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The psychometric performance of the PedsQL, EQ-5D-Y-5L, EQ-5D-Y-3L, CHU9D and KIDSCREEN-27 instruments was compared. Psychometric attributes assessed included acceptability (ease\/difficulty completing), feasibility (time to complete), test-retest reliability, floor\/ ceiling effects, convergent validity and known-groups validity (measured through schooling, special health care needs (SHCN), and the strengths and difficulties questionnaire (SDQ)). Sub-group analysis by reporter type (child vs. caregiver), child age (5\u201312 vs. 13\u201318 years) and child gender (male vs. female) was conducted.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      All measures demonstrated similarly good acceptability, feasibility, and convergent validity. Only the PedsQL, EQ-5D-Y-5L and EQ-5D-Y-3L demonstrated test-retest reliability (intraclass correlation coefficient 0.56\u20130.60). No floor or ceiling effects were found in the total sample however, ceiling effects for the EQ-5D-Y-3L were noted in 13\u201318 year olds (19.1%), males (15.6%), and children who self-reported (15.0%). For known-groups validity (Cohen\u2019s\n                      <jats:italic>d<\/jats:italic>\n                      \u2009&gt;\u20090.5), only the EQ-5D-Y-5L differentiated between children in mainstream and specialist schools, only the CHU9D and PedsQL differentiated between children with and without SHCNs, and all measures differentiated between children with and without behavioural difficulties as per the SDQ.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The PedsQL and EQ-5D-Y-5L were the strongest performing measures in autistic children. As performance varied by reporter type, child age, and child gender, those selecting a measure should assess evidence in their intended population of use.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s11136-026-04246-4","type":"journal-article","created":{"date-parts":[[2026,6,5]],"date-time":"2026-06-05T14:24:23Z","timestamp":1780669463000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Measuring quality of life in autistic children and young people: comparing the performance of common generic health related quality of life instruments"],"prefix":"10.1007","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5692-8882","authenticated-orcid":false,"given":"Lee","family":"Constable","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6451-2713","authenticated-orcid":false,"given":"Rachel","family":"O\u2019Loughlin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5332-5226","authenticated-orcid":false,"given":"Renee","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3017-2770","authenticated-orcid":false,"given":"Harriet","family":"Hiscock","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4972-8871","authenticated-orcid":false,"given":"Kim","family":"Dalziel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Quality of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) project team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Norman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosalie","family":"Viney","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Ratcliffe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,6,5]]},"reference":[{"key":"4246_CR1","doi-asserted-by":"publisher","unstructured":"American Psychiatric Association. 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Views expressed in this paper are those of the authors and are not necessarily those of the EuroQol Research Foundation.","order":1,"name":"Ethics","label":"Conflict of interest","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The Paediatric Multi-Instrument Comparison study was approved by the Royal Children\u2019s Hospital (RCH) Human Research Ethics Committee (HREC\/71872\/RCHM2021). The current study was approved by the data custodians and no further ethics approval was required as per Sect. 5.1.22\/23 of the National Statement on Ethical Conduct in Human Research (2007).","order":2,"name":"Ethics","label":"Ethics approval","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Participants provided written informed consent to participate in the Paediatric Multi-Instrument Comparison study. 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