{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T10:45:24Z","timestamp":1792233924337,"version":"4.4.0"},"reference-count":33,"publisher":"Springer Science and Business Media LLC","issue":"S1","license":[{"start":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T00:00:00Z","timestamp":1747094400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"},{"start":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T00:00:00Z","timestamp":1747094400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springernature.com\/gp\/researchers\/text-and-data-mining"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["183439"],"award-info":[{"award-number":["183439"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Cancer Surviv"],"published-print":{"date-parts":[[2026,8]]},"DOI":"10.1007\/s11764-025-01800-w","type":"journal-article","created":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T02:55:54Z","timestamp":1747104954000},"page":"305-317","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Right out of the gate: a mixed method study on the needs and priorities of individuals with or at risk of breast cancer-related lymphedema"],"prefix":"10.1007","volume":"20","author":[{"given":"Mona M.","family":"Al Onazi","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanna F.","family":"Parkinson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Badr El Bakkali","family":"El Kasmi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diane","family":"Martin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Stratford","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Haws","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"St\u00e9phanie","family":"Bernard","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Kennedy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Naomi D.","family":"Dolgoy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Keast","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret L.","family":"McNeely","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,5,13]]},"reference":[{"issue":"3","key":"1800_CR1","doi-asserted-by":"publisher","first-page":"241","DOI":"10.5306\/wjco.v5.i3.241","volume":"5","author":"MR Fu","year":"2014","unstructured":"Fu MR. Breast cancer-related lymphedema: symptoms, diagnosis, risk reduction, and management. World J Clin Oncol. 2014;5(3):241\u20137. https:\/\/doi.org\/10.5306\/wjco.v5.i3.241.","journal-title":"World J Clin Oncol"},{"issue":"1","key":"1800_CR2","doi-asserted-by":"publisher","first-page":"70","DOI":"10.1038\/s41523-021-00276-y","volume":"7","author":"MG Jorgensen","year":"2021","unstructured":"Jorgensen MG, Toyserkani NM, Hansen FG, Bygum A, Sorensen JA. The impact of lymphedema on health-related quality of life up to 10 years after breast cancer treatment. NPJ Breast Cancer. 2021;7(1):70. https:\/\/doi.org\/10.1038\/s41523-021-00276-y.","journal-title":"NPJ Breast Cancer"},{"issue":"1","key":"1800_CR3","doi-asserted-by":"publisher","first-page":"10701","DOI":"10.1038\/s41598-021-89055-0","volume":"11","author":"K Togawa","year":"2021","unstructured":"Togawa K, Ma H, Smith AW, Neuhouser ML, George SM, Baumgartner KB, McTiernan A, Baumgartner R, Ballard RM, Bernstein L. Self-reported symptoms of arm lymphedema and health-related quality of life among female breast cancer survivors. Sci Rep. 2021;11(1):10701. https:\/\/doi.org\/10.1038\/s41598-021-89055-0.","journal-title":"Sci Rep"},{"issue":"1","key":"1800_CR4","doi-asserted-by":"publisher","first-page":"18","DOI":"10.1007\/s00520-022-07508-2","volume":"31","author":"A Shen","year":"2022","unstructured":"Shen A, Lu Q, Fu X, Wei X, Zhang L, Bian J, Qiang W, Pang D. Risk factors of unilateral breast cancer-related lymphedema: an updated systematic review and meta-analysis of 84 cohort studies. Support Care Cancer. 