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Silvio Boero has received payment or honoraria, support for attending meetings and\/or travel from BioMarin. Valerie Cormier-Daire has received payment or honoraria, support for attending meetings and\/or travel from BioMarin. S\u00e9rgio B Sousa has received payment or honoraria, support for attending meetings and\/or travel and has participated in Advisory Boards for BioMarin. Encarna Guillen-Navarro has received payment or honoraria, support for attending meetings and\/or travel from BioMarin. Florian Innig has received grants or contracts paid to BKMF e.V from BioMarin. Melita Irving has received grants or contracts and consulting fees from BioMarin, QED\/Bridge Bio, Ascendis, Sanofi, Tyra, NovoNordisk; and payment or honoraria from BioMarin; and has participated in Advisory Boards for BioMarin and QED\/BridgeBio. Philip Kunkel has received payment or honoraria, support for attending meetings and\/or travel from BioMarin. Mohamad Maghnie has received consulting fees, payment or honoraria, support for attending meetings and\/or travel and has participated in Advisory Boards for BioMarin. Klaus Mohnike has received consulting fees from BioMarin and NovoNordisk, payment or honoraria from Kyowa-Kirin, support for attending meetings and\/or travel from BioMarin, has participated in Advisory Boards for QED and is Vice-Chair of BKMJ. Geert Mortier has received payment or honoraria and support for attending meetings and\/or travel from BioMarin, and has participated in Advisory Boards for Sanofi. Zagorka Pejin has received consulting fees and payment or honoraria from Orthofix Italy and Newclip France; support for attending meetings and\/or travel from Orthofix Italy, and patents planned, issued or pending with Orthofix Italy. Marco Sessa has received grants or contracts paid to AISAC OdV from BioMarin and QED.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of Interest"}},{"value":"This article is based on previously conducted studies and does not contain any new studies with human participants or animals performed by any of the authors.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical Approval"}}]}}