{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T15:37:26Z","timestamp":1761061046373},"reference-count":48,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2020,5,22]],"date-time":"2020-05-22T00:00:00Z","timestamp":1590105600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2020,5,22]],"date-time":"2020-05-22T00:00:00Z","timestamp":1590105600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Neurocrit Care"],"published-print":{"date-parts":[[2020,12]]},"DOI":"10.1007\/s12028-020-00997-1","type":"journal-article","created":{"date-parts":[[2020,5,22]],"date-time":"2020-05-22T18:27:30Z","timestamp":1590172050000},"page":"630-635","update-policy":"http:\/\/dx.doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Integration of Routine Parental Request of Organ Donation in End-of-Life Care of Children with Neurologic Disorders in the UK: Unresolved Medical, Legal, Cultural, and Religious Challenges"],"prefix":"10.1007","volume":"33","author":[{"given":"Mohamed Y.","family":"Rady","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2020,5,22]]},"reference":[{"key":"997_CR1","doi-asserted-by":"publisher","first-page":"m752","DOI":"10.1136\/bmj.m752","volume":"368","author":"G Iacobucci","year":"2020","unstructured":"Iacobucci G. Organ donation: England will have \u201copt-out\u201d system from May 2020. BMJ. 2020;368:m752.","journal-title":"BMJ"},{"key":"997_CR2","unstructured":"National Health Service Blood and Transplant. English organ donation law is changing from 20 May 2020. What is the opt out system in England? 2020 [cited 23 April 2020]. https:\/\/www.organdonation.nhs.uk\/."},{"key":"997_CR3","unstructured":"Human Tissue Authority The regulator for human tissue and organs. Government confirms organ donation system change in England on 20 May. 2020 [cited 23 April 2020]. https:\/\/www.hta.gov.uk\/news\/government-confirms-organ-donation-system-change-england-20-may."},{"key":"997_CR4","unstructured":"National Institute for Health and Care Excellence (NICE). Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation. Published date: 12 December 2011 Last updated: 21 December 2016. 2011 [cited 23 April 2020]. https:\/\/www.nice.org.uk\/guidance\/cg135\/chapter\/1-Recommendations#identifying-patients-who-are-potential-donors."},{"issue":"5","key":"997_CR5","doi-asserted-by":"publisher","first-page":"709","DOI":"10.1007\/s00431-017-3084-8","volume":"177","author":"L Carone","year":"2018","unstructured":"Carone L, Alurkar S, Kigozi P, Vyas H. Organ and tissue donation in a regional paediatric intensive care unit: evaluation of practice. Eur J Pediatr. 2018;177(5):709\u201314.","journal-title":"Eur J Pediatr"},{"key":"997_CR6","unstructured":"The Academy of Medical Royal Colleges. A code of practice for the diagnosis and confirmation of death. A report of the Academy of Medical Royal Colleges. Updated online August 10, 2010. 2008 [cited 23 April 2020]. http:\/\/www.aomrc.org.uk\/publications\/reports-guidance\/ukdec-reports-and-guidance\/code-practice-diagnosis-confirmation-death\/."},{"key":"997_CR7","doi-asserted-by":"publisher","first-page":"b991","DOI":"10.1136\/bmj.b991","volume":"338","author":"AL Simpkin","year":"2009","unstructured":"Simpkin AL, Robertson LC, Barber VS, Young JD. Modifiable factors influencing relatives\u2019 decision to offer organ donation: systematic review. BMJ. 2009;338:b991.","journal-title":"BMJ"},{"key":"997_CR8","doi-asserted-by":"publisher","first-page":"b701","DOI":"10.1136\/bmj.b701","volume":"338","author":"TJ Shafer","year":"2009","unstructured":"Shafer TJ. Improving relatives\u2019 consent to organ donation. BMJ. 2009;338:b701.","journal-title":"BMJ"},{"issue":"2","key":"997_CR9","doi-asserted-by":"publisher","first-page":"229","DOI":"10.1007\/s11019-011-9359-3","volume":"15","author":"MY Rady","year":"2012","unstructured":"Rady MY, McGregor JL, Verheijde JL. Mass media campaigns and organ donation: managing conflicting messages and interests. Med Health Care Philos. 