2022;31(1):18. https:\/\/doi.org\/10.1007\/s00520-022-07508-2.","journal-title":"Support Care Cancer"},{"issue":"1","key":"1800_CR5","doi-asserted-by":"publisher","first-page":"62","DOI":"10.1016\/j.ijrobp.2018.08.036","volume":"103","author":"SGR McDuff","year":"2019","unstructured":"McDuff SGR, Mina AI, Brunelle CL, Salama L, Warren LEG, Abouegylah M, Swaroop M, Skolny MN, Asdourian M, Gillespie T, Daniell K, Sayegh HE, Naoum GE, Zheng H, Taghian AG. Timing of lymphedema after treatment for breast cancer: when are patients most at risk? Int J Radiat Oncol Biol Phys. 2019;103(1):62\u201370. https:\/\/doi.org\/10.1016\/j.ijrobp.2018.08.036.","journal-title":"Int J Radiat Oncol Biol Phys"},{"issue":"4","key":"1800_CR6","doi-asserted-by":"publisher","first-page":"216","DOI":"10.1007\/s12609-020-00376-x","volume":"12","author":"LH Eaton","year":"2020","unstructured":"Eaton LH, Narkthong N, Hulett JM. Psychosocial issues associated with breast cancer-related lymphedema: a literature review. Curr Breast Cancer Rep. 2020;12(4):216\u201324. https:\/\/doi.org\/10.1007\/s12609-020-00376-x.","journal-title":"Curr Breast Cancer Rep"},{"issue":"2","key":"1800_CR7","first-page":"246","volume":"51","author":"R Thomas-MacLean","year":"2005","unstructured":"Thomas-MacLean R, Miedema B, Tatemichi SR. Breast cancer-related lymphedema: women\u2019s experiences with an underestimated condition. Can Fam Physician. 2005;51(2):246\u20137.","journal-title":"Can Fam Physician"},{"issue":"5\u20136","key":"1800_CR8","doi-asserted-by":"publisher","first-page":"203","DOI":"10.1016\/j.jdmv.2024.09.001","volume":"49","author":"H Yarmohammadi","year":"2024","unstructured":"Yarmohammadi H, Soltanipur M, Shahrabi Farahani M, Hosseini SE, Sheikhi Z. Financial burden of lymphedema among breast cancer survivors in Iran: a qualitative study. J Med Vasc. 2024;49(5\u20136):203\u201310. https:\/\/doi.org\/10.1016\/j.jdmv.2024.09.001.","journal-title":"J Med Vasc"},{"issue":"12","key":"1800_CR9","doi-asserted-by":"publisher","first-page":"2007","DOI":"10.1200\/JCO.2008.18.3517","volume":"27","author":"YC Shih","year":"2009","unstructured":"Shih YC, Xu Y, Cormier JN, Giordano S, Ridner SH, Buchholz TA, Perkins GH, Elting LS. Incidence, treatment costs, and complications of lymphedema after breast cancer among women of working age: a 2-year follow-up study. J Clin Oncol. 2009;27(12):2007\u201314. https:\/\/doi.org\/10.1200\/JCO.2008.18.3517.","journal-title":"J Clin Oncol"},{"issue":"7","key":"1800_CR10","doi-asserted-by":"publisher","first-page":"1847","DOI":"10.1245\/s10434-010-0941-3","volume":"17","author":"MR Fu","year":"2010","unstructured":"Fu MR, Chen CM, Haber J, Guth AA, Axelrod D. The effect of providing information about lymphedema on the cognitive and symptom outcomes of breast cancer survivors. Ann Surg Oncol. 2010;17(7):1847\u201353. https:\/\/doi.org\/10.1245\/s10434-010-0941-3.","journal-title":"Ann Surg Oncol"},{"issue":"11","key":"1800_CR11","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1007\/s12032-024-02442-1","volume":"41","author":"ML McNeely","year":"2024","unstructured":"McNeely ML, Al Onazi MM, Bond M, Brennan A, Ferguson H, Gross DA, Lurie F, Menzies L, Norton S, Sun Y, Newell A. Essential components of the maintenance phase of complex decongestive therapy. Med Oncol. 2024;41(11):289. https:\/\/doi.org\/10.1007\/s12032-024-02442-1.","journal-title":"Med Oncol"},{"key":"1800_CR12","unstructured":"Panteli DL-QH, Reichebner C, et al. Clinical practice guidelines as a quality strategy. I: Improving healthcare quality in Europe: characteristics, effectiveness and implementation of different strategies. European Observatory on Health Systems and Policies, Copenhagen. 