa, C., Bulamu, N. B., Lines, L., Chen, G., Whitehurst, D. G. T., Dalziel, K., et al. (2024). Exploring the use of pictorial approaches in the development of paediatric patient-reported outcome instruments: A systematic review. PharmacoEconomics, 42(Suppl 1), 9\u201337. https:\/\/doi.org\/10.1007\/s40273-024-01357-z","journal-title":"PharmacoEconomics"},{"issue":"5","key":"4202_CR29","doi-asserted-by":"publisher","first-page":"766","DOI":"10.1002\/pbc.23158","volume":"58","author":"V Engelen","year":"2012","unstructured":"Engelen, V., Detmar, S., Koopman, H., Maurice-Stam, H., Caron, H., Hoogerbrugge, P., et al. (2012). Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Pediatric Blood & Cancer, 58(5), 766\u2013774. https:\/\/doi.org\/10.1002\/pbc.23158","journal-title":"Pediatric Blood & Cancer"},{"issue":"1","key":"4202_CR30","doi-asserted-by":"publisher","first-page":"161","DOI":"10.1002\/pbc.24089","volume":"59","author":"V Engelen","year":"2012","unstructured":"Engelen, V., van Zwieten, M., Koopman, H., Detmar, S., Caron, H., Brons, P., et al. (2012). The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer. Pediatric Blood & Cancer, 59(1), 161\u2013166. https:\/\/doi.org\/10.1002\/pbc.24089","journal-title":"Pediatric Blood & Cancer"},{"issue":"11","key":"4202_CR31","doi-asserted-by":"publisher","first-page":"1119","DOI":"10.1200\/jco.2013.51.5981","volume":"32","author":"J Wolfe","year":"2014","unstructured":"Wolfe, J., Orellana, L., Cook, E. F., Ullrich, C., Kang, T., Geyer, J. R., et al. (2014). Improving the care of children with advanced cancer by using an electronic patient-reported feedback intervention: Results from the PediQUEST randomized controlled trial. Journal of Clinical Oncology, 32(11), 1119\u20131126. https:\/\/doi.org\/10.1200\/jco.2013.51.5981","journal-title":"Journal of Clinical Oncology"},{"issue":"3","key":"4202_CR32","doi-asserted-by":"publisher","first-page":"585","DOI":"10.1007\/s11136-015-1219-9","volume":"25","author":"D Barthel","year":"2016","unstructured":"Barthel, D., Fischer, K. I., Nolte, S., Otto, C., Meyrose, A. K., Reisinger, S., et al. (2016). Implementation of the Kids-CAT in clinical settings: A newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 25(3), 585\u2013594. https:\/\/doi.org\/10.1007\/s11136-015-1219-9","journal-title":"Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation"},{"issue":"1","key":"4202_CR33","doi-asserted-by":"publisher","DOI":"10.5334\/ijic.8644","volume":"25","author":"L Chen","year":"2025","unstructured":"Chen, L., White, N., Patten, E., Barth, D., Constable, L. N., Hall, T., et al. (2025). Acceptability, feasibility, and preliminary effectiveness of a Wellbeing Coordination Program in an Integrated Health and Social Care Hub: A mixed methods study. International Journal of Integrated Care, 25(1), Article 10. https:\/\/doi.org\/10.5334\/ijic.8644","journal-title":"International Journal of Integrated Care"}],"container-title":["Quality of Life Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-026-04202-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11136-026-04202-2","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11136-026-04202-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,13]],"date-time":"2026-05-13T13:59:18Z","timestamp":1778680758000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s11136-026-04202-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3,13]]},"references-count":33,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["4202"],"URL":"https:\/\/doi.org\/10.1007\/s11136-026-04202-2","relation":{},"ISSN":["0962-9343","1573-2649"],"issn-type":[{"value":"0962-9343","type":"print"},{"value":"1573-2649","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,3,13]]},"assertion":[{"value":"30 September 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 February 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 March 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Ethics approval was obtained from The Royal Children\u2019s Hospital Human Ethics Committee (HREC\/103264\/RCHM-2024).","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval"}},{"value":"All participants provided informed consent prior to data collection.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent to participate"}},{"value":"KD, ND, HH, and RJ have all received previous or current funding from the EuroQol Research Foundation which is the developer and copyright holder of the health-related quality of life instrument included in this study, the EQ-5D-Y-5L. ND is a member of the EuroQol Group. Views expressed in this manuscript are those of the authors and are not necessarily those of the EuroQol Research Foundation.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"102"}}