2012;15(2):229\u201341.","journal-title":"Med Health Care Philos"},{"issue":"9","key":"997_CR10","doi-asserted-by":"publisher","first-page":"837","DOI":"10.1136\/archdischild-2018-316382","volume":"104","author":"A-S Darlington","year":"2019","unstructured":"Darlington A-S, Long-Sutehall T, Randall D, et al. Parents\u2019 experiences of requests for organ and tissue donation: the value of asking. Arch Dis Child. 2019;104(9):837\u201343.","journal-title":"Arch Dis Child"},{"issue":"9","key":"997_CR11","doi-asserted-by":"publisher","first-page":"823","DOI":"10.1136\/archdischild-2019-317214","volume":"104","author":"SL Bratton","year":"2019","unstructured":"Bratton SL, Zollinger CM. Bereaved ICU parental end-of-life care goals: including organ donation regardless of eligibility. Arch Dis Child. 2019;104(9):823\u20134.","journal-title":"Arch Dis Child"},{"issue":"Suppl 2","key":"997_CR12","doi-asserted-by":"publisher","first-page":"s1","DOI":"10.1136\/archdischild-2014-306666","volume":"100","author":"V Larcher","year":"2015","unstructured":"Larcher V, Craig F, Bhogal K, et al. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child. 2015;100(Suppl 2):s1\u201323.","journal-title":"Arch Dis Child"},{"issue":"10","key":"997_CR13","doi-asserted-by":"publisher","first-page":"461","DOI":"10.1212\/WNL.0000000000005928","volume":"91","author":"JT Giacino","year":"2018","unstructured":"Giacino JT, Katz DI, Schiff ND, et al. Comprehensive systematic review update summary: disorders of consciousness. Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology; the American Congress of Rehabilitation Medicine; and the National Institute on Disability, Independent Living, and Rehabilitation Research. Neurology. 2018;91(10):461\u201370.","journal-title":"Neurology"},{"issue":"6","key":"997_CR14","doi-asserted-by":"publisher","first-page":"600","DOI":"10.1016\/S1474-4422(19)30031-6","volume":"18","author":"A Thibaut","year":"2019","unstructured":"Thibaut A, Schiff N, Giacino J, Laureys S, Gosseries O. Therapeutic interventions in patients with prolonged disorders of consciousness. Lancet Neurol. 2019;18(6):600\u201314.","journal-title":"Lancet Neurol"},{"issue":"3","key":"997_CR15","doi-asserted-by":"publisher","first-page":"526","DOI":"10.1016\/j.neuron.2019.03.024","volume":"102","author":"AM Owen","year":"2019","unstructured":"Owen AM. The search for consciousness. Neuron. 2019;102(3):526\u20138.","journal-title":"Neuron"},{"issue":"26","key":"997_CR16","doi-asserted-by":"publisher","first-page":"2497","DOI":"10.1056\/NEJMoa1812757","volume":"380","author":"J Claassen","year":"2019","unstructured":"Claassen J, Doyle K, Matory A, et al. Detection of brain activation in unresponsive patients with acute brain injury. N Engl J Med. 2019;380(26):2497\u2013505.","journal-title":"N Engl J Med"},{"issue":"5","key":"997_CR17","doi-asserted-by":"publisher","first-page":"1745","DOI":"10.1007\/s10943-018-0654-7","volume":"57","author":"JL Verheijde","year":"2018","unstructured":"Verheijde JL, Rady MY, Potts M. Neuroscience and brain death controversies: the elephant in the room. J Relig Health. 2018;57(5):1745\u201363.","journal-title":"J Relig Health"},{"issue":"10","key":"997_CR18","doi-asserted-by":"publisher","first-page":"450","DOI":"10.1212\/WNL.0000000000005926","volume":"91","author":"JT Giacino","year":"2018","unstructured":"Giacino JT, Katz DI, Schiff ND, et al. Practice guideline update recommendations summary: disorders of consciousness. Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology; the American Congress of Rehabilitation Medicine; and the National Institute on Disability, Independent Living, and Rehabilitation Research. Neurology. 2018;91(10):450\u201360.","journal-title":"Neurology"},{"key":"997_CR19","unstructured":"Royal College of Physicians of London. Prolonged disorders of consciousness: National clinical guidelines. London, RCP. 2013 [cited 23 April 2020]. http:\/\/www.rcplondon.ac.uk\/resources\/prolonged-disorders-consciousness-national-clinical-guidelines."