2019."},{"issue":"Suppl 3","key":"1800_CR13","doi-asserted-by":"publisher","first-page":"S92","DOI":"10.1097\/MLR.0b013e3182a51b3d","volume":"52","author":"KD Wyatt","year":"2014","unstructured":"Wyatt KD, Stuart LM, Brito JP, Carranza Leon B, Domecq JP, Prutsky GJ, Egginton JS, Calvin AD, Shah ND, Murad MH, Montori VM. Out of context: clinical practice guidelines and patients with multiple chronic conditions: a systematic review. Med Care. 2014;52(Suppl 3):S92\u2013100. https:\/\/doi.org\/10.1097\/MLR.0b013e3182a51b3d.","journal-title":"Med Care"},{"issue":"3","key":"1800_CR14","doi-asserted-by":"publisher","first-page":"379","DOI":"10.1080\/0284186X.2020.1862422","volume":"60","author":"VS Paramanandam","year":"2021","unstructured":"Paramanandam VS, Lee MJ, Kilbreath SL, Dylke ES. Self-reported questionnaires for lymphoedema: a systematic review of measurement properties using COSMIN framework. Acta Oncol. 2021;60(3):379\u201391. https:\/\/doi.org\/10.1080\/0284186X.2020.1862422.","journal-title":"Acta Oncol"},{"key":"1800_CR15","doi-asserted-by":"publisher","first-page":"326","DOI":"10.1016\/j.bjps.2023.04.036","volume":"83","author":"MN Kaur","year":"2023","unstructured":"Kaur MN, Cornacchi SD, Klassen AF, Haykal S, Hircock C, Mehrara BJ, Dayan JH, Vasilic D, Pusic AL. Ensuring patient centeredness in upper extremity lymphedema research: Identifying patient-prioritized agenda and preferences. J Plast Reconstr Aesthet Surg. 2023;83:326\u201333. https:\/\/doi.org\/10.1016\/j.bjps.2023.04.036.","journal-title":"J Plast Reconstr Aesthet Surg"},{"issue":"2","key":"1800_CR16","doi-asserted-by":"publisher","first-page":"E338","DOI":"10.9778\/cmajo.20210038","volume":"10","author":"ML McNeely","year":"2022","unstructured":"McNeely ML, Harris SR, Dolgoy ND, Al Onazi MM, Parkinson JF, Radke L, Kostaras X, Dennett L, Ryan JA, Dalzell MA, Kennedy A, Capozzi L, Towers A, Campbell KL, Binkley J, King K, Keast D. Update to the Canadian clinical practice guideline for best-practice management of breast cancer-related lymphedema: study protocol. CMAJ Open. 2022;10(2):E338\u201347. https:\/\/doi.org\/10.9778\/cmajo.20210038.","journal-title":"CMAJ Open"},{"issue":"2","key":"1800_CR17","doi-asserted-by":"publisher","first-page":"79","DOI":"10.1258\/jhsrp.2007.007052","volume":"13","author":"A Boivin","year":"2008","unstructured":"Boivin A, Legare F, Gagnon MP. Competing norms: Canadian rural family physicians\u2019 perceptions of clinical practice guidelines and shared decision-making. J Health Serv Res Policy. 2008;13(2):79\u201384. https:\/\/doi.org\/10.1258\/jhsrp.2007.007052.","journal-title":"J Health Serv Res Policy"},{"issue":"12","key":"1800_CR18","doi-asserted-by":"publisher","first-page":"e032483","DOI":"10.1136\/bmjopen-2019-032483","volume":"9","author":"FR Gartner","year":"2019","unstructured":"Gartner FR, Portielje JE, Langendam M, Hairwassers D, Agoritsas T, Gijsen B, Liefers GJ, Pieterse AH, Stiggelbout AM. Role of patient preferences in clinical practice guidelines: a multiple methods study using guidelines from oncology as a case. BMJ Open. 2019;9(12):e032483. https:\/\/doi.org\/10.1136\/bmjopen-2019-032483.","journal-title":"BMJ Open"},{"issue":"3","key":"1800_CR19","first-page":"470","volume":"7","author":"D Khodyakov","year":"2019","unstructured":"Khodyakov D, Denger B, Grant S, Kinnett K, Armstrong C, Martin A, Peay H, Coulter I, Hazlewood G. The RAND\/PPMD Patient-Centeredness Method: a novel online approach to engaging patients and their representatives in guideline development. Eur J Pers Cent Healthc. 