{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T16:34:18Z","timestamp":1780504458939,"version":"3.54.1"},"reference-count":6,"publisher":"Springer Science and Business Media LLC","issue":"4","license":[{"start":{"date-parts":[[2020,6,8]],"date-time":"2020-06-08T00:00:00Z","timestamp":1591574400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2020,6,8]],"date-time":"2020-06-08T00:00:00Z","timestamp":1591574400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Osteoporosis Foundation of New Mexico"},{"DOI":"10.13039\/100003227","name":"Osteogenesis Imperfecta Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100003227","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Curr Osteoporos Rep"],"published-print":{"date-parts":[[2020,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n<jats:title>Purpose of Review<\/jats:title>\n<jats:p>Rare bone diseases constitute ~\u20095% of all known rare diseases and can require complex, multidisciplinary care. Advancing access to current medical knowledge is an important strategy for improving care for rare bone diseases throughout the world. To support this goal, the Rare Bone Disease Alliance launched the Rare Bone Disease TeleECHO in 2019.<\/jats:p>\n<\/jats:sec><jats:sec>\n<jats:title>Recent Findings<\/jats:title>\n<jats:p>The Rare Bone Disease TeleECHO is a monthly video teleconference that fosters a collegial community of practice and opportunities for active learning through interactive case-based learning. TeleECHO relies on a hub-and-spoke model, where medical professionals at the \u201chub\u201d provide support and expertise for other healthcare providers, or the \u201cspokes\u201d. Evidence of the global reach of the program as well as qualitative feedback from registrants supports the need for rare bone disease education and the value of the TeleECHO model.<\/jats:p>\n<\/jats:sec><jats:sec>\n<jats:title>Summary<\/jats:title>\n<jats:p>The Rare Bone Disease TeleECHO helps meet the challenge of disseminating rapidly expanding rare bone disease knowledge by leveraging telehealth.<\/jats:p>\n<\/jats:sec>","DOI":"10.1007\/s11914-020-00595-2","type":"journal-article","created":{"date-parts":[[2020,6,8]],"date-time":"2020-06-08T05:04:05Z","timestamp":1591592645000},"page":"344-349","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":27,"title":["The Rare Bone Disease TeleECHO Program: Leveraging Telehealth to Improve Rare Bone Disease Care"],"prefix":"10.1007","volume":"18","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8827-9883","authenticated-orcid":false,"given":"Laura L.","family":"Tosi","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elmer N.","family":"Rajah","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael H.","family":"Stewart","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Austin P.","family":"Gillies","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracy S.","family":"Hart","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E. Michael","family":"Lewiecki","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2020,6,8]]},"reference":[{"issue":"12","key":"595_CR1","doi-asserted-by":"publisher","first-page":"2869","DOI":"10.1002\/ajmg.a.37365","volume":"167a","author":"L Bonafe","year":"2015","unstructured":"Bonafe L, Cormier-Daire V, Hall C, et al. Nosology and classification of genetic skeletal disorders: 2015 revision. Am J Med Genet A. 2015;167a(12):2869\u201392.","journal-title":"Am J Med Genet A"},{"key":"595_CR2","doi-asserted-by":"crossref","unstructured":"\u2022\u2022 Arora S, Thornton K, Komaromy M, Kalishman S, Katzman J, Duhigg D. Demonopolizing medical knowledge. Acad Med. 2014;89(1):30-32. This article tracks the early development and subsequent success of the ECHO model.","DOI":"10.1097\/ACM.0000000000000051"},{"issue":"6","key":"595_CR3","doi-asserted-by":"publisher","first-page":"474","DOI":"10.1007\/s11914-019-00543-9","volume":"17","author":"EM Lewiecki","year":"2019","unstructured":"\u2022\u2022 Lewiecki EM, Jackson A 3rd, Lake AF, et al. Bone health TeleECHO: a force multiplier to improve the care of skeletal diseases in underserved communities. Curr Osteoporos Rep. 2019;17(6):474\u201382 This review provides a description of existing Bone Health TeleECHO programs and how they are able to improve patient care for underserved communities.","journal-title":"Curr Osteoporos Rep"},{"key":"595_CR4","first-page":"48","volume":"122","author":"P Densen","year":"2011","unstructured":"Densen P. Challenges and opportunities facing medical education. Trans Am Clin Climatol Assoc. 