},{"issue":"1","key":"997_CR20","doi-asserted-by":"publisher","first-page":"16","DOI":"10.1186\/1747-5341-9-16","volume":"9","author":"MY Rady","year":"2014","unstructured":"Rady MY, Verheijde JL. Nonconsensual withdrawal of nutrition and hydration in prolonged disorders of consciousness: authoritarianism and trustworthiness in medicine. Philos Ethics Humanit Med. 2014;9(1):16.","journal-title":"Philos Ethics Humanit Med"},{"issue":"4","key":"997_CR21","first-page":"89","volume":"7","author":"C Machado","year":"2017","unstructured":"Machado C, DeFina PA, Est\u00e9vez M, et al. A reason for care in the clinical evaluation of function on the spectrum of consciousness. J Funct Neurol Rehabilit Ergonomics. 2017;7(4):89\u201399.","journal-title":"J Funct Neurol Rehabilit Ergonomics"},{"issue":"2","key":"997_CR22","doi-asserted-by":"publisher","first-page":"165","DOI":"10.1007\/s12028-018-0593-x","volume":"29","author":"DA Shewmon","year":"2018","unstructured":"Shewmon DA. Truly reconciling the case of Jahi McMath. Neurocrit Care. 2018;29(2):165\u201370.","journal-title":"Neurocrit Care"},{"key":"997_CR23","doi-asserted-by":"publisher","first-page":"815","DOI":"10.2741\/4518","volume":"22","author":"L Sinai","year":"2017","unstructured":"Sinai L, Owen AM, Naci L. Mapping preserved real-world cognition in severely brain-injured patients. Front Biosci (Landmark Ed). 2017;22:815\u201323.","journal-title":"Front Biosci (Landmark Ed)"},{"issue":"3","key":"997_CR24","doi-asserted-by":"publisher","first-page":"148","DOI":"10.1177\/0025817217702289","volume":"85","author":"MY Rady","year":"2017","unstructured":"Rady MY, Verheijde JL. Judicial oversight of life-ending withdrawal of assisted nutrition and hydration in disorders of consciousness in the United Kingdom: a matter of life and death. Med Leg J. 2017;85(3):148\u201354.","journal-title":"Med Leg J"},{"issue":"4","key":"997_CR25","doi-asserted-by":"publisher","first-page":"1050","DOI":"10.1093\/brain\/awaa056","volume":"143","author":"AM Owen","year":"2020","unstructured":"Owen AM. Improving diagnosis and prognosis in disorders of consciousness. Brain. 2020;143(4):1050\u20133.","journal-title":"Brain"},{"issue":"1","key":"997_CR26","doi-asserted-by":"publisher","first-page":"71","DOI":"10.1007\/s10730-016-9307-y","volume":"30","author":"KA Choong","year":"2018","unstructured":"Choong KA, Rady MY. Re A (A Child) and the United Kingdom Code of practice for the diagnosis and confirmation of death: should a secular construct of death override religious values in a pluralistic society? HEC Forum. 2018;30(1):71\u201389.","journal-title":"HEC Forum"},{"issue":"4","key":"997_CR27","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1016\/j.pediatrneurol.2007.05.013","volume":"37","author":"AR Joffe","year":"2007","unstructured":"Joffe AR, Anton NR. Some questions about brain death: a case report. Pediatr Neurol. 2007;37(4):289\u201391.","journal-title":"Pediatr Neurol"},{"issue":"5","key":"997_CR28","doi-asserted-by":"publisher","first-page":"378","DOI":"10.1016\/j.pediatrneurol.2009.05.007","volume":"41","author":"AR Joffe","year":"2009","unstructured":"Joffe AR, Kolski H, Duff J, deCaen AR. 10-Month-old infant with reversible findings of brain death. Pediatr Neurol. 2009;41(5):378\u201382.","journal-title":"Pediatr Neurol"},{"issue":"4","key":"997_CR29","doi-asserted-by":"publisher","first-page":"306","DOI":"10.1016\/j.pediatrneurol.2009.11.014","volume":"42","author":"AR Joffe","year":"2010","unstructured":"Joffe AR, Kolski H, Duff J, deCaen A. Response: are brain death findings reversible? Pediatr Neurol. 