2019;7(3):470\u20135.","journal-title":"Eur J Pers Cent Healthc"},{"key":"1800_CR20","doi-asserted-by":"publisher","unstructured":"Braun V, Clarke V. Using thematic analysis in psychology. Taylor & Francis 77\u2013101. https:\/\/doi.org\/10.1191\/1478088706qp063oa.","DOI":"10.1191\/1478088706qp063oa"},{"issue":"2","key":"1800_CR21","doi-asserted-by":"publisher","first-page":"384","DOI":"10.1007\/s11764-022-01262-4","volume":"17","author":"M Perdomo","year":"2023","unstructured":"Perdomo M, Davies C, Levenhagen K, Ryans K, Gilchrist L. Patient education for breast cancer-related lymphedema: a systematic review. J Cancer Surviv. 2023;17(2):384\u201398. https:\/\/doi.org\/10.1007\/s11764-022-01262-4.","journal-title":"J Cancer Surviv"},{"issue":"12","key":"1800_CR22","doi-asserted-by":"publisher","first-page":"1800","DOI":"10.1177\/0193945917744351","volume":"40","author":"PL Ostby","year":"2018","unstructured":"Ostby PL, Armer JM, Smith K, Stewart BR. Patient perceptions of barriers to self-management of breast cancer-related lymphedema. West J Nurs Res. 2018;40(12):1800\u201317. https:\/\/doi.org\/10.1177\/0193945917744351.","journal-title":"West J Nurs Res"},{"issue":"12","key":"1800_CR23","doi-asserted-by":"publisher","first-page":"8027","DOI":"10.1007\/s00520-021-06390-8","volume":"29","author":"H Zhao","year":"2021","unstructured":"Zhao H, Wu Y, Zhou C, Li W, Li X, Chen L. Breast cancer-related lymphedema patient and healthcare professional experiences in lymphedema self-management: a qualitative study. Support Care Cancer. 2021;29(12):8027\u201344. https:\/\/doi.org\/10.1007\/s00520-021-06390-8.","journal-title":"Support Care Cancer"},{"issue":"5","key":"1800_CR24","doi-asserted-by":"publisher","first-page":"567","DOI":"10.1093\/her\/cyh018","volume":"20","author":"A Kennedy","year":"2005","unstructured":"Kennedy A, Gask L, Rogers A. Training professionals to engage with and promote self-management. Health Educ Res. 2005;20(5):567\u201378. https:\/\/doi.org\/10.1093\/her\/cyh018.","journal-title":"Health Educ Res"},{"issue":"S10","key":"1800_CR25","doi-asserted-by":"publisher","first-page":"S9","DOI":"10.5694\/j.1326-5377.2008.tb02202.x","volume":"189","author":"JE Jordan","year":"2008","unstructured":"Jordan JE, Briggs AM, Brand CA, Osborne RH. Enhancing patient engagement in chronic disease self-management support initiatives in Australia: the need for an integrated approach. Med J Aust. 2008;189(S10):S9\u201313. https:\/\/doi.org\/10.5694\/j.1326-5377.2008.tb02202.x.","journal-title":"Med J Aust"},{"issue":"2","key":"1800_CR26","doi-asserted-by":"publisher","first-page":"129","DOI":"10.1177\/0969733013490593","volume":"21","author":"K Thorarinsdottir","year":"2014","unstructured":"Thorarinsdottir K, Kristjansson K. Patients\u2019 perspectives on person-centred participation in healthcare: a framework analysis. Nurs Ethics. 2014;21(2):129\u201347. https:\/\/doi.org\/10.1177\/0969733013490593.","journal-title":"Nurs Ethics"},{"issue":"4","key":"1800_CR27","doi-asserted-by":"publisher","first-page":"244","DOI":"10.1007\/s12609-020-00381-0","volume":"12","author":"X Zhang","year":"2020","unstructured":"Zhang X, Oliveri JM, Paskett ED. Features, predictors, and treatment of breast cancer-related lymphedema. Curr Breast Cancer Rep. 2020;12(4):244\u201354. https:\/\/doi.org\/10.1007\/s12609-020-00381-0.","journal-title":"Curr Breast Cancer Rep"},{"issue":"3\u20134","key":"1800_CR28","doi-asserted-by":"publisher","first-page":"103","DOI":"10.3233\/BD-190381","volume":"38","author":"L Abu Sharour","year":"2019","unstructured":"Abu Sharour L. Oncology nurses\u2019 knowledge about