{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,29]],"date-time":"2026-08-29T17:28:36Z","timestamp":1788024516368,"version":"build-2784847793"},"reference-count":35,"publisher":"Springer Science and Business Media LLC","issue":"4","license":[{"start":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T00:00:00Z","timestamp":1751414400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T00:00:00Z","timestamp":1751414400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100030974","name":"Pavol Jozef \u0160af\u00e1rik University in Ko\u0161ice","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100030974","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Sleep Breath"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>Abstract<\/jats:title>\n          <jats:sec>\n            <jats:title>Background<\/jats:title>\n            <jats:p>Narcolepsy is characterized by excessive daytime sleepiness (EDS) and, in type one, cataplexy, often accompanied by disrupted nocturnal sleep, parasomnias, and other impairments. This study aims to explore patients\u2019 perceptions and emotional experiences of these symptoms.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Methods<\/jats:title>\n            <jats:p>A qualitative study was conducted using narrative semi-structured interviews with 25 narcolepsy patients, guided by a structure approved by a multidisciplinary expert board. The interviews, conducted at the patients\u2019 homes or hospitals, were transcribed, inductively analyzed to develop a codebook, and subjected to thematic analysis.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results<\/jats:title>\n            <jats:p>The onset and manifestation were key themes for each symptom. EDS was often described as \u201cmicrosleeps\u201d or \u201cshutting off,\u201d causing embarrassment when occurring publicly and influenced by factors such as the weather, seasons, or menstruation. Cataplexy was commonly triggered by positive emotions or situations, including sexual intercourse, with patients often suppressing emotions to prevent episodes, leading to misinterpretations by others as drunkenness. Nocturnal sleep disturbances, including vivid dreams, nightmares, sleep paralysis, and hallucinations, led to negative emotional experiences. Overall, narcolepsy symptoms significantly impacted patients\u2019 emotional well-being.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusion<\/jats:title>\n            <jats:p>The burden of narcolepsy is deeply tied to patients\u2019 perceptions and emotional experiences, significantly affecting their quality of life, yet few studies have used qualitative approaches to explore their perspectives.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1007\/s11325-025-03407-y","type":"journal-article","created":{"date-parts":[[2025,7,2]],"date-time":"2025-07-02T07:41:54Z","timestamp":1751442114000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["The burden of narcolepsy symptoms from patients\u2019 perspective: a narrative qualitative study"],"prefix":"10.1007","volume":"29","author":[{"given":"Jan","family":"Hlodak","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"Madarasova Geckova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zuzana","family":"Dankulincova Veselska","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7746-3797","authenticated-orcid":false,"given":"Eva","family":"Feketeova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,7,2]]},"reference":[{"key":"3407_CR1","unstructured":"American Academy of Sleep Medicine (203). 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The protocol was listed under the name \u201cQuality of life in patients suffering from narcolepsy (2022)\u201d and approved under number 29\u00a0N\/2022) and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"Informed consent was obtained from all individual participants included in the study.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Informed consent"}},{"value":"All authors certify that they have no affiliations with or involvement in any organization or entity with any financial interest (such as honoraria; educational grants; participation in speakers\u2019 bureaus; membership, employment, consultancies, stock ownership, or other equity interest; and expert testimony or patent-licensing arrangements), or non-financial interest (such as personal or professional relationships, affiliations, knowledge or beliefs) in the subject matter or materials discussed in this manuscript.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}],"article-number":"231"}}