2010;42(4):306\u20137.","journal-title":"Pediatr Neurol"},{"issue":"14","key":"997_CR30","doi-asserted-by":"publisher","first-page":"1104","DOI":"10.1177\/0883073817736961","volume":"32","author":"DA Shewmon","year":"2017","unstructured":"Shewmon DA. False-positive diagnosis of brain death following the pediatric guidelines: case report and discussion. J Child Neurol. 2017;32(14):1104\u201317.","journal-title":"J Child Neurol"},{"issue":"7","key":"997_CR31","doi-asserted-by":"publisher","first-page":"676","DOI":"10.1177\/0883073817701048","volume":"32","author":"G Hansen","year":"2017","unstructured":"Hansen G, Joffe AR. Confounding brain stem function during pediatric brain death determination: two case reports. J Child Neurol. 2017;32(7):676\u20139.","journal-title":"J Child Neurol"},{"issue":"1","key":"997_CR32","doi-asserted-by":"publisher","first-page":"33","DOI":"10.1007\/s12028-018-0595-8","volume":"30","author":"C Lazaridis","year":"2019","unstructured":"Lazaridis C. Withdrawal of life-sustaining treatments in perceived devastating brain injury: the key role of uncertainty. Neurocrit Care. 2019;30(1):33\u201341.","journal-title":"Neurocrit Care"},{"key":"997_CR33","doi-asserted-by":"crossref","unstructured":"Children Act 1989. http:\/\/www.legislation.gov.uk\/ukpga\/1989\/41\/contents.","DOI":"10.1049\/esn.1989.0022"},{"key":"997_CR34","unstructured":"Great Ormond Street Hospital for Children Foundation NHS Trust v NO & KK & Ors [2017] EWHC 241 (Fam) (14 February 2017). http:\/\/www.bailii.org\/ew\/cases\/EWHC\/Fam\/2017\/241.html."},{"key":"997_CR35","unstructured":"Great Ormond Street Hospital v Yates & Ors [2017] EWHC 972 (Fam) (11 April 2017). http:\/\/www.bailii.org\/ew\/cases\/EWHC\/Fam\/2017\/972.html."},{"key":"997_CR36","unstructured":"Alder Hey Children\u2019s NHS Foundation Trust v Evans & Ors [2018] EWHC 818 (Fam) (11 April 2018). http:\/\/www.bailii.org\/ew\/cases\/EWHC\/Fam\/2018\/818.html."},{"issue":"2","key":"997_CR37","doi-asserted-by":"publisher","first-page":"F80","DOI":"10.1136\/adc.2010.192757","volume":"96","author":"J Brierley","year":"2011","unstructured":"Brierley J. Neonatal organ donation: has the time come? Arch Dis Child Fetal Neonatal Ed. 2011;96(2):F80\u20133.","journal-title":"Arch Dis Child Fetal Neonatal Ed"},{"issue":"7","key":"997_CR38","doi-asserted-by":"publisher","first-page":"424","DOI":"10.1136\/medethics-2015-103098","volume":"42","author":"J Brierley","year":"2016","unstructured":"Brierley J, Shaw D. Premortem interventions in dying children to optimise organ donation: an ethical analysis. J Med Ethics. 2016;42(7):424\u20138.","journal-title":"J Med Ethics"},{"issue":"4","key":"997_CR39","doi-asserted-by":"publisher","first-page":"525","DOI":"10.1353\/ken.2017.0041","volume":"27","author":"M Nair-Collins","year":"2017","unstructured":"Nair-Collins M. Can the brain-dead be harmed or wronged?: On the moral status of brain death and its implications for organ transplantation. Kennedy Inst Ethics J. 2017;27(4):525\u201359.","journal-title":"Kennedy Inst Ethics J"},{"issue":"1","key":"997_CR40","doi-asserted-by":"publisher","first-page":"49","DOI":"10.1177\/0883073819876474","volume":"35","author":"AR Joffe","year":"2019","unstructured":"Joffe AR, deCaen A, Garros D. Misinterpretations of guidelines leading to incorrect diagnosis of brain death: a case report and discussion. J Child Neurol. 2019;35(1):49\u201354.","journal-title":"J Child Neurol"},{"issue":"9","key":"997_CR41","doi-asserted-by":"publisher","first-page":"573","DOI":"10.1136\/medethics-2011-100104","volume":"39","author":"J Brierley","year":"2013","unstructured":"Brierley J, Linthicum J, Petros A. Should religious beliefs be allowed to stonewall a secular approach to withdrawing and withholding treatment in children? J Med Ethics. 2013;39(9):573\u20137.","journal-title":"J Med Ethics"},{"issue":"3","key":"997_CR42","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1258\/ce.2012.012m07","volume":"7","author":"DA Jones","year":"2012","unstructured":"Jones DA. Loss of faith in brain death: Catholic controversy over the determination of death by neurological criteria. Clin Ethics. 