2011;122:48\u201358.","journal-title":"Trans Am Clin Climatol Assoc"},{"issue":"3","key":"595_CR5","doi-asserted-by":"publisher","first-page":"376","DOI":"10.1016\/j.amjmed.2016.11.009","volume":"130","author":"AZ Cooper","year":"2017","unstructured":"Cooper AZ, Richards JB. Lectures for adult learners: breaking old habits in graduate medical education. Am J Med. 2017;130(3):376\u201381.","journal-title":"Am J Med"},{"key":"595_CR6","doi-asserted-by":"publisher","first-page":"JMECD.S20377","DOI":"10.4137\/JMECD.S20377","volume":"3","author":"SF McLean","year":"2016","unstructured":"McLean SF. Case-based learning and its application in medical and health-care fields: a review of worldwide literature. J Med Educ Curric Dev. 2016;3:JMECD.S20377.","journal-title":"J Med Educ Curric Dev"}],"container-title":["Current Osteoporosis Reports"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11914-020-00595-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s11914-020-00595-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s11914-020-00595-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,6,7]],"date-time":"2021-06-07T23:16:50Z","timestamp":1623107810000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s11914-020-00595-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,6,8]]},"references-count":6,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2020,8]]}},"alternative-id":["595"],"URL":"https:\/\/doi.org\/10.1007\/s11914-020-00595-2","relation":{},"ISSN":["1544-1873","1544-2241"],"issn-type":[{"value":"1544-1873","type":"print"},{"value":"1544-2241","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,6,8]]},"assertion":[{"value":"8 June 2020","order":1,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with Ethical Standards"}},{"value":"Laura L Tosi, M.D. has received no direct income from potentially conflicting entities in the past year. She serves on the Board of Directors of the Osteogenesis Imperfecta Foundation, chairs the Rare Bone Disease Alliance Steering Committee, and is the faculty chair of the Rare Bone Disease TeleECHO Program. She also serves on the Board of Directors of the U.S. Bone & Joint Initiative, the Steering Committee and Medical Advisory Board of the Own the Bone Program of the American Orthopaedic Association, and the Medical and Scientific Advisory Board of American Bone Health. She has received grant funding from NIH U54; PCORI and Ultragenyx.Elmer Rajah has nothing to disclose.Michael Stewart serves as the Osteogenesis Imperfecta Foundation\u2019s Regional Program Services Manager.Tracy Hart serves as the CEO of the Osteogenesis Imperfecta Foundation. She also serves as the chair of the NIH\u2019s Rare Diseases Clinical Research Network\u2019s Coalition of Patient Advocacy Groups and serves as a co-PI of the RDCRN\u2019s Brittle Bone Disorders Consortium. Additionally, she serves as immediate past president of the National Health Council\u2019s Board of Directors and continues to serve on a number of OI and rare bone disease committees both domestically and internationally.Austin Gillies has nothing to disclose.E. Michael Lewiecki, M.D. has received no direct income from potentially conflicting entities in the past year. His employer, New Mexico Clinical Research & Osteoporosis Center, has received research grants from Radius, Amgen, Mereo, Bindex; income for service on scientific advisory boards or consulting for Amgen, Radius, Alexion, Sandoz, Samsung Bioepis; service on speakers\u2019 bureaus for Radius, Alexion; project development for University of New Mexico; and royalties from UpToDate for sections on DXA, fracture risk assessment, and prevention of osteoporosis. He is a board member of the National Osteoporosis Foundation, International Society for Clinical Densitometry, and Osteoporosis Foundation of New Mexico.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of Interest"}}]}}