{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T19:22:54Z","timestamp":1792783374889,"version":"4.5.0"},"reference-count":41,"publisher":"Springer Science and Business Media LLC","issue":"S1","license":[{"start":{"date-parts":[[2025,5,6]],"date-time":"2025-05-06T00:00:00Z","timestamp":1746489600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,5,6]],"date-time":"2025-05-06T00:00:00Z","timestamp":1746489600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"University of Southern Denmark","id":[{"id":"https:\/\/ror.org\/03yrrjy16","id-type":"ROR","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Cancer Surviv"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>To describe the characteristics of Danish women treated for primary breast cancer, the prevalence and severity of self-reported late-term impairments, and the registration of these impairments in the Danish National Patient Registry.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This is a nationwide cross-sectional survey study. A nationwide sample of 9927 women were invited to complete a questionnaire on late-term impairments, including shoulder impairment, lymphedema, fatigue, and chemotherapy-induced\u00a0neuropathy. Severity was scored on validated patient-reported scales. Clinical characteristics of women and diagnostic codes for \u201clate-term effects\u201d were extracted from the Danish National Patient Registry.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The response rate was 60.9%. The 6046 responders were on average 57\u00a0years old at surgery, and 53.5% had a lower education level, 62.7% were married, 56.7% had a body mass index\u2009\u2265\u200925, and 54.4% had one or more co-morbidities. Overall, 60.7% reported having late-term impairments from their breast cancer treatment. The most common impairments were shoulder impairment (75.3%), fatigue (56.9%), chemotherapy-induced neuropathy (49.6%), and lymphedema (26.3%). On average, 58.0% women reporting impairments scored moderate to severe disturbances on validated patient-reported scales. Despite the high self-reported rates, impairments were rarely recorded in the Danish National Patient Registry (lymphedema, 1.3%; fatigue, 0.2%; shoulder impairment, 0.1%; and chemotherapy-induced neuropathy, 0.1%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>More than 60% of Danish breast cancer survivors reported moderate to severe late-term impairments 3\u20137\u00a0years post-treatment, yet these impairments were rarely recorded in the Danish National Patient Registry.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Implications for Cancer Survivors<\/jats:title>\n                    <jats:p>Future research should focus on organizational structures in the Danish secondary healthcare, in relation to facilitating screening and timely detection of late-term impairments.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1007\/s11764-025-01815-3","type":"journal-article","created":{"date-parts":[[2025,5,5]],"date-time":"2025-05-05T18:47:58Z","timestamp":1746470878000},"page":"271-282","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Specification of self-reported late-term impairments 3\u20137 years after primary breast cancer treatment: a nationwide cross-sectional study among Danish breast cancer survivors"],"prefix":"10.1007","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3088-1833","authenticated-orcid":false,"given":"Kim Mich\u00e9le","family":"Feder","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6800-4532","authenticated-orcid":false,"given":"Kim Gordon","family":"Ingwersen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4571-7852","authenticated-orcid":false,"given":"Hans Bjarke","family":"Rahr","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9299-4334","authenticated-orcid":false,"given":"Heidi Klakk","family":"Egeb\u00e6k","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9727-6649","authenticated-orcid":false,"given":"Lonny","family":"Stokholm","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6468-235X","authenticated-orcid":false,"given":"Marianne Djernes","family":"Lautrup","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,5,6]]},"reference":[{"key":"1815_CR1","unstructured":"World Cancer Research Fund International. 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