2012;7(3):133\u201341.","journal-title":"Clin Ethics"},{"issue":"5","key":"997_CR43","doi-asserted-by":"publisher","first-page":"1672","DOI":"10.1007\/s10943-019-00874-y","volume":"58","author":"E Gabbay","year":"2019","unstructured":"Gabbay E, Fins JJ. Go in peace: brain death, reasonable accommodation and jewish mourning rituals. J Relig Health. 2019;58(5):1672\u201386.","journal-title":"J Relig Health"},{"issue":"9984","key":"997_CR44","doi-asserted-by":"publisher","first-page":"2254","DOI":"10.1016\/S0140-6736(15)61064-9","volume":"385","author":"J Brierley","year":"2015","unstructured":"Brierley J. UK court accepts neurological determination of death. The Lancet. 2015;385(9984):2254.","journal-title":"The Lancet"},{"issue":"2","key":"997_CR45","doi-asserted-by":"publisher","first-page":"124","DOI":"10.7182\/pit2015145","volume":"25","author":"T Ashkenazi","year":"2015","unstructured":"Ashkenazi T, Cohen J. Interactions between health care personnel and parents approached for organ and\/or tissue donation: influences on parents\u2019 adjustment to loss. Progress in Transplantation. 2015;25(2):124\u201330.","journal-title":"Progress in Transplantation"},{"issue":"4","key":"997_CR46","doi-asserted-by":"publisher","first-page":"358","DOI":"10.1177\/152692480901900412","volume":"19","author":"DB Stouder","year":"2009","unstructured":"Stouder DB, Schmid A, Ross SS, Ross LG, Stocks L. Family, friends, and faith: how organ donor families heal. Prog Transplant. 2009;19(4):358\u201361.","journal-title":"Prog Transplant"},{"issue":"10","key":"997_CR47","doi-asserted-by":"publisher","first-page":"883","DOI":"10.1080\/07481180600923257","volume":"30","author":"T Bellali","year":"2006","unstructured":"Bellali T, Papadatou D. Parental grief following the brain death of a child: does consent or refusal to organ donation affect their grief? Death Stud. 2006;30(10):883\u2013917.","journal-title":"Death Stud"},{"issue":"6","key":"997_CR48","doi-asserted-by":"publisher","first-page":"751","DOI":"10.1164\/rccm.201709-1899OC","volume":"198","author":"N Kentish-Barnes","year":"2018","unstructured":"Kentish-Barnes N, Chevret S, Cheisson G, et al. Grief symptoms in relatives who experienced organ donation requests in the ICU. Am J Respir Crit Care Med. 2018;198(6):751\u20138.","journal-title":"Am J Respir Crit Care Med"}],"container-title":["Neurocritical Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s12028-020-00997-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1007\/s12028-020-00997-1\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1007\/s12028-020-00997-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,6]],"date-time":"2024-08-06T06:54:26Z","timestamp":1722927266000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1007\/s12028-020-00997-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,5,22]]},"references-count":48,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2020,12]]}},"alternative-id":["997"],"URL":"https:\/\/doi.org\/10.1007\/s12028-020-00997-1","relation":{},"ISSN":["1541-6933","1556-0961"],"issn-type":[{"type":"print","value":"1541-6933"},{"type":"electronic","value":"1556-0961"}],"subject":[],"published":{"date-parts":[[2020,5,22]]},"assertion":[{"value":"22 May 2020","order":1,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The author(s) declared no potential conflicts of interest with respect to the research, authorship, and\/or publication of this article.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of Interest"}},{"value":"This article does not contain any studies with human or animal participants. There is no informed consent because this article does not contain any studies with human participants.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval\/Informed consent"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}]}}