lymphedema assessment, prevention, and management among women with breast cancer. Breast Dis. 2019;38(3\u20134):103\u20138. https:\/\/doi.org\/10.3233\/BD-190381.","journal-title":"Breast Dis"},{"issue":"9","key":"1800_CR29","doi-asserted-by":"publisher","first-page":"e45331","DOI":"10.7759\/cureus.45331","volume":"15","author":"MK Natarajan","year":"2023","unstructured":"Natarajan MK, Nalin SJ, Mohanraj J, Vishwanath U. The effect of education on knowledge regarding breast cancer related lymphedema risk reduction and prevention among nursing personnel. Cureus. 2023;15(9):e45331. https:\/\/doi.org\/10.7759\/cureus.45331.","journal-title":"Cureus"},{"issue":"3","key":"1800_CR30","doi-asserted-by":"publisher","first-page":"1029","DOI":"10.1007\/s10549-011-1829-z","volume":"131","author":"EK Tam","year":"2012","unstructured":"Tam EK, Shen L, Munneke JR, Ackerson LM, Partee PN, Somkin CP, Andre M, Kutner SE, Thiadens SR, Kwan ML. Clinician awareness and knowledge of breast cancer-related lymphedema in a large, integrated health care delivery setting. Breast Cancer Res Treat. 2012;131(3):1029\u201338. https:\/\/doi.org\/10.1007\/s10549-011-1829-z.","journal-title":"Breast Cancer Res Treat"},{"issue":"5","key":"1800_CR31","doi-asserted-by":"publisher","first-page":"469","DOI":"10.1089\/lrb.2022.0090","volume":"21","author":"ND Dolgoy","year":"2023","unstructured":"Dolgoy ND, Al Onazi MM, Parkinson JF, Gudmundsson H, Radke LL, Dennett L, Campbell KL, Harris SR, Keast D, McNeely ML. The appraisal of clinical practice guidelines for breast cancer-related lymphedema. Lymphat Res Biol. 2023;21(5):469\u201378. https:\/\/doi.org\/10.1089\/lrb.2022.0090.","journal-title":"Lymphat Res Biol"},{"issue":"1","key":"1800_CR32","doi-asserted-by":"publisher","first-page":"845","DOI":"10.1186\/s12889-022-13254-1","volume":"22","author":"SJ Dow-Fleisner","year":"2022","unstructured":"Dow-Fleisner SJ, Seaton CL, Li E, Plamondon K, Oelke N, Kurtz D, Jones C, Currie LM, Pesut B, Hasan K, Rush KL. Internet access is a necessity: a latent class analysis of COVID-19 related challenges and the role of technology use among rural community residents. BMC Public Health. 2022;22(1):845. https:\/\/doi.org\/10.1186\/s12889-022-13254-1.","journal-title":"BMC Public Health"},{"key":"1800_CR33","doi-asserted-by":"publisher","unstructured":"Wilson-Menzfeld G, Erfani G, Young-Murphy L, Charlton W, De Luca H, Brittain K, Steven A, Identifying and understanding digital exclusion: a mixed-methods study. Behav Inform Technol. 2024: 1\u201318. https:\/\/doi.org\/10.1080\/0144929X.2024.2368087.","DOI":"10.1080\/0144929X.2024.2368087"}],"container-title":["Journal of Cancer Survivorship"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11764-025-01800-w.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11764-025-01800-w","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11764-025-01800-w.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T10:08:49Z","timestamp":1792231729000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11764-025-01800-w"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,13]]},"references-count":33,"journal-issue":{"issue":"S1","published-print":{"date-parts":[[2026,8]]}},"alternative-id":["1800"],"URL":"https:\/\/doi.org\/10.1007\/s11764-025-01800-w","relation":{},"ISSN":["1932-2259","1932-2267"],"issn-type":[{"value":"1932-2259","type":"print"},{"value":"1932-2267","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,5,13]]},"assertion":[{"value":"13 December 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"1 April 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 May 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}]}}